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  • 51.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Stress och nedstämdhet hos ungdomar2019In: Skolsköterskans hälsofrämjande arbete / [ed] Eva K Clausson, Siv Morberg, Lund: Studentlitteratur AB, 2019, 2, p. 241-252Chapter in book (Other academic)
  • 52.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Stress, smärta och läkemedel2019In: Skolhälsan, ISSN 0284-284X, no 1, p. 18-Article in journal (Other (popular science, discussion, etc.))
    Abstract [sv]

    Över hälften av flickorna och en tredjedel av pojkarna på gymnasiet har ofta huvudvärk, magkont eller ryggsmärta. Elever som dessutom känner sig nedstämda använder smärtstillande läkemedel i högre utsträckning. 

  • 53.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Sömn hos barn och ungdomar: vad vet vi och vad kan vi göra?2019In: Skolsköterskans hälsofrämjande arbete / [ed] Eva K Clausson, Siv Morberg, Lund: Studentlitteratur AB, 2019, 2, p. 253-265Chapter in book (Other academic)
  • 54.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Sömn och hälsa2019Collection (editor) (Other academic)
  • 55.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Sömn och hälsa2019Collection (editor) (Other academic)
    Abstract [sv]

    Tidskriften Sömn och Hälsa ges ut av Nätverket Sömn och Hälsa i Svensk Sjuksköterskeförening i samarbete med Forskningsplattformen Hälsa i Samverkan vid Högskolan Kristianstad. Syftet med tidskriften är att sprida praktiknära kunskap om sömn och hälsa. Tidskriften ges ut två gånger per år. Artiklar är tillgängliga open access via databasen Diva. 

  • 56.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Lunds universitet.
    Sömn och hälsa: conference proceeding 20192019Conference proceedings (editor) (Other academic)
  • 57.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Sömnvanor hos barn och ungdomar2019In: Sömn och hälsa, ISSN 2003-234X, no 2, p. 61-67Article in journal (Other academic)
    Abstract [sv]

    Barn behöver sova för att må bra. Samtidigt finns många faktorer som kan störa sömnen. Läkemedelsverkets dokument ”Sömnstörningar hos barn” kartlägger ungas sömnbehov, och ger också handfasta tips till barnfamiljer som drabbats av sömnproblem. 

  • 58.
    Garmy, Pernilla
    et al.
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Clausson, Eva
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    DISA: ett skolbaserat program som förebygger depressiva symtom hos ungdomar2018Conference paper (Other academic)
    Abstract [sv]

    DISA – ett skolbaserat program som förebygger depressiva symtom hos ungdomar

    Pernilla Garmya,b, Eva K Claussona, Agneta Berga, Katarina Steen Carlsson b, och Ulf Jakobsson b

    a Fakulteten för Hälsovetenskaper, Högskolan Kristianstad

    b Medicinska fakulteten, Lunds universitet

    Kontakt: pernilla.garmy@hkr.se

    Vad är DISA?

    DISA är ett skolbaserat program som bygger på tekniker hämtade från kognitiv beteendeterapi, och leds av skolsköterskor, kuratorer och lärare. Programmet ges under skoltid, vid ett tillfälle á 2 timmar i veckan under 10 veckor i årskurs 8.

     

    Fungerar DISA?

    Syftet var att undersöka användbarheten och kostnadseffektiviteten av det skolbaserade programmet DISA vas mål är att förebygga stress och depressiva symtom hos ungdomar.

     

    Hur genomfördes studien?

    Deltagande eleverna gick i årskurs 8 (medianålder: 14 år). 462 elever deltog i DISA (79% flickor) och 486 elever gick i jämförelseskolor och deltog därför inte i DISA (46% flickor). Eleverna besvarade enkäter om sin självskattade hälsa vid start och avslut av DISA, samt efter ett år. Eleverna i jämförelseskolorna besvarade enkäter vid samma intervaller.

     

    Resultat:

    Självskattade depressiva symtom minskade och den självskattade hälsan ökade hos de elever som deltagit i DISA i signifikant större utsträckning än hos de som inte deltagit i DISA.

     

    Slutsats:

    Resultatet tyder på att DISA minskar depressiva symtom och stärker ungdomars självskattade hälsa. Kostnaden är låg i förhållande till dess effekt, vilket indikerar att DISA kan anses vara kostnadseffektivt.

    Referens:

    Garmy, P., Clausson, EK., Berg, A., Steen Carlsson K., Jakobsson, U. (2017) Evaluation of a school-based cognitive behavioral depression prevention program. Scand J Public Health. doi: 10.1177/1403494817746537. [Epub ahead of print]

    https://www.ncbi.nlm.nih.gov/pubmed/29226799

  • 59.
    Garmy, Pernilla
    et al.
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Clausson, Eva
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    För lite sömn och lång skärmtid har samband med övervikt hos skolbarn2018Conference paper (Other academic)
    Abstract [sv]

    För lite sömn och lång skärmtid har samband med övervikt hos skolbarn

    Pernilla Garmya,b, Eva K Claussona, Per Nyberg b, och Ulf Jakobsson b

    a Fakulteten för Hälsovetenskaper, Högskolan Kristianstad

    b Medicinska fakulteten, Lunds universitet

     

    Kontakt: pernilla.garmy@hkr.se

     

    Syfte: I studien undersöktes sömn, tv och datorvanor, och övervikt hos elever i årskurs 4.

    Metod: I denna tvärsnittsstudie besvarade 1260 tio-åriga skolbarn en enkät som sömn och medievanor i samband med hälsosamtalet hos skolsköterskan i årskurs 4. I samband med detta besök vägdes och mättes även 1097 av barnen. Beskrivande och analytisk statistik användes.

    Resultat:

    • I genomsnitt sov barnen 9½ timma på skolnätter.
    • Ungefär 40 % av barnen rapporterade att de sov mindre än 9 timmar per natt.
    • I genomsnitt gick barnen och lade sig klockan 21:00 på vardagkvällar, och en timma senare på helgen.
    • I genomsnitt tillbringade barnen 1 timma vid tv:n och 1 timma vid datorn varje dag.
    • Förekomsten av övervikt (inklusive fetma) var 18%.
    • Rekommendationen för skolbarn är att sova minst 9 timmar per natt, och kortare sömn än 9 timmar på skolnätter var associerat med övervikt, och skärmtid mer än 2 timmar per dag, samt sömnsvårigheter och trötthet i skolan.

    Slutsats: Skolbarn som får för lite sömn har större risk för att ha en övervikt och att spendera mycket tid framför tv och dator. Skolsköterskor har en viktig uppgift att lyfta betydelsen av sunda sömnvanor och rimliga skärmvanor.

     

    Referens:

    Garmy, P., Clausson EK., Nyberg P., Jakobsson U. (2018) Insufficient Sleep is Associated with Obesity and Excessive Screen time Amongst Ten-year-old Children in Sweden. Journal of Pediatric Nursing. doi: 10.1016/j.pedn.2017.11.009.

    https://www.ncbi.nlm.nih.gov/pubmed/29157744

  • 60.
    Garmy, Pernilla
    et al.
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Clausson, Eva
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Nyberg, Per
    Lund University.
    Jakobsson, Ulf
    Lund University.
    Insufficient sleep is associated with obesity and excessive screen time amongst ten-year-old children in Sweden2018In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 39Article in journal (Refereed)
    Abstract [en]

    PURPOSE: This study investigated sleep, television, computer habits, and obesity in school-age children.

    DESIGN AND METHODS: This was a cross-sectional self-report survey of 1260 children in grade 4 (mean age, 10.1) living in southern Sweden (49.1% boys). The heights and weights of 1097 (87.1%) of the children were recorded. Descriptive statistics, bivariate analyses, and multiple logistic regression were employed.

    RESULTS: The median length of self-reported sleep on weeknights was 9.5h. Approximately 40% of the children reported receiving <9h of sleep. The median bedtime was 9PM (21:00). On weekends, the median bedtime was 1 h later, and they delayed getting up by 1.5h. The median time spent watching TV and using a computer was 1 h each. The prevalence of being overweight (including obesity) was 18%. Insufficient sleep (<9h) was associated with being overweight, watching TV, or using a computer for two or more hours each day, difficulty falling asleep, and being tired at school.

    CONCLUSIONS: School-age children who receive less sleep are more likely to be overweight and report excessive television and computer use. A strong and urgent need exists to highlight the importance of healthy sleep and media habits. It is challenging for pediatric nurses and school nurses to teach children and their families about healthy sleep and media habits.

  • 61.
    Garmy, Pernilla
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hansson, Erika
    Kristianstad University, Faculty of Education, Avdelningen för psykologi.
    Vilhjalmsson, Runar
    Island.
    Kristjansdottir, Gudrun
    Island.
    Is there a link between analgesic use and bullying among children and adolescents?2019Conference paper (Refereed)
  • 62.
    Garmy, Pernilla
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Lund University.
    Hansson, Erika
    Kristianstad University, Faculty of Education, Avdelningen för psykologi.
    Vilhjálmsson, Rúnar
    Iceland.
    Kristjánsdóttir, Gudrún
    Iceland.
    Bullying, pain and analgesic use in school-age children2019In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 108, no 10, p. 1896-1900Article in journal (Refereed)
    Abstract [en]

    AIM: The aim of this study was to examine whether the self-reported use of analgesics is associated with being a victim of bullying.

    METHODS: This cross-sectional, school-based survey included all students in grades 6 (11 years old), 8 (13 years old) and 10 (15 years old) in Iceland (response rate: 84%; n = 11 018). The students filled out an anonymous standardised questionnaire: the Icelandic Contribution to the International Health Behavior in School-Aged Children (HBSC) Study.

    RESULTS: Being bullied was associated with increased use of analgesics even after controlling for self-reported pain.

    CONCLUSION: Bullying occurs in all schools, and its effects on health are pervasive. Interventions aimed at reducing bullying and promoting health in schools are important and may reduce the use of analgesics in adolescents.

  • 63.
    Garmy, Pernilla
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hedov, Gerth
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO).
    Einberg, Eva-Lena
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Att möta nya förutsättningar: så har vi utvecklat undervisningen i vardagspediatrik2018In: Högskolepedagogisk debatt, ISSN 2000-9216, no 2, p. 14-17Article in journal (Other academic)
  • 64.
    Garmy, Pernilla
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Idecrans, Therese
    Kristianstad University, Faculty of Health Science.
    Hertz, Malin
    Kristianstad University, Faculty of Health Science.
    Sollerhed, Ann-Christin
    Kristianstad University, Faculty of Education, Avdelningen för humaniora. Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO).
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Sömn, hälsa och nattliga skärmvanor hos tonåringar2019Conference paper (Refereed)
  • 65.
    Garmy, Pernilla
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Olsson Möller, Ulrika
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Forskningsmiljön Människa - Hälsa - Samhälle (MHS). Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Winberg, Cecilia
    Region Skåne.
    Magnusson, Lina
    Lunds universitet.
    Kalnak, Nelli
    Lunds universitet.
    Benefits of participating in mastermind groups2019In: Health Education and Care, ISSN 2398-8517, Vol. 4, p. 1-3Article in journal (Refereed)
    Abstract [en]

    The academic career path is seldom straightforward. Many health professionals and researchers face stress and uncertain employment opportunities. Joining a collegial support group, a so-called “mastermind” group, is one way to help navigate these challenges. We investigated postdoctoral researchers’ (N=16) experiences with participating in a mastermind group using an online survey. Four themes emerged from their responses: (I) A place that offers conversation in confidence; (II) An opportunity for personal and professional development; (III) A quality break and time for reflection, and (IV) Challenges experienced by mastermind group participants. This study establishes that taking part in a mastermind group can effectively help shift focus from the negative aspects of a challenge faced by its group members to the positive aspects of a potential solution.

  • 66.
    Garmy, Pernilla
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Olsson Möller, Ulrika
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Winberg, Cecilia
    Lunds universitet.
    Magnusson, Lina
    Lunds universitet, Göteborgs universitet.
    Kalnak, Nelli
    Lunds universitet.
    Experience of participating in a mastermind group2018Conference paper (Other academic)
  • 67.
    Garmy, Pernilla
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Rimfors, Fabian
    Kristianstad University.
    Att använda tolk inom barnhälsovården: en lärorik utmaning2018Other (Other (popular science, discussion, etc.))
  • 68.
    Garmy, Pernilla
    et al.
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Vilhjálmsson, Rúnar
    Island.
    Kristjánsdóttir, Guðrún
    Island.
    Bullying in school-aged children in Iceland: a cross-sectional study2018In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 38, p. 30-34Article in journal (Refereed)
    Abstract [en]

    PURPOSE: We describe the frequency and variations in bullying among a representative national sample of school-age children and examine whether sociodemographic characteristics are associated with bullying.

    DESIGN AND METHODS: This study is based on a cross-sectional school-based survey-the Icelandic contribution to the international research network Health Behaviour in School-aged Children (HBSC). The study population included all students in Iceland in grades 6, 8 and 10 (mean ages: 11, 13 and 15years, respectively) (participation rate: 84%; n=11,018). The students completed an anonymous standardized questionnaire administered in the classroom.

    RESULTS: The self-reported frequency of being victimized by bullying at least 2-3 times every month was 5.5%. A younger age, speaking a foreign language at home, not living with one's parents, and living in a rural area, were all associated with higher frequencies of being bullied.

    CONCLUSIONS: Despite efforts to reduce bullying in school, experiences of being victimized through bullying are still too common among Icelandic school-age children. Stakeholders and school health administrators should consider sociodemographic antecedents when planning interventions to reduce bullying at school.

  • 69.
    Garmy, Pernilla
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Jakobsson, Liselotte
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Experiences of cancer rehabilitation: a cross-sectional study2018In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, no 9-10, p. 2014-2021Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVES: To investigate the cancer rehabilitation experiences of working-age cancer survivors.

    BACKGROUND: Cancer survivors have extremely complex needs, spanning physical, vocational, and sexual domains. Although cancer rehabilitation services have been found to eliminate or reduce these strains, these services are often underutilized.

    DESIGN: A cross-sectional study design was employed.

    METHODS: A survey of persons over the age of 18 with a cancer diagnosis, enrolled in the Social Insurance Agency in a municipality in southern Sweden (n =168, 68% women) was conducted.

    RESULTS: Patients who used the cancer rehabilitation service (57%) were generally satisfied with it. Of participants, 26% reported not having received an offer of rehabilitation. Of those who reported that they received information about cancer rehabilitation services, most also reported that they received this information from a healthcare service professional (69%): for example, from the oncology nurse or the oncologist, whereas 20% claimed they received the information from the administrator of the Swedish Social Insurance Agency. A minority of children and family members of patients received support from the healthcare system.

    CONCLUSIONS: More efforts should be taken to reach patients in need of cancer rehabilitation. Additionally, more attention should be directed toward family members and young children.

    RELEVANCE TO CLINICAL PRACTICE: More than one in four patients claimed to not have received an offer of cancer rehabilitation, and an even greater number of patients claimed that their spouses and children had never received an offer for this service either. Hence, there is a communication barrier that needs to be overcome. Health providers should be aware that information needs to be repeated several times, and presented both orally and in writing. This article is protected by copyright. All rights reserved.

  • 70.
    Gaskin, Emma
    et al.
    England.
    Persson, Martin
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Williamson, Heidi
    England.
    Optimising appearance-related psychosocial care in European settings2015In: Journal of Aesthetic Nursing, ISSN 2050-3717, Vol. 4, no 8, p. 394-396Article in journal (Refereed)
  • 71.
    Green, Nina
    et al.
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Larsson, Martina
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Är jag mitt missbruk?: patienters upplevelse av mötet med sjukvårdspersonal inom somatisk vård2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Många patienter med substansbrukssyndrom lever ett utsatt och farofyllt liv, där de löper stor risk att drabbas av allvarliga sjukdomar som kan förvärras vid utebliven behandling. 2017 rapporterades det klagomål om ökade brister i bemötandet hos sjukvårdspersonal, främst inom somatiken. Tidigare forskning visar att ett dåligt bemötande från sjukvårdspersonal kan leda till att patienter avstår att söka vård. Detta blir problematiskt då sjukdomar förblir oupptäckta eller underbehandlad och därför blir det intressant att undersöka hur patienter med substansbrukssyndrom upplever mötet. Syfte: Syftet var att beskriva hur patienter med substansbrukssyndrom upplever mötet med sjukvårdspersonal inom somatisk vård. Metod: Studien genomfördes som en litteraturöversikt baserad på kvalitativa vetenskapliga artiklar. Resultat: Det framkom två huvudkategorier om hur patienter med substansbrukssyndrom erfar mötet med somatisk sjukvårdspersonal. Den ena är Upplevelsen av stigmatisering, där patienter på olika sätt känner sig dåligt bemötta av sjukvårdspersonal, vilket presenteras i underkategorierna Att bli särbehandlad, Att bli märkt och Att inte vilja söka vård. Den andra är Upplevelsen av förståelse, och utgörs av två underkategorier, vilka innehåller både positiva och negativa aspekter av Att bli missförståddalternativt Att bli förstådd, i sin sjukdom. Diskussion: I metoddiskussionen diskuteras bland annat huruvida studien svarar på syftet, i vilken utsträckning resultatet kan appliceras i andra vårdsammanhang, samt hur forskningsetiska ställningstagande har beaktats. Sammantaget anses litteraturöversiktens kvalité vara god. I resultatdiskussionen lyfts varför patienter väljer att inte söka vård, vad sjukvårdspersonalens kunskapsnivå har för betydelse i mötet med patienter med substansbrukssyndrom samt att detta diskuteras gentemot omvårdnadsteoretiska ansatser och annan forskning.

  • 72.
    Gruvebäck, Anders
    et al.
    Palliativt utvecklingscentrum, Lunds universitet, Region Skåne.
    Törnqvist, Kicki
    Palliativt utvecklingscentrum, Lunds universitet, Region Skåne.
    Olsson Möller, Ulrika
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Beck, Ingela
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Palliativt utvecklingscentrum, Lunds universitet, Region Skåne.
    Healthcare professionals' experiences of using IPOS in the care encounter2019Conference paper (Refereed)
  • 73.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Is the activities of daily living (ADL) section of the unified Parkinson’s disease rating scale valid for measuring ADL in Parkinson's disease?2017Conference paper (Other academic)
    Abstract [en]

    Parkinson’s disease (PD) is a progressive neurodegenerative disorder characterized by motor as well as non-motor symptoms. While available symptomatic therapy is effective, PD is associated with increasing disability and limitations in performance of activities of daily living (ADL). Maintaining and improving activity performance is therefore a major goal in available symptomatic therapy. The most commonly used rating scale for quantification of ADL outcomes is the ADL section (part II) of the Unified PD Rating Scale (UPDRS). However, the UPDRS II does not only include activity but also impairment items. The consequences of this does not appear to have been addressed from a measurement perspective. This paper describes results from Rasch Measurement Theory analyses of complete UPDRS II (full scale, Activity and Impairment) data (n=675-687). Results show poor fit of the full UPDRS II with, e.g., disordered response thresholds, significant misfit and DIF (reliability, 0.82). The 6 Activity items showed no disordered thresholds, significant misfit or DIF (reliability, 0.86), whereas Impairment items did (reliability, 0.51). In conclusion, dividing the UPDRS II into two scales improves ADL measurement, but alternative approaches are needed and the UPDRS II cannot be recommended for measuring ADL in PD as it may yield misleading outcomes.

  • 74.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Measuring activities of daily living in Parkinson's disease: on a road to nowhere and back again?2019In: Measurement, ISSN 0263-2241, E-ISSN 1873-412X, Vol. 132, p. 109-124Article in journal (Refereed)
    Abstract [en]

    Parkinson's disease (PD) is a progressive neurodegenerative disorder associated with increasing disability and limitations in performance of activities of daily living (ADL) despite availability of effective symptomatic therapy. Following an overview of classical test theory (CTT) and Rasch measurement theory (RMT), the case of a clinical PD trial aiming to demonstrate ADL improvements by using the ADL section (part II) of the Unified PD Rating Scale (UPDRS) to measure ADL outcomes is considered and central questions related to its validity and interpretation are addressed. It is found that while CTT did not detect any issues, RMT in combination with conceptual considerations seriously challenged the role of the UPDRS II as an ADL outcome measure. Results are discussed from historical, methodological and clinical perspectives. (C) 2018 Elsevier Ltd. All rights reserved.

  • 75.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Person-centered care, what is it and how can it be measured?2019In: Rheumatology, ISSN 1462-0324, E-ISSN 1462-0332, Vol. 58Article in journal (Other academic)
  • 76.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Role of the unified Parkinson’s disease rating scale as a tool for measuring clinical motor outcomes in Parkinson's disease2017Conference paper (Other academic)
    Abstract [en]

    Parkinson’s disease (PD) is a neurodegenerative disorder characterized by motor symptoms such as bradykinesia, rigidity, tremor and postural instability. Available therapy is symptomatic, although several approaches have been investigated as potential disease-modifying therapies. Clinical trial outcomes are typically measured by means of rating scales, of which the Unified PD Rating Scale (UPDRS) is the most commonly used, particularly part III, its motor examination section. Despite its central role, the UPDRS has not been examined regarding its role as a measurement instrument. This paper describes results from an analysis according to Rasch Measurement Theory (RMT) of 804 complete clinical UPDRS III assessments. Results show that the scale exhibits mistargeting, with the vast majority of people being located at the lower half (i.e., less severe symptoms) of its measurement range. Furthermore, evidence suggests multidimensionality as well as redundancy, and problems with the empirical functioning of rating scale categories. It is concluded that the UPDRS represents a clinical assessment tool rather than a measurement instrument, which may contribute to a range of missed opportunities regarding therapeutic developments as well as understanding of the disease itself. Potential remedies include separation into symptom specific scales and reconceptualization in order to expand its range of measurement.

  • 77.
    Hagell, Peter
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hariz, Gun-Marie
    Umeå University.
    Sandlund, Birgitta
    Skåne University Hospital.
    Direct dopaminergic responsiveness of activity performance2017In: Movement Disorders, 2017, Vol. 32, p. 460-460Conference paper (Other academic)
    Abstract [en]

    Objective: To assess the direct dopaminergic responsiveness of motor and process aspects of activity performance in people with parkinsonian disorders, and to compare this to the symptomatic motor response. 

    Background: Parkinsonian disorders are associated with limitations in daily activity performance. However, while the dopaminergic responsiveness of motor symptoms is well established, the direct dopaminergic responsiveness of aspects of activity performance appears unaddressed since assessments of activity performance typically are retrospective. This is a limitation since impairment (symptoms and signs) is a separate construct from activity limitations, and the latter is not only related to the former. 

    Methods: Twenty-seven people with parkinsonian disorders (18 men; mean age and disease duration, 68 and 8 years, respectively) underwent a clinical dopaminergic drug response test (median (range) L-dopa dose, 150 (100-300) mg) following 12 hours of dopaminergic drug withdrawal. Participants were tested according to the Unified PD Rating Scale (UPDRS) motor examination and the Assessment of Motor and Process Skills (AMPS) scale in the defined ”off” and best ”on” states. Similar to the UPDRS motor examination, AMPS ratings are based on direct observations of activity performance. Average ”off”, ”on” and change scores were compared, and magnitudes of responsiveness were estimated using Cohen’s dzeffect size (ES). Correlations between outcomes were also computed. 

    Results: Motor symptoms (mean UPDRS motor scores) improved from 36.2 in the defined “off” to 22.5 in the best “on” state, representing an ES of 0.74. Mean AMPS motor scores improved from 1.46 (defined “off”) to 2.34 (best “on”) and mean process scores improved from 1.37 to 1.85, representing ESs of 1.13 (motor) and 0.79 (process). Absolute correlations between UPDRS motor scores and AMPS motor/process scores ranged between 0.40-0.61 for defined “off”, best “on” and change scores.

    Conclusions: The dopaminergic responsiveness was more pronounced for activity performance than for motor symptoms, although motor symptom responsiveness was similar to that of process aspects of activity performance. Correlations suggest that symptomatic motor response is a relatively weak predictor of daily activity performance. These observations argue for the need to specifically address activity performance outcomes in clinical studies.

  • 78.
    Hagell, Peter
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Höglund, Arja
    Karolinska University Hospital.
    Hellqvist, Carina
    Linköping University Hospital.
    Johansson, Eva-Lena
    Karlstad Central Hospital.
    Löwed, Berit
    Karlstad Central Hospital.
    Sjöström, Ann-Christine
    Sahlgrenska University Hospital.
    Karlberg, Carina
    Sahlgrenska University Hospital.
    Lundgren, Maragreth
    Karolinska University Hospital.
    Dizdar, Nil
    Linköping University Hospital.
    Johansson, Anders
    Karolinska University Hospital.
    Willows, Thomas
    Karolinska University Hospital.
    Rådberg, Johan
    Karlstad Central Hospital.
    Bergquist, Filip
    Sahlgrenska University Hospital.
    Apomorphine formulation influences subcutaneous complications in continuous apomorphine pump therapy for Parkinson’s disease2017In: Movement Disorders, 2017Conference paper (Other academic)
    Abstract [en]

    Objective: To explore if the occurrence and severity of subcutaneous (sc) nodules is influenced by the pharmaceutical formulation of apomorphine used for sc infusion in advanced Parkinson’s disease (PD).

    Background: Apomorphine infusion is an effective therapy in advanced PD, but a limitation is troublesome sc nodules. Various chemically non-identical apomorphine formulations are available. Anecdotal clinical experience has suggested that shifting from one of these (Apo-Go PumpFill; apoGPF) to another (Apomorphine PharmSwed; apoPS, developed in Sweden) may influence the occurrence and severity of sc nodules.

    Methods: In this multicenter open-label prospective observational study, 15 people with advanced PD (mean PD- duration, 13.4 years; median Hoehn & Yahr, IV) on apoGPF since a mean of 2.1 years and with troublesome sc nodules were switched to apoPS. Ongoing interventions to treat existing nodules (ultrasound, massage, Hirudoid cream) continued, and apomorphine as well as other drugs was managed according to clinical routines. Data were collected between May 2015 and March 2017; at baseline, at the time of switching (about 2 weeks later), and up to 1.7-4.2 (mean, 2.5) months post-switch follow-up. Primary outcomes were total nodule numbers, size (mm diameter for the 5 worst nodules), consistency (scored 0-3 for the 5 worst nodules), and associated skin changes (scored 0-4 for the 5 worst nodules) and pain (scored 0-5). Patients also rated their perceived PD severity and motor complications (UPDRS IV). Patient preferences 5-12 months post-switch (2-9 months after follow-up) were also recorded.

    Results: Apomorphine and L-dopa doses did not change over the observation period (P≥0.400). Baseline nodule numbers (7.4 vs. 4.6; P<0.003), size (92.9 vs. 54.1 mm; P=0.016), consistency (11 vs. 5; P=0.003), skin changes (3 vs. 1.5; P=0.205), and average pain (1 vs. 0; P=0.020) improved 11 weeks post-switch. Patient-reported PD severity (P=0.020) and motor fluctuations improved (P=0.051), whereas dyskinesias tended to increase (P=0.205). At 5-12 months post-switch, 13 patients had decided to remain on apoPS; mainly due to improved nodules.

    Conclusions: These observations suggest that apoPS may have a better safety profile compared to apoGPF in terms of sc nodule occurrence and severity. There is a need for larger, randomized controlled studies for firmer conclusions.

  • 79.
    Hagell, Peter
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Nilsson, Maria
    Lund University.
    Chaudhuri, Ray
    England.
    Odin, Per
    Lund University.
    The non-motor symptoms questionnaire and non-motor symptoms scale for use in Sweden2017In: Movement Disorders, 2017, Vol. 32, p. 74-74Conference paper (Other academic)
    Abstract [en]

    Objective: To translate the Non-Motor Symptoms Questionnaire (NMSQ) and the Non-Motor Symptoms Scale (NMSS) into Swedish, and test their linguistic validity and user-friendliness.

    Background: Non-motor symptoms (NMS) are common but under recognized among people with Parkinson’sdisease (PwPD). The NMSQ and NMSS were developed to ease NMS detection and assessment. The NMSQ is a patient-reported checklist regarding the presence of 30 NMS. The NMSS is a clinician-administered interview based rating scale regarding the frequency and severity of 30 NMS. Both are widely used, but Swedish versions have been lacking.

    Methods: The English NMSQ and NMSS were translated into Swedish in two stages. First, Swedish translations were produced by a professional translator and 3 bilingual PD-clinicians. Second, translations were reviewed by 3 independent PD-clinicians, resulting in minor revisions. The subsequent Swedish versions were then field-tested by 4 PD-clinicians on 5 PwPD each (n=20; 15 men; mean age and PD duration 67.6 and 9 years; HY stages II-IV). Evaluations included user burden (completion time), content relevance, and easiness to understand and use.

    Results: PwPD completed the NMSQ in a mean (range) of 4.8 (2-8) minutes. NMSQ content was considered relevant by 19 PwPD; 19 found instructions easy to understand and 17 found items easy to understand and respond to. The NMSS was completed in 13 (8-25) minutes. All 4 clinicians considered NMSS contents as relevant and instructions easy to understand; 1 considered items easy to rate. Two clinicians reported NMSS items as easy to understand for PwPD, and 1 clinician reported items as easy to answer for PwPD. Two clinicians considered theNMSS “very much” or “moderately”, and 2 considered it “a little” useful for clinical research. One clinician considered the NMSS “moderately”, and 3 considered it “a little” useful for clinical practice, but none would use it themselves. Translators, reviewers and field-test clinicians highlighted ambiguities with the NMSS not related to the translation.

    Conclusions: The NMSQ and NMSS were translated into Swedish and the linguistic validity of both translations was supported. There was also support for the user-friendliness of the NMSQ, but not for the NMSS. Issues detected with the NMSS do not appear to be specific for the Swedish version. Further evaluations of the NMSS in larger samples are needed.

  • 80.
    Hagell, Peter
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Rouse, Mathew
    England.
    McKenna, Stephen P.
    England.
    Measuring the impact of caring for a family member with Alzheimer's disease2017Conference paper (Other academic)
  • 81.
    Hagell, Peter
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Rouse, Matthew
    England.
    McKenna, Stephen P.
    England.
    Measuring the impact of caring for a spouse with Alzheimer's disease: validation of the Alzheimer’s patient partners life impact questionnaire (APPLIQue)2018In: Journal of Applied Measurement, ISSN 1529-7713, Vol. 19, no 3Article in journal (Refereed)
    Abstract [en]

    Alzheimer’s disease (AD) is the most common form of dementia, characterized by cognitive, psychiatric and behavioral symptoms and increasing dependency. Family members typically assume increasing caregiving responsibilities, with considerable quality of life (QoL) impact. This article describes the testing of a needs-based QoL questionnaire for AD family caregivers. Initial analyses according to Rasch measurement theory suggested that items applied to spousal rather than non-spousal caregivers. Following removal of non-spousal responders, a 25-item questionnaire was identified that exhibited acceptable model fit, a mean (SD) person location of 0.194 (1.42) logits, residual correlations ≤0.173 and absence of DIF by age, gender or administration. Reliability was 0.85. This new measure, the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue), may fill an important gap in assessing the impact of AD on spousal caregivers and outcomes of interventions aimed at caregivers as well as persons with AD.

  • 82.
    Hagell, Peter
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hariz, Gun-Marie
    Umeå University.
    Hobart, Jeremy
    England.
    Wictorin, Klas
    Lund University.
    Measuring the impact of drug-induced dyskinesias in Parkinson’s disease: the PDYS-26 revisited2018In: International Conference on Probabilistic Models for Measurement, 2018Conference paper (Other academic)
    Abstract [en]

    BACKGROUND: Drug-induced dyskinesias (DID) are a common long-term complication of dopaminergic drug therapy for Parkinson’s disease (PD). The 26-item PD dyskinesia scale (PDYS-26) is a patient-reported rating scale intended to quantify the everyday impact of DID. However, its measurement properties have not been scrutinized since its development some 10 years ago.

    AIM: To examine the measurement properties of the PDYS-26 using Rasch Measurement Theory (RMT).

    DESIGN: The PDYS-26 was administered to people with PD and varying degrees of DID recruited from six Swedish (n=172) and three British (n=150) outpatient movement disorder clinics. RMT analyses were conducted using the RUMM2030 software.

    RESULTS: RMT model fit was generally good with only three items exhibiting relatively minor misfit. Response categories worked as intended and targeting was acceptable and reliability was 0.96. There was no differential item functioning (DIF) by age, PD duration or time, but three items exhibited DIF by country and one by sex, neither of which appear to notably bias person measurement. Item hierarchy review suggested a variable of dubious clinical/theoretical coherence. Therefore, a recently proposed three-dimensional reduced (21-item) PDYS version was explored. Results were similar to those from the original scale but with improved conceptual coherence, albeit with close to a 2- to 3-fold decrease in measurement precision. 

    SUMMARY AND IMPLICATIONS: The PDYS-26 appears useful for measuring the impact of DID, and yields sufficiently invariant measurement across core patient subgroups. Scale reconceptualization improves the meaning of scores, but at the cost of measurement uncertainty.

  • 83.
    Hansen, Monika
    et al.
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Klahn, Sofie
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    "Ett löfte är ett löfte": en litteraturstudie om närståendes upplevelser av palliativ vård i livets slutskede i hemmet2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Idag väljer allt fler att vårdas sista tiden i livet i hemmet, det innebär att den drabbades närstående involveras i olika grader av vården och detta kan resultera i stora förändringar hos de närstående. Att ge stöd till närstående är en av grundpelarna i den palliativa vården. Syfte: Var att beskriva närståendes upplevelser av palliativ vård i livets slutskede i hemmet. Metod: Studien var en allmänlitteraturöversikt och resultatet baseras på data utifrån elva vetenskapliga originalartiklar med kvalitativ ansats. Resultat: Utgörs av två kategorier och sex underkategorier. 1, Upplevelsen av en ny vardag vid livets slut i det egna hemmet, beskriver närståendes upplevelser av komplexitet av två roller samt upplevelsen av begränsningar och behov som sätts åt sidan. 2, Upplevelsen av en känslovåg i livet slutskede, beskriver känslor av maktlöshet, rädslor och ångest samt upplevelsen av hopp och trygghet vid livets slut. Diskussion: Närstående utsätts för en komplex situation av vården i livets slut. Närstående har svårt att känna välbefinnande och upplever en rädsla och ångest i livet slutskede. Dessutom finns risken att närstående själv drabbas av psykisk ohälsa. Vidare forskning behövs kring närståendes behov av stöd och insatser för att kunna förbättra deras livssituation i hemmet när palliativ vård i livets slutskede bedrivs.

  • 84. Hantoft, Jennie
    et al.
    Larsson, Linda
    Beck, Ingela
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Omvårdnadspersonals upplevelser av att möta döende äldre personer inom hemvården: en kvalitativ intervjustudie2018Report (Other academic)
    Abstract [sv]

    Äldre personers omvårdnadsbehov blir alltmer komplexa och majoriteten av de äldreönskar att få vård i hemmet den sista tiden i livet och att få lov att dö hemma. Vård aväldre personer med komplexa omvårdnadsbehov och vård i livets slut ställer särskildakrav på omvårdnadspersonal. Syftet med studien var att beskriva omvårdnadspersonalsupplevelser av att möta döende äldre personer inom hemvården. En kvalitativintervjustudie med induktiv ansats har använts för insamling av data. Tio semistruktureradeintervjuer genomfördes i en kommun i nordöstra Skåne som inkluderadehemvårdsområden både på landsbygd och i stadskärna. Resultatet består av följandekategorier: Att vara betydelsefull, Att känna sig otillräcklig, Att känna olust, Att kännalättnad och Att känna sorg och saknad. Omvårdnadspersonal behöver adekvat stödbåde från sjuksköterskan och från det tvärprofessionella teamet samt från organisationoch ledning. För att personalen ska kunna tillgodose döende äldres behov krävsresurser såsom stöd, handledning och ökat kunskapsstöd. Detta behövs för att personalenska kunna utföra god vård men även kunna bearbeta känslor för att utveckla ettempatiskt förhållningssätt när de möter döende äldre personen i hemmet.

  • 85.
    Heaney, Alice
    et al.
    England.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    McKenna, Stephen P.
    England.
    Measuring fatigue in Crohn’s disease: the importance of a coherent theoretical measurement model2017Conference paper (Other academic)
  • 86.
    Heaney, Alice
    et al.
    England.
    McKenna, Stephen P.
    England.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Sengupta, Raj
    England.
    Using Rasch analysis to determine the internal validity of the Bath Ankylosing Spondylitis Disease Activity Index (BASDAI)2018In: International Conference on Probabilistic Models for Measurement, 2018Conference paper (Other academic)
  • 87.
    Hedin, Gita
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health.
    Norell-Clarke, Annika
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Adolescent´s experiences of sleep and electronic media use2019Conference paper (Refereed)
  • 88.
    Hedin, Gita
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Norell-Clarke, Annika
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Adolescent´s experiences of sleep and electronic media use2019Conference paper (Refereed)
  • 89.
    Hellqvist, Carina
    et al.
    Linköping University Hospital.
    Dizdar, Nil
    Linköping University.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Berterö, Carina
    Linköping University.
    Sund Levander, Märta
    Linköping University.
    Improving self-management for persons with Parkinson's disease through education focusing on management of daily life: patients' and relatives' experience of the Swedish National Parkinson School.2018In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, no 19-20, p. 3719-3728Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVE: The two folded aim of this study was firstly to identify and describe experiences valuable for managing daily life after participation in the NPS self-management intervention. The second part was to explore the applicability of the Self- and family management framework by Grey and colleagues for persons with Parkinson's Disease and their relatives.

    BACKGROUND: The impact of PD is evident on the lives of both patients and relatives. The National Parkinson School (NPS) is a Swedish self-management program designed for patients and relatives, aiming at teaching strategies helpful for the ability of self-management, in order to promote life satisfaction.

    DESIGN: Qualitative explorative with inductive and deductive analysis.

    METHODS: Five group discussions with NPS participants were audio-recorded. Verbatim transcriptions were analysed inductively with thematic analysis according to Braun and Clarke, and the findings were then applied deductively to the existing model for patients with chronic disease.

    RESULTS: Through the first step of inductive analysis three themes capturing the meaning, value and experience of being a participant at the NPS were identified: Exchanging experiences and feeling support, Adjustment and acceptance of PD for managing daily life, and Promoting life satisfaction. The deductive analysis applied the inductive findings to the Self-and family management framework of chronically ill to explore the fit to persons with PD and relatives attending the NPS program.

    CONCLUSIONS: The NPS program is a promising approach for helping persons with PD and their relatives to achieve better self-management of disease and improved life satisfaction. Further evaluations of program outcomes in clinical practice are warranted.

    RELEVANCE OF CLINICAL PRACTICE: Self-management programs like the NPS is a promising approach in facilitating a positive mind-set and outlook on life and gain knowledge to understand, adapt and handle chronic disease, such as PD, better. This article is protected by copyright. All rights reserved.

  • 90.
    Hellström, Amanda
    et al.
    Linnaeus University.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Broström, Anders
    Jönköping University.
    Ulander, Martin
    Linköping University.
    Luik, Annemarie I
    University of Oxford.
    Espie, Colin A
    University of Oxford.
    Årestedt, Kristofer
    Linnaeus University.
    A classical test theory evaluation of the sleep condition indicator accounting for the ordinal nature of item response data2019In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 14, no 3Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Insomnia symptoms are common among young adults and affect about 5% to 26% of 19 to 34-year-olds. In addition, insomnia is associated with poor mental health and may affect daily performance. In research, as well as in clinical practice, sleep questionnaires are used to screen for and diagnose insomnia. However, most questionnaires are not developed according to current DSM-5 diagnostic criteria. An exception is the recently developed Sleep Condition Indicator (SCI), an eight-item scale screening for insomnia.

    AIM: The aim of this study was to perform a Classical Test Theory (CTT) based psychometric evaluation of the SCI in a sample of Swedish university students, by taking the ordinal nature of item level data into account.

    METHODS: The SCI was translated into Swedish and distributed online to undergraduate students at three Swedish universities, within programs of health, psychology, science or economy. Of 3673 invited students, 634 (mean age 26.9 years; SD = 7.4) completed the questionnaire that, in addition to the SCI, comprised other scales on sleep, stress, lifestyle and students' study environment. Data were analyzed according to CTT investigating data completeness, item homogeneity and unidimensionality.

    RESULTS: Polychoric based explorative factor analysis suggested unidimensionality of the SCI, and internal consistency was good (Cronbach's alpha, 0.91; ordinal alpha, 0.94). SCI scores correlated with the Insomnia Severity Index (-0.88) as well as with sleep quality (-0.85) and perceived stress (-0.50), supporting external construct validity.

    CONCLUSIONS: These observations support the integrity of the of the SCI. The SCI demonstrates sound CTT-based psychometric properties, supporting its use as an insomnia screening tool.

  • 91.
    Hena, Momota
    et al.
    Lund University.
    Leung, Cherry
    USA.
    Clausson, Eva
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Association of depressive symptoms with consumption of analgesics among adolescents2019In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 45, p. E19-E23Article in journal (Refereed)
    Abstract [en]

    PURPOSE: To investigate the prevalence of depressive symptoms, pain (headaches and stomachaches), and analgesic consumption in addition to the association between depressive symptoms and analgesic consumption among adolescents.

    DESIGN AND METHODS: This cross-sectional study was conducted in southern Sweden. The survey was distributed among students in grade 8 (aged 13-15 years, n = 878).

    RESULTS: The prevalence of depressive symptoms (Center for Epidemiological Studies Depression Scale ≥16) was 37% among girls and 13% among boys. The prevalence rate of analgesic consumption to ease headaches and/or stomachaches during the last several weeks was 57% among girls and 29% among boys. Depressive symptoms are significantly associated with analgesic consumption among adolescents even after controlling for pain.

    CONCLUSION: The knowledge that there is a higher use of analgesics in adolescents with depressive symptoms implies that healthcare professionals should focus on complex psychosocial problems, not only physiological pain, in adolescents.

    PRACTICE IMPLICATIONS: Over the counter analgesics are frequently used by adolescents. Head and stomachaches are common reasons for students to visit the school nurse and primary healthcare facility. School nurses and pediatric nurses have to be aware of the link between depressive symptoms and pain in addition to the higher use of analgesics in adolescents with depressive symptoms. It is important to reduce the cause of the pain in order to prevent depressive symptoms and also analgesic overuse.

    The full text will be freely available from 2020-01-31 09:26
  • 92.
    Hena, Momota
    et al.
    Lund University.
    Leung, Cherry
    USA.
    Clausson, Eva
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Prevalence and association of depressive symptoms with the consumption of analgesics among adolescents2018In: 10th Excellence in Pediatrics Conference—2018 Book of Abstracts, 2018, Vol. 5, p. 78-79, article id 191Conference paper (Other academic)
    Abstract [en]

    Introduction: Depression is a major cause of morbidity and disability worldwide, and according to the World Health Organization, it is the fourth leading cause of disease burden. Depression is a complex condition that can have disabling effects on an individual’s personal relationships, productivity and general health. A large group of youths are at risk for depression, which is more pervasive than normal teenage mood swings. The worldwide prevalence rate of depression among adolescents is approximately 4–8%. Depressive symptoms have a significant association with how physiological pain is perceived. In Sweden, non-prescribed over-the-counter (OTC) drugs have seen permitted since 2009. Therefore, analgesics like paracetamol and ibuprofen are available from retail shops for all customers, including adolescents. Studies on the use of OTC drugs in Sweden have revealed how Swedish teenagers can be vulnerable as new customers due to gaps in knowledge and misconceptions about OTC drugs.

    Purpose: The aim of this study is to investigate the prevalence of depressive symptoms, physiological pain and the consumption of analgesics, as well as the association between depressive symptoms and the consumption of analgesics among Swedish adolescents between 13 and 15 years old. The hypothesis of this study is that there is a correlation between depressive symptoms and analgesic intake among Swedish adolescents.

    Materials and Methods: This study was conducted in six municipalities in southern Sweden from 2012 to 2014. All schools with students in grade 8 were asked to participate in the study, and 21 of the 23 eligible schools agreed to participate. Questionnaires were distributed among the students, and consent responses were obtained. Depressive symptoms were measured by the Center for Epidemiological Studies Depression Scale (CES-D), scores ≥16.

    Results: The prevalence of depressive symptoms was 37% among girls and 13% among boys. The prevalence rate of consuming analgesics during the last weeks was 57% among girls and 29% among boys. A multivariate logistic regression showed that depressive symptoms are significantly associated with the consumption of analgesics among teenagers.

    Conclusion: This paper could contribute to the wider research scope in the global community in terms of how increasing use of OTC analgesics among adolescents might be a sign that the health care system should focus on their complex psychosocial problems. Further research should be done on what to target when supporting adolescents who are struggling with pain and higher consumption of analgesics to educate them about pain-management strategies.

  • 93.
    Herrström, Kerstin
    et al.
    Kristianstad University.
    Larsson, Stina
    Kristianstad University.
    Einberg, Eva-Lena
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Faculty of Health Science, Forskningsmiljön Människa - Hälsa - Samhälle (MHS).
    Nilsson, Marie
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Människa - Hälsa - Samhälle (MHS). Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health.
    Garmy, Pernilla
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health.
    Metodutveckling i litteraturbaserat examensarbete inom sjuksköterskeprogrammet2018Conference paper (Refereed)
  • 94.
    Holmgren, Linnéa
    et al.
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Eliasson, Eliasson
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Patientens upplevelser av informationen om Diabetes typ 22018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Diabetes typ 2 debuterar vanligen i vuxen ålder och många personer är omedvetna om att de haft sjukdomen under en längre tid när diagnostiseringen inträffar. Personen kan vid diagnostiseringstillfället uppleva en kris. Det är en krävande process att lära sig leva med en kronisk sjukdom och personen måste anamma en ny förståelse för kroppen. Detta medför att informationen om sjukdomen blir en nödvändig del för patienten. Sjuksköterskan måste här stötta patienten för att återta kontroll över situationen. För att sjuksköterskan ska kunna stödja patienter behövs kunskap om hur patienter upplever informationen. Syfte: Belysa hur patienter upplever informationen om diabetes typ 2.Metod: Litteraturstudie som bygger på tio vetenskapliga originalartiklar. Resultat: Två kategorier och fyra underkategorier framkom; Upplevelser av information vid diagnostiseringstillfället beskriver otydlig information skapar missnöje hos patienterna och att få personcentrerad vård har betydelse. Upplevelser av information genom sjukdomsförloppet beskriver grupputbildningar saknar den personcentrerade informationen och patienten söker sig till andra informationskällor för att uppnå förståelse. Diskussion: Genom subjektivitet och objektivitet, medvetenhet, empowerment och känslan av sammanhang diskuteras resultatet. Efter en patientens unika behov bör informationen anpassas så denne kan uppleva att informationen är hanterbar. Detta för en optimal och personcentrerad informationsöverföring mellan sjuksköterska och patient. Om fler fortlöpande utbildningar och diskussioner om informationshantering med tid för etisk reflektion ges till personal tror vi det kan påverka personalens förståelse och agerande för patientens hantering av information vid diabetes typ 2.

  • 95.
    Hommel, Ami
    et al.
    Malmö universitet.
    Ulfvarson, Johanna
    Karolinska institutet.
    Rasmussen, Birgit H
    Lunds universitet.
    Kristensson Hallström, Inger
    Lunds universitet.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Enarsson, Per
    Linnéuniversitetet.
    Silén, Marit
    Högskolan i Gävle.
    Ehrenberg, Anna
    Högskolan Dalarna.
    Forsberg, Anna
    Lunds universitet.
    Öhlén, Joakim
    Sahlgrenska akademien, GU.
    Ekman, Inger
    Sahlgrenska akademien, GU.
    Strömberg, Anna
    Linköpings universitet.
    Wijk, Helle
    Göteborgs universitet.
    Wåhlin, Ingrid
    Länssjukhuset i Kalmar.
    Wallin, Lars
    Högskolan Dalarna.
    Bölenius, Karin
    Umeå universitet.
    Dahl, Oili
    Karolinska institutet.
    Andersson, Eva
    Blekinge tekniska högskola.
    Sjuksköterskor bör ges chans till forskning2018In: Svenska DagbladetArticle in journal (Other (popular science, discussion, etc.))
  • 96.
    Håkansson, Carita
    et al.
    Lunds universitet.
    Wagman, Petra
    Jönköping universitet.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Construct validity of a revised version of the occupational balance questionnaire2019In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, p. 1-9Article in journal (Refereed)
    Abstract [en]

    Background: Occupational balance is fundamental to occupational therapy and occupational science. Therefore, the Occupational Balance Questionnaire (OBQ) was developed and has previously been found psychometrically valid according to classical test theory. Aim: To investigate the internal construct validity of the OBQ using Rasch measurement theory. Material and methods: Data from two general population samples were used to investigate the psychometric properties of the OBQ according to Rasch measurement theory. Results: The analyses identified problems with the current response scale and multidimensionality of two items. As a result, a revised version, the OBQ11, was suggested and exhibited response categories that worked properly, good reliability (0.92), model fit and measurement invariance across age and gender groups. The hierarchical item ordering was in agreement with previous research. Conclusion: The new OBQ11 satisfies the measurement criteria defined by the Rasch model. However, further studies of additional samples are needed to validate its generic properties. Significance: The purpose of the OBQ11 is to measure occupational balance of individuals or groups, and to identify aspects of occupational balance in need of improvement. Our observations suggest that the OBQ11 is a valid and promising complement to other instruments.

  • 97.
    Högberg, Cecilia
    et al.
    Ersta Sköndal Bräcke högskola.
    Alvariza, Anette
    Ersta Sköndal Bräcke högskola.
    Beck, Ingela
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Forskningsmiljön Människa - Hälsa - Samhälle (MHS). Palliativt utvecklingscentrum, Lunds universitet, Region Skåne.
    Patients' experiences of using the integrated palliative care outcome scale for a person-centered care: a qualitative study in the specialized palliative home-care context2019In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to explore patients' experiences of using the Integrated Palliative care Outcome Scale (IPOS) during specialized palliative home care. The study adopted a qualitative approach with an interpretive descriptive design. Interviews were performed with 10 patients, of whom a majority were diagnosed with incurable cancer. Our findings suggest that the use of IPOS as a basis for conversation promotes safe care by making the patients feel confident that the care provided was adapted to them which gives them a sense of safety. IPOS facilitated discussions between patients and nurses about care needs. The patients believed that using IPOS enabled reflection on their well-being and life situation. In conclusion, the study finds that using IPOS is beneficial and provide ways to enable person-centered care and with advantage could be used in specialized palliative home care. The results may help overcome barriers and facilitate the use of patient-reported outcome measures (PROMs). To enable the use of PROMs such as IPOS in palliative home care, nurses need education and opportunities to develop routines that enable patients' voice to be heard and thereby compose a basis for care.

  • 98.
    Höglund, Arja
    et al.
    Karolinska institutet.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Broman, Jan-Erik
    Uppsala universitet.
    Palhagen, Sven
    Karolinska institutet.
    Sorjonen, Kimmo
    Karolinska institutet.
    Fredrikson, Sten
    Karolinska institutet.
    A 10-year follow-up of excessive daytime sleepiness in Parkinson's disease2019In: Parkinson's Disease, ISSN 2090-8083, E-ISSN 2042-0080, Vol. 2019, article id 5708515Article in journal (Refereed)
    Abstract [en]

    Introduction. The aim of this prospective study was to investigate excessive daytime sleepiness (EDS) over time and in relation to other PD symptoms among people with Parkinson's disease (PD). Methods. Thirty participants younger than 65 years with PD were randomly selected. At inclusion, mean (SD) disease duration was 6.2 (4.8) years and median (min-max) severity of PD was classified as stage II (stages I-III) according to Hoehn and Yahr. Participants were followed annually for 10 years with clinical assessments of their PD status, medications, comorbidities, and a standardized interview about their sleep habits and occurrence of daytime sleepiness. EDS was assessed by the self-reported Epworth Sleepiness Scale (ESS). Seventeen participants completed the 10-year longitudinal follow-up. Results. Fifteen of 30 persons were classified to suffer from EDS (ESS > 10) at baseline. At the group level, EDS remained stable over 10 years and did not deteriorate in parallel with worsening of motor symptoms. Furthermore, EDS was associated with sleep quality, fatigue, anxiety, depression, and axial/postural/gait impairments. Conclusions. EDS did not worsen over 10 years, although other PD aspects did. EDS in PD seems to be a complex nonmotor symptom that is unrelated to deterioration of motor symptoms in PD.

  • 99.
    Johansson, Maurits
    et al.
    Lund University.
    Johansson, Per
    Lund University.
    Stomrud, Erik
    Lund University.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hansson, Oskar
    Lund University.
    Psychometric testing of a Swedish version of the Apathy Evaluation Scale in three clinical cohorts2017Conference paper (Refereed)
  • 100.
    Jönsson, Malin
    et al.
    Kristianstad University, Faculty of Health Science.
    Lindvall, Lina
    Kristianstad University, Faculty of Health Science.
    Clausson, Eva
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Skolsköterskors dokumentation i skolhälsovårdsjournalen: en tioårsuppföljning2016Conference paper (Other academic)
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