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  • 101.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Rouse, Matthew
    England.
    McKenna, Stephen P.
    England.
    Measuring the impact of caring for a spouse with Alzheimer's disease: validation of the Alzheimer’s patient partners life impact questionnaire (APPLIQue)2018Inngår i: Journal of Applied Measurement, ISSN 1529-7713, Vol. 19, nr 3, s. 271-282Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Alzheimer’s disease (AD) is the most common form of dementia, characterized by cognitive, psychiatric and behavioral symptoms and increasing dependency. Family members typically assume increasing caregiving responsibilities, with considerable quality of life (QoL) impact. This article describes the testing of a needs-based QoL questionnaire for AD family caregivers. Initial analyses according to Rasch measurement theory suggested that items applied to spousal rather than non-spousal caregivers. Following removal of non-spousal responders, a 25-item questionnaire was identified that exhibited acceptable model fit, a mean (SD) person location of 0.194 (1.42) logits, residual correlations ≤0.173 and absence of DIF by age, gender or administration. Reliability was 0.85. This new measure, the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue), may fill an important gap in assessing the impact of AD on spousal caregivers and outcomes of interventions aimed at caregivers as well as persons with AD.

  • 102.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Smith, Stephen
    School of Nursing Sciences, Faculty of Medicine and Health, University of East Anglia.
    A psychometric comparison of two Carer Quality of Life Questionnaires in Huntington's disease: implications for neurodegenerative disorders2013Inngår i: Journal of Huntington's Disease, ISSN 1879-6397, Vol. 2, nr 3, s. 315-322Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: The carer impact of neurodegenerative disorders such as Huntington's disease (HD) is vast. Attempts to measure carer QoL in neurodegenerative disorders include the three-dimensional (Practical aspects of Caregiving, PC; Satisfaction with Life, SL; Feelings about Living with Huntington's disease, FL) Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) and the unidimensional Alzheimer's Carer's Quality of Life Inventory (ACQLI). However, evidence regarding their psychometric properties is sparse. Objectives: To test and compare the psychometric properties of the HDQoL-C, its short-form, and the ACQLI among HD carers. Methods: Data from 61 HD carers (36 women; mean age, 55) were analysed using traditional psychometric methods. Results: Data completeness was good (>95% computable scale scores) but compromised for the PC and total HDQoL-C scales (≤80% computable scale scores). Scaling assumptions were supported for the SL and ACQLI scales (corrected item-total correlations ≥0.38; scaling success rates, 94–100%) but not for the PC, FL or total HDQoL-C scales (corrected item-total correlations ≥0.08; scaling success rates, 39–62%). Floor/ceiling effects were ≤9.8%. Reliabilities were ≥0.84, except for the PC scale (0.62). Conclusions: The HDQoL-C failed to exhibit suitability as a HD carer outcome measure, as two of its three scales did not meet basic psychometric criteria. The third scale (SL) did not outperform the ACQLI. This suggests that carer impact is not disease specific across neurodegenerative disorders.

    Fulltekst (pdf)
    fulltext
  • 103.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Smith, Steve
    School of Nursing Sciences, Faculty of Medicine and Health, University of East Anglia, Norwich.
    Why psychometrics is important - a response to: Aubeeluck, Buchanan & Stupple (2013) Journal of Huntington's Disease 2(4) 453–4542013Inngår i: Journal of Huntington's Disease, ISSN 1879-6397, Vol. 2, nr 4, s. 455-457Artikkel i tidsskrift (Annet vitenskapelig)
  • 104.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Smith, Steve
    Storbritannien.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I.
    Manual for translation and cultural adaptation of the Minimal Eating Observation and Nutrition Form – Version II (MEONF-II)2015Rapport (Annet vitenskapelig)
    Abstract [en]

    This report describes the procedure for translation and cultural

    adaptation of the Minimal Eating Observation and Nutrition Form –

    Version II (MEONF-II) from Swedish or U.K. English for use in other

    languages and countries, including adaptations from Swedish and

    U.K. English to other Swedish (e.g., Finland) and English speaking

    regions (e.g., United States, Canada, Australia), respectively. The

    prescribed methodology is based on the dual-panel approach for

    patient-reported rating scales, but modified for clinical assessment

    tools used by health care professionals. The approach emphasises the

    importance of achieving conceptual rather than linguistic equivalence,

    as well as ease and immediacy of the translation. The procedure

    comprises three main steps: (1) A panel of 3-7 bilingual health care

    professionals work together to produce a first draft target language

    version; (2) Review the first draft target language version by a second

    panel of 3-7 monolingual nurses and/or final year student nurses

    native in the target language; (3) Clinical field-testing of the new

    target language version by 15-30 hospital ward nurses/final year

    student nurses using the MEONF-II with at least five patients each to

    evaluate its user-friendliness and appropriateness. Following a written

    report including all major discussions and difficulties experienced by

    the panels and during field-testing, there is a need for evidence of the

    equivalence of the translated MEONF-II relative to the original

    version, before it can be recommended for general implementation

    into clinical practice. This final step is not covered in any detail here,

    but only outlined in summary. The procedures described here provide

    an easy to follow step-by-step practically oriented manual to facilitate

    the production of high quality translations and adaptations of the

    MEONF-II into new linguistic and cultural settings. This will ease the

    process for nurses and others who are interested in implementing the

    MEONF-II as a means of improving nutritional care for hospital

    inpatients.

    Fulltekst (pdf)
    fulltext
  • 105.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Measurement properties of the SF-12 Health Survey in Parkinson's disease2011Inngår i: Journal of Parkinson's Disease, ISSN 1877-7171, E-ISSN 1877-718X, Vol. 1, nr 2, s. 185-196Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The 12-item Short-Form Health Survey (SF-12) is an abbreviated version of the SF-36, one of the most widely used patient-reported health outcome rating scales. Similar to the SF-36, it yields summary scores of physical and mental health (PCS and MCS, respectively). However, SF-36 derived PCS and MCS scores have not been found valid in neurological disorders such as Parkinson's disease (PD). Here we used modern psychometric methodology (Rasch analysis) to test the SF-12 in PD, and explored the appropriateness of a total SF-12 score representing overall health. SF-12 data from 150 non-demented people with PD (56% men; mean age/PD-duration, 70/5 years) were analyzed regarding Rasch model fit for the PCS, MCS, as well as for the full SF-12. Data showed some signs of misfit to the Rasch model for all three scales (overall item-trait interaction, P ≥ 0.003; reliability, ≥ 0.85). For example, all scales exhibited signs of dependency between item responses, and the PCS measured with relatively low precision. Model fit (but not measurement precision) was improved following deletion of one PCS and one MCS item (overall item-trait interaction, P ≥ 0.387; reliability, ≥ 0.82). These observations suggest that the SF-12 can be used as a coarse health survey tool in PD and that a total SF-12 may be useful as a measure of overall health. However, its appropriateness as an outcome measure can be questioned and it is somewhat unclear exactly what the derived scores represent. As such, the SF-12 should probably be considered an assessment tool (or index) rather than a measurement instrument.

  • 106.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I.
    Sample size and statistical conclusions from tests of fit to the Rasch measurement model according to the RUMM2030 program2015Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Sample size is a major contributor to statistical null hypothesis testing, which is the basis for many approaches to testing Rasch model fit. To allow for taking this into account, the RUMM2030 Rasch analysis software has the ability to adjust n in the calculation of its chi-2 based fit statistics. This paper examines the effects of such post-hoc adjustments on the statistical conclusions, and explores the occurrence of type I errors with Rasch model fit statistics implemented in RUMM2030. Data simulations of Rasch model fitting 25-item dichotomous scales with sample sizes ranging from n=50-2500 were generated an analysed regarding fit with and without adjusted sample sizes corresponding to the same n values as those simulated. Results suggest that post-hoc downward sample size adjustment is a useful procedure to avoid type I errors when working with relatively large data sets (n≥500). The value of upward adjustment with small data sets is less clear, particularly regarding the total item-trait chi-2 test, which tends to falsely signal misfit. Under the assumption of Rasch model fit, our observations suggest that a sample size around 250 (up to about 500) provides a good balance for the statistical interpretation of RUMM2030 fit statistics.

  • 107.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Sample size and statistical conclusions from tests of fit to the Rasch model according to the Rasch Unidimensional Measurement Model (RUMM) program in health outcome measurement2016Inngår i: Journal of Applied Measurement, ISSN 1529-7713, Vol. 17, nr 4, s. 416-431Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Sample size is a major factor in statistical null hypothesis testing, which is the basis for many approaches to testing Rasch model fit. Few sample size recommendations for testing fit to the Rasch model concern the Rasch Unidimensional Measurement Models (RUMM) software, which features chi-square and ANOVA/F-ratio based fit statistics, including Bonferroni and algebraic sample size adjustments. This paper explores the occurrence of Type I errors with RUMM fit statistics, and the effects of algebraic sample size adjustments. Data with simulated Rasch model fitting 25-item dichotomous scales and sample sizes ranging from N=50 to N=2500 were analysed with and without algebraically adjusted sample sizes. Results suggest the occurrence of Type I errors with N≥500, and that Bonferroni correction as well as downward algebraic sample size adjustment are useful to avoid such errors, whereas upward adjustment of smaller samples falsely signal misfit. Our observations suggest that sample sizes around N=250 to N=500 may provide a good balance for the statistical interpretation of RUMM fit statistics studied here with respect to Type I errors and under the assumption of Rasch model fit within the examined framed of reference (i.e., about 25 item parameters well targeted to the sample).

  • 108.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hariz, Gun-Marie
    Umeå University.
    Hobart, Jeremy
    England.
    Wictorin, Klas
    Lund University.
    Measuring the impact of drug-induced dyskinesias in Parkinson’s disease: the PDYS-26 revisited2018Inngår i: International Conference on Probabilistic Models for Measurement, 2018Konferansepaper (Annet vitenskapelig)
    Abstract [en]

    BACKGROUND: Drug-induced dyskinesias (DID) are a common long-term complication of dopaminergic drug therapy for Parkinson’s disease (PD). The 26-item PD dyskinesia scale (PDYS-26) is a patient-reported rating scale intended to quantify the everyday impact of DID. However, its measurement properties have not been scrutinized since its development some 10 years ago.

    AIM: To examine the measurement properties of the PDYS-26 using Rasch Measurement Theory (RMT).

    DESIGN: The PDYS-26 was administered to people with PD and varying degrees of DID recruited from six Swedish (n=172) and three British (n=150) outpatient movement disorder clinics. RMT analyses were conducted using the RUMM2030 software.

    RESULTS: RMT model fit was generally good with only three items exhibiting relatively minor misfit. Response categories worked as intended and targeting was acceptable and reliability was 0.96. There was no differential item functioning (DIF) by age, PD duration or time, but three items exhibited DIF by country and one by sex, neither of which appear to notably bias person measurement. Item hierarchy review suggested a variable of dubious clinical/theoretical coherence. Therefore, a recently proposed three-dimensional reduced (21-item) PDYS version was explored. Results were similar to those from the original scale but with improved conceptual coherence, albeit with close to a 2- to 3-fold decrease in measurement precision. 

    SUMMARY AND IMPLICATIONS: The PDYS-26 appears useful for measuring the impact of DID, and yields sufficiently invariant measurement across core patient subgroups. Scale reconceptualization improves the meaning of scores, but at the cost of measurement uncertainty.

  • 109.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Janelidze, Shorena
    Lund University.
    Hansson, Oskar
    Lund University.
    The Swedish SCOPA-SLEEP for assessment of sleep disorders in Parkinson's disease and healthy controls2016Inngår i: Quality of Life Research, ISSN 0962-9343, E-ISSN 1573-2649, Vol. 25, nr 10, s. 2571-2577Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    PURPOSE: SCOPA-SLEEP is a rating scale for night-time sleep and daytime sleepiness (DS) proposed for use among people with Parkinson's disease (PD) as well as others. We translated it into Swedish and assessed its psychometric properties in PD and age-matched healthy controls.

    METHODS: Following translation according to the dual-panel approach, the Swedish SCOPA-SLEEP was field-tested regarding comprehensibility, relevance and respondent burden (n = 20). It was then psychometrically tested according to classical test theory (data completeness, scaling assumptions, targeting, reliability and construct validity) using data from 149 people with PD and 53 age-matched healthy controls from the prospective Swedish BioFINDER study.

    RESULTS: SCOPA-SLEEP took a mean of 3.5 min to complete and was considered easy to use and relevant. Missing item responses were <8 %, corrected item-total correlations were ≥0.47 (except for one DS item among controls), factor analyses suggested one dimension per scale, floor/ceiling effects were ≤17 %, reliability was ≥0.85 except for the DS scale among controls (0.65) and construct validity was supported.

    CONCLUSIONS: Observations concur with previous evaluations, thus providing initial support for the Swedish SCOPA-SLEEP among people with PD. Further studies are needed to establish its generic properties and to understand its measurement properties in better detail.

  • 110.
    Hagell, Peter
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Årestedt, Kristofer
    Linnaeus University, Linköping University.
    Beware of the origin of numbers: Standard scoring of the SF-12 and SF-36 summary measures distorts measurement and score interpretations2017Inngår i: Research in Nursing & Health, ISSN 0160-6891, E-ISSN 1098-240X, Vol. 40, nr 4, s. 378-386Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The 12-item Short Form Health Survey (SF-12) is a generic health rating scale developed to reproduce the Physical and Mental Component Summary scores (PCS and MCS, respectively) of a longer survey, the SF-36. The standard PCS/MCS scoring algorithm has been criticized because its expected dimensionality often lacks empirical support, scoring is based on the assumption that physical and mental health are uncorrelated, and because scores on physical health items influence MCS scores, and vice versa. In this paper, we review the standard PCS/MCS scoring algorithm for the SF-12 and consider alternative scoring procedures: the RAND-12 Health Status Inventory (HSI) and raw sum scores. We corroborate that the SF-12 reproduces SF-36 scores but also inherits its problems. In simulations, good physical health scores reduce mental health scores, and vice versa. This may explain results of clinical studies in which, for example, poor physical health scores result in good MCS scores despite compromised mental health. When applied to empirical data from people with Parkinson's disease (PD) and stroke, standard SF-12 scores suggest a weak correlation between physical and mental health (rs .16), whereas RAND-12 HSI and raw sum scores show a much stronger correlation (rs .67-.68). Furthermore, standard PCS scores yield a different statistical conclusion regarding the association between physical health and age than do RAND-12 HSI and raw sum scores. We recommend that the standard SF-12 scoring algorithm be abandoned in favor of alternatives that provide more valid representations of physical and mental health, of which raw sum scores appear the simplest.

  • 111.
    Heaney, Alice
    et al.
    England.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    McKenna, Stephen P.
    England.
    Measuring fatigue in Crohn’s disease: the importance of a coherent theoretical measurement model2017Konferansepaper (Annet vitenskapelig)
  • 112.
    Heaney, Alice
    et al.
    Storbritannien.
    McKenna, Stephen P
    Storbritannien.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Evaluation of the unidimensional fatigue impact scale (U-FIS) in Crohn's disease: the importance of local item dependency2021Inngår i: Journal of Nursing Measurement, ISSN 1061-3749, E-ISSN 1945-7049, artikkel-id JNM-D-20-00116Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND AND PURPOSE: The Unidimensional Fatigue Impact Scale (U-FIS) was developed for use in a multiple sclerosis population. The aim was to determine whether the U-FIS is a valid tool for measuring the impact of fatigue in Crohn's disease (CD).

    METHOD: CD patients completed the U-FIS as part of a validation study of the Crohn's Life Impact Questionnaire (CLIQ). Data were analyzed according to Rasch measurement theory (RMT).

    RESULTS: Two hundred sixty-one completed U-FIS questionnaires were available for analysis. After rescoring the items to resolve disordered thresholds, all 22 items showed acceptable RMT fit. However, there was considerable local item dependency (LID).

    CONCLUSION: The U-FIS did not provide unidimensional measurement in a sample of CD patients due to high levels of LID. Combining the three FIS outcomes into a single measure was not justified.

  • 113.
    Heaney, Alice
    et al.
    England.
    McKenna, Stephen P.
    England.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Sengupta, Raj
    England.
    Using Rasch analysis to determine the internal validity of the Bath Ankylosing Spondylitis Disease Activity Index (BASDAI)2018Inngår i: International Conference on Probabilistic Models for Measurement, 2018Konferansepaper (Annet vitenskapelig)
  • 114.
    Hedin, Gita
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Norell-Clarke, Annika
    Westergren, Albert
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Adolescent´s experiences of sleep and electronic media use2019Konferansepaper (Fagfellevurdert)
  • 115.
    Hedin, Gita
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Norell-Clarke, Annika
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Adolescent´s experiences of sleep and electronic media use2019Konferansepaper (Fagfellevurdert)
    Abstract
  • 116.
    Hedin, Gita
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Tönnesen, Hanne
    Lunds universitet.
    Norell-Clarke, Annika
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Westergren, Albert
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Teenagers' views of a good night's sleep2020Konferansepaper (Fagfellevurdert)
  • 117.
    Hedin, Gita
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Norell-Clarke, Annika
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Tönnesen, Hanne
    Lunds universitet.
    Westergren, Albert
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Adolescents experiences of facilitators and barriers for a good night’s sleep2019Konferansepaper (Fagfellevurdert)
  • 118.
    Hedin, Gita
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Norell-Clarke, Annika
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Tønnesen, Hanne
    Lunds universitet.
    Westergren, Albert
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Facilitators and barriers for a good night's sleep among adolescents2020Inngår i: Frontiers in Neuroscience, ISSN 1662-4548, E-ISSN 1662-453X, Vol. 14Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Sleep deprivation among adolescents is a major public health issue. Although previous studies have described their sleep habits and the consequences thereof, the voices of adolescents themselves are rarely heard. The aim of this study was to investigate adolescents' experiences regarding what they perceived as facilitators and barriers for a good night's sleep.

    Methods: A qualitative focus group study with Swedish adolescents (n = 45) aged 16-18 years was performed with seven focus groups and analyzed using qualitative content analysis.

    Results: Three categories were identified in the analysis regarding facilitators and barriers for achieving a good night's sleep: (1) Striving for a sense of well-being, (2) Tiring yourself out, and (3) Regulating electronic media availability. The adolescents thought that sleep was important in order to be able to cope with everyday life and to allow physical recovery. Overall, the adolescents were knowledgeable regarding commonly recommended strategies for improving sleep, but they had trouble finding a balance between sleep and other activities. Electronic media was used to obtain a sense of belonging and to communicate with others, which in itself was described as important for the adolescents' well-being. However, communicating with friends and family during the night conflicted with achieving a good night's sleep. Parental behaviors (late work habits, internet rules) were also perceived as important for adolescents' sleep habits.

    Conclusions: An understanding of the dilemma of finding a balance between sleep and other activities may aid future sleep-promoting interventions for adolescents, incorporating the impact from social factors' on the adolescents' sleep.

    Fulltekst (pdf)
    fulltext
  • 119.
    Hedin, Gita
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Lunds universitet.
    Norell-Clarke, Annika
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Karlstad universitet.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Tønnesen, Hanne
    Lunds universitet.
    Westergren, Albert
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Garmy, Pernilla
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Insomnia in relation to academic performance, self-reported health, physical activity, and substance use among adolescents2020Inngår i: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 17, nr 17Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    PURPOSE: Insomnia affects up to one in four adolescents and has been shown to have a negative impact on their mental and physical health. This study aimed to investigate the association between insomnia, academic performance, self-reported health, physical activity, school start time, and substance use among adolescents.

    METHODS: A survey with a cross-sectional design was completed by adolescents (15-17 years old; n = 1504) in southern Sweden. The Minimal Insomnia Symptoms Scale (MISS) was used to operationalize insomnia. A multiple logistic regression analysis was used to analyze the relationship between insomnia and self-reported health, failed school courses, substance use, school start time, family financial situation, screen time, and gender.

    RESULTS: Insomnia (MISS ≥ 6) was associated with poor self-reported health (OR: 4.35), failed school courses (OR: 1.47), and use of alcohol and/or cigarettes (OR: 1.43). When the combined effect of self-reported health and physical activity were investigated, a combination of low physical activity (≤1 time/week) and poor self-reported health was strongly associated with insomnia (OR: 18.87).

    CONCLUSIONS: Insomnia was associated with other problems that in themselves are risk factors for poor health. This highlights the need for a holistic health-promoting approach to prevent insomnia, such as efforts to promote physical activity, school success, and the reduction of alcohol/cigarette use.

    Fulltekst (pdf)
    fulltext
  • 120.
    Hellqvist, Carina
    et al.
    Linköpings universitet.
    Bertero, Carina
    Linköpings universitet.
    Dizdar, Nil
    Linköpings universitet.
    Sund-Levander, Marta
    Linköpings universitet.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Self-management education for persons with Parkinson's disease and their care partners: a quasi-experimental case-control study in clinical practice2020Inngår i: Parkinson's Disease, ISSN 2090-8083, E-ISSN 2042-0080, Vol. 2020Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background

    Parkinson's disease is a neurodegenerative condition with both physical and mental consequences that affect many aspects of everyday life. Persons with Parkinson's disease and their care partners want guidance from healthcare services in order to develop skills to adjust to life with a long-term condition. The Swedish National Parkinson School is a dyadic self-management programme to support both persons with Parkinson's disease and care partners.

    Objective

    To assess the outcomes of the Swedish National Parkinson School as reported by participants.

    Design

    A quasi-experimental case-control study in clinical care using self-reported questionnaires.

    Participants

    Swedish National Parkinson School was offered by health care professionals working in clinical care. Participants in the programme were also asked to participate in the study. A matched control group was recruited for a comparison of findings. In total, 92 persons with Parkinson's disease and 55 care partners were included. Settings. Five Swedish geriatric and neurologic outpatient clinics.

    Method

    Data were collected during 2015-2017, before and after participation in the National Parkinson School or before and after seven weeks of standard care. Outcomes were assessed using generic and Parkinson's specific questionnaires. Descriptive statistics were used to describe baseline characteristics. Mann-Whitney U and Chi(2) tests were used to test for between-group differences and within-group differences were tested by the Wilcoxon signed-ranks test.

    Results

    Improvements regarding health status, constructive attitudes and approaches, and skill and technique acquisition were found after the intervention among persons with Parkinson's disease. No changes were found among care partners.

    Conclusion

    The findings indicate that the Swedish National Parkinson School may improve health status and self-management among persons with Parkinson's disease, but further studies are needed to better understand the effects of the programme.

    Fulltekst (pdf)
    fulltext
  • 121.
    Hellqvist, Carina
    et al.
    Linköpings universitet.
    Berterö, Carina
    Linköpings universitet.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Dizdar, Nil
    Linköpings universitet.
    Sund-Levander, Märta
    Linköpings universitet.
    Effects of self-management education for persons with Parkinson's disease and their care partners: a qualitative observational study in clinical care2020Inngår i: Nursing and Health Sciences, ISSN 1441-0745, E-ISSN 1442-2018, Vol. 22, nr 3, s. 741-748Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Persons with Parkinson's disease and their care partners want support from healthcare to develop the skills to handle everyday life with disease. Earlier findings indicate that participants of the self-management program Swedish National Parkinson School experience several benefits of the program. The purpose of this qualitative observational study was to explore if participants had implemented the strategies of self-monitoring included in the program, and use them to communicate health care status and needs in clinical encounters. Data was collected 3-15 months after participation in the program and analysed using constant comparative analysis. Three categories were evident: "Self-observation in everyday life", "Self-care activities to promote health" and "Managing emotional impact of Parkinson's Disease". Categories were linked together in a core category that highlight the use of self-management strategies described by participants during clinical encounters. Results confirmed that persons with Parkinson's disease and care partners use the techniques of self-observation in their everyday lives. Observations of effects in clinical care can be a valuable approach to evaluate the outcomes educational interventions and their benefits for individuals and health care. This article is protected by copyright. All rights reserved.

  • 122.
    Hellqvist, Carina
    et al.
    Linköping University Hospital.
    Dizdar, Nil
    Linköping University.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Berterö, Carina
    Linköping University.
    Sund Levander, Märta
    Linköping University.
    Improving self-management for persons with Parkinson's disease through education focusing on management of daily life: patients' and relatives' experience of the Swedish National Parkinson School.2018Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, nr 19-20, s. 3719-3728Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    AIMS AND OBJECTIVE: The two folded aim of this study was firstly to identify and describe experiences valuable for managing daily life after participation in the NPS self-management intervention. The second part was to explore the applicability of the Self- and family management framework by Grey and colleagues for persons with Parkinson's Disease and their relatives.

    BACKGROUND: The impact of PD is evident on the lives of both patients and relatives. The National Parkinson School (NPS) is a Swedish self-management program designed for patients and relatives, aiming at teaching strategies helpful for the ability of self-management, in order to promote life satisfaction.

    DESIGN: Qualitative explorative with inductive and deductive analysis.

    METHODS: Five group discussions with NPS participants were audio-recorded. Verbatim transcriptions were analysed inductively with thematic analysis according to Braun and Clarke, and the findings were then applied deductively to the existing model for patients with chronic disease.

    RESULTS: Through the first step of inductive analysis three themes capturing the meaning, value and experience of being a participant at the NPS were identified: Exchanging experiences and feeling support, Adjustment and acceptance of PD for managing daily life, and Promoting life satisfaction. The deductive analysis applied the inductive findings to the Self-and family management framework of chronically ill to explore the fit to persons with PD and relatives attending the NPS program.

    CONCLUSIONS: The NPS program is a promising approach for helping persons with PD and their relatives to achieve better self-management of disease and improved life satisfaction. Further evaluations of program outcomes in clinical practice are warranted.

    RELEVANCE OF CLINICAL PRACTICE: Self-management programs like the NPS is a promising approach in facilitating a positive mind-set and outlook on life and gain knowledge to understand, adapt and handle chronic disease, such as PD, better. This article is protected by copyright. All rights reserved.

  • 123.
    Hellström, A
    et al.
    Linnaeus University.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Broström, A
    Jönköping University & Linköping University.
    Ulander, M
    Linköping University.
    Ņrestedt, K
    Linnaeus University.
    Initial psychometric testing of the sleep condition indicator in a Swedish context2017Inngår i: Sleep Medicine, ISSN 1389-9457, E-ISSN 1878-5506, Vol. 40, Supplement 1, s. 129-130Artikkel i tidsskrift (Fagfellevurdert)
  • 124.
    Hellström, Amanda
    et al.
    Linnaeus University.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Broström, Anders
    Jönköping University.
    Ulander, Martin
    Linköping University.
    Luik, Annemarie I
    University of Oxford.
    Espie, Colin A
    University of Oxford.
    Årestedt, Kristofer
    Linnaeus University.
    A classical test theory evaluation of the sleep condition indicator accounting for the ordinal nature of item response data2019Inngår i: PLOS ONE, E-ISSN 1932-6203, Vol. 14, nr 3Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Insomnia symptoms are common among young adults and affect about 5% to 26% of 19 to 34-year-olds. In addition, insomnia is associated with poor mental health and may affect daily performance. In research, as well as in clinical practice, sleep questionnaires are used to screen for and diagnose insomnia. However, most questionnaires are not developed according to current DSM-5 diagnostic criteria. An exception is the recently developed Sleep Condition Indicator (SCI), an eight-item scale screening for insomnia.

    AIM: The aim of this study was to perform a Classical Test Theory (CTT) based psychometric evaluation of the SCI in a sample of Swedish university students, by taking the ordinal nature of item level data into account.

    METHODS: The SCI was translated into Swedish and distributed online to undergraduate students at three Swedish universities, within programs of health, psychology, science or economy. Of 3673 invited students, 634 (mean age 26.9 years; SD = 7.4) completed the questionnaire that, in addition to the SCI, comprised other scales on sleep, stress, lifestyle and students' study environment. Data were analyzed according to CTT investigating data completeness, item homogeneity and unidimensionality.

    RESULTS: Polychoric based explorative factor analysis suggested unidimensionality of the SCI, and internal consistency was good (Cronbach's alpha, 0.91; ordinal alpha, 0.94). SCI scores correlated with the Insomnia Severity Index (-0.88) as well as with sleep quality (-0.85) and perceived stress (-0.50), supporting external construct validity.

    CONCLUSIONS: These observations support the integrity of the of the SCI. The SCI demonstrates sound CTT-based psychometric properties, supporting its use as an insomnia screening tool.

    Fulltekst (pdf)
    fulltext
  • 125.
    Henriksson, Anette
    et al.
    Ersta Sköndal University College.
    Hudson, Peter
    Australien.
    Öhlen, Joakim
    Ersta Sköndal University College.
    Thomas, Kristina
    Australien.
    Holm, Maja
    Ersta Sköndal University College.
    Carlander, Ida
    Karolinska Institutet.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Årestedt, Kristofer
    Linnaeus University.
    Use of the preparedness for caregiving scale in palliative care: a Rasch evaluation study2015Inngår i: Journal of Pain and Symptom Management, ISSN 0885-3924, E-ISSN 1873-6513, Vol. 50, nr 4, s. 533-541Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    CONTEXT: Studies have shown that family carers who feel more prepared for the caregiver role tend to have more favorable experiences. Valid and reliable methods are needed to identify family carers who may be less prepared for the role of supporting a person who needs palliative care.

    OBJECTIVES: The aim of this study was to evaluate the measurement properties of the original English version as well as a Swedish version of the Preparedness for Caregiving Scale (PCS).

    METHODS: The sample (n=674) was taken from four different intervention studies from Australia and Sweden, all focused on improving family carers' feelings of preparedness. Family carers of patients receiving palliative home care were selected and baseline data were used. The measurement properties of the PCS were evaluated using the Rasch model.

    RESULTS: Both the English and Swedish versions of the PCS exhibit sound measurement properties according to the Rasch model. The items in the PCS captured different levels of preparedness. The response categories were appropriate and corresponded to the level of preparedness. No significant differential item functioning for age and sex were detected. Three items demonstrated differential item functioning by language but did not impact interpretation of scores. Reliability was high (>0.90) according to the Person Separation Index.

    CONCLUSION: The PCS is valid for use among family carers in palliative care. Data provide support for its use across age and gender groups as well as across the two language versions.

  • 126.
    Hommel, A
    et al.
    Malmö högskola.
    Edberg, Anna-Karin
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Ekman, Inger
    Göteborgs universitet.
    Gunningberg, Lena
    Uppsala universitet.
    Rasmussen, B
    Lunds universitet.
    Strömberg, Anna
    Linköpings universitet.
    Wallin, Lars
    Högskolan Dalarna.
    Wengström, Y
    Karolinska institutet.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Öhlén, J
    Ersta Sköndal högskola.
    Lägg förslaget om förändrad utbildning i papperskorgen2016Inngår i: Dagens medicin, ISSN 1104-7488Artikkel i tidsskrift (Annet (populærvitenskap, debatt, mm))
    Abstract [sv]

    Skapa specialist­utbild­ningar för sjuksköterskor som motsvarar vårdens behov både i dag och i framtiden, skriver Ami Hommel, ordförande Svensk sjuksköterskeförening, och nio vårdprofessorer.

  • 127.
    Hommel, Ami
    et al.
    Malmö Högskola.
    Edberg, Anna-Karin
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Ekman, Inger
    Göteborgs universitet.
    Gunningberg, Lena
    Uppsala universitet.
    Kristensson Hallström, Inger
    Lunds universitet.
    Rasumssen, Birgit
    Lunds universitet.
    Strömberg, Anna
    Linköpings universitet.
    Wallin, Lars
    Högskolan Dalarna.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Öhlén, Joakim
    Göteborgs universitet.
    Öka satsningarna på forskning i omvårdnad2017Inngår i: Dagens Medicin, ISSN 1104-7488, nr 19 januariArtikkel i tidsskrift (Annet (populærvitenskap, debatt, mm))
    Abstract [sv]

    Långsiktiga satsningar för välfärdsforskning är bra, men för att nå ända fram och minimera hälsoklyftorna är det nödvändigt att även forskning inom omvårdnad prioriteras, skriver tio debattörer.

  • 128.
    Hommel, Ami
    et al.
    Malmö universitet.
    Ulfvarson, Johanna
    Karolinska institutet.
    Rasmussen, Birgit H
    Lunds universitet.
    Kristensson Hallström, Inger
    Lunds universitet.
    Westergren, Albert
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Enarsson, Per
    Linnéuniversitetet.
    Silén, Marit
    Högskolan i Gävle.
    Ehrenberg, Anna
    Högskolan Dalarna.
    Forsberg, Anna
    Lunds universitet.
    Öhlén, Joakim
    Sahlgrenska akademien, GU.
    Ekman, Inger
    Sahlgrenska akademien, GU.
    Strömberg, Anna
    Linköpings universitet.
    Wijk, Helle
    Göteborgs universitet.
    Wåhlin, Ingrid
    Länssjukhuset i Kalmar.
    Wallin, Lars
    Högskolan Dalarna.
    Bölenius, Karin
    Umeå universitet.
    Dahl, Oili
    Karolinska institutet.
    Andersson, Eva
    Blekinge tekniska högskola.
    Sjuksköterskor bör ges chans till forskning2018Inngår i: Svenska DagbladetArtikkel i tidsskrift (Annet (populærvitenskap, debatt, mm))
  • 129.
    Houkes, Ruben
    et al.
    Department of Plastic Surgery, Amsterdam University Medical Center, Emma Children’s Hospital, AZ, Amsterdam, the Netherlands.
    Smit, Johannes
    Department of Plastic Surgery, Amsterdam University Medical Center, Emma Children’s Hospital, AZ, Amsterdam, the Netherlands.
    Mossey, Peter
    Department of Dentistry, University of Dundee Dental Hospital & School, Dundee, Scotland, UK.
    Don Griot, Peter
    Department of Plastic Surgery, Amsterdam University Medical Center, Emma Children’s Hospital, AZ, Amsterdam, the Netherlands.
    Persson, Martin
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Neville, Amanda
    Center for Clinical and Epidemiological Research, University of Ferrara, Ferrara, Italy.
    Ongkosuwito, Edwin
    Department of Dentistry - Orthodontics and Craniofacial Biology, Radboud University Medical Center, Nijmegen, the Netherlands.
    Sitzman, Tom
    Division of Plastic Surgery, Phoenix Children's Hospital, Phoenix, AZ, USA.
    Breugem, Corstiaan
    Department of Plastic Surgery, Amsterdam University Medical Center, Emma Children’s Hospital, AZ, Amsterdam, the Netherlands.
    Classification systems of cleft lip, alveolus and palate: results of an international survey2021Inngår i: The Cleft Palate-Craniofacial Journal, ISSN 1055-6656, E-ISSN 1545-1569, s. 1-8Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objective: This study aimed to identify commonly used classification systems by cleft providers around the world, including the perceived indications and limitations of each system.

    Design: A cross-sectional survey.

    Participants: A total of 197 registrants from three international cleft/craniofacial meetings.

    Interventions: Participants were sent a web-based questionnaire concerning cleft classification systems.

    Main outcome measures: Frequency of commonly used classification systems, their perceived indications and limitations.

    Results: A total of 197 respondents from 166 different centers completed the questionnaire. Healthcare professionals from all disciplines responded, with the most frequent respondents being plastic surgeons (38.1%), maxillofacial surgeons (28.4%) and orthodontists (23.9%). Eighteen different classification systems were in use. The most frequently used systems were the International Statistical Classification of Diseases and Related Health Problems (ICD-10) (35.5%), LAHSHAL (34.0%), and Veau (32.5%) classification systems. Most respondents (32.5%) indicated that anatomical and morphological characteristics are essential components of a classification system. However, respondents indicated that their current classification systems lacked sufficient description of cleft extension and severity.

    Conclusions: Great variety in the use of classification systems exists among craniofacial specialists internationally. The results recommend the usage of the LAHSHAL classification of OFCs, due to its comprehensiveness, relatively high implementation rate globally, convenience of usage and complementarity with the ICD-10 system. Moreover, it can overcome deficiencies inextricably linked to ICD-10, such as incapacity to describe laterality and clefts of the alveolus. More international exposure to the merits of using the LAHSHAL classification system would be highly recommended.

    Fulltekst (pdf)
    fulltext
  • 130.
    Håkansson, Carita
    et al.
    Lunds universitet.
    Wagman, Petra
    Jönköping universitet.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Construct validity of a revised version of the occupational balance questionnaire2020Inngår i: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, Vol. 27, nr 6, s. 441-449Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Occupational balance is fundamental to occupational therapy and occupational science. Therefore, the Occupational Balance Questionnaire (OBQ) was developed and has previously been found psychometrically valid according to classical test theory. Aim: To investigate the internal construct validity of the OBQ using Rasch measurement theory. Material and methods: Data from two general population samples were used to investigate the psychometric properties of the OBQ according to Rasch measurement theory. Results: The analyses identified problems with the current response scale and multidimensionality of two items. As a result, a revised version, the OBQ11, was suggested and exhibited response categories that worked properly, good reliability (0.92), model fit and measurement invariance across age and gender groups. The hierarchical item ordering was in agreement with previous research. Conclusion: The new OBQ11 satisfies the measurement criteria defined by the Rasch model. However, further studies of additional samples are needed to validate its generic properties. Significance: The purpose of the OBQ11 is to measure occupational balance of individuals or groups, and to identify aspects of occupational balance in need of improvement. Our observations suggest that the OBQ11 is a valid and promising complement to other instruments.

    Fulltekst (pdf)
    fulltext
  • 131.
    Höglund, A.
    et al.
    Karolinska institutet.
    Broman, J. -E
    Uppsala universitet.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Palhagen, S.
    Karolinska institutet.
    Fredrikson, S.
    Karolinska institutet.
    Excessive daytime sleepiness in Parkinson's disease: a 10-year longitudinal study2017Inngår i: European Journal of Neurology, ISSN 1351-5101, E-ISSN 1468-1331, Vol. 24, s. 485-485Artikkel i tidsskrift (Annet vitenskapelig)
  • 132.
    Höglund, A.
    et al.
    Department of Clinical Neuroscience, Karolinska Institutet.
    Broman, J.-E.
    Department of Neuroscience, Psychiatry, Uppsala University.
    Pålhagen, S.
    Department of Clinical Neuroscience, Karolinska Institutet.
    Fredrikson, S.
    Department of Clinical Neuroscience, Karolinska Institutet.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Is excessive daytime sleepiness a separate manifestation in Parkinson's disease?2015Inngår i: Acta Neurologica Scandinavica, ISSN 0001-6314, E-ISSN 1600-0404, Vol. 132, nr 2, s. 97-104Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Excessive daytime sleepiness (EDS) is common in Parkinson's disease (PD), but its role and relation to other PD features is less well understood.

    OBJECTIVE: To investigate potential predictors of EDS in PD and to explore how EDS relates to other motor and non-motor PD features.

    METHODS: 118 consecutive persons with PD (54% men; mean age, 64) were assessed regarding EDS using the Epworth Sleepiness Scale (ESS) and a range of motor and non-motor symptoms. Variables significantly associated with ESS scores in bivariate analyses were used in multiple regression analyses with ESS scores as the dependent variable. Principal component analysis (PCA) was conducted to explore the interrelationships between ESS scores and other motor and non-motor PD aspects.

    RESULTS: Among 114 persons with complete ESS data, significant independent associations were found between ESS scores and axial/postural/gait impairment, depressive symptoms, and pain (R(2) , 0.199). ESS scores did not load significantly together with any other PD features in the PCA.

    CONCLUSIONS: Only a limited proportion of the variation in EDS could be accounted for by other symptoms, and EDS did not cluster together with any other PD features in PCAs. This suggests that EDS is a separate manifestation differing from, for example, poor sleep quality and fatigue.

  • 133.
    Höglund, Arja
    et al.
    Karolinska Institutet.
    Broman, JanErik
    Uppsala University.
    Pålhagen, Sven
    Karolinska Institutet.
    Fredrikson, Sten
    Karolinska Institutet.
    Hagell, Peter
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I.
    Excessive Daytime Sleepiness in Parkinson’s Disease – relationship to motor and non-motor symptoms2014Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Objective: To investigate potential predictors of Excessive daytime sleepiness (EDS) in Parkinson’s disease (PD), and explore how EDS relates to other motor and non-motor PD features.

    Background: EDS is common in Parkinson’s disease, but its role and relation to other PD features is less well understood.

    Methods: 118 consecutive persons with PD (54% men; mean age, 64) were assessed regarding EDS using the Epworth Sleepiness Scale (ESS) and a range of motor and non-motor symptoms. Variables significantly associated with ESS scores in bivariate analyses were used in multiple regression analyses with ESS scores as the dependent variable. Principal component analysis (PCA) was conducted to explore the interrelationships between ESS scores and other motor and non-motor PD aspects.

    Results: Among 114 persons with complete ESS data, significant independent associations were found between ESS scores and axial/postural/gait impairment, depressive symptoms, and pain (R2, 0.199). ESS scores did not load significantly together with any other PD features in the PCA.

    Conclusions: Only a limited proportion of the variation in EDS could be accounted for by other symptoms, and EDS did not cluster together with any other PD features in PCAs. This suggests that EDS is a separate manifestation differing from e.g. poor sleep quality and fatigue.

  • 134.
    Höglund, Arja
    et al.
    Karolinska institutet.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Broman, Jan-Erik
    Uppsala universitet.
    Palhagen, Sven
    Karolinska institutet.
    Sorjonen, Kimmo
    Karolinska institutet.
    Fredrikson, Sten
    Karolinska institutet.
    A 10-year follow-up of excessive daytime sleepiness in Parkinson's disease2019Inngår i: Parkinson's Disease, ISSN 2090-8083, E-ISSN 2042-0080, Vol. 2019, artikkel-id 5708515Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Introduction. The aim of this prospective study was to investigate excessive daytime sleepiness (EDS) over time and in relation to other PD symptoms among people with Parkinson's disease (PD). Methods. Thirty participants younger than 65 years with PD were randomly selected. At inclusion, mean (SD) disease duration was 6.2 (4.8) years and median (min-max) severity of PD was classified as stage II (stages I-III) according to Hoehn and Yahr. Participants were followed annually for 10 years with clinical assessments of their PD status, medications, comorbidities, and a standardized interview about their sleep habits and occurrence of daytime sleepiness. EDS was assessed by the self-reported Epworth Sleepiness Scale (ESS). Seventeen participants completed the 10-year longitudinal follow-up. Results. Fifteen of 30 persons were classified to suffer from EDS (ESS > 10) at baseline. At the group level, EDS remained stable over 10 years and did not deteriorate in parallel with worsening of motor symptoms. Furthermore, EDS was associated with sleep quality, fatigue, anxiety, depression, and axial/postural/gait impairments. Conclusions. EDS did not worsen over 10 years, although other PD aspects did. EDS in PD seems to be a complex nonmotor symptom that is unrelated to deterioration of motor symptoms in PD.

    Fulltekst (pdf)
    fulltext
  • 135.
    Höglund, Arja
    et al.
    Karolinska institutet & Karolinska universitetssjukhuset.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Broman, Jan-Erik
    Uppsala universitet.
    Pålhagen, Sven
    Karolinska institutet & Karolinska universitetssjukhuset.
    Sorjonen, Kimmo
    Karolinska institutet.
    Fredrikson, Sten
    Karolinska institutet & karolinska universitetssjukhuset.
    Svenningsson, Per
    Karolinska institutet & Karolinska universitetssjukhuset.
    Associations between fluctuations in daytime sleepiness and motor and non-motor symptoms in Parkinson's disease2021Inngår i: Movement Disorders Clinical Practice, E-ISSN 2330-1619, Vol. 8, nr 1, s. 44-50Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Abstract Background Non-motor fluctuations (NMF) are a major concern in Parkinson's disease (PD), and they have been categorised into neuropsychiatric, autonomic and sensory fluctuations. However, this categorisation does not include sleep and sleep-related features, and the association between daytime sleepiness and other motor and/or non-motor fluctuations in PD remains to be elucidated. Objective To investigate the relationship between daytime sleepiness and other non-motor and motor fluctuations in people with PD. Methods A three-day home diary recording daytime sleepiness, mood, anxiety, and motor symptoms was used along with the Karolinska Sleepiness Scale (KSS) and six days of accelerometer (Parkinson's KinetiGraph?; PKG?) registration to detect motor fluctuations among people with a DaTSCAN verified clinical PD diagnosis (32 men; mean PD duration, 8.2?years). Participants were categorised as motor fluctuators or non-fluctuators according to the UPDRS part IV and/or the presence of motor and non-motor fluctuations. Results Fifty-two people with PD participated. Daytime sleepiness correlated significantly with motor symptoms, mood and anxiety among those classified as motor fluctuators (n = 28). Motor fluctuators showed stronger correlations between the individual mean level of all diary variables (daytime sleepiness, anxiety, mood and motor symptoms) when compared to the non-fluctuators (n = 24). Stronger positive within-individual correlations were found among fluctuators in comparison to non-fluctuators. In general, PKG data did not correlate with diary data. Conclusion Episodes of daytime sleepiness, as reported by home diaries, were associated with other self-reported non-motor and motor fluctuations, but were not supported by PKG data.

  • 136.
    Ilankoon, I. M. P. S.
    et al.
    Sri Lanka.
    Samarasinghe, Kerstin
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Elgán, Carina
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Menopause is a natural stage of aging: a qualitative study2021Inngår i: BMC Women's Health, E-ISSN 1472-6874, Vol. 21, nr 1, s. 1-9, artikkel-id 47Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Menopause is a biopsychosocial phenomenon encompassing the transition in a woman's life from being fertile to infertile. Although menopause may result in extremely unpleasant physical symptoms there is evidence of a low rate of reported menopausal symptoms amongst women in Asian cultures. Women's experiences, views, and responses to menopause which influences women's daily life and well-being, may vary between different societies and cultures. This study aimed to explore and describe menopausal experiences among women in Sri Lanka.

    METHODS: A qualitative exploratory research was conducted among postmenopausal women of 46-55 years of age in the western province of Sri Lanka. Individual interviews with a purposive sample of 20 women were conducted, and data analysis was done using manifest and latent content analysis.

    RESULTS: The results consist of an overall theme, "Menopause is a natural stage of aging" and three categories "Entering a new stage", "Managing menopause" and "Not the end of life" which emerged from 34 codes. The overall theme highlights that changes in menopause were experienced as a natural change in life, with health problems that are normal for this change and handled with different self-care practices. The category "Entering a new stage" describes the women becoming aware of menopause and its bodily changes. The category "Managing menopause" describes women's experiences of being able to find their own remedies to ease the menopausal symptoms and by engaging in religious activities and focusing on interaction with people. The category, "Not the end of life" describes women's views of themselves as still valuable because menopause was experienced as a natural part of their lives.

    CONCLUSION: Women in Sri Lanka managed menopausal problem mainly on their own as they viewed the menopause as a natural stage of aging risking unnecessary suffering and failure to detect preventable complications. Enabling support groups for menopausal women and improving on their health-seeking behaviour by encouraging them to take part in screening for cervical and breast cancer would improve their condition. Further information on additional hormone therapy with a, subsequent follow-up and evaluation by community health nurses and/or midwives, would facilitate Sri Lankan women's transition to menopause.

    Fulltekst (pdf)
    fulltext
  • 137.
    Ilankoon, IMPS
    et al.
    University of Sri Jayewardenepura.
    Elgán, Carina
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Samarasinghe, Kerstin
    Högskolan Kristianstad, Fakulteten för hälsovetenskap.
    Kisokanth, G
    Eastern University, Chenkaladi, Sri Lanka.
    Women’s Menopausal Experiences: A Qualitative Study among Women in Sri Lanka2018Inngår i: Book of Abstracts 4th International Conference on Public Health (ICOPH 2018) 19th – 21st July, 2018 Bangkok, Thailand Committee of the ICOPH - 2018. / [ed] Prof. Dr. Hematram Yadav and Prof. Dr. Rusli Bin Nordin, 2018Konferansepaper (Fagfellevurdert)
  • 138.
    Jakobsson, Ulf
    et al.
    Lunds universitet.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Lindskov, Susanne
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Centralsjukhuset Kristianstad, CSK.
    Hagell, Peter
    Lunds universitet.
    Construct validity of the SF-12 in three different samples2012Inngår i: Journal of Evaluation In Clinical Practice, ISSN 1356-1294, E-ISSN 1365-2753, Vol. 18, nr 3, s. 560-566Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Rationale, aims and objectives  Studies have challenged the validity and underlying measurement model of the physical and mental component summary scores of the 36-item Short-Form Health Survey in, for example the elderly and people with neurological disorders. However, it is unclear to what extent these observations translate to physical and mental component summary scores derived from the 12-item short form (SF-12) of the 36-item Short-Form Health Survey. This study evaluated the construct validity of the SF-12 in elderly people and people with Parkinson's disease (PD) and stroke.

    Methods  SF-12 data from a general elderly (aged 75+) population (n = 4278), people with PD (n = 159) and stroke survivors (n = 89) were analysed regarding data quality, reliability (coefficient alpha) and internal construct validity. The latter was assessed through item-total correlations, exploratory and confirmatory factor analyses.

    Results  Completeness of data was high (93–98.8%) and reliability was acceptable (0.78–0.85). Item-total correlations argued against the suggested items-to-summary scores structure in all three samples. Exploratory factor analyses failed to support a two-dimensional item structure among elderly and stroke survivors, and cross-loadings of items were seen in all three samples. Confirmatory factor analyses showed lack of fit between empirical data and the proposed items-to-summary measures structure in all samples.

    Conclusions  These observations challenge the validity and interpretability of SF-12 scores among the elderly, people with PD and stroke survivors. The standard orthogonally weighted SF-12 scoring algorithm is cautioned against. Instead, when the assumed two-dimensional structure is supported in the data, oblique scoring algorithms appear preferable. Failure to consider basic scoring assumptions may yield misleading results.

  • 139.
    Johannsen, Annsofi
    et al.
    Division of Periodontology, Department of Dental Medicine, Karolinska Institutet.
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Johannsen, Gunnar
    Department of Periodontology, Dana-Clinic, Stockholm.
    Dental implants from the patients perspective: transition from tooth loss, through amputation to implants – negative and positive trajectories2012Inngår i: Journal of Clinical Periodontology, ISSN 0303-6979, E-ISSN 1600-051X, Vol. 39, nr 7, s. 681-687Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aim The aim of this study was to explore patients' expectations on and experiences from dental implant treatment through deep-interview technique. Material & Methods A qualitative study design was chosen and 17 patients were interviewed by open-ended questions. All patients in the study had a previous history of periodontal disease with, in most cases, many years of treatment. The interviews were transcribed; a coding process was used according to qualitative conventional content analysis. Results In the analysis, a core category was identified as “Transition from tooth loss, to ‘Amputation’, and to implants – negative and positive trajectories”. When the patients faced the fact that it was not possible to keep the teeth any longer, a period of fear, shame and denial, which also affected their social life negatively followed. After they received their implants and the chewing ability and appearance became better, it also improved their quality of life. Conclusion Treatment with dental implants improved function, enhanced self-esteem, social life and, thus quality of life. In clinical practice, information about dental implants and motivational strategies are needed during the period before getting dental implants. Follow-up is important thereafter, capturing both the pros and cons with implants.

  • 140.
    Johansson, Maurits
    et al.
    Lund University.
    Johansson, Per
    Lund University & Gothenburg University.
    Stomrud, Erik
    Lund University.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Hansson, Oskar
    Lund University.
    Psychometric testing of a Swedish version of the Apathy Evaluation Scale2017Inngår i: Nordic Journal of Psychiatry, ISSN 0803-9488, E-ISSN 1502-4725, Vol. 71, nr 6, s. 477-484Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Apathy, a prevalent and clinically relevant symptom in neurodegenerative disease, is often evaluated by the instrument Apathy Evaluation Scale (AES). However, this instrument has not been translated into Swedish, halting clinical and research efforts. Furthermore, previous studies lack analyses of some basic properties, such as the legitimacy of a total score, or have analysed dimensionality by questionable methods.

    AIM: To translate and psychometrically evaluate a Swedish version of the AES.

    METHOD: The AES was translated, and its psychometric properties were tested in the Swedish BioFINDER study, including cognitively well elderly, and subjects with mild cognitive or parkinsonian symptoms. Psychometric analyses were conducted according to classical test theory (CTT) and aimed to resemble those performed in the English original study by Marin et al. in 1991. Dimensionality was additionally analysed on a matrix of polychoric correlations and parallel analyses.

    RESULTS: Data indicate that the Swedish AES performs satisfactorily regarding data completeness, scaling assumptions, targeting, and reliability. Principal component analyses (with parallel analysis) of polychoric correlation matrices identified a single component. Convergent and discriminative validity correlations accorded with a priori expectations.

    CONCLUSIONS: The study provides initial support that this Swedish AES performs similarly to the English original, and exhibits acceptable psychometric properties according to CTT, including supported unidimensionality, and may be adopted for use in clinical and research settings.

  • 141.
    Johansson, Maurits
    et al.
    Lund University.
    Johansson, Per
    Lund University.
    Stomrud, Erik
    Lund University.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hansson, Oskar
    Lund University.
    Psychometric testing of a Swedish version of the Apathy Evaluation Scale in three clinical cohorts2017Konferansepaper (Fagfellevurdert)
  • 142.
    Jonasson, Stina B
    et al.
    Lund University & Skåne University Hospital.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Hariz, Gun-Marie
    Umeå University.
    Ivarsson, Susanne
    Lund University.
    Nilsson, Maria H
    Skåne University Hospital & Lund University.
    Psychometric evaluation of the Parkinson’s disease Activities of Daily Living Scale2017Inngår i: Parkinson's Disease, ISSN 2090-8083, E-ISSN 2042-0080Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objective: To evaluate a set of psychometric properties (i.e., data completeness, targeting andexternal construct validity) of the Parkinson’s disease Activities of Daily Living Scale (PADLS) in people with Parkinson’s disease (PD). Specific attention was paid to the association between PADLS and PD severity, according to the Hoehn & Yahr (H&Y) staging.

    Methods: The sample included 251 persons with PD (mean age 70 [SD 9] years). The data collection comprised a self-administered postal survey, structured interviews and clinical assessments at home visits.

    Results: Data completeness was 99.6% and the mean PADLS score was 2.1. Floor and ceiling effects were 22% and 2%, respectively. PADLS scores were more strongly associated (rs>0.5) with perceived functional independence, dependence in ADL, walking difficulties and self- rated PD severity than with variables such as PD duration and cognitive function (rs<0.5).PADLS scores differed across H&Y stages (Kruskal-Wallis test, p<0.001). Those in H&Y stages IV-V had more ADL disability than those in stage III (Mann-Whitney U-test, p<0.001), whereas there were no significant differences between the other stages.

    Conclusion: The PADLS revealed excellent data completeness, acceptable targeting and external construct validity. It seems to be well suited as a rough estimate of ADL disability inpeople with PD.

  • 143. Kalnak, Nelli
    et al.
    Winberg, Cecilia
    Magnusson, Lina
    Olsson Möller, Ulrika
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Människa - Hälsa - Samhälle (MHS). Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Garmy, Pernilla
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Erfarenheter av att delta i mastermindgrupper2019Inngår i: Högskolepedagogisk debatt, ISSN 2000-9216, nr 1, s. 21-29Artikkel i tidsskrift (Annet vitenskapelig)
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  • 144. Karlsson, Fredrik
    et al.
    Hansson, Marie-Therese
    Lindskov, Susanne
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Hur sov du i natt?: en litteraturstudie ur patientens perspektiv2019Inngår i: Sömn och hälsa, ISSN 2003-234X, nr 2, s. 31-44Artikkel i tidsskrift (Annet vitenskapelig)
    Abstract [sv]

    Många människor har sömnproblem och sover mindre än rekommenderat hemma. På sjukhus, i en helt främmande miljö, är sannolikt sömnen ännu sämre. Det är därför angeläget att det finns kunskap om hur det är att sova på sjukhus samt vilka faktorer som påverkar sömnen. Då kan eventuella sömnproblem uppmärksammas och omvårdnadsinterventioner kan tillämpas för att underlätta för dessa patienter. Kunskapen kan också användas preventivt för att minska eventuella störningsmoment som kan påverka sömnen och hälsan. 

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    fulltext
  • 145.
    Khalaf, Atika
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap II. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Kulturella och genusrelaterade perspektiv på fysisk aktivitet i Saudiarabien2014Inngår i: Tvärkulturella studier / [ed] Pernilla Ny, Malmö: Gleerups Utbildning AB, 2014, s. 105-130Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 146.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Oman.
    Al Hashmi, Iman
    Oman.
    Al Omari, Omar
    Oman & Australien.
    The relationship between body appreciation and self-esteem and associated factors among Omani university students: An online cross-sectional survey2021Inngår i: Journal of Obesity, ISSN 2090-0708, E-ISSN 2090-0716, Vol. 2021, s. 1-8, artikkel-id 5523184Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background. Given the rapid pace of globalization and the fact that the Sultanate of Oman is experiencing a significant impact of social media on specifying appearance norms among youth in the country, research into positive body images and self-esteem among young individuals has become a national priority. Whilst body image has been well studied across cultures, both positive body image and the relationship between positive body image and self-esteem among Omani youth have been neglected. The aim of the study was to investigate the relationship between positive body image and self-esteem and associated sociodemographic factors among Omani university students based on gender. Methods. This cross-sectional study used an online survey consisting of the two questionnaires that are Body Appreciation Scale-2 and Rosenberg’s Self-Esteem Scale. A total of 237 students were recruited from Sultan Qaboos University’s different colleges. Results. The results indicated that positive body image has a significant relationship with an individual’s self-esteem (β = 0.122, t = 2.197, p = 0.038), Cumulative Grade Point Average (cGPA) (β = 0.140, t = 2.306, p = 0.022), body mass index (BMI) (β = −0.414, t = −6.930, p < 0.001), monthly household income (β = −0.129, t = 2.467, p = 0.029), and the number of social media accounts (≥2, β = −0.132, t = −2.232, p = 0.027). In addition, an individual’s self-esteem was significantly associated with an individual’s cGPA (β = 0.231, t = 3.592, p < 0.001) and mothers’ educational level (β = −0.130, t = −2.065, p = 0.040) besides body appreciation (β = 0.160, t = 2.491, p = 0.013). Conclusions. The findings of this study shed light on the current status of positive body image among university students of Oman. In light of the new knowledge, we propose health interventions that include strategies such as involvement of family, to maintain and/or promote positive body image perceptions among young individuals and subsequently promote healthy appreciation of the physical appearance and self-esteem.

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    fulltext
  • 147.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Oman.
    Al Omari, Omar
    Oman.
    Al Delaimy, Wael
    USA.
    Al Qadire, Mohammad
    Oman, Jordanien.
    Khatatbeh, Moawiah M.
    Jordanien.
    Thultheen, Imad
    Palestina.
    Perceptions of challenges affecting research ethics committees’ members at medical and health science colleges in Omani and Jordanian Universities2021Inngår i: Journal of Academic Ethics, ISSN 1570-1727, s. 1-15Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    In recent years there has been an increase in research conducted in the Middle East, with a corresponding increase in the challenges faced by members of the Research Ethics Committees (RECs). This study compares the structures of Omani and Jordanian RECs and investigates the perceptions of the challenges affecting the work of the REC members in Oman and Jordan. A convenience sample of 34 Omani and 66 Jordanian participants from 21 universities was recruited in this cross-sectional study. Almost 70% disagreed that the members of RECs are unqualified, providing comments without justification; half believed that members have limited experience in research, and almost three-quarters that they have different opinions regarding some ethical issues. No significant differences were found between Omani and Jordanian REC members regarding their perception of the challenges, except for the perception that reviewing proposals is a time-consuming task (p = 0.048) and that multi-REC centres are less available (p = 0.026). The regression model showed that there were significantly more male members of Jordanian RECs, and that Jordanian members were less likely to receive formal training. In conclusion, the current structure of RECs and the challenges faced by members need to be re-evaluated by decision makers to improve the overall quality of research activities, and to ensure that current REC members’ practices adhere to international standards.

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  • 148.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Ekblom, Örjan
    Berggren, Vanja
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Al-Hazzaa, H.
    Determinants of physical activity (PA), sedentary behaviors, and BMI among female university students in South Western Saudia Arabia (KSA)2012Inngår i: Clinical Nutrition Supplements, 2012, 7(1), page 263, 2012, s. 263-Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Rationale: The aim of this study was to examine the prevalence and determinants of PA, sedentary behaviors, and BMI among female university students in south western KSA.

    Methods: This cross-sectional study included 663 female students who were randomly selected from a female university centre. Logistic regressions were used to identify determinants for moderate and vigorous PA, sedentary behaviors, and overweight/obesity and underweight.

    Results: The females reported moderate PA in 49% and vigorous PA in 21% of cases, as defined by the American College of Sports Medicine recommendations. Total energy expenditure in METs-min/week increased with increased BMI (1216 among underweight, 1474 among normal weight, and 1810 among overweight). Sedentary behaviors were found among 15% of participants. The prevalence of overweight and obesity was 24%, and underweight 19%. Significant predictors for moderate PA were found to be present of one obese parent (negative relation), proximity to parks, and BMI (positive relation) while vigorous PA was predicted by age, fathers' level of education, waist-height ratio (negative relation), mothers' level of education, proximity to molls and parks, and BMI (positive relation). Sedentary behaviours were only predicted by proximity to parks. Overweight and obesity were found to correlate to the number of sisters (negative relation), presence of one obese parent, obese siblings, and proximity to molls (positive relation). On the other hand, both age and presence of obese parents were found to be negatively and significantly correlated to underweight.

    Conclusion: A minority of the subjects met with current recommendations for PA. Intervention studies and implementation of national nutritional and PA guidelines are needed and should be integrated in the education of the adolescents and young adults.

  • 149.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Ekblom, Örjan
    Gymnasik- och indrottshögskolan, Stockholm.
    Berggren, Vanja
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap.
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Al-Hazzaa, H.
    Saudiarabien.
    Prevalence and determinants of obesity and physical inactivity among female university students in South Western Saudi Arabia2011Inngår i: Clinical Nutrition Supplements: abstracts of the 33rd ESPEN congress, 2011, Vol. 6(1), s. 100-Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Rationale: The prevalence of obesity in Saudi Arabia (KSA) is a growing challenge to public health, it may affect and be related to the levels of physical activity. The aim of this study was to examine the prevalence of overweight and obesity, physical activity, and unhealthy food intake among female university students in Saudi Arabia. In addition, determinants for levels of physical activity and unhealthy food intake were examined.

    Methods: This cross-sectional study included 663 female students in a university centre in KSA. Measures included anthropometric, socioeconomic, environmental, cultural, and life style factors such as physical activities, sedentary activities and eating habits. Logistic regressions were used to identify predictors of physical activity and unhealthy food intake respectively.

    Results: The prevalence of overweight was 19% and obesity 6%. Physically active females were 41%, as defined by the American College of Sports Medicine (ACSM) recommendations for moderate physical activity (Haskell et al. 2007). Concerning vigorous physical activity, only 17%, of the subjects met the current recommendations. According to WHO’s recommendations for physical activity levels 55% were minimally active and 12% active. Significant predictors for moderate/vigorous physical activity were found to be proximity to parks, mothers’ education (positive relation), lack of knowledge, and number of brothers (negative relation). It also emerged that 88% of the participants had unhealthy food intake with the fathers’ level of education as the only significant predictor.

    Conclusion: A minority of the subjects met with current recommendations for physical activity. Intervention studies and implementation of national nutritional guidelines are needed and should be integrated in the education of the adolescents and young adults.

  • 150.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Karolinska institutet.
    Ekblom, Örjan
    Gymnastik- och idrottshögskolan, GIH.
    Kowalski, Jan
    Karolinska institutet.
    Berggren, Vanja
    Karolinska institutet & Lunds universitet.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Al-Hazzaa, Hazzaa
    Saudiarabien.
    Female university students’ physical activity levels and associated factors: a cross-sectional study in southwestern Saudi Arabia2013Inngår i: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 10, nr 8, s. 3502-3517Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: The high prevalence of physical inactivity in Saudi Arabia is a growing challenge to public health. This study aimed to examine the prevalence of physical activity (PA) and associated factors among female university students. Methods: This cross-sectional study involved 663 randomly selected female university students who completed the Arab Teens Life Style questionnaire. Data included measurements of anthropometric, socioeconomic and environmental factors, as well as self-reported PA. Ordinal regression was used to identify associated factors with low, moderate and high PA levels. Results: The mean age of participants was 20.4 years (SD 1.5). Mean BMI of the students in relation to PA were 23.0, 22.9, 22.1 for high, moderate and low levels of activity, respectively. The analysis revealed significantly higher PA levels among married students, those with high educated mothers, and those who lived far from parks, and lower activity levels among underweight students. Conclusions: This study raises four important determinants for female university students’ PA levels. These factors could be of great importance in the endeavor to prevent the health-threatening increase in physical inactivity patterns and thus non-communicable diseases and obesity where the focus should be on the specific situation and needs of women in Saudi Arabia.

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