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  • 51.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Omvårdnad vid kognitiv svikt2011In: Kognitiv medicin / [ed] Wahlund, Lara-Olof; Nilsson, Christer; Wallin, Anders, Stockholm: Norstedts Förlag, 2011, p. 418-429Chapter in book (Other (popular science, discussion, etc.))
  • 52.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Palliativ vård till äldre personer inom kommunal vård och omsorg2012In: Ä : en tidning för Riksföreningen sjuksköterskan inom äldrevård : geriatriker, dietister inom geriatrik samt alla professioner runt den äldre patienten, ISSN 2001-1164, no 1, p. 11-13Article in journal (Other academic)
  • 53.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II.
    Palliativ vård ur ett kommunalt perspektiv2013Conference paper (Other academic)
  • 54.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Palliativ vård vid särskilt boende: svårigheter och möjligheter2013Other (Other academic)
  • 55.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Personcentrerad omvårdnad2011In: Att möta personer med demens / [ed] Anna-Karin Edberg, Lund: Studentlitteratur, 2011, 2, p. 151-169Chapter in book (Other academic)
  • 56.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Research Platform for Collaboration for Health.
    På väg mot en personcentrerad demensvård2011In: Från äldreboende till medicinsk forskning / [ed] Frimurarstiftelsen, Stockholm: Konung Gustaf V:s och drottning Victorias frimurarestiftelse , 2011, 1Chapter in book (Other (popular science, discussion, etc.))
  • 57.
    Edberg, Anna-Karin
    Vårdalsinstitutet.
    Ålder som kriterium för prioriteringar inom hälso- och sjukvård2007In: Vårdalnytt, no 2Article in journal (Other academic)
  • 58.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Anderson, Katrina
    Australien.
    Orrung Wallin, Anneli
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II.
    Bird, Mike
    Storbritannien.
    The development of the strain in dementia care scale (SDCS)2015In: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 27, no 12, p. 2017-2030Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Though many staff gain satisfaction from working with people with dementia in residential facilities, they also experience significant stress. This is a serious issue because this in turn can affect the quality of care. There is, however, a lack of instruments to measure staff strain in the dementia-specific residential care environment, and the aim of this study, accordingly, was to develop the "Strain in Dementia Care Scale."

    METHODS: The instrument was developed in three steps. In the first step, items were derived from six focus group discussions with 35 nurses in the United Kingdom, Australia, and Sweden concerning their experience of strain. In the second step, a preliminary 64-item scale was distributed to 927 dementia care staff in Australia and Sweden, which, based on exploratory factor analysis, resulted in a 29-item scale. In the final step, the 29-item scale was distributed to a new sample of 346 staff in Sweden, and the results were subjected to confirmatory factor analysis.

    RESULTS: The final scale comprised the following 27 items producing a five-factor solution: Frustrated empathy; difficulties understanding and interpreting; balancing competing needs; balancing emotional involvement; and lack of recognition.

    CONCLUSIONS: The scale can be used (a) as an outcome measurement in residential care intervention studies; (b) to help residential facilities identify interventions needed to improve staff well-being, and, by extension, those they care for; and ((c) to generally make more salient the critical issue of staff strain and the importance of ameliorating it.)

  • 59.
    Edberg, Anna-Karin
    et al.
    Department of Health Sciences, and the Vårdal Institute, Lund University.
    Bird, Mike
    NSW Greater Southern Area Health Service and National Australian University , Canberra, Australia.
    Richards, David A.
    Department of Health Sciences , University of York , United Kingdom.
    Woods, Robert
    School of Psychology, University of Wales Bangor , United Kingdom.
    Keeley, Philip
    School of Nursing, Midwifery and Social Work, The University of Manchester , United Kingdom.
    Davis-Quarrell, Vivienne
    School of Psychology, University of Wales Bangor , United Kingdom.
    Strain in nursing care of people with dementia: nurses' experience in Australia, Sweden and United Kingdom2008In: Aging & Mental Health, ISSN 1360-7863, E-ISSN 1364-6915, Vol. 12, no 2, p. 236-243Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES:

    The aim of this study was to explore nurses' experience of strain in dementia care.

    METHOD:

    Focus groups were held with 35 nurses in Sweden, Australia and UK, who care for people with dementia. The discussions were tape-recorded and analysed using qualitative content analysis.

    RESULTS:

    The nurses described the complexity of their situation and referred to environmental factors such as 'the system', community attitudes, other staff, residents' family members and also their own family. With regard to caring for people with dementia, three main sources of strain could be identified: Being unable to reach; Trying to protect; and Having to balance competing needs.

    CONCLUSION:

    The nurses' experience could be understood as a desire to do the best for the people in their care by trying to alleviate their suffering and enhance their quality of life. When they did not have the resources, opportunity or ability to do this, it caused strain.

  • 60.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Molander, Ulla
    Sahlgrenska Universitetssjukhuset.
    Wijk, Helle
    Göteborgs universitet & Sahlgrenska Universitetssjukhuset.
    Sund-Levander, Märta
    Linköpings Universitet.
    Ernsth Bravell, Marie
    Jönköping University.
    Vanliga symtom hos äldre2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 355-395Chapter in book (Other academic)
  • 61.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Bolmsjö, Ingrid
    Malmö University.
    Exploring existential loneliness among frail older people as a basis for an intervention: protocol for the development phase of the LONE study2019In: JMIR Research Protocols, ISSN 1929-0748, E-ISSN 1929-0748, Vol. 8, no 8Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: International research concerning end-of-life issues emphasizes the importance of health care professionals (HCPs) being prepared to deal with existential aspects, like loneliness, in order to provide adequate care. The last phase of life is often related to losses of different kinds, which might trigger feelings of isolation in general and existential loneliness (EL) in particular. There is a large body of research concerning loneliness among older people in general, but little is known about the phenomenon and concept of EL in old age.

    OBJECTIVE: This study aims to describe the framing, design, and first results of the exploratory phase of an intervention study focusing on EL among older people: the LONE study. This stage of the study corresponds to the development phase, according to the Medical Research Council framework for designing complex interventions.

    METHODS: The LONE study contains both theoretical and empirical studies concerning: (1) identifying the evidence base; (2) identifying and developing theory through individual and focus group interviews with frail older people, significant others, and HCPs; and (3) modeling process and outcomes for the intervention. This project involves sensitive issues that must be carefully reviewed. The topic in itself concerns a sensitive matter and the study group is vulnerable, therefore, an ethical consciousness will be applied throughout the project.

    RESULTS: The results so far show that EL means being disconnected from life and implies a feeling of being fundamentally separated from others and the world, whether or not one has family, friends, or other close acquaintances. Although significant others highlighted things such as lack of activities, not participating in a social environment, and giving up on life as aspects of EL, the older people themselves highlighted a sense of meaningless waiting, a longing for a deeper connectedness, and restricted freedom as their origins of EL. The views of HCPs on the origin of EL, the place of care, and their own role differed between contexts.

    CONCLUSIONS: The studies focusing on identifying the evidence base and developing theory are published. These results will now be used to identify potential intervention components, barriers, and enablers for the implementation of an intervention aimed at supporting HCPs in encountering EL among older people.

  • 62.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Department of Health Sciences.
    Edfors, Ellinor
    Kristianstad University, Department of Health Sciences.
    Nursing care for people with frontal-lobe dementia: difficulties and possibilities2008In: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 20, no 2, p. 361-374Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Nursing care for people with dementia diseases affecting the frontal lobes places special demands on staff, but there is little information available about how best to tailor nursing care. The aim of this study was to describe nurses' experience of difficulties and possibilities in caring for people with dementia diseases with frontal-lobe dysfunction.METHOD: The study was carried out as a descriptive qualitative study. Data collected during interviews with nursing staff (n = 10) were analyzed using qualitative content analysis.RESULTS: The difficulties experienced were related to the patients' lack of inhibition and judgment, anxiety, agitation, reduced ability to deal with physical needs, egocentricity, imbalance between rest and activity and depressed mood. The possibilities were seen in relation to the nursing staff's professional encounters, characterized as being clear and consistent, a step ahead, flexible, calm and creating a positive atmosphere, close and trusting and being and doing things together. Continuous feedback and support were prerequisites for the engagement of the staff.CONCLUSION: Nursing care in this context involves ethical issues whereby the residents' integrity must be balanced against a safe and secure environment. Nursing care is a sensitive but also demanding task, where nurses' actions can reduce the negative effects of the disease. It is therefore important to support staff in nursing care so they are able to manage their work and reduce the risk of emotional exhaustion.

  • 63.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Edfors, Ellinor
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsmiljön PRO-CARE.
    Ericsson, E.
    Ernsth Bravell, M.
    Nobis, R.
    Wijk, H.
    Specialistsjuksköterskan inom vård av äldre gör skillnad2013In: Ä : en tidning för Riksföreningen sjuksköterskan inom äldrevård : geriatriker, dietister inom geriatrik samt alla professioner runt den äldre patienten, ISSN 2001-1164, no 4, p. 33-36Article in journal (Other academic)
  • 64.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Ehrenberg, Anna
    Högskolan Dalarna.
    Friberg, Febe
    Universitetet i Stavanger.
    Wallin, Lars
    Högskolan Dalarna.
    Wijk, Helle
    Göteborgs universitet.
    Öhlén, Joakim
    Ersta Sköndal högskola.
    Introduktion2013In: Omvårdnad på avancerad nivå: kärnkompetenser inom sjuksköterskans specialistområden / [ed] Edberg, Anna-Karin; Ehrenberg, Anna; Friberg, Febe; Wallin, Lars; Wijk, Helle; Öhlén, Joakim, Lund: Studentlitteratur, 2013, , p. 264p. 15-27Chapter in book (Other academic)
  • 65.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health.
    Ehrenberg, AnnaHögskolan Dalarna.Friberg, FebeNorge.Wallin, LarsHögskolan Dalarna.Wijk, HelleGöteborgs universitet.Öhlén, JoakimErsta Sköndal högskola.
    Omvårdnad på avancerad nivå: kärnkompetenser inom sjuksköterskans specialistområden2013Collection (editor) (Other academic)
    Abstract [sv]

    Denna bok och webb är den efterfrågade och fristående fortsättningen på Omvårdnadens grunder. Redan före sin publicering har Omvårdnad på avancerad nivå varit känd för många under det lekfulla arbetsnamnet Omvårdnadens höjder. Innehållet är två sammanflätade delar: en tryckt bokdel och en digital webbdel. Den senare är helt unik i sitt slag. Ett åttiotal forskande och/eller kliniskt verksamma sjuksköterskor har skapat en digital artikelsamling som beskriver tillämpningen av avancerad omvårdnad inom respektive specialistområde. Webbmaterialet innehåller även sammanfattande ljudklipp, frågor samt den tryckta boken i sin helhet så att den kan läsas på exempelvis iPad. Detta är det första bokverket i Sverige som beskriver huvudområdet omvårdnad på avancerad nivå. Utgångspunkten är de sex kärnkompetenser som är gemensamma för alla professioner inom hälso- och sjukvården och som Svensk sjuksköterskeförening rekommenderar bör utgöra en röd tråd med progression genom utbildningarnas nivåer:

    • Personcentrerad vård
    • Samverkan i team
    • Evidensbaserad vård
    • Förbättringskunskap för kvalitetsutveckling
    • Säker vård 
    • Informations- och kommunikationsteknologi

    Tillsammans bildar bok och webb ett gemensamt och mångfaldigt innehåll för specialistsjuksköterskeutbildningarna. Avsikten är att skapa en grund för dessa utbildningar och deras motsvarigheter där omvårdnad på avancerad nivå kan beskrivas och problematiseras. Instruktioner för hur du kommer åt det digitala materialet finns på omslagets insida.

  • 66.
    Edberg, Anna-Karin
    et al.
    Lunds universitet.
    Ehrenberg, AnnaFriberg, FebeWallin, LarsWijk, HelleÖhlén, Joakim
    Omvårdnadens grunder: en specialutgåva för sjuksköterskor2010Collection (editor) (Other academic)
  • 67.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Elmståhl, Sölve
    Lunds universitet.
    Varför krävs ett  flervetenskapligt perspektiv på hälsa, vård och omsorg till äldre?2013In: Ä : en tidning för Riksföreningen sjuksköterskan inom äldrevård : geriatriker, dietister inom geriatrik samt alla professioner runt den äldre patienten, ISSN 2001-1164, no 1, p. 32-34Article in journal (Other academic)
  • 68.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Ericsson, Iréne
    Jönköping University.
    Kognitiv förmåga och svikt2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 405-427Chapter in book (Other academic)
  • 69.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Ericsson, Iréne
    Jönköping University.
    Gunnarsson, Evy
    Stockholms universitet.
    Psykisk ohälsa2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 433-455Chapter in book (Other academic)
  • 70.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Ernsth Bravell, Marie
    Hälsohögskolan Jönköping.
    Kompetensen måste höjas på särskilda boenden för äldre2013In: Läkartidningen, ISSN 0023-7205, E-ISSN 1652-7518, Vol. 110, no 45, p. 1984-1986Article in journal (Other academic)
    Abstract [en]

    Sweden of today demonstrates insufficient resources to provide the elderly population with health care of high quality. One of the weaknesses is the lack of geriatric competence and training, which may have serious implications for quality of care since the elderly individuals that currently live in nursing homes often: 1) suffer from multimorbidity and polypharmacy, 2) suffer from complex and extensive need of care and service, 3) often demonstrate cognitive impairments and 4) are in need of palliative care or end of life care.

  • 71.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society. Kristianstad University, Research Platform for Collaboration for Health.
    Landahl, Sten
    Hur du använder läkemedel2009In: Livslots för seniorer, Stockholm: Hjälpmedelsinstitutet , 2009, 1, p. 65-75Chapter in book (Other (popular science, discussion, etc.))
  • 72.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Lilja Andersson, Petra
    Lund University.
    The shift from a medical to a nursing orientation: a comparison of Swedish nursing students' expectations when entering the nursing degree programme in 2003 and 20132015In: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 35, no 9, p. e78-e83Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: The focus of education in nursing has changed over time with a decreased focus on biomedicine and an increased focus on nursing science. It is therefore important to investigate whether these changes are also reflected in the students' conceptions and expectations of the programme over time.

    OBJECTIVES: The aim of the study was to describe and compare two cohorts of students entering the nursing programme with 10year in between (2003 and 2013), regarding their demographic background, reasons for wanting to become a registered nurse, expectations of the programme and perceptions of the nursing profession.

    DESIGN AND SETTING: The study was a descriptive cross-sectional cohort study carried out at a university in southern Sweden.

    PARTICIPANTS: In all, 177 nursing students participated in the study, 89 from the 2003 cohort and 88 from the 2013 cohort.

    METHODS: Data were collected at the start of the programme using a questionnaire consisting of predefined and open-ended questions. The responses were statistically analysed and compared.

    RESULTS: The students' reasons for wanting to become a registered nurse remained stable over the 10-year period. The main reason stated by the students in both cohort was humanitarian, i. e wanting to help others. The students' expectations regarding both the programme and the nursing profession had, however, changed significantly from a biomedical to a nursing orientation in the 10-year perspective.

    CONCLUSIONS: The change in the students' preconceptions of the nursing education towards increasing importance of nursing science indicates the beginning of a paradigm shift.

  • 73.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society. Kristianstad University, Research Platform for Collaboration for Health.
    Moyle, Wendy
    Brisbane, Australien.
    Chan, Sally
    Singapore.
    The IPA complete guides to Behavioural and Psychological Symtoms of Dementia, BPSD: Nurses guide2012Book (Other academic)
  • 74.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Törnquist, Agneta
    Stockholms universitet.
    Hasson, Henna
    Karolinska Institutet.
    Sjuksköterskans roll som ledare i kommunal vård och omsorg2014In: Omvårdnadens grunder: ansvar och utveckling / [ed] Ehrenberg, Anna; Wallin, Lars, Lund: Studentlitteratur AB, 2014, 2, p. 279-294Chapter in book (Other (popular science, discussion, etc.))
  • 75.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Wijk, HelleGöteborgs universitet.
    Omvårdnadens grunder: hälsa och ohälsa2014Collection (editor) (Other (popular science, discussion, etc.))
    Abstract [sv]

    Omvårdnadens grunder – Hälsa och ohälsa belyser omvårdnadens betydelse ur såväl ett salutogent och förebyggande, som ett behandlande och vårdande perspektiv. I boken har 33 svenska forskare bidragit med beskrivningar av det aktuella kunskapsläget utifrån sin egen, och andras, forskning inom respektive område. Flertalet författare är sjuksköterskor med doktorsexamen.

    Boken består dels av kapitel som fokuserar på hur man kan stärka patientens hälsa och välbefinnande, dels av kapitel som fokuserar på omvårdnad vid olika besvär. De kapitel som fokuserar på hälsa och välbefinnande handlar exempelvis om hur man kan stödja delaktighet och känslan av sammanhang samt vikten av en god miljö för omvårdnadens genomförande. De kapitel som fokuserar på omvårdnad vid olika besvär handlar exempelvis om sjuksköterskans bedömning och åtgärder, både generellt enligt omvårdnadsprocessens olika steg vid akuta situationer, men även vid olika vanligt förekommande symtom och tecken på ohälsa. Varje kapitel inleds med en övergripande beskrivning av området, orsaker till patientens besvär samt patientens upplevelse. Därefter följer en beskrivning av hur sjuksköterskan kan bedöma och hjälpa patienten med fokus på evidensbaserade omvårdnadsåtgärder.

    Omvårdnadens grunder består av totalt tre publikationer utan inbördes ordning: Perspektiv och förhållningssätt, Ansvar och utveckling samt Hälsa och ohälsa. I första hand är böckerna avsedda som kurslitteratur för sjuksköterskestudenter på grundläggande nivå, men även kliniskt verksamma sjuksköterskor och andra yrkesgrupper inom hälso- och sjukvården har nytta av böckerna. Instruktioner för hur man kommer åt det digitala materialet finns på omslagets insida.

  • 76.
    Edberg, Anna-Karin
    et al.
    Lunds universitet.
    Wijk, HelleSahlgrenska Akademin, Göteborgs universitet.
    Omvårdnadens grunder: hälsa och ohälsa2009Collection (editor) (Other academic)
  • 77.
    Ernsth Bravell, Marie
    et al.
    Jönköping University.
    Christiansen, Mats
    Karolinska Institutet.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Åldrandets olika dimensioner2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 107-150Chapter in book (Other academic)
  • 78.
    Ernsth Bravell, Marie
    et al.
    Jönköping University.
    Dahlin Ivanoff, Synneve
    Göteborgs universitet.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Äldres komplexa vårdbehov2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 219-232Chapter in book (Other academic)
  • 79.
    Ernsth Bravell, Marie
    et al.
    Jönköping University.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Äldres hälsa och välbefinnande2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 159-181Chapter in book (Other academic)
  • 80.
    Ernsth Bravell, Marie
    et al.
    Jönköping University.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Den förändrade kroppen2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 203-215Chapter in book (Other academic)
  • 81. Gibson, Maggie C
    et al.
    Carter, Mary W
    Helmes, Edward
    Edberg, Anna-Karin
    Department of Health Sciences, Lund University, Lund.
    Principles of good care for long-term care facilities.2010In: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 22, no 7, p. 1072-83Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: The International Psychogeriatric Association Task Force on Mental Health Services in Long-Term Care Facilities aims to support and strengthen mental health services in the long-term care sector. The purpose of this paper is to identify broad principles that may underpin the drive towards meeting the mental health needs of residents of long-term care facilities and their families, as well as to enhance the overall delivery of residential care services.

    METHODS: Principles of good care are extrapolated from an analysis of international consensus documents and existing guidelines and discussed in relation to the research and practice literature.

    RESULTS: Although the attention to principles is limited, this review reveals an emerging consensus that: (1) residential care should be situated within a continuum of services which are accessible on the basis of need; (2) there should be an explicit focus on quality of care in long-term care facilities; and (3) quality of life for the residents of these facilities should be a primary objective. We take a broad perspective on the challenges associated with actualizing each of these principles, taking into consideration key issues for families, facilities, systems and societies.

    CONCLUSIONS: Recommendations for practice, policy and advocacy to establish an internationally endorsed principles-based framework for the evolution and development of good mental health care within long-term care facilities are provided.

  • 82.
    Gustafsson, Susanne
    et al.
    Gothenburg University.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Dahlin-Ivanoff, Synneve
    Gothenburg University.
    Swedish health care professionals' view of frailty in older persons2012In: Journal of Applied Gerontology, ISSN 0733-4648, E-ISSN 1552-4523, Vol. 31, no 5, p. 622-640Article in journal (Refereed)
    Abstract [en]

    There is a paucity of research literature concerning frailty in older persons from the health care professionals' perspective. Consequently, the purpose of this study was to elucidate health care professionals' view of frailty in older persons. An explorative, qualitative design was selected and four focus groups comprising 21 health care professionals were conducted, audiotaped, transcribed verbatim, and analyzed. Frailty was found to consist of seven dimensions: "being bodily weak and ill," "being negatively influenced by personal qualities," "lacking balance in everyday activities," "being dependent in everyday life," "not being considered important," "being hindered by the physical milieu and defective community service," and "having an inadequate social network." The results showed that health care professionals' view of frailty in older persons differed from the current state of knowledge on frailty. This implies that the seven dimensions found to constitute frailty could contribute to a more comprehensive understanding of the concept.

  • 83.
    Gustafsson, Susanne
    et al.
    Institute of Neuroscience and Physiology/Occupational Therapy, The Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.
    Edberg, Anna-Karin
    Vårdalsinstitutet och Lunds universitet.
    Johansson, Boo
    Department of Psychology, University of Gothenburg, Gothenburg, Sweden.
    Dahlin-Ivanoff, Synneve
    The Vårdal Institute, The Swedish Institute for Health Science, University of Gothenburg, Gothenburg, Sweden.
    Multi-component health promotion and disease prevention for community-dwelling frail elderly persons: a systematic review2009In: European Journal of Ageing, ISSN 1613-9372, E-ISSN 1613-9380, Vol. 6, no 4, p. 315-329Article, review/survey (Refereed)
    Abstract [en]

    The objective was to investigate definitions of frailty used in studies of multi-component health promotion and disease-preventive (HPDP) intervention programmes for community-dwelling frail elderly persons and to review the content, organisation and effects of HPDP interventions. A systematic review of 19 articles was made, and the International Classification of Functioning, Disability and Health (ICF) was used as a structural framework for the analysis. The result shows that a consensus was reached on including various aspects of impairments in body functions and structures as an integral part of the frailty concept, with the exception of one subgroup: mental/cognitive functions. Additionally, opinions varied quite consistently regarding aspects of activity limitations and participation restrictions, personal and environmental factors. Ten of the 14 HPDP programmes covered various intervention elements referring to all four ICF components. Eleven programmes involved registered personnel only, while a more divergent pattern was seen in the remaining organisational aspects of the interventions: length of interventions and location plus age segments, participatory approach and contextual information, as well as the theoretical foundation of the interventions. Measures of body functions and structures were significantly improved in 5 out of 17 (29%) targeted aspects. For activity and participation, 12 out of 32 (38%) targeted aspects were positively changed, while the score for environmental factors was 7 out of 22 (32%), and for personal factors 8 out of 22 (36%). Our review suggests that further research is needed to explore and disentangle the complex interrelationships between various interventions and outcomes.

  • 84.
    Gustafsson, Susanne
    et al.
    Department of Clinical Neuroscience and Rehabilitation, The Sahlgrenska Academy at the University of Gothenburg.
    Eklund, Kajsa
    Department of Clinical Neuroscience and Rehabilitation, The Sahlgrenska Academy at the University of Gothenburg.
    Wilhelmson, Katarina
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Gothenburg/Lund.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Johansson, Boo
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Gothenburg/Lund.
    Häggblom Kronlöf, Greta
    Department of Clinical Neuroscience and Rehabilitation, The Sahlgrenska Academy at the University of Gothenburg.
    Gosman-Hedström, Gunilla
    Department of Clinical Neuroscience and Rehabilitation, The Sahlgrenska Academy at the University of Gothenburg.
    Dahlin-Ivanoff, Synneve
    Department of Clinical Neuroscience and Rehabilitation, The Sahlgrenska Academy at the University of Gothenburg.
    Long-term outcome for ADL following the health-promoting RCT: elderly persons in the risk zone2013In: The Gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 53, no 4, p. 654-663Article in journal (Refereed)
    Abstract [en]

    Purpose: To examine independence in activities of daily living (ADL) at the 1- and 2-year follow-ups of the health-promoting study Elderly Persons in the Risk Zone.

    Design and Method: A randomized, three-armed, single-blind, and controlled study. A representative sample of 459 independent and community-dwelling older adults, 80 years and older, were included. A preventive home visit was compared with four weekly multiprofessional senior group meetings including a follow-up home visit.

    Results: Analysis showed a significant difference in favor of the senior meetings in postponing dependence in ADL at the 1-year follow-up (odds ratio [OR] = 1.92, 95% confidence interval [CI] = 1.19–3.10) and also in reducing dependence in three (OR = 0.52, 95% CI = 0.31–0.86) and four or more ADL (OR = 0.40, 95% CI = 0.22–0.72) at the 2-year follow-up. A preventive home visit reduced dependence in two (OR = 0.40, 95% CI = 0.24–0.68) and three or more ADL (OR = 0.37, 95% CI = 0.17–0.80) after 1 year.

    Implications: A long-term evaluation of Elderly Persons in the Risk Zone showed that both senior meetings and a preventive home visit reduced the extent of dependence in ADL after 1 year. The senior meetings were superior to a preventive home visit since additional significant effects were seen after 2 years. To further enhance the long-term effects of the senior meetings and support the process of self-change in health behavior, it is suggested that booster sessions might be a good way of reinforcing the intervention.

  • 85.
    Holst, Göran
    et al.
    Blekinge Institute of Technology, School of Health Sciences, Karlskrona.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Wellbeing among people with dementia and their next of kin over a period of 3 years2011In: Scandinavian Journal of Caring Sciences, Vol. 25, no 3, p. 549-557Article in journal (Refereed)
    Abstract [en]

    Little is known about the dyadic experience over time of people with dementia and their next of kin. The aim of this study was to investigate the state of mind of people with dementia, their next of kin's experience of burden and satisfaction, and factors associated with these experiences over a 3-year period. The sample consisted of 32 people with dementia living at home with family caregivers in the south of Sweden. Data were collected during the period 2004-2007 and consisted of patients self reports (GDS), dementia nurse assessment (MMSE, Berger and ADL) and next-of-kin assessment (patient's state of mind and care provision). Data also consisted of next-of-kin's self reports concerning health, burden and satisfaction. The result showed that patients' state of mind was mainly positive at baseline but a deterioration was seen over time in the patient's mood and cognitive functioning together with an increase in ADL-dependency and suspected depression. Dependency in personal ADL entailed a higher risk of being in a negative state of mind. For next of kin the experience of burden increased while satisfaction decreased over the 3 years. The inter-relationship between the patients' mood and the caregiver's satisfaction and burden seems to get stronger over time. At baseline caregiver burden was mainly related to the next of kins' general health and to patient behaviours that were difficult to handle. During the progression of the disease caregiver satisfaction becomes increasingly related to patient state of mind and dependency. There is, however, a need for more research focusing on the specific inter-relational aspects as previous studies have mainly focused on either the situation for the person with dementia or on the caregiver.

  • 86.
    Hommel, A
    et al.
    Malmö högskola.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Ekman, Inger
    Göteborgs universitet.
    Gunningberg, Lena
    Uppsala universitet.
    Rasmussen, B
    Lunds universitet.
    Strömberg, Anna
    Linköpings universitet.
    Wallin, Lars
    Högskolan Dalarna.
    Wengström, Y
    Karolinska institutet.
    Westergren, Albert
    Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Öhlén, J
    Ersta Sköndal högskola.
    Lägg förslaget om förändrad utbildning i papperskorgen2016In: Dagens medicin, ISSN 1104-7488Article in journal (Other (popular science, discussion, etc.))
    Abstract [sv]

    Skapa specialist­utbild­ningar för sjuksköterskor som motsvarar vårdens behov både i dag och i framtiden, skriver Ami Hommel, ordförande Svensk sjuksköterskeförening, och nio vårdprofessorer.

  • 87.
    Hommel, Ami
    et al.
    Malmö Högskola.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Ekman, Inger
    Göteborgs universitet.
    Gunningberg, Lena
    Uppsala universitet.
    Kristensson Hallström, Inger
    Lunds universitet.
    Rasumssen, Birgit
    Lunds universitet.
    Strömberg, Anna
    Linköpings universitet.
    Wallin, Lars
    Högskolan Dalarna.
    Westergren, Albert
    Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Öhlén, Joakim
    Göteborgs universitet.
    Öka satsningarna på forskning i omvårdnad2017In: Dagens Medicin, ISSN 1104-7488, no 19 januariArticle in journal (Other (popular science, discussion, etc.))
    Abstract [sv]

    Långsiktiga satsningar för välfärdsforskning är bra, men för att nå ända fram och minimera hälsoklyftorna är det nödvändigt att även forskning inom omvårdnad prioriteras, skriver tio debattörer.

  • 88.
    Hovde, Boel
    et al.
    Lunds universitet.
    Hallberg, Ingalill R.
    Lunds universitet.
    Edberg, Anna-Karin
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Older immigrants' experiences of their life situation in the context of receiving public care in Sweden2008In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 3, no 2, p. 104-112Article in journal (Refereed)
    Abstract [en]

    Objectives.  The aim of this study was to illuminate older immigrants' experience of their life situation in the context of receiving public care in Sweden. Background.  To meet the varying needs from the growing number of older immigrants, more knowledge about the experience of their life situation, health, illness and family ties is needed, especially in the context of receiving public health care and service. Methods.  Data were collected through interviews with sixteen immigrants aged 65 years and older, originally from nine different countries, living in Southern Sweden and receiving continuous care and service. The texts were analysed using qualitative content analysis. Results.  The overall impression from the texts was that the informants expressed a debt of gratitude to Swedish society. Their experience could be understood as - being burdened with health complaints; experiencing painful losses; wanting to manage by oneself and feeling exposed and deserted. Conclusions.  The results show that older immigrants are vulnerable when receiving public care. This was related to previous life events, cultural differences as well as communication difficulties. When planning for and providing care for older immigrants, it is important to be aware of their exposed situation and to acknowledge their life history and family context.

  • 89.
    Hovde, Boel
    et al.
    Department of Health Sciences, Lund University.
    Rahm Hallberg, Ingalill
    Department of Health Sciences, Lund University.
    Edberg, Anna-Karin
    Department of Health Sciences, Lund University.
    Public care among older non-Nordic immigrants in Sweden in comparison with Nordic born controls2008In: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 28, no 90, p. 9-13Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe the formal care provided by the municipality and the staff’s description of care-related needs among non-Nordic older immigrants compared to older Nordic-born persons in Sweden. A further aim was to describe the occurrence of informal care provided. Cross-sectional data were collected concerning 111 non-Nordic immigrants from the longitudinal study «Good Ageing in Skåne» (GAS). Comparisons were made between them and a group consisting of Nordic born older people (n=111) with the same age and gender distribution. The findings showed that the non-Nordic immigrants to a higher extent cohabited with children or partners, had family members employed as caregivers, received help with Instrumental Activities in Daily Living (IADL) and Personal Activities in Daily Living (PADL) from their family, received more rehabilitation at home and more daytime home health care and were reported to have special care needs than the comparison group. Furthermore, the health care personnel had less knowledge about the non-Nordic immigrants, which in turn could mean that they do not receive the care they need.

  • 90.
    Karlsson, Staffan
    et al.
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Edberg, Anna-Karin
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Hallberg, Ingalill Rahm
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Professional's and older person's assessments of functional ability, health complaints and received care and service: a descriptive study2010In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 47, no 10, p. 1217-1227Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: The aim of the study was to investigate the level of agreement between the needs assessment made by professional on the one hand, and the older person's views on the other. A further aim was to explore if the estimations made by the professional were systematically lower or higher compared to the views of the older person.

    PARTICIPANTS: The study included 152 individuals, 65+, who received public care and services in southern Sweden. The concept public care and services include home help, home nursing care, rehabilitation and special accommodation.

    METHODS: Standardised needs assessments were performed by home help officers, registered nurses and one physiotherapist. Subsequently to the needs assessment, the older person's view was collected in a personal interview. Standardised assessment form was used covering items about demographic data, functional ability, health complaints, adaptation in housing, public and informal care. The concept informal care includes care from spouse and children. Cohen's Kappa was used for analysis of level of agreement and Chi-square tests for differences in estimation.

    RESULTS: Level of agreement for dependency in instrumental activities of daily living (IADL) and personal activities of daily living (PADL) varied between good (kappa=0.78) and moderate (kappa=0.43). Poor agreement was found for occurrence of dizziness (kappa(w)=0.17) and fair agreement for impaired hearing (kappa(w)=0.27), urinary incontinence (kappa(w)=0.38), pain (kappa(w)=0.21), anxiety (kappa(w)=0.37) and depressed mood (kappa(w)=0.37). Older persons reported more health complaints than in the professional's assessments, significantly lower estimation was found for incontinence and vision. Level of agreement for provided public care at home (home help and home nursing care) was poor, for informal care it varied between very good and moderate.

    CONCLUSIONS: Needs assessments appeared to focus on older persons ADL, cognition and informal care, while health complaints and social needs were less in focus. A more comprehensive view including preventive and palliative approach may improve quality of life for older persons receiving care and service.

  • 91.
    Karlsson, Staffan
    et al.
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Edberg, Anna-Karin
    The Vårdal Institute, The Swedish Institute for Health Sciences, Lund.
    Jakobsson, Ulf
    Center for Primary Health Care Research, Lund University.
    Hallberg, Ingalill R
    The Vårdal Institute, The Swedish Institute for Health Sciences, Lund University.
    Care satisfaction among older people receiving public care and service at home or in special accommodation2013In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 22, no 3-4, p. 318-330Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVES: To explore care satisfaction in relation to place of living, health-related quality of life, functional dependency and health complaints among people 65 years or older, receiving public care and service. The concept public care and service concerns formal care from the municipality, including home help, home nursing care, rehabilitation and a special accommodation.

    BACKGROUND: To be able to provide care and service of high quality to older people, knowledge about factors influencing their experience of satisfaction with the care is essential.

    DESIGN: Cross-sectional, including comparison and correlation.

    METHODS: One-hundred sixty-six people receiving public care and service from the municipality were interviewed regarding demography, functional ability, perceived health complaints and care. Health-related quality of life was measured with SF-12, and self-rated care satisfaction was measured with a questionnaire.

    RESULTS: Low self-rated care satisfaction was associated with dependency in Instrumental Activities of Daily Living, blindness, faeces incontinence and anxiety, while high self-rated care satisfaction was associated with dependency in Personal Activities of Daily Living. Those at home rated an overall higher care satisfaction and were more satisfied with care continuity and personal relations; they thought that the staff had more time and were more respectful and quiet, than the ratings by those in a special accommodation (equivalent to a nursing home).

    CONCLUSIONS: Care satisfaction and health-related quality of life among older people was more associated with functional impairment and health complaints than to whether care and service was received at home or in a special accommodation.

    RELEVANCE TO CLINICAL PRACTICE: An approach using intervention focused on functional ability and health complaints is important for development of improved care satisfaction for older people receiving public care and service.

  • 92.
    Karlsson, Staffan
    et al.
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Edberg, Anna-Karin
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Westergren, Albert
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Hallberg, Ingalill Rahm
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Functional ability and health complaints among older people with a combination of public and informal care vs. public care only2008In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 22, no 1, p. 136-148Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to investigate functional ability and health complaints of people, 65+, living in special accommodation (equivalent to nursing home) and their counterparts who live at home and receive municipal care or a combination of municipal and informal care. Persons (n = 1958) receiving municipal care were assessed in terms of functional ability, health complaints, and level of informal and municipal care and services. The results showed that more home care, services and help with Instrumental Activities of Daily Living (IADL) were provided to those receiving only municipal care at home, while more home care and services associated with Personal Activities of Daily Living (PADL) as well as nursing care were provided to those receiving informal care in addition to formal care. Cohabitation was a predictor of a combination of municipal and informal care in the home (OR: 5.935), while assistance with IADL provided by municipal home care and services predicted municipal care only (OR: 0.344). Care in special accommodation was predicted by advanced age (OR: 1.051), dependency in IADL (OR: 19.883) and PADL (OR: 2.695), and impaired cognitive ability (OR: 3.849) with receiving municipal care only as a reference. Living alone (OR: 0.106), dependency in IADL (OR: 11.348) and PADL (OR: 2.506), impaired cognitive ability (OR: 3.448), impaired vision or blindness (OR: 1.812) and the absence of slowly healing wounds (OR: 0.407) were predictors of special accommodation with a combination of informal and municipal care at home as a reference. The distribution of municipal care divided older people into three distinct groups. The most frail and elderly people who had no cohabitants received care in special accommodation, determined by their level of physical and cognitive dependency. The frailest individuals living at home were cohabiting and received a combination of municipal and informal care, while those who were less dependent mainly had help with IADL from municipal care only. The results indicate that there is a shift from the substitution to the complementary model and highlights that attention to the family carers is needed.

  • 93.
    Karlsson, Staffan
    et al.
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Edberg, Anna-Karin
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Westergren, Albert
    Research and Development Unit, Central Hospital, Kristianstad.
    Hallberg, Ingalill Rahm
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Older people receiving public long-term care in relation to consumption of medical health care and informal care2008In: The Open Geriatric Medicine Journal, ISSN 1874-8279, Vol. 1, p. 1-9Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to investigate medical health care and informal care consumption among older people receiving public long-term care, and factors associated with medical health care consumption. 1958 persons aged 65 years and over were included. Data were collected from two registers, including demography, functional ability and received long-term, informal and medical health care. 35% of those at home were admitted to hospital and 76% had contact with outpatient care by physician compared to 26% and 87% respectively of those in special accommodation. Living in special accommodation was associated with more contacts with primary health care and fewer contacts with specialist care other than psychiatric care. Informal care was associated with more contacts with primary health care, specialist care, admissions to and days in hospital. More elderly people being cared for at home may mean more hospital and outpatient care consumption.

  • 94.
    Karlsson, Staffan
    et al.
    Lunds universitet.
    Ekström, Henrik
    Lunds universitet.
    Westergren, Albert
    Lunds universitet.
    Edberg, Anna-Karin
    Lunds universitet.
    Elmståhl, Sölve
    Lunds universitet.
    Rahm Hallberg, Ingalill
    Lunds universitet.
    Analys och utveckling av system för registrering av vårdbehov och vårdinsatser till äldre i kommunal vård och omsorg: En delstudie i SNAC Rapport 22003Report (Other academic)
    Abstract [sv]

    Den offentliga statistiken inom äldreomsorgsområdet är för närvarande begränsad till mängdstatistik (Statistik - socialtjänst 2000:5, Socialstyrelsen 2000 och Hälso- och sjukvårdsstatistisk årsbok 1999, Socialstyrelsen 2000). Från denna statistik erhålles uppgifter om antalet äldre som får vård och hjälp fördelade på ålder, kön och vårdinsats samt vårdkostnader. För att få insikt i äldreomsorgssystemets måluppfyllelse, funktionssätt, effektivitet och kvalitet krävs en mer systematisk och individbaserad ansats än den som mängdstatistik kan erbjuda. I Region Skåne finns sedan tio år tillbaka ett välutvecklat patientadministrativt system, PASiS. I Skånes 33 kommuner används olika system för registrering av individdata inom omsorg och hälso- och sjukvård. Kunskapen är för närvarande begränsad om vilken typ av information som dokumenteras och finns att tillgå om äldre i vård och omsorg på kommunal nivå, delvis också på landstingsnivå. Projektets syfte var att inventera och analysera befintliga registreringssystem samt att utveckla en gemensam och komplementär dataterminologi, att användas vid planering av vård och omsorg. Vidare att utveckla ett system som möjliggör sammanlänkning av relevanta data mellan olika vårdaktörer och föreslå säkerhetslösningar som skyddar vårdtagarens integritet och anonymitet. Fältstudier bedrevs i fem kommuner, Eslöv, Hässleholm, Malmö och Osby, samt i Region Skåne där befintliga registreringssystem inventerades och analyserade. Resultatet visade stora olikheter i dokumentation mellan kommunerna. Dokumentationen förekom mestadels i fri text och varierade i omfattning och innehåll. Standardiserade instrument för behovs- och funktionsbedömning saknades. Manuella och datoriserade system användes. Informationsöverföring mellan respektive kommun och Region Skåne gjordes manuellt när vårdtagaren flyttades mellan huvudmännen. Två kommuner, Hässleholm, Osby, hade vidareutvecklat blanketter för informationsöverföring. Inom projektets ram utvecklades ett formulär, baserat på inventering av vårdsystem, litteraturstudier och diskussioner i en expertgrupp, som beskriver den äldres behov av vård och omsorg, beslut och planering samt insatta och förändrade åtgärder. Formuläret testades i en pilotstudie. I utvärderingen av pilotstudien framkom bl.a. att biståndshandläggare och distriktssköterskor var den adekvata målgruppen att ansvara för registrering av vård och omsorg. Det standardiserade formuläret omfattar sex delområden; administrativa uppgifter, persondata, omgivningsfaktorer, vårdberoende, nuvarande och pågående insatser, särskilda sjukvårdsinsatser, samt informell vård. I registreringen av vård och omsorg har det ingått äldre över 65 år som erhåller varaktiga insatser från kommun och/eller landsting. Efter den inledande undersökningen har formuläret utvärderats av personal inom vård och omsorg i de fem kommunerna. Skriftligt informerat samtycke har inhämtats från de äldre som ingår i studien. Vid sammankoppling av individbaserad statistik mellan aktuella kommuner och Region Skåne och för användning i forskning gäller särskilda sekretessbestämmelser och informerat samtycke från de äldre som ingår i studien krävs. Datainsamlingen har genomförts i två steg; baseline som genomfördes under cirka 6 månader med registrering av äldre med pågående vård och omsorg, och därefter påbörjades kontinuerlig registrering. De första registreringarna av vård och omsorg i baslinjeundersökningen gjordes manuellt. Dataprogram är under vidareutveckling för att möta kravet på samordnad dokumentation om äldres vård och omsorg i kommunerna. En integrering av de variabler som ingår i formuläret för registrering av vård och omsorg har genomförts. För att underlätta hanteringen finns det elektroniskt internetbaserade formuläret tillgängligt via lösenordsförfarande på en lokal server vid Institutionen för Omvårdnad, Lunds Universitet. I en av kommunerna, Malmö, tillämpas ett nytt dataprogram som innehåller dokumentation av samtliga variabler som ingår i det utarbetade formuläret och medger dokumentation från samtliga verksamheter inom kommunal vård och omsorg. Insamlat material utgör databasen med uppgifter om äldres vård och omsorg i kommunerna och i förhållande till vård i Region Skåne. I databasen kommer det att vara möjligt att följa vårdtagare på individnivå inom den kommunala vården och vårdtagare som förflyttas mellan kommunal vård och vård i Region Skåne. Informationen i databasen kan användas av beslutsfattare och handläggare i kommuner och i Region Skåne, samt vidare analyseras och utvecklas genom nya forskningsansatser.

  • 95.
    Kerstin, Blomqvist
    et al.
    Högskolan Kalmar.
    Edberg, Anna-KarinKristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap.
    Att vara äldre: "... man har ju sina krämpor ..."2004Collection (editor) (Other academic)
  • 96.
    Krantz, Oskar
    et al.
    The Vårdal Institute and Department of Health Sciences, Lund University.
    Edberg, Anna-Karin
    The Vårdal Institute and Department of Health Sciences, Lund University.
    Persson, Dennis
    Department of Health Sciences, Faculty of Medicine, Lund University.
    The Experience of Active Wheelchair Provision and Aspects of Importance Concerning the Wheelchair Among Experienced Users in Sweden2011In: The Review of Disability Studies, ISSN 1552-9215, Vol. 7, no 2, p. 21-37Article in journal (Refereed)
    Abstract [en]

    This qualitative study describes the experience of active ultra lightweight rigid frame wheelchairs (active wheelchairs) provision. Eleven interviews with experienced users showed that the wheelchair should support physical as well as social functioning, but that users experienced injustice and unfairness when negotiating their wheelchair needs and felt insecure within the system. Changes of attitudes and organization are suggested.

  • 97.
    Larsson, Helena
    et al.
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health. Malmö University.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Bolmsjö, Ingrid
    Malmö University.
    Rämgård, Margareta
    Malmö University.
    Contrasts in older persons' experiences and significant others' perceptions of existential loneliness2019In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 26, no 6, p. 1623-1637Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: As frail older people might have difficulties in expressing themselves, their needs are often interpreted by others, for example, by significant others, whose information health care staff often have to rely on. This, in turn, can put health care staff in ethically difficult situations, where they have to choose between alternative courses of action. One aspect that might be especially difficult to express is that of existential loneliness. We have only sparse knowledge about whether, and in what way, the views of frail older persons and their significant others concerning existential loneliness are in concordance.

    OBJECTIVE: To contrast frail older (>75) persons' experiences with their significant others' perceptions of existential loneliness.

    METHODS: A case study design was chosen for this study. Individual interviews with frail older persons (n = 15) and interviews with their significant others (n = 19), as well as field notes, served as a basis for the study. A thematic analysis was used to interpret data. Ethical considerations: This study was conducted in accordance with the principles of research ethics.

    FINDINGS: The findings showed three themes: (1) Meaningless waiting in contrast to lack of activities, (2) Longing for a deeper connectedness in contrast to not participating in a social environment and (3) Restricted freedom in contrast to given up on life.

    DISCUSSION: Knowledge about the tensions between older persons' and their significant others' views of existential loneliness could be of use as a basis for ethical reflections on the care of older people and in the encounter with their significant others.

    CONCLUSION: It is of importance that health care professionals listen to both the frail older person and their significant other(s) and be aware of whose voice that the care given is based on, in order to provide care that is beneficial and not to the detriment of the older person.

  • 98.
    Lilja Andersson, Petra
    et al.
    Lunds universitet.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Research Platform for Collaboration for Health.
    Ethical aspects of undergoing a predictive testing for Huntington's disease2014Conference paper (Refereed)
  • 99.
    Lilja Andersson, Petra
    et al.
    Department of Health Sciences, Lund University.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Swedish nursing students' experience of aspects important for their learning process and their ability to handle the complexity of the nursing degree program2012In: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 32, no 4, p. 453-457Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to explore nursing students' experiences of aspects important for their learning process and their ability to handle the complexity of the nursing degree program. The study was longitudinal and qualitative based on interviews with nursing students, six women and two men aged 20-36, during their three years of education. In all, seven patterns were found embracing aspects of importance for the students' learning: Having a clear goal, being able to re-evaluate one's ideas, being acknowledged, when the abstract becomes tangible, using one's own experiences as a tool for learning, hovering between closeness and distance regarding one's future profession and handling theory and practice in relation to one another. The results show the importance of providing clinical courses, strongly connected to the theoretical parts of the program and to use reflection and experience-based learning in the nursing program.

  • 100.
    Lilja Andersson, Petra
    et al.
    Kristianstad University, School of Health and Society.
    Edberg, Anna-Karin
    Department of Health Sciences, Lund University.
    The nursing programme in the rear-view mirror: interviews with Swedish nurses one year after their graduation2010In: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 30, no 8, p. 747-751Article in journal (Refereed)
    Abstract [en]

    In order to increase the understanding of how students assimilate the knowledge they need to carry out their professional duties, knowledge about the experience of the nursing education in the light of the first year of employment is important. The aim of this study was to describe nurses' views of their education, one year after their graduation. Interviews with eight nurses, aged 24 to 40 years, were analysed using manifest qualitative content analysis. The results show that, when viewing their education in the rear-view mirror, they emphasised the importance of the applied courses but had started to acknowledge the importance of training in scientific methods, which during their education was seen as less important. They also stated that their training in medical science had been sufficient, although during their education they expressed doubts about whether this level of knowledge would be enough. The nurses also realised that knowledge concerning the subject of nursing science afforded them both opportunities and the potential possibilities to influence nursing care provision. The study indicates that nursing education gives the students the tools they need to perform their assignments as registered nurses, even if clinical experience is required to internalise and consolidate the knowledge.

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