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Effects of self-management education for persons with Parkinson's disease and their care partners: a qualitative observational study in clinical care
Linköpings universitet.
Linköpings universitet.
Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences.ORCID iD: 0000-0003-2174-372X
Linköpings universitet.
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2020 (English)In: Nursing and Health Sciences, ISSN 1441-0745, E-ISSN 1442-2018, Vol. 22, no 3, p. 741-748Article in journal (Refereed) Published
Abstract [en]

Persons with Parkinson's disease and their care partners want support from healthcare to develop the skills to handle everyday life with disease. Earlier findings indicate that participants of the self-management program Swedish National Parkinson School experience several benefits of the program. The purpose of this qualitative observational study was to explore if participants had implemented the strategies of self-monitoring included in the program, and use them to communicate health care status and needs in clinical encounters. Data was collected 3-15 months after participation in the program and analysed using constant comparative analysis. Three categories were evident: "Self-observation in everyday life", "Self-care activities to promote health" and "Managing emotional impact of Parkinson's Disease". Categories were linked together in a core category that highlight the use of self-management strategies described by participants during clinical encounters. Results confirmed that persons with Parkinson's disease and care partners use the techniques of self-observation in their everyday lives. Observations of effects in clinical care can be a valuable approach to evaluate the outcomes educational interventions and their benefits for individuals and health care. This article is protected by copyright. All rights reserved.

Place, publisher, year, edition, pages
2020. Vol. 22, no 3, p. 741-748
Keywords [en]
Parkinson disease, clinical care, follow-up studies, patient education, qualitative research, self-management
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hkr:diva-20538DOI: 10.1111/nhs.12721ISI: 000528855600001PubMedID: 32270898OAI: oai:DiVA.org:hkr-20538DiVA, id: diva2:1423263
Available from: 2020-04-14 Created: 2020-04-14 Last updated: 2021-01-14Bibliographically approved

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Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and EducationDepartment of Nursing and Integrated Health Sciences
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CiteExportLink to record
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