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  • 1.
    Al Omari, Omar
    et al.
    Oman.
    Abu Sharour, Loai
    Jordanien.
    Heslop, Karen
    Australien.
    Wynaden, Dianne
    Australien.
    Alkhawaldeh, Abdullah
    Jordanien.
    Al Qadire, Mohammad
    Oman & Jordanien.
    Khalaf, Atika
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Oman.
    Knowledge, attitudes, prevalence and associated factors of cigarette smoking among university students: a cross sectional study2020In: Journal of community health, ISSN 0094-5145, E-ISSN 1573-3610, Vol. 46, no 3, p. 450-456Article in journal (Refereed)
    Abstract [en]

    This study aimed to assess the prevalence of smoking and associated sociodemographic and economic factors as well as students' knowledge about and attitudes towards smoking among university students in Oman. A proportionate random sampling technique recruited 401 students from three universities in a cross-sectional study. The prevalence of smoking was 9.0%. Significant differences in gender, place of residence, if participants had received medical advice, years spent at the university, student income/day, family members who smoked, knowledge and attitude scores were identified. Universities in collaboration with health care providers should be leading the development of strategies to reduce the prevalence of smoking and to sustain the current knowledge and attitude towards smoking. Gender-specific approaches to smoking interventions need to be developed.

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  • 2.
    Al Omari, Omar
    et al.
    Oman & Australien.
    Al Sabei, Sulaiman
    Oman.
    Al Rawajfah, Omar
    Oman & Jordanien.
    Abu Sharour, Loai
    Jordanien.
    Al-Hashmi, Iman
    Oman.
    Al Qadire, Mohammad
    Oman & Jordanien.
    Khalaf, Atika
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Oman.
    Prevalence and predictors of loneliness among youth during the time of COVID-19: A multinational study2021In: Journal of the American Psychiatric Nurses Association, ISSN 1078-3903, E-ISSN 1532-5725, p. 1-11, article id 10783903211017640Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Given the restrictions associated with COVID-19, feelings of loneliness among youth may increase.

    AIMS: The aims of the current study were to assess the prevalence of loneliness among young people at the time of COVID-19 and to identify whether selected variables related to the pandemic predicted the level of loneliness.

    METHOD: A cross-sectional study using WhatsApp and Facebook social media platforms was conducted to survey 1,057 young people aged 15 to 24 years from six Middle Eastern countries. Participants completed survey items including demographic and COVID-19-related questions; the Depression, Anxiety and Stress Scale (DASS); the Satisfaction With Life Scale (SWLS); and the UCLA Loneliness Scale.

    RESULTS: The prevalence of experienced loneliness was 1 (0.1%), 625 (59.1%), 429 (40.6%), and 2 (0.2%), reflecting low, moderate, moderately high, and high experiences for loneliness, respectively. History of depression or anxiety, being dissatisfied with life, and having depression at the time of COVID-19 were significant predictors of loneliness among youth. The model was significant (F = 44.95, p < .05) and accounted for 29.8% of the variance in UCLA Loneliness Scale scores.

    CONCLUSIONS: We found that the high prevalence rate of loneliness during the COVID-19 pandemic was correlated with depression and impaired life satisfaction among Middle Eastern youth. Thus, special attention and interventional action plans need to be developed taking into consideration the youths' special situation during COVID-19.

  • 3.
    Al Qadire, Mohammad
    et al.
    Oman; Jordanien.
    Ballad, Cherry Ann C.
    Oman.
    Al Omari, Omar
    Oman.
    Aldiabat, Khaldoun M.
    Oman.
    Shindi, Yousef Abu
    Oman.
    Khalaf, Atika
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Oman.
    Prevalence, student nurses’ knowledge and practices of needle stick injuries during clinical training: a cross-sectional survey2021In: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, Vol. 20, no 1, p. 1-7, article id 187Article in journal (Refereed)
    Abstract [en]

    Background: The incidence of needle stick injuries is higher among nurses with a low level of knowledge on the prevention of needle stick injury, and who have not received the relevant training during their undergraduate study. The aim of this study was to determine the level of knowledge of the prevention guidelines and the prevalence of needle stick injury among students in Oman.

    Methods: An online cross-sectional survey using a questionnaire and involving 167 students from a governmental university was conducted. The questionnaire consists of 30 questions; eight general questions, knowledge related questions, and questions about risk factors, prevention measures, and actions in a case of needle stick injury. Ethical approval was obtained and the link to the survey was shared with students using their university email portal.

    Results: Of the participants, 81.2% were females; mean age was 23.3 (SD = 4.5) years. The mean total knowledge score was 6.6 out of 10 (SD = 2.1). In addition, 18.2% (n = 32) of the students experienced needle stick injury. Most of the injuries 71.9% (n = 24) occurred during medication preparation and administration. The main cause of NSI as reported by students was recapping the needles (59%, n = 19).

    Conclusions: This study demonstrates that student nurses have a moderate level of knowledge about needle stick injury prevention measures and lack many facets of safe infection control practice. These findings require the collaborative effort of nursing administrators from both academic and clinical areas, to develop effective strategies to reduce or eliminate the occurrence of needle stick injury.

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  • 4.
    Al Qadire, Mohammad
    et al.
    Oman.
    Ballad, Cherry Ann C
    Oman.
    Al Omari, Omar
    Oman.
    Alkhalaileh, Murad
    Saudiarabien.
    Sharour, Loai Abu
    Jordanien.
    Khalaf, Atika
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO).
    Aljezawi, Ma''en
    Jordanien.
    Student nurses' knowledge about the management of chemotherapy-induced neutropenia: Multi-national survey2021In: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 105, p. 1-6, article id 105053Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Chemotherapy-induced neutropenia is a serious global health concern. It is essential that student nurses who are the future of healthcare are equipped with the right knowledge to care for the unique needs of patients with neutropenia.

    OBJECTIVE: The study assesses student nurses' knowledge of neutropenia management and examines the difference in their knowledge with regard to their demographics.

    DESIGN: A descriptive cross-sectional survey design was used.

    SETTINGS: Participants for this survey were recruited from four nursing schools from three countries: Jordan, Oman, and Saudi Arabia.

    PARTICIPANTS: The study sample comprised 230 student nurses representing all three countries.

    METHODS: Online data collection was implemented. A message including the link to the study questionnaire was sent to students through their university portal. Demographic data and the neutropenia knowledge questionnaire were collected.

    RESULTS: The student nurses showed poor knowledge of neutropenia and its management (mean = 10.1 out of 30). The bridging students (M = 12.6, SD = 9.8) had significantly higher mean total knowledge scores than the regular students (M = 9.8, SD = 5.5) (t = 2.9, df = 38.9, p = 0.006). However, students who had received previous education about neutropenia management (M = 11.6, SD = 5.0) had significantly higher mean knowledge scores than those who had not (M = 9.5, SD = 5.6) (t = -2.73, df = 134.8, p = 0.007).

    CONCLUSIONS: The study findings underscore the overarching necessity to improve students' knowledge of neutropenia and its management. However, addressing this concern is multifaceted and requires deliberate effort from various agencies. Developing innovative strategies to increase the coverage of oncology nursing in the curriculum, improving faculty expertise, enhancing staff nurses' knowledge and skills, provision of funding, and adoption of oncology-related competencies in the nursing program need to be explored as key solutions.

  • 5. Alam, Farzana
    et al.
    Nilsson, Annika
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Trygghet och delaktighet: vård- och omsorgspersonalens syn på närståendes behov av stöd vid palliativ vård av äldre2019Report (Other (popular science, discussion, etc.))
    Abstract [sv]

    När äldre inte klarar av att bo hemma längre flyttar de ofta till ett vård-och omsorgs-boende, lever den sista tiden där och är i behov av palliativ vård. Palliativ vård är ett förhållningssätt som kännetecknas av en helhetssyn på människan utifrån individens behov. De som arbetar nära den äldre och den närstående är vård- och omsorgsperso-nalen och det är distriktssköterskan som har det övergripande ansvaret för omvårdna-den. Stöd till den närstående är av största vikt inom den palliativa vården. Syftet med studien var att beskriva vård- och omsorgspersonalens erfarenheter av att uppmärk-samma och stödja närstående till den äldre på vård- och omsorgsboende utifrån ett palliativt förhållningssätt. Datainsamlingarna gjordes i två omgångar, en fokusgrupp-sintervju 2017 och genomförda diskussionsgrupper 2010, analyserades med hjälp av kvalitativ innehållsanalys och tolkades med hjälp av Dosseys "Theory of integral nur-sing". I resultatet framkom kategorierna att skapa trygghet för den närstående, önskan att göra den närstående delaktig och att få kunskap om palliativ vård. Kategorierna utmynnade i temat: I ett palliativt förhållningssätt stöds närstående genom att de får känna trygghet och delaktighet. Slutsatsen är att vård- och omsorgspersonalens in-tention är att stödja de närstående men behöver arbeta mer i ett partnerskap med de närstående för att de ska känna en helhet och därmed trygghet och delaktighet.

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  • 6.
    Alsterlund, Rolf
    et al.
    Department of Infectious Diseases, Central Hospital, Kristianstad.
    Axelsson, Carolina
    Kristianstad University, School of Education and Environment, Avdelningen för Naturvetenskap. Kristianstad University, Forskningsmiljön PRO-CARE.
    Olsson-Liliequist, Barbro
    Unit of Antibiotics and Infection Control, Swedish Institute for Communicable Disease Control, Solna.
    Long-term carriage of extended-spectrum beta-lactamase-producing Escherichia Coli2012In: Scandinavian Journal of Infectious Diseases, ISSN 0036-5548, E-ISSN 1651-1980, Vol. 44, no 1, p. 51-54Article in journal (Refereed)
    Abstract [en]

    In 2009 we described an outbreak caused by extended-spectrum beta-lactamase (ESBL)-producing Escherichia coli in southern Sweden that occurred during 2005–2006. An important finding from the investigation was the long carriage times of the ESBL-producing E. coli in several of the patients, which in some cases exceeded 30 months. Here we report findings from the continued follow-up of bacterial carriage. In September 2010, 5 of the 42 patients still carried the bacteria after a median of 58 months (range 41–59 months), 18 had had repeatedly negative cultures after shedding bacteria for a median of 7.5 months (range 0–39 months), 16 had died while still shedding the bacteria for a median of 9 months (range 0–38 months), and 3 had been lost to follow-up.

  • 7.
    Ambolt, Amelie
    et al.
    Lund University.
    Gard, Gunvor
    Lund University.
    Sjödahl Hammarlund, Catharina
    Kristianstad University, School of Health and Society. Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Therapeutically efficient components of Basic Body Awareness Therapy as perceived by experienced therapists: a qualitative study2017In: Journal of Bodywork & Movement Therapies, ISSN 1360-8592, E-ISSN 1532-9283, Vol. 21, no 3, p. 503-508Article in journal (Refereed)
    Abstract [en]

    Background

    Basic Body Awareness Therapy (BBAT) is a physiotherapeutic method used in rehabilitation to increase physical and emotional balance. The aim was to identify and describe perceived therapeutically efficient components of BBAT.

    Methods

    Twenty-four experienced BBAT therapists participated in focus group interviews. The data were analysed with content analysis.

    Results

    One central theme, the therapeutic space consisted of two categories; the therapeutic encounter and the therapeutic tools, which emerged as the core of the perceived therapeutically efficient components. The therapeutic encounter entailed the therapeutic approach, affect attunement, continuous interaction during treatment, affect mirroring and communicating by use of a person-centred approach. The therapeutic tools included adjustment and adaptation, the use of manual, verbal and non-verbal guiding, and creating an atmosphere of safety and sanctuary.

    Conclusion

    The significance of interaction by use of a person-centred approach combined with the ability to continuously adjust the treatment constituted useful guidelines when designing rehabilitation using BBAT treatment.

  • 8.
    Andersson, Pia
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap.
    Westergren, Albert
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsmiljön PRO-CARE.
    Johannsen, A.
    Division of Periodontology and Dental Hygiene, Department of Dental Medicine, Karolinska Institutet, Huddinge.
    The invisible work with tobacco cessation: strategies among dental hygienists2012In: International Journal of Dental Hygiene, ISSN 1601-5029, E-ISSN 1601-5037, Vol. 10, no 1, p. 54-60Article in journal (Refereed)
    Abstract [en]

    Objective:  This study elucidates dental hygienists’ experiences of work with tobacco cessation among patients who smoke or use snuff.

    Methods:  Data were obtained and categorized by interviewing 12 dental hygienists, who worked actively with tobacco cessation interventions. Qualitative content analysis was used for analysis.

    Results:  The latent content was formulated into the core category ‘the invisible oral health promotion work’. The informants thought that they had a responsibility to work with tobacco cessation. They perceived the financial system in which they perform the activity as frustrating, because tobacco cessation has no treatment code in the dental care insurance. This was one of several reasons why they had to integrate it in other treatment procedures. The results identified three categories: ‘balance in the meeting’, ‘possibilities and hindrance’ and ‘procedures’. In the narratives, both positive and negative aspects were displayed.

    Conclusions:  The financial conditions for tobacco cessation interventions need to be reformed and the activity has to be given a higher priority in the organization of dental care. Practical training in performing tobacco cessation interventions is important during the dental hygiene education; otherwise, tobacco cessation interventions will remain invisible in oral health promotion in the future.

  • 9.
    Argento, Daniela
    et al.
    Kristianstad University, Faculty of Business, Research environment Governance, Regulation, Internationalization and Performance (GRIP. Kristianstad University, Faculty of Business, Department of Business.
    Einarson, Daniel
    Kristianstad University, Faculty of Natural Sciences, Avdelningen för datavetenskap. Kristianstad University, Faculty of Natural Sciences, Research environment of Computer science (RECS).
    Mårtensson, Lennart
    Kristianstad University, Faculty of Natural Sciences, Research environment Man & Biosphere Health (MABH). Kristianstad University, Faculty of Natural Sciences, Avdelningen för miljö- och biovetenskap.
    Persson, Christel
    Kristianstad University, Faculty of Education, Research environment Learning in Science and Mathematics (LISMA). Kristianstad University, Faculty of Natural Sciences, Avdelningen för miljö- och biovetenskap.
    Wendin, Karin
    Kristianstad University, Faculty of Natural Sciences, Research Environment Food and Meals in Everyday Life (MEAL). Kristianstad University, Faculty of Natural Sciences, Avdelningen för mat- och måltidsvetenskap. Danmark.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Lunds universitet.
    Integrating sustainability in higher education: a Swedish case2020In: International Journal of Sustainability in Higher Education, ISSN 1467-6370, Vol. 21, no 6, p. 1131-1150Article in journal (Refereed)
    Abstract [en]

    Purpose – This paper aims to unveil how sustainability is integrated into the courses/programmes ofhigher education institutions. The research question addressed is: how do academics representing differentdisciplines cooperate and engage in the work of integrating sustainability into their teaching programmes.Design/methodology/approach – This paper draws upon the notions of practise variation andinstitutional work from institutional theory and empirically focusses on the case of Kristianstad University(Sweden). This case is based on an autoethnographic approach and illustrates the experiences shared by sixcolleagues, representing different disciplines, engaged in implementing sustainability in their courses/programmes.Findings – The findings highlight how academics representing different disciplines, with specific traditionsand characteristics, face the sustainability challenge. Despite being bound by similar sustainable developmentgoals, differences across disciplines need to be acknowledged and used as an asset if trans-disciplinarity is theultimate goal.Research limitations/implications – Although the intrinsic motivation of individuals to work withsustainability might be a strong driver, the implementation of sustainability within courses/programmes andacross disciplines requires joint efforts and collective institutional work.Practical implications – By highlighting how academics engage in the work of integratingsustainability, this study emphasizes that managers of higher education institutions need to account for thetime and additional resources needed to ensure that academics effectively cope with sustainability. Intrinsicmotivation may not last if organizational structures and leadership are not supportive on a practical level andin the long run.

  • 10.
    Aronsen Torp, Jenny
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE.
    Berggren, Vanja
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE.
    Erlandsson, Lena-Karin
    Department of Health Sciences , Lund University.
    Somali women's experiences of cooking and meals after immigration to Sweden2013In: Journal of Occupational Science, ISSN 1442-7591, E-ISSN 2158-1576, Vol. 20, no 2, p. 146-159Article in journal (Refereed)
    Abstract [en]

    This article elucidates Somali women's experiences of cooking and meals after immigration to Sweden. Six Somali women participated in repeated focus group interviews. Content analysis of the interviews resulted in four themes: change in routines and content of the daily meals, changed experiences related to cooking and shopping for groceries, the social dimensions in food-related occupations, and change of identity and roles. According to the women, variety of factors related to their life in Sweden had led to changes in their food occupations and meals: environmental changes, societal factors and the fact that the women secured employment. Although their new focus on employment led to altered responsibility and time for the cooking, food-related occupations remained important for the creation of identity and the maintenance of the family. This study may inform the development of strategies to restrict the negative impacts of immigration on Somali women's health. Future research will increase understandings of the relationships between food-related occupations and women's roles, identity and health.

  • 11.
    Aronsen Torp, Jenny
    et al.
    Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Berggren, Vanja
    Erlandsson, Lena-Karin
    Westergren, Albert
    Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Weight status among Somali immigrants in Sweden in relation to sociodemographic characteristics, dietary habits and physical activity2015Conference paper (Other academic)
  • 12.
    Aronsen Torp, Jenny
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Berggren, Vanja
    Lunds universitet.
    Erlandsson, Lena-Karin
    Lunds universitet.
    Westergren, Albert
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Weight status among Somali immigrants in Sweden in relation to socio-demographic characteristics, dietary habits and physical activity2015In: Open Public Health Journal, ISSN 1874-9445, Vol. 8, p. 10-16Article in journal (Other academic)
    Abstract [en]

    Background: Immigrants are considered globally to be a vulnerable subpopulation. Vulnerable population groups have a higher prevalence of obesity than the general population. Despite increased immigration of people from Somalia to Sweden in recent years, little research has been undertaken about obesity and obesity-related health risks among Somali immigrants. The present study aimed to investigate the prevalence of overweight and obesity, as well as possible relationships between weight status and socio-demographic characteristics, dietary habits and physical activity (PA) among Somali immigrants in Sweden.

    Methods:This quantitative cross-sectional study included 114 respondents. Data were collected by means of a questionnaire covering socio-demographic factors, PA and dietary habits. Weight and height were also measured.

    Results:Of the 114 respondents, 50.9% had a body mass index (BMI) of 25 or above.In bi-variate analysis, there were no statistically significant differences between those with a BMI below 25 and those with a BMI of 25 or more regarding PA or dietary habits. Multiple logistic regression analysis showed that female gender and being married were associated with having a BMI of 25 or above.

    Conclusion: Socio-demographic factors may be more strongly associated with high BMI than PA or dietary habits among the targeted group and should be taken into account as an issue affecting Somali immigrants in Sweden that warrants further research.

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  • 13.
    Arvidsson, Andreas
    et al.
    Osby kommun.
    Palmquist, Eva-Lott
    Kristianstads kommun.
    Skog, Therese
    Kostenheten Kristianstads kommun.
    Pajalic, Zada
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Environment PRO-CARE.
    Förebyggande hälsoarbete med Senior alert2014Other (Other (popular science, discussion, etc.))
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  • 14.
    Arvidsson, Andreas
    et al.
    Osby kommun.
    Skog, Therese
    Region Skåne Hässleholm.
    Palmquist, Eva-Lott
    Kristianstads Kommun.
    Pajalic, Zada
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    ”Risk för undernäring”2013Other (Other (popular science, discussion, etc.))
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  • 15.
    Bala, Sidona-Valentina
    et al.
    Lund University.
    Forslind, Kristina
    Lund University.
    Fridlund, Bengt
    Jönköping University.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Measuring person-centred care in nurse-led outpatient rheumatology clinics2018In: Musculoskeletal Care, ISSN 1478-2189, E-ISSN 1557-0681, Vol. 16, no 2, p. 296-304Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Measurement of person-centred care (PCC) outcomes is underdeveloped owing to the complexity of the concept and lack of conceptual clarity. A framework conceptualizing outpatient PCC in rheumatology nurse-led clinics has therefore been suggested and operationalized into the PCC instrument for outpatient care in rheumatology (PCCoc/rheum).

    OBJECTIVE: The aim of the present study was to test the extent to which the PCCoc/rheum represents the underpinning conceptual outpatient PCC framework, and to assess its measurement properties as applied in nurse-led outpatient rheumatology clinics.

    METHODS: The 24-item PCCoc/rheum was administered to 343 persons with rheumatoid arthritis from six nurse-led outpatient rheumatology clinics. Its measurement properties were tested by Rasch measurement theory.

    RESULTS: Ninety-two per cent of individuals (n = 316) answered the PCCoc/rheum. Items successfully operationalized a quantitative continuum from lower to higher degrees of perceived PCC. Model fit was generally good, including lack of differential item functioning (DIF), and the PCCoc/rheum was able to separate individuals with a reliability of 0.88. The four response categories worked as intended, with the exception of one item. Item ordering provided general empirical support of a priori expectations, with the exception of three items that were omitted owing to multidimensionality, dysfunctional response categories and unexpected ordering. The 21-item PCCoc/rheum showed good accordance with the conceptual framework, improved fit, functioning response categories and no DIF, and its reliability was 0.86.

    CONCLUSION: We found general support for the appropriateness of the PCCoc/rheum as an outcome measure of patient-perceived PCC in nurse-led outpatient rheumatology clinics. While in need of further testing, the 21-item PCCoc/rheum has the potential to evaluate outpatient PCC from a patient perspective.

  • 16.
    Bala, Sidona-Valentina
    et al.
    Lund University.
    Forslind, Kristina
    Lund University.
    Fridlund, Bengt
    Jönköping University.
    Samuelson, Karin
    Lund University.
    Svensson, Björn
    Lund University.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Person-centred care in nurse-led outpatient rheumatology clinics: conceptualization and initial development of a measurement instrument2018In: Musculoskeletal Care, ISSN 1478-2189, E-ISSN 1557-0681, Vol. 16, no 2, p. 287-295Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Person-centred care (PCC) is considered a key component of effective illness management and high-quality care. However, the PCC concept is underdeveloped in outpatient care. In rheumatology, PCC is considered an unmet need and its further development and evaluation is of high priority. The aim of the present study was to conceptualize and operationalize PCC, in order to develop an instrument for measuring patient-perceived PCC in nurse-led outpatient rheumatology clinics.

    METHODS: A conceptual outpatient PCC framework was developed, based on the experiences of people with rheumatoid arthritis (RA), person-centredness principles and existing PCC frameworks. The resulting framework was operationalized into the PCC instrument for outpatient care in rheumatology (PCCoc/rheum), which was tested for acceptability and content validity among 50 individuals with RA attending a nurse-led outpatient clinic.

    RESULTS: The conceptual framework focuses on the meeting between the person with RA and the nurse, and comprises five interrelated domains: social environment, personalization, shared decision-making, empowerment and communication. Operationalization of the domains into a pool of items generated a preliminary PCCoc/rheum version, which was completed in a mean (standard deviation) of 5.3 (2.5) min. Respondents found items easy to understand (77%) and relevant (93%). The Content Validity Index of the PCCoc/rheum was 0.94 (item level range, 0.87-1.0). About 80% of respondents considered some items redundant. Based on these results, the PCCoc/rheum was revised into a 24-item questionnaire.

    CONCLUSIONS: A conceptual outpatient PCC framework and a 24-item questionnaire intended to measure PCC in nurse-led outpatient rheumatology clinics were developed. The extent to which the questionnaire represents a measurement instrument remains to be tested.

  • 17.
    Bala, Sidona-Valentina
    et al.
    Helsingborg Central Hospital.
    Forslind, Kristina
    Helsingborg Central Hospital.
    Samuelson, Karin
    Lund University.
    Svensson, Björn
    Lund University, Helsingborg.
    Fridlund, Bengt
    Jönköping University.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Measuring person-centered care in nurse-led outpatient rheumatology clinics2018In: International Conference on Probabilistic Models for Measurement, 2018Conference paper (Other academic)
    Abstract [en]

    BACKGROUND: Person-centered care (PCC) is a key component to effective illness management and high-quality care but conceptually underdeveloped in outpatient care settings for long-term disorders such as rheumatoid arthritis (RA), and there is a lack of instruments measuring patient perceived PCC.

    AIM: To conceptualize and operationalize outpatient PCC as a basis for measuring patient-perceived PCC in nurse-led outpatient rheumatology clinics.

    DESIGN: A conceptual outpatient PCC framework was developed based on theory and patient experiences.The resulting framework was operationalizedinto items that were tested regarding their accordancewith the theoretical framework and their measurement properties according to Rasch measurement theory (RMT) using the RUMM2030 software. 

    RESULTS: The conceptual framework comprised five intermingled domains (personalization, shared decision-making, empowerment, communication, and social environment) that were operationalized into a 24-item PCC instrument for outpatient care in rheumatology (PCCoc/rheum). RMT analyses found items to successfully map out a quantitative continuum from lower to higher PCC levels, with generally acceptable model fit and a reliability of 0.88. Three items exhibiting multidimensionality, dysfunctional response categories, and/or unexpected hierarchical ordering were omitted. The revised PCCoc/rheum showed good accordance with the conceptual framework, improved fit, functioning response categories, and no DIF; reliability was 0.86.

    SUMMARY AND IMPLICATIONS: We found support for the PCCoc/rheum as a conceptually based outcome measure of patient perceived PCC. Results implied minor theoretical reconsiderations, and related scale revisions improved theoretical and clinical clarity. While in need of further testing, the PCCoc/rheum has great potential as a measure of outpatient PCC from a patient perspective.

  • 18.
    Bala, Sidona-Valentina
    et al.
    Lund University & Helsingborg Hospital.
    Samuelson, Karin
    Lund University.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health.
    Fridlund, Bengt
    Lund University & Jönköping University.
    Forslind, Kristina
    Helsingborg Hospital & Lund University.
    Svensson, Björn
    Lund University.
    Thomé, Bibbi
    Lund University.
    Living with persistent rheumatoid arthritis: a BARFOT study2017In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 26, no 17-18, p. 2646-2656Article in journal (Refereed)
    Abstract [en]

    AIM AND OBJECTIVE: To describe and understand the meaning of living with persistent rheumatoid arthritis.

    BACKGROUND: A considerable number of patients with rheumatoid arthritis live with an ongoing active and symptomatic illness despite access to potent antirheumatic treatment. There is, however, a lack of knowledge about the meaning of living with this severe long-term illness, defined as persistent rheumatoid arthritis.

    DESIGN: A descriptive design based on a hermeneutic phenomenological method was used.

    METHODS: Ten adults with persistent rheumatoid arthritis and at least five years disease duration were interviewed. The interviews were analysed according to van Manen's method.

    RESULTS: Living with persistent rheumatoid arthritis revealed four overall themes: an existence dominated by painful symptoms and treatment, radical changes and limitations in one's life, a continual struggle to cope with one's life and to master the illness, and a dependency on those who are close by and the world around. The lifeworld was affected to a varying extent and in various ways by the illness but also by the dependence on its treatment and care that was not experienced as sufficiently meeting needs in terms of security, access to and coordination of care as well as team and rehabilitation services.

    CONCLUSIONS: Persistent rheumatoid arthritis and its treatment entail a radical effect on the person's life and quality of life. Current ordinary rheumatology care does not seem to meet the individual needs of the person with persistent rheumatoid arthritis in an optimal way.

    RELEVANCE TO CLINICAL PRACTICE: A greater knowledge about and understanding of the person who lives with persistent rheumatoid arthritis is important for facilitating the development of care and the relief of suffering. A holistic alternative to conventional clinical practice, such as person-centred care, could be tested as an innovative model of care. Our findings might serve as material for educational and counselling purposes for healthcare professionals.

  • 19.
    Bala, Sidona-Valentina
    et al.
    Department of Health Sciences, Lund University.
    Samuelson, Karin
    Department of Health Sciences, Lund University.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE.
    Svensson, Björn
    Section of Rheumatology at the Institution of Clinical Science, Lund University.
    Fridlund, Bengt
    Department of Health Sciences, Lund University.
    Hesselgard, Karin
    Corpporate office, Skåne Regional Council, Malmö.
    The experience of care at nurse-led rheumatology clinics2012In: Musculoskeletal Care, ISSN 1478-2189, E-ISSN 1557-0681, Vol. 10, no 4, p. 202-211Article in journal (Refereed)
    Abstract [en]

    Objective To describe how people with rheumatoid arthritis (RA) experience the care provided by Swedish nurse-led rheumatology outpatient clinics. Methods Eighteen adult people with a diagnosis of RA who had had at least three documented contact sessions with a nurse-led clinic were interviewed. The interviews were analysed with qualitative content analysis. Results Care was expressed in three categories: social environment, professional approach and value-adding measures. A social environment including a warm encounter, a familial atmosphere and pleasant premises was desired and contributed to a positive experience of care. The nurses' professional approach was experienced as empathy, knowledge and skill, as well as support. The care was described as person centred and competent, as it was based on the individual's unique experience of his/her disease and needs. The nurses' specialist knowledge of rheumatology and rheumatology care was highly valued. The offered care represented added value for the participants, instilling security, trust, hope and confidence. It was perceived as facilitating daily life and creating positive emotions. The nurse-led clinics were reported to be easily accessible and provided continuity of the care. These features were presented as fundamental guarantees for health care safety. Conclusion The experiences emphasized the need for a holistic approach to care. In this process, the organization of care and the role and skills of the nurse should be focused on the individual's needs and perspectives. The social environment, professional approach and value-adding measures are particularly relevant for optimal care at nurse-led rheumatology outpatient clinics.

  • 20.
    Bala, V.
    et al.
    Lund University.
    Fridlund, B.
    Jönköping University.
    Forslind, K.
    Lund University.
    Svensson, B.
    Lund University.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health.
    Towards measurement of person-centered care outcomes in outpatient nurse-led clinics2017In: Annals of the Rheumatic Diseases, ISSN 0003-4967, E-ISSN 1468-2060, Vol. 76, p. 1520-1520Article in journal (Refereed)
    Abstract [en]

    Background Person-centered care (PCC) is increasingly emphasized as a key component of effective illness management and of developing high quality of care. Despite considerable progress of PCC in many areas of care there is currently a gap and a need for means to assess PCC practice in outpatient care. In rheumatology, PCC is considered an unmet need and further development and evaluation of this approach to care is thus of high priority.

    Objectives To develop an instrument for measuring person-centered care from the perspective of the person with rheumatoid arthritis (RA) in nurse-led outpatient clinics.

    Methods A conceptual framework of PCC in the outpatient context and focusing on the meeting between the person with RA and the nurse and on the patient as an active care partner was undertaken. Based on this framework, qualitative interviews (1,2) and a literature review, a 35-item questionnaire was proposed and qualitatively tested regarding acceptability and content validity among 50 persons with RA attending a nurse-led outpatient clinic. Two versions of the questionnaire were tested: one using four response categories (0 = Totally disagree; 3 = Completely agree), and one using two response categories (0 = Disagree; 1 = Agree). Content validity was estimated by calculating Content Validity Index of the individual items (I-CVI) and of the overall instrument (S-CVI).

    Results Respondents found the items easy to understand (77%) and relevant (93%). Seventy-three percent of the respondents preferred the questionnaire version with four response categories. This version took a mean (SD) of 5.3 (2.5) minutes to complete. I-CVI values ranged from 0.87 to 1.00 and S-CVI was 0.94. About 80% of the respondents considered some items to be redundant. This resulted in a reduced 24-item draft questionnaire that yield a total score between 0–72.

    Conclusions A preliminary 24-item patient-reported PCC questionnaire was developed. Psychometric testing is needed for validation of this tool before implementation.

  • 21.
    Bengtsson, Torbjörn
    et al.
    Örebro University.
    Khalaf, Atika
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Environment PRO-CARE.
    Khalaf, Hazem
    Örebro University.
    Secreted gingipains from P. gingivalis colonies exert potent immunomodulatory effects on human gingival fibroblasts2015In: Microbiological Research, ISSN 0944-5013, Vol. 178, p. 18-26Article in journal (Refereed)
    Abstract [en]

    Periodontal pathogens, including Porphyromonas gingivalis, can form biofilms in dental pockets and cause inflammation, which is one of the underlying mechanisms involved in the development of periodontal disease, ultimately leading to tooth loss. Although P. gingivalis is protected in the biofilm, it can still cause damage and modulate inflammatory responses from the host, through secretion of microvesicles containing proteinases. The aim of this study was to evaluate the role of cysteine proteinases in P. gingivalis colony growth and development, and subsequent immunomodulatory effects on human gingival fibroblast. By comparing the wild type W50 with its gingipain deficient strains we show that cysteine proteinases are required by P. gingivalis to form morphologically normal colonies. The lysine-specific proteinase (Kgp), but not arginine-specific proteinases (Rgps), was associated with immunomodulation. P. gingivalis with Kgp affected the viability of gingival fibroblasts and modulated host inflammatory responses, including induction of TGF-β1 and suppression of CXCL8 and IL-6 accumulation. These results suggest that secreted products from P. gingivalis, including proteinases, are able to cause damage and significantly modulate the levels of inflammatory mediators, independent of a physical host-bacterial interaction. This study provides new insight of the pathogenesis of P. gingivalis and suggests gingipains as targets for diagnosis and treatment of periodontitis.

  • 22.
    Berggren, Vanja
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsmiljön PRO-CARE. Kristianstad University, Forskningsmiljön Mat, måltid, hälsa i 24-timmarsperspektivet.
    Gottvall, Karin
    Department of Public Health Sciences, Division of Global Health (IHCAR), Karolinska Institute.
    Isman, Elisabeth
    Department of Public Health Sciences, Division of Global Health (IHCAR), Karolinska Institute.
    Bergström, Staffan
    Department of Public Health Sciences, Division of Global Health (IHCAR), Karolinska Institute.
    Ekéus, Cecilia
    Department of Women's and Children's Health, Division of Reproductive Health, Karolinska Institute.
    Infibulated women have an increased risk of anal sphincter tears at delivery: a population-based Swedish register study of 250 000 births2013In: Acta Obstetricia et Gynecologica Scandinavica, ISSN 0001-6349, E-ISSN 1600-0412, Vol. 92, no 1, p. 101-108Article in journal (Refereed)
    Abstract [en]

    Objective. To investigate the risk for anal sphincter tears (AST) in infibulated women. Design. Population-based cohort study. Setting. Nationwide study in Sweden. Population. The study population included 250 491 primiparous women with a vaginal singleton birth at 37–41 completed gestational weeks during 1999–2008. We only included women born in Sweden and in Africa. The African women were categorized into three groups; a Somalian-group, n = 929, where over 95% are infibulated; the Eritrea-Ethiopia-Sudan-group, n = 955, where the majority is infibulated, compared to other African countries, n = 1035, where few individuals are infibulated, but had otherwise similar anthropometric characteristics. These women were compared to 247 572 Swedish-born women. Methods. Register study with data from the National Medical Birth Registry. Main outcome measures. AST in non-instrumental and instrumental vaginal delivery. Results. Compared to Swedish-born women, women from Somalia had the highest odds ratio for AST in all vaginal deliveries: 2.72 (95% CI 2.08–3.54), followed by women from Eritrea-Ethiophia-Sudan 1.80 (1.41–2.32) and other African countries 1.23 (0.89–1.53) after adjustment for major risk factors. Mediolateral episiotomy was associated with a reduced risk of AST in instrumental deliveries. Conclusion. Delivering African women from countries where infibulation is common have an increased risk of AST compared with Swedish-born women, despite delivering in a highly technical quality healthcare setting. AST can cause anal incontinence and it is important to investigate risk factors for this and try to improve clinical routines during delivery to reduce the incidence of this complication.

  • 23.
    Berggren, Vanja
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE. Kristianstad University, Forskningsmiljön Mat, måltid, hälsa i 24-timmarsperspektivet.
    Musa Ahmed, Souad
    Ahfad University for Women, Khartoum.
    Hernlund, Y.
    Department of Anthropology, University of Washington, Seattle.
    Johansson, Eva
    Division of International Health Care Research (IHCAR), Department of Public Health, Karolinska Institutet.
    Habbani, B.
    Ahfad University for Women, Khartoum.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Being victims or beneficiaries?: perspectives on female genital cutting and reinfibulation in Sudan2006In: African Journal of Reproductive Health, ISSN 1118-4841, Vol. 10, no 2, p. 24-36Article in journal (Refereed)
    Abstract [en]

    Female Genital Mutilation (FGM) or the more value neutral term, Female Genital Cutting (FGC) is widely practised in northern Sudan, where around 90% of women undergo the most extensive form of FGC, infibulation. One new approach to combating FGC in Sudan is to acknowledge the previously hidden form of FGC, reinfibulation (RI) after delivery, when the woman is sewn back so much as to mimic virginity. Based on a qualitative study in Khartoum State, this article explores Sudanese women's and men's perceptions and experiences of FGC with emphasis on RI after delivery. The results showed that both genders blame each other for the continuation of the practices, and the comprehensive understanding of the perceptions and experiences was that both the women and the men in this study were victims of th e consequences of FGC and RI. The female narratives could be understood in the three categories: viewing oneself as being "normal" in having undergone FGC and RI; being caught between different perspectives; and having limited influence on the practices of FGC and RI. The male narratives could be understood in the three categories: suffering from the consequences of FGC and RI, trying to counterbalance the negative sexual effects of FGC and striving in vain to change female traditions. The results indicate that the complexity of the persistence of FGC and RI goes far beyond being explained by subconscious patriarchal and maternalistic actions, related to socially constructed concepts of normality, female identity,tradition and religion a"silent" culture betweenmen and women.

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  • 24.
    Bladh, Stina
    et al.
    Department of Health Sciences, Lund University, Lund, Sweden.
    Nilsson, Maria
    Department of Health Sciences, Lund University, Lund, Sweden.
    Hariz, Gun-Marie
    Department of Community Medicine and Rehabilitation, Umeå University, Umeå, Sweden.
    Westergren, Albert
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE.
    Hobart, Jeremy
    Department of Clinical Neuroscience, Peninsula Medical School, Plymouth, UK.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE.
    Psychometric performance of a generic walking scale (Walk-12G) in multiple sclerosis and Parkinson's disease2012In: Journal of Neurology, ISSN 0340-5354, E-ISSN 1432-1459, Vol. 259, no 4, p. 729-738Article in journal (Refereed)
    Abstract [en]

    Walking difficulties are common in neurological and other disorders, as well as among the elderly. There is a need for reliable and valid instruments for measuring walking difficulties in everyday life since existing gait tests are clinician rated and focus on situation specific capacity. The Walk-12G was adapted from the 12-item multiple sclerosis walking scale as a generic patient-reported rating scale for walking difficulties in everyday life. The aim of this study is to examine the psychometric properties of the Walk-12G in people with multiple sclerosis (MS) and Parkinson’s disease (PD). The Walk-12G was translated into Swedish and evaluated qualitatively among 25 people with and without various neurological and other conditions. Postal survey (MS, n = 199; PD, n = 189) and clinical (PD, n = 36) data were used to test its psychometric properties. Respondents considered the Walk-12G relevant and easy to use. Mean completion time was 3.5 min. Data completeness was good (<5% missing item responses) and tests of scaling assumptions supported summing item scores to a total score (corrected item-total correlations >0.6). Coefficient alpha and test–retest reliabilities were >0.9, and standard errors of measurement were 2.3–2.8. Construct validity was supported by correlations in accordance with a priori expectations. Results are similar to those with previous Walk-12G versions, indicating that scale adaptation was successful. Data suggest that the Walk-12G meets rating scale criteria for clinical trials, making it a valuable complement to available gait tests. Further studies involving other samples and application of modern psychometric methods are warranted to examine the scale in more detail.

  • 25.
    Blom, Lisbeth
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsmiljön PRO-CARE.
    Olsson, Ann-Christin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap.
    Olsson, Birgitta
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap.
    Persson, Irene
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap.
    Utveckling av ett tregradigt nivåspecifikt bedömningsunderlag i verksamhetsförlagd utbildning: Sjuksköterskeprogrammet, Högskolan Kristianstad2012Report (Other academic)
    Abstract [en]

    Background: Nursing students are, during their work integrated learning (WIL) courses, in a learning situation that needs to be evaluated and graded. How the examination is shaped influence the students planning and carrying out of their studies.

    The aim was to develop and test three-graded, level (year 1, 2 and 3 during education) specific assessment forms with criteria for grading and an adherent manual to be used during nursing students’ WIL courses.

    Methods used were questionnaires for evaluation of the assessment forms for WIL (their meaning and relevance), dialogues, seminars, pedagogical discussions, focus group, and quantitative methodology. The questionnaire for evaluation was answered by supervisors and students. In addition dialogues with teachers in the nursing programme were carried out. The project group also participated in WIL-seminars at Kristianstad University and in pedagogical discussions in a focus group (at LRC, Teachers Resource Centre). In addition, the project group took part of results from regression- and factor-analyses based on the assessment forms.

    Results: Based on the questionnaire answers the assessment forms were revised, resulting in merging of some factors in order to coherent factors and it was secured that the factors were connected to situations in the WIL. The labelling of the WIL-dialogues (between the clinical teacher, the supervisor, and the student) was decided to be: “planning-“, “guiding-“, and “assessment dialogues”, in order to mirror the actual content in the three different dialogues. Something that emerged as important was that teachers gave deepening questions during the dialogues, such as asking students about what, how and why. The results from the regression-, and factor analyses highlighted factors such as independence, carefulness in caring, interpersonal relations, collaboration, and transforming research and laws into practice. These factors could be used as guidance for the assessments and grading of students during their WIL courses.

    Conclusions: The assessment shall be based on the students’ abilities (i.e. not only theoretical knowledge), the context, and different situations during their WIL. The developed assessment forms capture not only the students’ knowledge but also skills, and values.

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  • 26.
    Blom, Lisbeth
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Environment PRO-CARE.
    Olsson, Ann-Christin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I.
    Persson, Irene
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I.
    Sjöberg, Marina
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I.
    Utveckling av betygskriterier till faktorer i bedömningsunderlag för verksamhetsförlagd utbildning samt att erhålla en samsyn i tolkningen av innehållet i bedömningsfaktorerna2014Report (Other (popular science, discussion, etc.))
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  • 27.
    Blom, Lisbeth
    et al.
    Kristianstad University, Research Environment PRO-CARE. Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I.
    Petersson, Pia
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Environment PRO-CARE.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Environment PRO-CARE. Kristianstad University, Research Platform for Collaboration for Health.
    Westergren, Albert
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Environment PRO-CARE.
    The SBAR model for communication between health care professionals: a clinical intervention pilot study.2015In: International Journal of Caring Sciences, ISSN 1791-5201, E-ISSN 1792-037X, Vol. 8, no 3, p. 530-535Article in journal (Refereed)
    Abstract [en]

    Background: SBAR has been suggested as a means to avoid unclear communication between health care professionals and in turn enhance patient safety in the healthcare sector.

     

    Aim: to evaluate hospital-based health care professionals experiences from using the Situation, Background, Assessment and Recommendation (SBAR) communication model.

     

    Methodology: A quantitative, descriptive, comparative pre- and post-intervention questionnaire-based pilot study before and after the implementation of SBAR at surgical hospitals wards. Open comments to questionnaire items were analyzed qualitatively.

     

    Results: The introduction of SBAR increased the experience of having a well-functioning structure for oral communication among health care professionals regarding patients’ conditions. Qualitative findings revealed the categories: Use of SBAR as a structure, Reporting time, Patient safety, and Personal aspects.

     

    Conclusions: SBAR is perceived as effective to get a structure of the content in patient reports, which may facilitate patient safety.

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  • 28.
    Blom, Lisbeth
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsmiljön PRO-CARE.
    Westergren, Albert
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsmiljön PRO-CARE.
    SBAB: en modell för kommunikation mellan vårdpersonal - en klinisk interventionsstudie2012Report (Other academic)
    Abstract [sv]

    Bakgrund:

    Otydlig  kommunikation  mellan  vårdpersonal  är  en  vanlig bakomliggande  orsak  till  patientskador  inom  vården.  Varje  gång  som information ska överföras från en person till en annan riskerar den att bli förändrad på något sätt. Utan gemensam förståelse fås då ett otillräckligt underlag  för  att  t  ex  läkaren  ska  kunna  fatta  rationella  medicinska beslut   och   för   sjuksköterskan  att   göra   adekvata   omvårdnadsåtgärder.

    Syftet:

    Syftet var att utvärdera effekterna av införandet av SBAR – en modell för kommunikation mellan vårdpersonal.

    Metod:

    Studien har haft en kvantitativ, deskriptiv, jämförande pre- och postinterventions design. Metoden som har använts var enkät med strukturerade frågor. Enkäten har använts före och efter införandet av SBAR som modell för kommunikation mellan vårdpersonal. Öppna frågor (kommentarer till respektive fråga) i enkäten analyserades kvalitativt.

    Resultat:

    Vårdpersonalen ansåg i större utsträckning att det genom införandet av SBAR fanns en väl fungerande struktur för innehållet i den muntliga kommunikationen kring patientens tillstånd. Kvalitativa fynd presenteras under fyra teman såsom: Användning av SBAR som struktur, Tiden för rapportering, Patientsäkerhet och Personberoende.

    Slutsats:

    SBAR en modell för kommunikation mellan vårdpersonal är effektiv för att få en struktur på innehållet samt för patientsäkerheten vid rapportering av patienter. Den här använda metodiken för framtagande, implementering och utvärdering av modellen för kommunikation mellan vårdpersonal kan med fördel användas inom andra områden som är i behov av utveckling.

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  • 29.
    Blücher, Anna
    et al.
    Linnéuniversitetet.
    Borgenstierna, Catharina
    Camanio Care AB.
    Lindborg, Ann-Louise
    Mälardalens Högskola.
    Lindén, Maria
    Mälardalens Högskola.
    Nyberg, Maria
    Kristianstad University, School of Education and Environment, Avdelningen för Mat- och måltidsvetenskap. Kristianstad University, Faculty of Natural Science, Research Environment Food and Meals in Everyday Life (MEAL).
    Olsson, Viktoria
    Kristianstad University, Faculty of Natural Science, Research Environment Food and Meals in Everyday Life (MEAL).
    Wendin, Karin
    Kristianstad University, Faculty of Natural Science, Research Environment Food and Meals in Everyday Life (MEAL). Kristianstad University, Faculty of Natural Science, Avdelningen för mat- och måltidsvetenskap.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Mat och måltidsteknik för ett hälsosamt och oberoende åldrande2018Book (Other academic)
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  • 30.
    Bolejko, Anetta
    et al.
    Department of Health Sciences, Lund University.
    Brodersen, John
    Research Unit and Section for General Practice, Institute of Public Health, University of Copenhagen.
    Zackrisson, Sophia
    Department of Medical Imaging and Physiology, Skåne University Hospital Malmö.
    Wann-Hansson, Christine
    Faculty of Health and Society, Malmö University.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Environment PRO-CARE. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Psychometric properties of a Swedish version of the Consequences of Screening: Breast Cancer questionnaire2014In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 70, no 10, p. 2373-2388Article in journal (Refereed)
    Abstract [en]

    AIM: To evaluate the psychometric properties of a questionnaire addressing psychosocial consequences of false-positive mammographic screening.

    BACKGROUND: The Consequences of Screening - Breast Cancer and Lung Cancer questionnaires target psychosocial consequences of false-positive cancer screening. The Consequences of Screening - Breast Cancer questionnaire and ten items not considered lung cancer specific from the Lung Cancer questionnaire have been adapted for use in mammographic screening in Sweden, but remain psychometrically untested.

    DESIGN: Instrument development paper with psychometric cross-sectional and test-retest design.

    METHODS: Twelve scales of a Swedish questionnaire version were tested by the Rasch model and traditional psychometric methods. Women with false-positive (Group I, n = 640) and negative (Group II, n = 802) screening mammography responded to the study questionnaire and the Nottingham Health Profile during 2009-2011.

    RESULTS: Iterative analyses resulted in nine scales demonstrating Rasch model fit, but all scales exhibited poor targeting with relatively large floor effects. Corrected item-total correlations exceeded the recommended criterion. Score differences between Groups I and II and correlations with Nottingham Health Profile sections followed an expected pattern. Cronbach's α and test-retest reliability was acceptable for group-level assessments for ten and seven scales, respectively.

    CONCLUSIONS: Five scales (Sense of dejection, Anxiety, Behavioural, Sleep and Existential values) of the Swedish questionnaire version demonstrated the best psychometric properties. Other scales should be used more cautiously. Although filling an important gap, causes of concern were identified across scales. The questionnaire should therefore be considered for group-level assessments rather than for measurement of individual degrees of psychosocial consequences.

  • 31.
    Bolejko, Anetta
    et al.
    Lund University.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences.
    Effects of an information booklet on patient anxiety and satisfaction with information in magnetic resonance imaging: a randomized, single-blind, placebo-controlled trial2021In: Radiography, ISSN 1078-8174, E-ISSN 1532-2831, Vol. 27, no 1, p. 162-167Article in journal (Refereed)
    Abstract [en]

    Introduction: Magnetic resonance imaging (MRI) is an important modality in diagnostics and treatment follow-up. However, MRI can be perceived as unpleasant even though the examination is non-invasive. Patients' knowledge of the MRI procedure is usually scarce, which may enhance patient anxiety at ex- amination. We investigated the effects on anxiety and satisfaction with an information booklet on MRI compared to a placebo booklet delivered to adult patients prior to their first MRI examination. Methods: This randomized, single-blind, placebo-controlled trial included 197 patients. The intervention group (n 1⁄4 95) received a booklet about MRI prior to the examination, whereas the control group (n 1⁄4 102) received a placebo booklet of the same size and layout but containing general information. The State Trait Anxiety Inventory with supplementary questions from the Quality from the Patient's Perspective questionnaire were used as patient-reported outcome measures.Results: Anxiety did not differ between the groups, either prior to MRI or during the examination, but those who received the placebo booklet were at higher risk of experiencing high anxiety prior to the MRI examination (odds ratio 2.64; P 1⁄4 0.029). The intervention group was more satisfied with the infor- mation received (P 1⁄4 0.044), and a majority of participants in both groups (!87%) considered it important to obtain information on the MRI procedure.Conclusion: Written MRI information decreases the risk of high anxiety levels before MRI and improves patient satisfaction with the information. Further research is needed to investigate whether written information prior to MRI is beneficial not only from the perspective of the patient but may also be cost- effective.Implications for practice: Written MRI information prior to the examination is recommended in radiog- raphy care.

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  • 32.
    Bolejko, Anetta
    et al.
    Skåne University Hospital Malmö.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Environment PRO-CARE.
    Wann-Hansson, Christine
    Malmö University.
    Zackrisson, Sophia
    Skåne University Hospital Malmö.
    Prevalence, long-term development, and predictors of psychosocial consequences of false-positive mammography among women attending population-based screening2015In: Cancer Epidemiology, Biomarkers and Prevention, ISSN 1055-9965, E-ISSN 1538-7755, Vol. 24, no 9, p. 1388-97Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Cancer screening aims to detect cancer at an asymptomatic stage, although side effects from screening also occur. We investigated the prevalence, longitudinal development, and predictors of psychosocial consequences of false-positive breast cancer screening.

    METHODS: Three hundred ninety-nine women with false-positive screening mammography responded to the Consequences of Screening-Breast Cancer (COS-BC) questionnaire immediately after a negative diagnosis (free from breast cancer) following recall examination(s) (baseline), and 6 and 12 months later. Age-matched controls (n = 499) with a negative mammogram responded to the COS-BC at the same occasions. Five COS-BC scales (Sense of dejection, Anxiety, Behavioral, Sleep, and Existential values) were used as outcome measures.

    RESULTS: Women with false-positive mammography had consistently higher prevalence of all five consequences compared with controls (P < 0.001). The prevalences decreased between baseline and 6 months (P < 0.001) but were stable between 6 and 12 months (P ≥ 0.136). Early recall profoundly predicted long-term consequences for all five outcomes (OR, 3.05-10.31), along with dissatisfaction with information at recall (OR, 2.28-2.56), being foreign-born (OR, 2.35-3.71), and lack of social support (OR, 1.13-1.25).

    CONCLUSION: This 1-year longitudinal study shows that women experience psychosocial consequences of false-positive screening mammography. Early recall should be performed cautiously, and provision of information as well as social support may reduce psychosocial consequences.

    IMPACT: Although delivery of population-based screening reduces breast cancer mortality, it also raises the issue of its impact on the psychosocial well-being of healthy women. Our findings identify predictors that can be targeted in future efforts to reduce the side effects of mammographic screening.

  • 33.
    Bolejko, Anetta
    et al.
    Department of Health Sciences, Lund University.
    Wann-Hansson, Christine
    Department of Caring Sciences, Malmö University.
    Zackrisson, Sophia
    Diagnostic Centre of Imaging and Functional Medicine, Skåne University Hospital, Malmö.
    Brodersen, John
    Research Unit and Section for General Practice, Institute of Public Health, University of Copenhagen.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE.
    Adaptation to Swedish and further development of the ‘Consequences of Screening – Breast Cancer’ questionnaire: a multimethod study2013In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 27, no 2, p. 475-486Article in journal (Refereed)
    Abstract [en]

    Rationale:  Experiencing a false-positive screening mammography can cause considerable psychosocial distress. The Consequences of Screening – Breast Cancer questionnaire (COS-BC parts 1 and 2), recently developed in Denmark, is the only condition-specific questionnaire for measuring short- and long-term psychosocial consequences of false-positive mammographic screening. Additional studies are needed to further test the COS-BC before use across cultures. Furthermore, studies have suggested that the consequences of false-positive screening results are partly common across cancer screening settings, although this hypothesis remains largely untested.

    Objectives:  This study (i) assesses content validity of a Swedish version of the COS-BC, (ii) tests whether items expressing long-term consequences of false-positive lung cancer screening results are relevant in a breast cancer screening context and (iii) explores the usefulness of taking results from Rasch analyses of the source version as an aid in questionnaire translation and adaptation.

    Methods:  Following dual-panel translation, content validity was assessed through qualitative interviews with representatives of the target population and the content validity index (CVI). Item locations and Rasch model fit of the source questionnaires were considered in the translation and assessment process.

    Results:  The COS-BC items were generally found relevant and provided coverage of the target construct. Content validity was supported also for nine of 10 lung cancer screening items. Scale CVI values were ≥0.81. Previous Rasch data were useful in facilitating translation and assessing item content validity. The resulting Swedish version of the COS-BC parts 1 and 2 consists of 34 and 23 items, respectively.

    Conclusion:  This study illustrates the value of methodological triangulation and use of data from previous Rasch analyses in questionnaire translation and adaptation. We found support for the hypothesis that consequences of false-positive screening are common across cancer screening settings. Psychometric properties of the Swedish COS-BC remain to be established.

  • 34.
    Bolejko, Anetta
    et al.
    Lund University.
    Zackrisson, Sophia
    Skåne University Hospital Malmö.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Environment PRO-CARE. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Wann-Hansson, Christine
    Department of Caring Science, Malmö University.
    A roller coaster of emotions and sense: coping with the perceived psychosocial consequences of a false-positive screening mammography2014In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 23, no 13-13, p. 2053-2062Article in journal (Refereed)
    Abstract [en]

    Aims and objectives To explore coping with the perceived psychosocial consequences of a false-positive screening mammography. Background Mammographic screening has been found effective to decrease breast cancer (BC) mortality, yet there are adverse effects. Psychosocial consequences of false-positive mammographic screening have mainly been investigated from a population-based perspective. A call for qualitative studies to further explore these consequences has thus been postulated. To date, qualitative studies have elucidated women's experiences following their recall breast examinations, but their coping with perceived psychosocial consequences of a false-positive screening mammography has not yet been explored. Design An explorative qualitative study. Methods Face-to-face interviews were held with a purposive heterogeneous sample of 13 Swedish-speaking women with a false-positive screening mammography. The transcripts were analysed by the use of an inductive content analysis. Results Coping with the perceived psychosocial consequences of a false-positive screening mammography implied a roller coaster of emotion and sense. Women described how they imagined the worst and were in a state of uncertainty feeling threatened by a fatal disease. Conversely, they felt protected, surrounded by their families and being professionally taken care of, which together with perceived sisterhood and self-empowerment evoked strength and hope. Being aware of family responsibility became a crucial matter. Experiencing false-positive screening raised thoughts of thankfulness and reappraisal of life, although an ounce of BC anxiety remained. Consequently, gained awareness about BC screening and values in life surfaced. Conclusions Experiencing a false-positive screening mammography triggers agonising experiences evoking a variety of coping strategies. Provision of screening raises the issue of responsibility for an impact on psychosocial well-being among healthy women. Relevance to clinical practice Gained knowledge might provide a basis for interventions to prevent psychosocial consequences of false-positive mammographic screening and provide support for women with a potentially compromised ability to overcome such consequences.

  • 35.
    Breugem, Corstiaan
    et al.
    Nederländerna.
    Smit, Hans
    Nederländerna.
    Mark, Hans
    Nederländerna.
    Davies, Gareth
    Nederländerna.
    Schachner, Peter
    Österrike.
    Collard, Mechelle
    Wales.
    Sell, Debbie
    England.
    Autelitano, Luca
    Italien.
    Rezzonico, Angela
    Italien.
    Mazzoleni, Fabio
    Italien.
    Novelli, Giorgio
    Italien.
    Mossey, Peter
    Skottland.
    Persson, Martin
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Mehendale, Felicity
    Skottland.
    Gaggl, Alexander
    Österrike.
    van Gogh, Christine
    Nederländerna.
    Zuurbier, Petra
    Nederländerna.
    Reinart, Siegmar
    Tyskland.
    de Graaff, Feike
    Nederländerna.
    Meazzini, Costanza
    Italien.
    Prioritizing Cleft/Craniofacial Surgical Care after the COVID-19 Pandemic2020In: Plastic and Reconstructive Surgery - Global Open, E-ISSN 2169-7574, Vol. 8, no 9Article in journal (Refereed)
    Abstract [en]

    Background: It is anticipated that in due course the burden of emergency care due to COVID-19 infected patients will reduce sufficiently to permit elective surgical procedures to recommence. Prioritizing cleft/craniofacial surgery in the already overloaded medical system will then become an issue. The European Cleft Palate Craniofacial Association, together with the European Cleft and Craniofacial Initiative for Equality in Care, performed a brief survey to capture a current snapshot during a rapidly evolving pandemic. Methods: A questionnaire was sent to the 2242 participants who attended 1 of 3 recent international cleft/craniofacial meetings. Results: The respondents indicated that children with Robin sequence who were not responding to nonsurgical options should be treated as emergency cases. Over 70% of the respondents indicated that palate repair should be performed before the age of 15 months, an additional 22% stating the same be performed by 18 months. Placement of middle ear tubes, primary cleft lip surgery, alveolar bone grafting, and velopharyngeal insufficiency surgery also need prioritization. Children with craniofacial conditions such as craniosynostosis and increased intracranial pressure need immediate care, whilst children with craniosynostosis and associated obstructive sleep apnea syndrome or proptosis need surgical care within 3 months of the typical timing. Craniosynostosis without signs of increased intracranial pressure needs correction before the age of 18 months. Conclusions: This survey indicates several areas of cleft and craniofacial conditions that need prioritization, but also certain areas where intervention is less urgent. We acknowledge that there will be differences in the post COVID-19 response according to circumstances and policies in individual countries.

  • 36.
    Bringsén, Åsa
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Människa - Hälsa - Samhälle (MHS). Kristianstad University, Faculty of Health Science, Avdelningen för folkhälsovetenskap. Högskolan Kristianstad.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Högskolan Kristianstad.
    Studentdriven hälsopunkt: från idé till implementering2019In: Högskolepedagogisk debatt, ISSN 2000-9216, no 1, p. 30-43Article in journal (Other academic)
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  • 37.
    Bringsén, Åsa
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Kristianstad University, Faculty of Health Science, Department of Public Health.
    Sjöbeck, Johanna
    Kristianstad University, Faculty of Health Science.
    Peterson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences.
    Resources needed: professionals about appearance issues in nursing situations2018Conference paper (Other academic)
    Abstract [en]

    Background

    Dissatisfaction with appearance is a common phenomenon, more frequent among women than men (Frisén & Holmqvist 2010, Neighbors & Sobal 2007) but so common that it can be considered a norm (Tantleff-Dunn, Barnes & Larose 2011). Health professionals are therefore in contact with the phenomenon on a regular basis in different health settings. Previous research have shown that health professionals experience time constraints and lack of confidence in relation to patients’ appearance issues (Persson et al 2009; Konradsen et al 2009). Little is however known about the resources needed from the professionals’ point of view. The aim of the study was therefore to explore the phenomenon from a nursing perspective in general and with particular emphasis on resources needed.

    Methods

    Five semi-structured focus group interviews were conducted with 24 health professionals in total (19 women and 5 men). Their age varied from approximately 20 to 45 years, with adherent variation in professional experience from a variety of health settings. The interviews were digitally recorded, transcribed verbatim and analyzed through thematic analysis (Braun & Clarke, 2006). The study was done in accordance with the Swedish Law of Research Ethics, SFS 2003:460.

    Findings

    The analysis resulted in the two themes knowledge development and operative support, representing different resources needed according to the respondents. The respondents own knowledge and professional competence was constantly referred to as the most important resource. The findings showed the importance of appearance being included in their education, the need for a continuous process of reflection and learning on an individual level but also on group level in terms of collegial learning. In order for the knowledge and competence to be put into practice there was also need for operative support. Sufficient time for communicating with the patients and the need for appropriate technical support in some nursing situations were emphasized by the participants.

    Discussion

    The findings clearly shows the central role that health professionals have in relation to patients’ appearance issues and their need for resources. The findings adds to existing body of knowledge and can be used as a framework for health promotion strategies in health settings, with regards to patients’ appearance issues and distress. More research as well as action is needed from a nursing as well as public health perspective.

  • 38.
    Bringsén, Åsa
    et al.
    Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Public Health.
    Sjöbeck, Johanna
    Kristianstad University, Faculty of Health Science, Department of Public Health.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Nursing staff's experience of appearance issues in various nursing situations2021In: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, Vol. 20, no 1, p. 1-12, article id 204Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Health care professionals frequently interact with unknown patients in a process involving appearance-based judgements and priority-setting, all of which has an effect on health care equality. The healthcare provider-patient interaction is also highly relevant for the awareness and support of patients' appearance concerns, with an associated possibility for improving patients' satisfaction with their appearance and health. The aim was therefore to explore nursing staff's experience of patients' appearance issues in various nursing situations, with the purpose to facilitate awareness raising and knowledge development.

    METHOD: A qualitative research approach with focus group interviews was chosen due to the exploratory aim of the study. Five semi-structured focus group interviews were conducted with 24 nursing staff in total (19 women and five men). The participants' ages varied (20 to 45 years) as did their professional nursing experience. The interviews lasted approximately one hour, were digitally recorded, transcribed verbatim and analysed through thematic analysis.

    RESULTS: The thematic analysis resulted in the two themes Patient perspective and Professional nursing role, with associated subthemes. The findings showed the importance and impact of appearance issues in nursing situations and how these are linked to the health of the patients. Some groups of patients were identified as more vulnerable than others, which was associated with health care inequalities and health disparities. Value-based strategies along with knowledge, and skills for holistic person-centred care were identified as important resources for the development of appearance-related awareness and support in various nursing situations.

    CONCLUSION: Strategies for improvement can be realised through the educational system for nursing staff, but mainly by using collective reflective learning forums in different workplaces. An empowerment approach is considered a useful framework for the implementation of holistic person-centred care, functioning as a resource for appearance-related awareness and support in various nursing situations. However, more research is needed on the complex and challenging phenomenon of appearance issues in nursing situations. Knowledge development related to successful person-centred strategies for appearance-related awareness and support is important, especially strategies with a salutogenic perspective.

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  • 39.
    Brogårdh, Christina
    et al.
    Lunds universitet & Skånes universitetssjukhus.
    Lexell, Jan
    Lunds universitet & Skånes universitetssjukhus.
    Sjödahl Hammarlund, Catharina
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Department of Health Sciences, Lund University.
    Fall-Related activity avoidance among persons with late effects of polio and its influence on daily life: A mixed-methods study2021In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 18, no 13, p. 1-11, article id 7202Article in journal (Refereed)
    Abstract [en]

    Falls are common among persons with late effects of polio (LEoP), which may lead to fear of falling and activity avoidance in everyday life. Here, we assessed the occurrence of fall-related activity avoidance among persons with LEoP and explored how these experiences influenced daily life. Fourteen ambulatory persons (seven women; mean age 70 years) with LEoP participated. They responded to the modified Survey of Activities and Fear of Falling in the Elderly (mSAFFE) and participated in individual interviews, which were analysed by systematic text condensation. Each quotation was deductively analysed from its representation with regard to mSAFFE. We found that many persons often avoided activities related to standing and walking, for example, taking a bath, performing household chores, walking outdoors, attending social events if there were stairs in the building and travelling by public transport, due to fear of falling, increased pain and fatigability. To facilitate the performance of daily activities participants expressed that strategic thinking and aids were important to use. In conclusion, fall-related activity avoidance is common in persons with LEoP, which negatively influence daily life and social participation. To increase daily functioning in this population, fall-related activity avoidance should be included in a multifaceted fall management program.

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  • 40.
    Brogårdh, Christina
    et al.
    Lunds universitet.
    Lexell, Jan
    Lunds universitet.
    Westergren, Albert
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Psychometric properties of the Walking Impact Scale (Walk-12) in persons with late effects of polio2021In: PM&R, ISSN 1934-1482, E-ISSN 1934-1563, Vol. 13, no 3, p. 297-306Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Many persons with late effects of polio (LEoP) perceive walking limitations in everyday life. A common rating scale to assess walking limitations is the Walking Impact Scale (Walk-12). However, there is limited knowledge about its psychometric properties.

    OBJECTIVE: To investigate the psychometric properties of Walk-12 in persons with LEoP.

    DESIGN: Rasch model analysis of cross-sectional data.

    SETTING: University Hospital.

    PARTICIPANTS: A total of 325 persons with LEoP (175 women; mean age 70 ± 10 yr).

    MAIN OUTCOME MEASUREMENT: The Walk-12, comprising 12 items with five response categories ranging from 1 (not at all) to 5 (extremely).

    METHODS: Data of Walk-12 were collected by a postal survey. The Rasch model analysis was used to analyze unidimensionality of the scale, local dependency, targeting, hierarchical order of items, Differential Item Functioning (DIF), response category functioning and reliability (Person Separation Index, PSI). Raw score transformation to interval measurements was also performed.

    RESULTS: The analysis revealed that Walk-12 was multidimensional and suffered from some local dependency. Targeting was compromised among persons with less and worse walking limitations. Hierarchically, the most difficult item to perform was "running" and the easiest was "walking indoors with support". There was a minor DIF for gender in one item ("support when walking outdoors"). Reliability was high (PSI = 0.94). Disordered response category thresholds were found for three items; when merging the middle response categories for these items model fit slightly improved and unidimensionality was achieved.

    CONCLUSION: The Walk-12, in its current version, does not fully meet the rigorous psychometric Rasch measurement standards in persons with LEoP. Further development of the scale is warranted, including merging response categories and complementing Walk-12 with objective measures of gait in order to improve targeting. As these limitations can be considered minor, the current version of Walk-12 can still be useful for research and clinical practice. This article is protected by copyright. All rights reserved.

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  • 41.
    Brogårdh, Christina
    et al.
    Lund University.
    Sjödahl Hammarlund, Catharina
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Lund University.
    Eek, Frida
    Lund University.
    Stigmar, Kjerstin
    Lund university.
    Lindgren, Ingrid
    Lund university.
    Schouenborg, Anna Trulsson
    Lund university.
    Hansson, Eva Ekvall
    Lund university.
    Self-perceived life satisfaction during the first wave of the COVID-19 pandemic in Sweden: a cross-sectional study2021In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 18, no 12, p. 1-14, article id 6234Article in journal (Refereed)
    Abstract [en]

    Currently, there is limited knowledge on how the Swedish strategy with more lenient public health restrictions during the COVID-19 pandemic has influenced people's life satisfaction. Here, we investigated self-reported life satisfaction during the first wave of the pandemic in Sweden, and perceived changes in life satisfaction in relation to various sociodemographic factors. A total of 1082 people (mean age 48 (SD 12.2); 82% women) responded to an online survey during autumn 2020 including the "Life Satisfaction Questionnaire-11". A majority (69%) were satisfied with life as a whole, and with other important life domains, with the exception of contact with friends and sexual life. An equal share reported that life as a whole had either deteriorated (28%) or improved (29%). Of those that perceived a deterioration, 95% considered it to be due to the pandemic. Regarding deteriorated satisfaction with life as a whole, higher odds were found in the following groups: having no children living at home; being middle aged; having other sources of income than being employed; and having a chronic disease. The Swedish strategy might have contributed to the high proportion of satisfied people. Those who perceived a deterioration in life satisfaction may, however, need attention from Swedish Welfare Authorities.

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  • 42.
    Carina, Hellqvist
    et al.
    Linköping University.
    Dizdar, Nil
    Linköping University.
    Hagell, Peter
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Berterö, Carina
    Linköping University.
    Sund-Levander, Märta
    Linköping University.
    A national Swedish self- management program for people with Parkinson’s disease: patients and relatives view2017In: Movement Disorders, 2017, Vol. 32, p. 175-176Conference paper (Refereed)
    Abstract [en]

    Objective: To identify and describe experiences that people with PD and their relatives after participation inthe self-management intervention NPS (National Parkinson School) find valuable for managing daily life.

    Background: A self-management program called NPS was developed as a collaboration of healthcare providers, researchers and patient organizations. NPS is aiming to provide tools and strategies for people with PD and their relatives to increase ability to manage symptoms and consequences of disease and thereby improving conditions for a good life. Self-monitoring and self-management are central concepts. NPS focuses on life with PD, which via 7 sessions consisting of education/lectures and group discussions are mediated. Home assignments make participants practice the new skills in their own life.

    Methods: The last session, evaluation of the NPS, was audio recorded in its whole and transcribed verbatim. Data was collected from five separate clinics and analysed both inductively and deductively using Thematic Analysis and by applying the Self-and Family management theory.

    Results: Through inductive analysis three themes; Exchanging experiences and feeling support, Adjustment and acceptance of PD for managing daily life and Promoting life satisfaction, were identified and described. The themes are capturing the meaning, value and experience of being a participant of NPS. Deductive analysis indicated thatthe Self-and Family management theory was useful and valid for this group of patients and generated a modified framework applicable for patients with PD and their families [figure1].

    Conclusions: Living with PD affects patients as well as relatives. Meeting others in the same situation gives support and strengthen their self- image. Having the opportunity sharing experiences and practical advices showed that there was a hopeful future to come. Techniques to accept and manage life with PD included seeking information about disease and treatments, self-monitoring in order to adjust to new situations and improve symptoms of disease and having a positive mind-set. Living an active life, participating in enjoyable social, cultural, and physical activities were important to feel happy and satisfied with life. Participation in NPS covered many areas of importance for the ability of self-management in PD. The framework for self-management in chronic disease was found relevant also for the PD population

  • 43.
    Clausson, Eva
    et al.
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Hedin, Gita
    Kristianstad University, Research Environment PRO-CARE. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Evaluation of models for health supportive family conversation intended to turn a negative weight development in preschool children2015Conference paper (Other academic)
    Abstract [en]

    Introduction: Obesity in children is a growing health problem in the world. In Sweden, 14-15 percent of 4-year-old children are overweight and 3 percent are obese. Prevention of overweight and obesity is most effective if started as early as possible. Studies have shown the need for involving the family since parents’/guardians’ attitudes and beliefs may be crucial for the development of the child's eating habits and have thus a key role in the preventive work regarding a healthy lifestyle for the children. In Sweden, the Child Health Service (CHS) comprises a comprehensive universal nurse-led CHS program with health surveillance directed to the children and their parents, including parental support. The CHS have the opportunity to pay attention to early development of overweight and implement measures that can contribute to a healthy lifestyle during childhood as well as adulthood. The need for evidence based methods/models to be used in combating child overweight and obesity is obvious. However, there is a lack of evidence based models to prevent the prevailing childhood obesity used by clinical active nurses.

    Purpose: The overall purpose is to evaluate models for health supportive family conversations to families with preschool children with the intent to turn a negative weight development.

    Method: The study has a longitudinal design with health supportive family conversations being evaluated both qualitatively and quantitatively. A strategic sample will be applied on CHS centers from different socioeconomic areas in the southern part of Sweden. The models that will be used are the Calgary Family Assessment Model (CFAM) and The Calgary Family Intervention Model (CFIM). The models have its their theoretical foundation in e.g. theories of systems, communication, and change. The study will have a naturalistic approach with a pre-posttest design in which nurses in CHS are trained in the model for health supportive family conversations. Supervision will be provided during the intervention. Children’s IsoBMI and The Lifestyle Behavior Checklist will be used as pre- and post-test and at the 12 month follow-up. Evaluation interviews will be held with the families and the nurses separately.

    Preliminary results: A pilot interview showed that the health supportive family conversations led to increased knowledge and understanding about the family lifestyles related to the child obesity. Involvement of the family lead to a consciousness within the family about ingredients in sweet drinks and food. The fact that the CHS nurse was the one who conducted the conversations were of great importance, since the nurse was well known to the family.

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  • 44.
    Clausson, Eva
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Hedin, Gita
    Kristianstad University, School of Health and Society, Avdelningen för Oral hälsa och folkhälsovetenskap. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Health supportive family conversation: intended to turn Negative weight development in preschool children.2015Conference paper (Other academic)
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  • 45.
    Cronström, Anna
    et al.
    Lund University.
    Dahlberg, Leif E
    Lund University.
    Nero, Håkan
    Lund University.
    Ericson, Jennifer
    Lund University.
    Sjödahl Hammarlund, Catharina
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Lund University.
    'I would never have done it if it hadn't been digital': a qualitative study on patients' experiences of a digital management programme for hip and knee osteoarthritis in Sweden.2019In: BMJ Open, E-ISSN 2044-6055, Vol. 9, no 5Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: To investigate the experiences of a digital management programme for hip and knee osteoarthritis (OA), including education and exercises as well as an option to chat with an assigned physical therapist for feedback, questions and support.

    SETTING: This study was conducted at a regional hospital in the southern part of Sweden.

    METHODS: Nineteen patients (10 women), median age of 66 (q1-q3, 57-71) years, with confirmed hip or knee OA were interviewed after completing their first 6 weeks in the programme, using a semistructured interview guide. The interviews were transcribed verbatim and were qualitatively analysed using systematic text condensation.

    RESULTS: Three categories emerged during the interviews:(1) Management options for mitigating the consequences of OA; (2) Experiences of the digital programme and (3) Perceived effects of the digital programme over time. The participants had mostly positive experiences of the programme. Particularly important for these experiences were no waiting list, the flexibility of taking part in the programme with regards to location and time and the possibility to have daily contact with a physical therapist. These aspects were also emphasised as advantages compared with traditional care.

    CONCLUSIONS: Digital management of OA, including education and exercise, was experienced as a valid alternative to traditional treatment in enabling the implementation of OA guidelines in a wider community. Easy access, exercising at one's own convenience, flexible options, daily follow-up and support by a physical therapist were mentioned as the most important features. In addition, the results will contribute to further development and improvement of digital OA management programmes.

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  • 46.
    Cronström, Anna
    et al.
    Lund University.
    Dahlberg, Leif E
    Lund University.
    Nero, Håkan
    Lund University.
    Sjödahl Hammarlund, Catharina
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Lund University.
    "I was considering surgery because I believed that was how it was treated": a qualitative study on willingness for joint surgery after completion of a digital management program for osteoarthritis.2019In: Osteoarthritis and Cartilage, ISSN 1063-4584, E-ISSN 1522-9653, Vol. 27, no 7, p. 1026-1032Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: To explore, using a qualitative approach, reasons for patients' continued willingness or their shift in willingness for total joint replacement (TJR) surgery, following participation in Joint Academy, a Swedish, digital, non-surgical treatment program for osteoarthritis (OA).

    DESIGN: Nineteen patients with hip or knee OA were interviewed after finishing their first six weeks in the treatment program, using a semi-structured interview guide. The interviews were transcribed verbatim and analyzed using a systematic text condensation method.

    RESULTS: Analysis of the interview data revealed three main categories of reasons provided for the participants' decisions regarding surgery: 1) Various reasons for participating in Joint Academy with three sub-categories: (a) longstanding pain affects daily life, (b) last chance for improvement and (c) mandatory treatment to be eligible for TJR; 2) Willingness for TJR following treatment, which included four sub-categories: (a) surgery - the last resort, (b) reduced pain and improved functioning, (c) no perceived improvements after treatment, and (d) trust in healthcare providers; and 3) Expectations of TJR. The shift in willingness towards or away from TJR was mainly due to the perceived success of Joint Academy in improving their functioning.

    CONCLUSION: Several patients reconsidered their options and had changed their attitude to TJR after participation in a digital program aimed at reducing OA symptoms and improving functioning. These results highlight the importance of providing patients with adequate information about non-surgical management options to facilitate shared decision-making, and possibly reduce the need for surgery.

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  • 47.
    de Roos, Paul
    et al.
    Sverige & USA.
    Bloem, Bastiaan R
    Nederländerna.
    Kelley, Thomas A
    USA.
    Antonini, Angelo
    Italien.
    Dodel, Richard
    Tyskland.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health.
    Marras, Connie
    Canada.
    Martinez-Martin, Pablo
    Spanien.
    Mehta, Shyamal H
    USA.
    Odin, Per
    Skåne University Hospital.
    Chaudhuri, Kallol Ray
    England.
    Weintraub, Daniel
    USA.
    Wilson, Bil
    USA.
    Uitti, Ryan J
    USA.
    A Consensus Set of Outcomes for Parkinson's Disease from the International Consortium for Health Outcomes Measurement2017In: Journal of Parkinson's Disease, ISSN 1877-7171, E-ISSN 1877-718X, Vol. 7, no 3, p. 533-543Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Parkinson's disease (PD) is a progressive neurodegenerative condition that is expected to double in prevalence due to demographic shifts. Value-based healthcare is a proposed strategy to improve outcomes and decrease costs. To move towards an actual value-based health care system, condition-specific outcomes that are meaningful to patients are essential.

    OBJECTIVE: Propose a global consensus standard set of outcome measures for PD.

    METHODS: Established methods for outcome measure development were applied, as outlined and used previously by the International Consortium for Health Outcomes Measurement (ICHOM). An international group, representing both patients and experts from the fields of neurology, psychiatry, nursing, and existing outcome measurement efforts, was convened. The group participated in six teleconferences over a six-month period, reviewed existing data and practices, and ultimately proposed a standard set of measures by which patients should be tracked, and how often data should be collected.

    RESULTS: The standard set applies to all cases of idiopathic PD, and includes assessments of motor and non-motor symptoms, ability to work, PD-related health status, and hospital admissions. Baseline demographic and clinical variables are included to enable case mix adjustment.

    CONCLUSIONS: The Standard Set is now ready for use and pilot testing in the clinical setting. Ultimately, we believe that using the set of outcomes proposed here will allow clinicians and scientists across the world to document, report, and compare PD-related outcomes in a standardized fashion. Such international benchmarks will improve our understanding of the disease course and allow for identification of 'best practices', ultimately leading to better informed treatment decisions.

  • 48. Delfin, Linda
    et al.
    Peterson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences.
    Ett frågeformulärs användbarhet som stöd mellan  besökspersonen och senioren vid ett förebyggande hembesök: en kvalitativ pilotstudie2018Report (Other academic)
    Abstract [sv]

    Forskningsplattformen för Hälsa i Samverkan är samordnare för flera projekt varavett är Preventiva Hembesök till Seniorer (Pre-H). Syftet med Pre-H programmet är attutveckla en gemensam modell för preventiva hembesök samt implementera och utvärderaden. Fokus ligger på utveckling av besökstjänsten, organisationen och av ettdigitalt stöd (digitalt bedömnings-, rådgivnings- och beslutsstöd). Grunden i det digitalastödet är en enkät uppbyggd med signalfrågor och följdfrågor. Det framtagna frågeformulärethar under 2016 genomgått en första remissgenomgång och är redo atttestas på seniorer för att ytterligare förbättringar ska möjliggöras innan den används ipraktiken. Syftet med denna pilotstudie var att undersöka seniorers uppfattningar omett frågeformulärs användbarhet som stöd för samtalet mellan besökare och seniorvid preventiva hembesök. Studien hade en kvalitativ induktiv ansats. Tio personer intervjuadesgenom ”fiktiva” hembesök. Seniorernas uppfattning om frågeformuläretsanvändbarhet som stöd i samtalet resulterade i tre kategorier och tolv subkategorier.Under kategorin ”Seniorens uppfattning om frågorna i frågeformuläret” erhölls tresubkategorier: Tydlighet och otydlighet, Relevans och Känsliga ämnen. Under kategorin”Seniorernas uppfattning av frågeformuläret uppbyggnad” erhölls två subkategorier:Struktur, Omfattning. Under kategorin ”Seniorernas uppfattning om utvecklingav frågeformuläret och besöket” erhölls sex subkategorier: Besökspersonen, Säkerhetoch hjälpmedel, Kost och motion, Undersökningar, Läkemedel samt Besökets avslutoch uppföljning. En enkät som stöd och struktur vid samtalet är av godo om frågornabegränsas och strukturen är tydlig. Av stor vikt är även att senioren ges återkopplinggenom konkreta förslag på åtgärder som senioren själv vill/kan vidta. Information iform av broschyrer kan med fördel lämnas till senioren som efter besöket kan ta delav texten i lugn och ro. Några områden kan utvecklas mer för att öka besökets värdetill exempel information kring läkemedel och äldre. För att hembesöket skall upplevasmeningsfullt för senioren ställs stora krav på besökspersonens kompetens.

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  • 49.
    Dina, Fikrije
    et al.
    Kristianstads kommun.
    Pajalic, Zada
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Environment PRO-CARE.
    How school nurses experience their work with schoolchildren who have mental illnes: a qualitative study in a Swedish context2014In: Global Journal of Health Science, ISSN 1916-9736, E-ISSN 1916-9744, Vol. 6, no 4, p. 34110-Article in journal (Refereed)
    Abstract [en]

    Background: Reports from research have shown that mental illness has increased dramatically in recent years and is currently one of the biggest problems among Swedish children and adolescents.

    Aim: The aim of this study was to describe how Swedish school nurses experience their work with schoolchildren who have mental illness

    Method: Data were gained by individual interviews with school nurses (n = 10) and were analyzed by using manifest qualitative content analysis.

    Results: The results of the study showed that school nurses used various tools when working with schoolchildren who have mental illness. The working tools were regular health talks, motivational interviewing, individual counseling, family counseling, creating trust, and affirming the child's confidence. 

    Conclusion: Results of the study demonstrate the need for further research on schoolchildren's experience of getting help and support from the school nurse. 

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  • 50.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Edfors, Ellinor
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsmiljön PRO-CARE.
    Ericsson, E.
    Ernsth Bravell, M.
    Nobis, R.
    Wijk, H.
    Specialistsjuksköterskan inom vård av äldre gör skillnad2013In: Ä : en tidning för Riksföreningen sjuksköterskan inom äldrevård : geriatriker, dietister inom geriatrik samt alla professioner runt den äldre patienten, ISSN 2001-1164, no 4, p. 33-36Article in journal (Other academic)
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