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  • 1.
    Adam, Christina
    et al.
    Grekland.
    Patiraki, Elisabeth
    Grekland.
    Lemonidou, Chryssoula
    Grekland.
    Radwin, Laurel
    USA.
    Charalambouss, Andreas
    Cypern; Finland.
    Charalambous, Melanie
    Cypern.
    Berg, Agneta
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Sjoval, Katarina
    Lund University.
    Katajisto, Jouko
    Finland.
    Stolti, Minna
    Finland.
    Suhonen, Riitta
    Finland.
    Quality of nursing care as perceived by cancer patients: a cross-sectional survey in four European countries2017In: Balkan Union of Oncology. Journal, ISSN 1107-0625, Vol. 22, no 3, 777-782 p.Article in journal (Refereed)
    Abstract [en]

    Purpose: To explore and compare cancer patients' perceptions on the quality of nursing care in four European countries. Methods: Data were collected in Cyprus, Finland, Greece and Sweden. The sample comprised 596 hospitalized cancer patients. The quality of nursing care was measured using the "Oncology Patients' Perceptions of the Quality of Nursing Care Scale" (OPPQNCS). Patient characteristics were also collected. Analysis of variance was used to examine the effects of country on the perceptions of the quality of nursing care. Results: Patients' age ranged from 18 to 86 years, and 58% were male. The comparison of cancer patients' perceptions regarding the quality of nursing care between the four countries showed a statistically significant difference in the total OPPQNCS scores (p <0.001) as well as in the subscales responsiveness (p <0.001), individualization (p<0.001), co ordination (p<0.001) and proficiency (p<0.001). The Cronbach's alpha coefficient for the OPPQNCS ranged between 0.89 and 0.95. A multivariate analysis of variance for the OPPQNCS controlled by respondents' demographic characteristics revealed that only the patient's country was significantly related with the patients' perceptions of quality care. Conclusion: Quality of nursing care as perceived by cancer patients was high, but differed between the four countries. The impact of the clinical status of cancer patients on the quality of nursing care and managerial factors such as staffing/nursing care delivery models that influence the ability of nurses to offer high quality care should also be explored by more focused studies.

  • 2.
    Andersen, Anna-Eva
    et al.
    Kristianstad University, School of Health and Society.
    Moberg, Catherine
    Kristianstad University, School of Health and Society.
    Bengtsson-Tops, Anita
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Garmy, Pernilla
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Lund University.
    Lesbian, gay and bisexual parents' experiences of nurses' attitudes in child health care: a qualitative study2017In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVES: To describe lesbian, gay and bisexual parents' experiences of nurses' attitudes in child health care.

    BACKGROUND: Lesbian, gay and bisexual people are often reluctant to disclose their gender identity for fear of discrimination. This fear may lead to avoidance of healthcare for themselves or their children and may negatively affect families' health and well-being.

    DESIGN: A qualitative inductive design was employed.

    METHODS: Semi-structured interviews were conducted with 14 lesbian, gay or bisexual parents (11 mothers and 3 fathers) with child health care experiences in southern Sweden. Interviews were analysed using qualitative content analysis.

    RESULTS: Two themes were identified. One, a 'sense of marginalization', included lesbian, gay and bisexual parents' experiences of heteronormative attitudes among child health care nurses which led them to feel alienated and questioned as parents. Another, 'being respected for who you are', included experiences of being respected and included at child health care appointments.

    CONCLUSIONS: Findings paint a complex picture of lesbian, gay and bisexual parents' interactions with child health care nurses in that they experienced both positive and negative attitudes. Knowledge gaps about lesbian, gay and bisexual families within the child health care field must be filled.

    RELEVANCE TO CLINICAL PRACTICE: Child health care nurses should work with the entire family to provide the best care for the child; however, discrimination in health care is common and often caused by a lack of knowledge. The number of children living with same-sex parents has increased more than ten-fold since the end of the 1990s. It is therefore important to explore lesbian, gay and bisexual parents' experiences with child health care nurses' attitudes to improve quality of care.

    The full text will be freely available from 2018-08-15 13:59
  • 3.
    Andersson, Ann-Christine
    et al.
    Jönköping University.
    Ainalem, Ingrid
    Region Skåne.
    Berg, Agneta
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Janlöv, Ann-Christin
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Challenges to Improve Inter-Professional Care and Service Collaboration for People Living With Psychiatric Disabilities in Ordinary Housing2016In: Quality Management in Health Care, ISSN 1063-8628, E-ISSN 1550-5154, Vol. 25, no 1, 44-52 p.Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe health care- and social service professionals' experiences of a quality-improvement program implemented in the south of Sweden. The focus of the program was to develop inter-professional collaboration to improve care and service to people with psychiatric disabilities in ordinary housing. Focus group interviews and a thematic analysis were used. The result was captured as themes along steps in process. (I) Entering the quality-improvement program: Lack of information about the program, The challenge of getting started, and Approaching the resources reluctantly. (II) Doing the practice-based improvement work: Facing unprepared workplaces, and Doing twice the work. (III) Looking back--evaluation over 1 year: Balancing theoretical knowledge with practical training, and Considering profound knowledge as an integral part of work. The improvement process in clinical practice was found to be both time and energy consuming, yet worth the effort. The findings also indicate that collaboration across organizational boundaries was broadened, and the care and service delivery were improved.

  • 4.
    Aronsen Torp, Jenny
    et al.
    Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Berggren, Vanja
    Erlandsson, Lena-Karin
    Westergren, Albert
    Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Weight status among Somali immigrants in Sweden in relation to sociodemographic characteristics, dietary habits and physical activity2015Conference paper (Other academic)
  • 5.
    Axelsson, Malin
    et al.
    Malmö University.
    Persson, Lena
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Höglund Nielsen, Birgitta
    Danmark.
    Living in the wake of Chronic Obstructive Pulmonary Disease and Long-Term Oxygen Therapy2016In: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, Vol. 6, 376-385 p.Article in journal (Refereed)
    Abstract [en]

    Background: Chronic Obstructive Pulmonary Disease (COPD) is the fourth leading cause of death in the world. COPD is a progressive disease that could lead to chronic hypoxemia, which requires treatment as domiciliary Long-Term Oxygen Therapy (LTOT). There is a need for increased knowledge about self-care strategies used by individuals living with COPD and LTOT. Objective: The aim was to explore experiences and self-care strategies in patients living with both COPD and LTOT. Sample: The sample consisted of five men and five women diagnosed with COPD being prescribed LTOT for more than one year. Method: Ten interviews were undertaken and analyzed for both manifest and latent content. Results: Living with COPD and LTOT was associated with experiences of guilt although there were doubts about what had caused the lung disease. Both the lung disease and the oxygen therapy had a negative impact on their self-image. Anxiety was expressed when thoughts about the remaining time occurred. There was a constant balance between diminishing abilities and increasing restrictions related to the lung disease and the therapy. In order to compensate for arising imbalance, self-care strategies had been initiated aimed at preserving the present state of health, enabling and facilitating physical activity and promoting a positive attitude. Conclusion: The current study suggests that individuals living with COPD and LTOT are encouraged to adopt self-care strategies directed towards maintaining stability with regard to the lung disease, the oxygen therapy, physical capability and emotional reactions.

  • 6.
    Bala, Sidona-Valentina
    et al.
    Lund University & Helsingborg Hospital.
    Samuelson, Karin
    Lund University.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health.
    Fridlund, Bengt
    Lund University & Jönköping University.
    Forslind, Kristina
    Helsingborg Hospital & Lund University.
    Svensson, Björn
    Lund University.
    Thomé, Bibbi
    Lund University.
    Living with persistent rheumatoid arthritis: a BARFOT study2016In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 26, no 17-18, 2646-2656 p.Article in journal (Refereed)
    Abstract [en]

    AIM AND OBJECTIVE: To describe and understand the meaning of living with persistent rheumatoid arthritis.

    BACKGROUND: A considerable number of patients with rheumatoid arthritis live with an ongoing active and symptomatic illness despite access to potent antirheumatic treatment. There is, however, a lack of knowledge about the meaning of living with this severe long-term illness, defined as persistent rheumatoid arthritis.

    DESIGN: A descriptive design based on a hermeneutic phenomenological method was used.

    METHODS: Ten adults with persistent rheumatoid arthritis and at least five years disease duration were interviewed. The interviews were analysed according to van Manen's method.

    RESULTS: Living with persistent rheumatoid arthritis revealed four overall themes: an existence dominated by painful symptoms and treatment, radical changes and limitations in one's life, a continual struggle to cope with one's life and to master the illness, and a dependency on those who are close by and the world around. The lifeworld was affected to a varying extent and in various ways by the illness but also by the dependence on its treatment and care that was not experienced as sufficiently meeting needs in terms of security, access to and coordination of care as well as team and rehabilitation services.

    CONCLUSIONS: Persistent rheumatoid arthritis and its treatment entail a radical effect on the person's life and quality of life. Current ordinary rheumatology care does not seem to meet the individual needs of the person with persistent rheumatoid arthritis in an optimal way.

    RELEVANCE TO CLINICAL PRACTICE: A greater knowledge about and understanding of the person who lives with persistent rheumatoid arthritis is important for facilitating the development of care and the relief of suffering. A holistic alternative to conventional clinical practice, such as person-centred care, could be tested as an innovative model of care. Our findings might serve as material for educational and counselling purposes for healthcare professionals.

  • 7.
    Bala, V.
    et al.
    Lund University.
    Fridlund, B.
    Jönköping University.
    Forslind, K.
    Lund University.
    Svensson, B.
    Lund University.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health.
    Towards measurement of person-centered care outcomes in outpatient nurse-led clinics2017In: Annals of the Rheumatic Diseases, ISSN 0003-4967, E-ISSN 1468-2060, Vol. 76, 1520-1520 p.Article in journal (Refereed)
    Abstract [en]

    Background Person-centered care (PCC) is increasingly emphasized as a key component of effective illness management and of developing high quality of care. Despite considerable progress of PCC in many areas of care there is currently a gap and a need for means to assess PCC practice in outpatient care. In rheumatology, PCC is considered an unmet need and further development and evaluation of this approach to care is thus of high priority.

    Objectives To develop an instrument for measuring person-centered care from the perspective of the person with rheumatoid arthritis (RA) in nurse-led outpatient clinics.

    Methods A conceptual framework of PCC in the outpatient context and focusing on the meeting between the person with RA and the nurse and on the patient as an active care partner was undertaken. Based on this framework, qualitative interviews (1,2) and a literature review, a 35-item questionnaire was proposed and qualitatively tested regarding acceptability and content validity among 50 persons with RA attending a nurse-led outpatient clinic. Two versions of the questionnaire were tested: one using four response categories (0 = Totally disagree; 3 = Completely agree), and one using two response categories (0 = Disagree; 1 = Agree). Content validity was estimated by calculating Content Validity Index of the individual items (I-CVI) and of the overall instrument (S-CVI).

    Results Respondents found the items easy to understand (77%) and relevant (93%). Seventy-three percent of the respondents preferred the questionnaire version with four response categories. This version took a mean (SD) of 5.3 (2.5) minutes to complete. I-CVI values ranged from 0.87 to 1.00 and S-CVI was 0.94. About 80% of the respondents considered some items to be redundant. This resulted in a reduced 24-item draft questionnaire that yield a total score between 0–72.

    Conclusions A preliminary 24-item patient-reported PCC questionnaire was developed. Psychometric testing is needed for validation of this tool before implementation.

  • 8.
    Beck, Ingela
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    IPOS - meningsfull skattning av palliativa vårdbehov2016Conference paper (Other academic)
  • 9.
    Beck, Ingela
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Palliativ vård2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 509-526 p.Chapter in book (Other academic)
  • 10.
    Beck, Ingela
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Palliativ vård efter kurativt syftande kirurgi på grund av matstrupscancer2016Conference paper (Refereed)
  • 11.
    Beck, Ingela
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Validering av Svenska Palliativregistert ur patienters och närståendes pespektiv2016Conference paper (Refereed)
  • 12.
    Beck, Ingela
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Översättning och kulturell anpassning av IPOS för användning i Sverige2016Conference paper (Refereed)
  • 13.
    Beck, Ingela
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Teori och modeller som stöd för personcentrerade möten2017In: Omvårdnad & Äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 49-60 p.Chapter in book (Other academic)
  • 14.
    Beck, Ingela
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Olsson Möller, Ulrika
    Lund University.
    Malmström, Marlene
    Lund University.
    Klarare, Anna
    Sophiahemmet.
    Samuelsson, Henrik
    Palliative Care Unit, Ystad.
    Lundh Hagelin, Carina
    Karolinska Institutet.
    Rasmussen, Birgit
    Lund University.
    Fürst, Carl Johan
    Lund University.
    Translation and cultural adaptation of the integrated palliative care outcome scale for use in Sweden2016In: Palliative Medicine, 2016Conference paper (Other academic)
    Abstract [en]

    Background: Patient-reported outcome measurements are important for measuring changes in patients’ health over time, evaluating the quality of care given, and improving the quality of care service. The Integrated Palliative care Outcome Scale (IPOS) is one such measure, capturing clinically important physical, psychological, social, and existential aspects of patients’ palliative care needs. When patients are unable to complete the IPOS questionnaire themselves with or without assistance, a staff version is also available.

    Aim: To translate and culturally adapt the IPOS Patient and Staff versions for use in the Swedish context.

    Method: The process comprised forward and backward translations, cultural adaptation, and expert group reviews. To validate the resulting Swedish version of IPOS, cognitive interviews were conducted with 13 patients and 15 staff from various care contexts.

    Preliminary results: The Swedish expert group changed some words and grammar due to minor discrepancies in the back translation process. The participants in the cognitive interviews responded positively overall to the questionnaire. Deteriorating health and not having Swedish as the native language did not cause problems in completing the questionnaire. After the first round of cognitive interviews, problematic questions and answer options were rephrased, and redundant text was deleted.

    Conclusion: The Swedish IPOS (Patient and Staff versions) has been validated linguistically and culturally, and is now available for clinical use. The next final step in the validation process will be to test the psychometric performance of the Swedish questionnaires.

  • 15.
    Beck, Ingela
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Olsson Möller, Ulrika
    Lund University.
    Malmström, Marlene
    Lund University.
    Klarare, Anna
    Ersta Sköndal Bräcke University College.
    Samuelsson, Henrik
    Palliative Care Unit, Ystad.
    Lundh Hagelin, Carina
    Sophiahemmet University.
    Rasmussen, Birgit
    Lund University .
    Fürst, Carl Johan
    Lund University .
    Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff2017In: BMC Palliative Care, ISSN 1472-684X, E-ISSN 1472-684X, Vol. 16, no 1, 49Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context.

    METHODS: Swedish versions of IPOS Patient and IPOS Staff were developed and culturally adapted using recommended guidelines including cognitive interviews with patients (n = 13) and staff (n = 15) from different care contexts including general and specialised palliative care.

    RESULTS: The comprehension and judgement difficulties identified in the pre-final patient and staff versions were successfully solved during the cognitive interviewing process. IPOS was well accepted by both patients and staff, none of the questions were experienced as inappropriate, and all questions were judged important.

    CONCLUSIONS: In this study, we translated and culturally adapted the patient and staff versions of IPOS, and demonstrated face and content validity and acceptability of the scale through cognitive interviewing with patients and staff within residential care facility, surgical and specialised palliative home care units. Cognitive interviewing in parallel with patients and staff in rounds, with tentative analysis in between, was a suitable method for identifying and solving challenges with comprehension and evaluation in the pre-final version of IPOS. The Swedish IPOS is now available for use in a variety of clinical care settings.

  • 16.
    Bengtsson-Tops, Anita
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Ehliasson, Kent
    Statens institutionsstyrelse.
    Ericsson, Ulf
    Kristianstad University, School of Health and Society, Avdelningen för Ekonomi.
    Det vardagliga livet på LSS-boende för personer med psykisk funktionsnedsättning: ett brukar- och professionsperspektiv2015Report (Other academic)
  • 17.
    Bengtsson-Tops, Anita
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Schmidt, Manuela
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society. Lund University.
    Development and implementation of a need-based care model for persons who frequently visit psychiatric emergency rooms2017Conference paper (Other academic)
  • 18.
    Björck, Maria
    et al.
    Kristianstad University, Research Platform for Collaboration for Health.
    Nilsson, Ingela
    Kristianstad University, Research Platform for Collaboration for Health.
    Beck, Ingela
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Sjuksköterskans stöd till hemtjänstpersonal i samband med vård i livets slutskede: ur ett sjuksköterskeperspektiv2016Report (Other academic)
    Abstract [sv]

    Äldre personer i ordinärt boende som befinner sig i livets slut har behov av palliativvård för att ges förutsättningar att leva med värdighet och välbefinnande. Hemtjänstpersonal är undersköterskor och vårdbiträde som till stora delar utförden praktiska omvårdanden vid vård i livets slut till äldre personer i ordinärt boende. Sjuksköterskan är ytterst ansvarig för att den äldre får den vård som behövs och har därmed också ett ansvar att ge personalen det stöd som behövs för god palliativvård. Syftet var att beskriva sjuksköterskors erfarenheter av att vara ett stöd till hemtjänstpersonal i samband med allmän palliativ vård till äldre personer i livets slutskede. Datainsamlingen bestod av 19 individuella intervjuer som analyserades med kvalitativ innehållsanalys. I resultatet framkom kategorierna; Indirekt stöd och Direkt stöd. Det indirekta stödet handlade om att vara tillgänglig, att samverka med andra professioner och organisationer samt att kommunicera och bekräfta hemtjänstpersonalen. Det direkta stödet handlade om att vara delaktig i det direkta patientarbetet och att ”ta” svåra samtal med närstående. Det framkom att sjuksköterskan alltid upplever sig tillgänglig via telefon för hemtjänstpersonalen i samband med vård i livets slutskede. Något regelbundet strukturerat direkt eller indirekt stöd verkar inte till att förekomma i någon större utsträckning.

  • 19.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Förutsättningar för personcentrerade möten2017In: Omvårdnad och äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 63-88 p.Chapter in book (Other academic)
  • 20.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Personcentrerade resultat2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 91-94 p.Chapter in book (Other academic)
  • 21.
    Blomqvist, Kerstin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Beck, Ingela
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Personcentrerade processer2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 73-87 p.Chapter in book (Other academic)
  • 22.
    Blomqvist, Kerstin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Edberg, Anna-KarinKristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.Ernsth Bravell, MarieJönköping University.Wijk, HelleGöteborgs universitet.
    Omvårdnad & äldre2017Collection (editor) (Other academic)
    Abstract [sv]

    Boken belyser äldre personers hälsa och ohälsa och bygger på sammanlagt 27 svenska forskares beskrivningar av det aktuella kunskapsläget. De flesta författare har sin utgångspunkt i omvårdnad, men bland författarna återfinns även företrädare för medicin, oral hälsa, kulturgeografi, filosofi, socialt arbete, gerontologi, medicinsk etik, arbetsterapi och fysioterapi.

    Omvårdnad & äldre vänder sig till sjuksköterskestudenter på såväl grund- som specialistutbildning, men även till kliniskt verksamma sjuksköterskor och andra yrkesgrupper inom fältet. År 2017 tilldelades boken Kurslitteraturprisets hederspris med följande motivering: ”För ett hhögaktuellt såväl i dag som under många år framöver. Andelen äldre ökar och många lever allt längre med långvariga sjukdomar. Detta ställer nya krav på sjuksköterskan och omvårdnaden. Boken är helt anpassad till dessa nya förutsättningar där de senaste forskningsresultaten kombineras med konkreta omvårdnadsåtgärder. Verket är mycket välskrivet, med den äldre personen ständigt i centrum.”eltäckande grundverk, som med gedigen vetenskaplig tyngd, avhandlar ett område som är högaktuellt såväl i dag som under många år framöver. Andelen äldre ökar och många lever allt längre med långvariga sjukdomar. Detta ställer nya krav på sjuksköterskan och omvårdnaden. Boken är helt anpassad till dessa nya förutsättningar där de senaste forskningsresultaten kombineras med konkreta omvårdnadsåtgärder. Verket är mycket välskrivet, med den äldre personen ständigt i centrum.”

  • 23.
    Cato Jurlander, Ingegerd
    et al.
    Kristianstad University, Research Platform for Collaboration for Health.
    Edfors, Ellinor
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Betydelsen av en förändrad utemiljö vid ett särskilt boende för personer med demenssjukdom2016Report (Other academic)
    Abstract [sv]

    Demens är ett syndrom med kognitiv svikt som leder till svårigheter att klara det dagliga livet, vilket medför att omgivningen och miljön måste vara anpassad efter personens behov. Tidigare forskning har visat att utevistelse i en anpassad trädgård som skapar trygghet, är orienterbar, stimulerar till aktiviteter och gemenskap samt erbjuder avskildhet och skyddar mot intryck som kan skapa oro kan leda till ett ökat välbefinnande för personer med demenssjukdom. Syftet med studien var att beskriva betydelsen av en förändrad utemiljö vid ett särskilt boende för personer med demenssjukdom. Studien har en case study design med mixed metod approach med tyngpunkt på kvalitativansats. Studiens resultat visar att den förändrade utemiljön stödjer de boendes välbefinnande, inbjuder till aktivitet, gemenskap och avskildhet samt väcker minnen.Trädgården väcker förväntningar hos de boende men ställer krav på personalen och användningen styrs av personalens tid och kunskap. En förändrad utemiljö med större möjligheter till en stimulerande utevistelse visar sig skapa ett ökat välbefinnande förboende, närstående och personal

  • 24.
    Charalambous, Andreas
    et al.
    Cypern.
    Radwin, Laurel
    USA.
    Berg, Agneta
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Sjovall, Katarina
    Lund University.
    Patiraki, Elisabeth
    Grekland.
    Lemonidou, Chryssoula
    Grekland.
    Katajisto, Jouko
    Finland.
    Suhonen, Riitta
    Finland.
    An international study of hospitalized cancer patients' health status, nursing care quality, perceived individuality in care and trust in nurses: a path analysis2016In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 61, 176-186 p.Article in journal (Refereed)
    Abstract [en]

    Background: Providing high quality nursing care for patients with malignancies is complex and driven by many factors. Many of the associations between nursing care quality, trust, health status and individualized care remain obscure. Objective: To empirically test a model of association linking hospitalized cancer patients' health status, nursing care quality, perceived individuality in care and trust in nurses. Design: A cross-sectional, exploratory and correlational study design was used. Settings: This multi-site study was conducted in cancer care clinics, in-patient wards of five tertiary care hospitals in Cyprus, Finland, Greece and Sweden. Sample: Out of 876 hospitalized patients with a confirmed histopathological diagnosis of cancer approached to participate in the study in consecutive order, 599 (response rate 68%) agreed to participate and the data from 590 were used for path analysis. Methods: Data were collected in 2012-2013 with the Individualized Care Scale-Patient (ICS-Patient), the Oncology Patients' Perceptions of Quality Nursing Care Scale (OPPQNCS), the Euro-Qol (EQ-5D-3L) and the Trust in Nurses Scale. Data were analysed statistically using descriptive and inferential statistics. Mplus version 7.11 was used to determine the best Trust model with path analysis. Results: Although the model fit indices suggested that the hypothesized model did not perfectly to the data, a slightly modified model which includes the reciprocal path between individualized care and nursing care quality demonstrated a good fit. Conclusion: A model of trust in nurses was" developed. Health status, individualized care, and nursing care quality were found to be associated with trust. The model highlights the complexity of caring for cancer patients. Trust in nurses is influenced by the provision of individualized care. Generating and promoting trust requires interventions, which promote nursing care quality, individuality and patients' health status. (C) 2016 Elsevier Ltd. All rights reserved.

  • 25.
    Clausson, Eva
    et al.
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Hedin, Gita
    Kristianstad University, Research Environment PRO-CARE. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Evaluation of models for health supportive family conversation intended to turn a negative weight development in preschool children2015Conference paper (Other academic)
    Abstract [en]

    Introduction: Obesity in children is a growing health problem in the world. In Sweden, 14-15 percent of 4-year-old children are overweight and 3 percent are obese. Prevention of overweight and obesity is most effective if started as early as possible. Studies have shown the need for involving the family since parents’/guardians’ attitudes and beliefs may be crucial for the development of the child's eating habits and have thus a key role in the preventive work regarding a healthy lifestyle for the children. In Sweden, the Child Health Service (CHS) comprises a comprehensive universal nurse-led CHS program with health surveillance directed to the children and their parents, including parental support. The CHS have the opportunity to pay attention to early development of overweight and implement measures that can contribute to a healthy lifestyle during childhood as well as adulthood. The need for evidence based methods/models to be used in combating child overweight and obesity is obvious. However, there is a lack of evidence based models to prevent the prevailing childhood obesity used by clinical active nurses.

    Purpose: The overall purpose is to evaluate models for health supportive family conversations to families with preschool children with the intent to turn a negative weight development.

    Method: The study has a longitudinal design with health supportive family conversations being evaluated both qualitatively and quantitatively. A strategic sample will be applied on CHS centers from different socioeconomic areas in the southern part of Sweden. The models that will be used are the Calgary Family Assessment Model (CFAM) and The Calgary Family Intervention Model (CFIM). The models have its their theoretical foundation in e.g. theories of systems, communication, and change. The study will have a naturalistic approach with a pre-posttest design in which nurses in CHS are trained in the model for health supportive family conversations. Supervision will be provided during the intervention. Children’s IsoBMI and The Lifestyle Behavior Checklist will be used as pre- and post-test and at the 12 month follow-up. Evaluation interviews will be held with the families and the nurses separately.

    Preliminary results: A pilot interview showed that the health supportive family conversations led to increased knowledge and understanding about the family lifestyles related to the child obesity. Involvement of the family lead to a consciousness within the family about ingredients in sweet drinks and food. The fact that the CHS nurse was the one who conducted the conversations were of great importance, since the nurse was well known to the family.

  • 26.
    Clausson, Eva
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health.
    Janlöv, Ann-Christin
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Berg, Agneta
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Skolsköterskors utmaningar med att dokumentera skolbarns psykosociala hälsa: en kvalitativ studie2017Conference paper (Other (popular science, discussion, etc.))
    Abstract [sv]

    Skolsköterskors utmaningar med att dokumentera skolbarns psykosociala hälsa – en kvalitativ studie

    Syfte: Syftet med studien var att undersöka skolsköterskors utmaningar relaterat till dokumentation av skolbarns psykosociala hälsa

    Metod: Sex fokusgruppsdiskussioner genomfördes. I diskussionerna ingick frågor om situationer som var särskilt utmanande att dokumentera samt vad som begränsar och/eller underlättar dokumentationen av den psykosociala hälsan. Kvalitativ innehållsanalys användes för att tolka data.  

    Resultat: Analysen resulterade i ett övergripande tema: Att göra sin plikt och rädsla för att göra fel samt tre underteman: osäkerhet relaterat till den egna förmågan; rädsla för framtida konsekvenser och strategier för att hantera dokumentationen. 

    Slutsats: Skolsköterskor som förlitar sig på sin intuition och som använder en strukturerad dokumentationsmodell ökar möjligheterna till en tillförlitlig dokumentation. För att ytterligare utveckla sina yrkeskunskaper kan regelbunden yrkesmässig handledning vara av stor betydelse. Detta kan i sin tur bidra till ökad forskning och utveckling till förmån för skolbarns psykosociala hälsa.

  • 27.
    Dahlbo, Madeleine
    et al.
    Kristianstad University, School of Health and Society.
    Jakobsson, Liselotte
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Lundqvist, Pia
    Lund University.
    Keeping the child in focus while supporting the family: Swedish child healthcare nurses experiences of encountering families where child maltreatment is present or suspected2017In: Journal of Child Health Care, ISSN 1367-4935, E-ISSN 1741-2889, Vol. 21, no 1, 103-111 p.Article in journal (Refereed)
    Abstract [en]

    Child maltreatment can lead to acute and long-term consequences, and it is important that at-risk children are identified early. Child healthcare (CHC) nurses in Sweden are in a position to identify child maltreatment, as they follow children and their parents from the child's birth to school age. Therefore, the aim was to describe CHC nurses' experiences when encountering families in which child maltreatment was identified or suspected. Individual open interviews with eight CHC nurses were performed and analysed using a qualitative content analysis. Findings revealed that keeping the child in focus, while supporting the family was essential for the nurses. This family-centred approach was assumed to benefit the child's interests. Meeting families where child maltreatment was identified or suspected influenced the nurses, emotionally in different ways. Nevertheless, it was important to keep an open mind and communication build on honesty. Furthermore, the nurses requested professional supervision in order to help them learn from the situation ahead of the next time. This knowledge about CHC nurses' experiences may form a basis for the development of interventions that aim to support the CHC nurses in their professional role, and thereby improve support to children and parents in the future.

  • 28.
    de Roos, Paul
    et al.
    Sverige & USA.
    Bloem, Bastiaan R
    Nederländerna.
    Kelley, Thomas A
    USA.
    Antonini, Angelo
    Italien.
    Dodel, Richard
    Tyskland.
    Hagell, Peter
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health.
    Marras, Connie
    Canada.
    Martinez-Martin, Pablo
    Spanien.
    Mehta, Shyamal H
    USA.
    Odin, Per
    Skåne University Hospital.
    Chaudhuri, Kallol Ray
    England.
    Weintraub, Daniel
    USA.
    Wilson, Bil
    USA.
    Uitti, Ryan J
    USA.
    A Consensus Set of Outcomes for Parkinson's Disease from the International Consortium for Health Outcomes Measurement2017In: Journal of Parkinson's Disease, ISSN 1877-7171, E-ISSN 1877-718X, Vol. 7, no 3, 533-543 p.Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Parkinson's disease (PD) is a progressive neurodegenerative condition that is expected to double in prevalence due to demographic shifts. Value-based healthcare is a proposed strategy to improve outcomes and decrease costs. To move towards an actual value-based health care system, condition-specific outcomes that are meaningful to patients are essential.

    OBJECTIVE: Propose a global consensus standard set of outcome measures for PD.

    METHODS: Established methods for outcome measure development were applied, as outlined and used previously by the International Consortium for Health Outcomes Measurement (ICHOM). An international group, representing both patients and experts from the fields of neurology, psychiatry, nursing, and existing outcome measurement efforts, was convened. The group participated in six teleconferences over a six-month period, reviewed existing data and practices, and ultimately proposed a standard set of measures by which patients should be tracked, and how often data should be collected.

    RESULTS: The standard set applies to all cases of idiopathic PD, and includes assessments of motor and non-motor symptoms, ability to work, PD-related health status, and hospital admissions. Baseline demographic and clinical variables are included to enable case mix adjustment.

    CONCLUSIONS: The Standard Set is now ready for use and pilot testing in the clinical setting. Ultimately, we believe that using the set of outcomes proposed here will allow clinicians and scientists across the world to document, report, and compare PD-related outcomes in a standardized fashion. Such international benchmarks will improve our understanding of the disease course and allow for identification of 'best practices', ultimately leading to better informed treatment decisions.

  • 29.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    När sinnena sviktar2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 239-248 p.Chapter in book (Other academic)
  • 30.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Molander, Ulla
    Sahlgrenska Universitetssjukhuset.
    Wijk, Helle
    Göteborgs universitet & Sahlgrenska Universitetssjukhuset.
    Sund-Levander, Märta
    Linköpings Universitet.
    Ernsth Bravell, Marie
    Jönköping University.
    Vanliga symtom hos äldre2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 355-395 p.Chapter in book (Other academic)
  • 31.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Ericsson, Iréne
    Jönköping University.
    Kognitiv förmåga och svikt2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 405-427 p.Chapter in book (Other academic)
  • 32.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Ericsson, Iréne
    Jönköping University.
    Gunnarsson, Evy
    Stockholms universitet.
    Psykisk ohälsa2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 433-455 p.Chapter in book (Other academic)
  • 33.
    Edfors, Ellinor
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Nilsson, Gabriella
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Att vara nyanställd inom en allmänpsykiatrisk kliniks slutenvård: en kartläggning utifrån sjuksköterskors erfarenheter2016Report (Other (popular science, discussion, etc.))
    Abstract [sv]

    Syftet med studien var att kartlägga sjuksköterskornas erfarenheter av att vara nyanställd inom en allmänpsykiatrisk kliniks slutenvård. Målet med kartläggningen var att den skulle kunna ligga till grund för utvecklingen av en handlingsplan som kan underlätta introduktionen för nyanställd personal. Studien genomfördes genom en modifierad form av Group Concept Mapping utifrån prompten ”Exempel på betydelsefulla erfarenheter av att vara nyanställd sjuksköterska på psykiatriska klinikens slutenvård är…”. I resultatet framkom följande betydelsefulla områden; introduktion, bemötande och arbetsklimat, ledning och organisation, information vid anställningsintervju, kunskaper specifika för psykiatri, rutiner och struktur, roller krav och förväntningar samt reflektion. Innehållet i samtliga områden ansågs vara lika betydelsefulla dock bör introduktionen utformas utifrån varje sjuksköterskas erfarenheter, kunskaper och individuella behov. Framträdande i resultatet var även betydelsen av en gynnsam miljö, som präglas av ett gott arbetsklimat, relevant stöd från kollegor och chefer, möjlighet till reflektion och att få vara ny på arbetsplatsen.

  • 34.
    Ehliasson, Kent
    et al.
    Kristianstad University, School of Health and Society.
    Ericsson, Ulf
    Kristianstad University, School of Health and Society, Avdelningen för Ekonomi och arbetsliv. Kristianstad University, Forskningsmiljön Människa - Hälsa - Samhälle (MHS). Kristianstad University, Research Platform for Collaboration for Health.
    Bengtsson Tops, Anita
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Support to individuals with comprehensive disabilities: ideas in the Swedish Disability Act2016In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 18, no 3, 234-244 p.Article in journal (Refereed)
    Abstract [en]

    The purpose of this study was to determine and describe the ideas, that is, a mental construction of perceived reality and values, which are expressed in the Swedish Disability Act and its Government Bill. By means of text analysis, four concepts of reality and values have been identified: (1) Citizenship and justice, (2) The collective and integration, (3) The individual and autonomy, and (4) Decentralization and power shifts. The study also shows that social rights and social citizenship have been strengthened via legislation for individuals with comprehensive disabilities. It is also demonstrated that there is considerable room in the legislation for conflicts between the two concepts and values of collective/integration and the individual/autonomy. It can also be observed that there is a considerable risk that citizens are not treated in a similar manner as regards the interpretation and application of the Disability Act, which may lead to lack of legal security.

  • 35.
    Einberg, Eva-Lena
    et al.
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Clausson, Eva
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Tonårsflickors vardag och hälsa2017In: Barnsliga sammanhang: forskning om barns och ungdomars hälsa, välbefinnande och delaktighet / [ed] Bo Nilsson & Eva Clausson, Kristianstad: Kristianstad University Press , 2017, 5, 79-90 p.Chapter in book (Other academic)
    Abstract [sv]

    Självskattad psykisk ohälsa ökar bland ungdomar och det finns tydliga skillnader mellan flickor och pojkar. Fler flickor rapporterar symtom på ohälsa och dessa skillnader har ökat över tid. Det är fler flickor som rap- porterar att de känner sig stressade och färre flickor uppger att de trivs med livet jämfört med pojkar. Flickor är medvetna om kraven på deras utseende och kravet på att lyckas i livet. De är också medvetna om de könsskillnader som finns både i skolan och media och som påverkar dem. Samhörighet med kamrater och familj är betydelsefullt liksom trygghet i form av tillit till kamrater och att känna sig trygg där de vistas enligt tonårsflickorna själva.

    Detta kapitel kommer att handla om tonårsflickors hälsa och hur tonårs- flickor själva upplever sin vardag, vilket kommer att belysas med resultat från en forskningsstudie, samt diskuteras utifrån ett genusperspektiv och Känsla av sammanhang (KASAM).

  • 36.
    Ellertsson, Ann-Sofi
    et al.
    Region Skåne.
    Garmy, Pernilla
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Lund University.
    Clausson, Eva
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Health Among Schoolchildren From the School Nurse’s Perspective2017In: Journal of School Nursing, ISSN 1059-8405, E-ISSN 1546-8364, Vol. 33, no 5, 337-343 p.Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to investigate Swedish school nurses’ perceptions of schoolchildren’s health. The study is based on two national surveys in which school nurses responded to questions about schoolchildren’s health in 2015 (n = 181) and 2005 (n = 129). A statistical comparison showed that physical and mental health of schoolchildren in high-risk areas was perceived as worse than that of children in low-risk areas. There were no differences regarding the number of spontaneous visits or consulting reasons related to gender in high- and low-risk areas. A national framework for data collection and reporting of schoolchildren’s health may be important for school nurses to demonstrate the need for increased support in, for example, high-risk areas. By paying attention to factors that can affect schoolchildren’s health, school nurses can also direct health promotion to areas where it is needed. Increased cooperation among school health professionals may also prevent illness and improve health.

  • 37.
    Emsfors, Åsa
    et al.
    Central Hospital Kristianstad.
    Christensson, Lennart
    Jönköping University.
    Elgán, Carina
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Nursing actions that create a sense of good nursing care in patients with wet age-related macular degeneration2017In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 26, no 17-18, 2680-2688 p.Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVES: To identify and describe nursing actions performed by nurses that create a sense of good nursing care in patients with wet age-related macular degeneration.

    BACKGROUND: People who suffer from wet age-related macular degeneration risk central vision loss. Treatment with antivascular endothelial growth factor is the only available option at present that preserves vision and no definitive cure currently exists. Patients feel that they are compelled to accept this treatment because they might otherwise become blind.

    DESIGN: An explorative and descriptive design based on the critical incident technique was used.

    METHOD: Interviews with 16 Swedish patients who all had received intravitreal treatment for wet age-related macular degeneration.

    RESULTS: Two main areas of good nursing care were identified: 'Being perceived as an individual' and 'Being empowered'. The first area was divided into two categories: being respectful and being engaged. Being respectful was observed when nurses had a benevolent attitude towards their patients and answered questions kindly and politely. Patients saw themselves as individuals when nurses were available for conversation and focused on them. The second area was divided into two categories: encouraging participation and creating confidence. Encouraging participation refers to when nurses provided information continuously. Nurses instilled confidence and trust in their patients by keeping promises and by being honest.

    CONCLUSIONS: A respectful interaction between patients and caregivers is necessary for patients to obtain beneficial health care.

    RELEVANCE TO CLINICAL PRACTICE: Patient interviews revealed important information about nursing actions that created a sense of good nursing care in patients with wet age-related macular degeneration. Nurses acknowledged people as individuals and created trust by building partnerships and sharing decision-making. To address each patient's concerns, nurses need to prioritise each patient's narrative and participation by documenting agreements in their medical record.

  • 38.
    Ericsson, Ulf
    et al.
    Kristianstad University, Research environment Governance, Regulation, Internationalization and Performance (GRIP. Kristianstad University, School of Health and Society, Avdelningen för Ekonomi och arbetsliv. Kristianstad University, Research Platform for Collaboration for Health.
    Bengtsson-Tops, Anita
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Working with stories: Street-Level bureaucrats and their work with individuals with psychiatric disability exposed to interpersonal violence2017In: Journal of Social Work in Disability & Rehabilitation, ISSN 1536-710X, E-ISSN 1536-7118Article in journal (Refereed)
    Abstract [en]

    The focus of our attention is the meeting between street-level bureaucrats and individuals with psychiatric disability exposed to interpersonal violence. Based on eleven interviews, we illustrate how stories are understood, used and made meaningful to the street-level bureaucrat. The contribution of this article is first of all that of being a framework, from a storytelling point of view, for the work and organizational experiences of street-level bureaucrats. Secondly, by paying attention to the story part of these relationships, we can better understand the situation of individuals with psychiatric disability exposed to interpersonal violence given their interaction with different street-level bureaucrats.

  • 39.
    Ernsth Bravell, Marie
    et al.
    Jönköping University.
    Christiansen, Mats
    Karolinska Institutet.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Åldrandets olika dimensioner2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 107-150 p.Chapter in book (Other academic)
  • 40.
    Ernsth Bravell, Marie
    et al.
    Jönköping University.
    Dahlin Ivanoff, Synneve
    Göteborgs universitet.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Äldres komplexa vårdbehov2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 219-232 p.Chapter in book (Other academic)
  • 41.
    Ernsth Bravell, Marie
    et al.
    Jönköping University.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Äldres hälsa och välbefinnande2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 159-181 p.Chapter in book (Other academic)
  • 42.
    Ernsth Bravell, Marie
    et al.
    Jönköping University.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Den förändrade kroppen2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, 203-215 p.Chapter in book (Other academic)
  • 43.
    Forsén, Lotta
    et al.
    Kristianstad University, Research Platform for Collaboration for Health.
    Janlöv, Ann-Christin
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    De äldstas erfarenhet av att leva i närsamhället: en fokusgruppsstudie i Kristianstad kommun2015Report (Other academic)
    Abstract [sv]

    En stor och snabb ökning av en äldre befolkning ses i nästan hela världen vilket utmanarsamhällen att anpassa sig och planera i syfte att maximera deras hälsa och funktionsförmåga.Ett åldersvänligt samhälle har stödjande miljöer och kultur av delaktighet med möjlighetatt fullt ut delta i samhället. Syftet med denna studie är att studera upplevelsen avKristianstads kommuns äldre invånare över 75 år ur hälso- och aktivitet perspektiv. Studienanvänder empiriska data som samlats in från två fokusgruppsintervjuer med sammanlagt14 informanter och kvalitativ induktiv innehållsanalys. Seniorerna beskrev oberoendeoch självständighet, samt social delaktighet och känslan av att vara till nytta både för sigsjälv och samhället som helhet som viktiga faktorer i åldrandet och hälsa. Självständigtboende med tillgång till service, samhällsresurser och infrastruktur ger möjlighet att behållaoberoendet. Rikligt med aktiviteter och umgänge samt känslan av trygghet var centralt försocial delaktighet. För att behålla känslan av att vara till nytta och en resurs beskrev informanternavikten av att delta i och påverka sina levnadsvillkor. Sammanfattningsvis ger denväxande äldre befolkningen tydliga signaler om att arbeta för hälsofrämjande och sjukdomsförebyggandeåtgärder skapar möjlighet till friskt och aktivt åldrande. Analysresultatetska ingå i Kristianstad kommun WHO Age-friendly cities projekt vars syfte är att göra enförvaltningsövergripande plan med fokus på framtiden för ett aktivt och hälsosamt åldrandesamt även med förhoppning om att denna rapport kan bidra till diskussion i kommuner ochlandsting om utmaningar och möjligheter till förbättringar av de äldstas livsvillkor och hälsa.

  • 44.
    Gardsten, Cecilia
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Mörtberg, Christina
    Linnéuniversitetet.
    Blomqvist, Kerstin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Designing an ICT self-management service: suggestions from persons with type 2 diabetes2017In: Health and Technology, ISSN 2190-7188, E-ISSN 2190-7196, Vol. 7, no 2-3, 197-206 p.Article in journal (Refereed)
    Abstract [en]

    This paper reports the wishes and needs of people with type 2 diabetes (T2DM) for a future information and communication technology (ICT) self-management service to help manage their condition and their everyday life. Diabetes is a chronic disease affecting more and more people and placing increasing demands on health care. The self-management of diabetes includes instrumental and, decision-making skills and skills in managing daily activities, which may be supported by an ICT service. In this study we used a participatory design including two sessions of Future Workshop (FW) as part of a larger research project on the self-management of diabetes. Adults with type 2 diabetes participated in two FW sessions in which their expressed wishes and needs for an ICT service all fell under the broad category of Acceptance of the diagnosis, with three other suggestions; Trust in partnerships, Communication, and Individualized information. The participants’ experience of the FW as a democratic process and their appreciation of mutual learning contributed to these results, which are consistent with the aims of person-centred care.

  • 45.
    Garmy, Pernilla
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad.
    Hälsopromotion i skolan: utvärdering av DISA - ett program för att förebygga depressiva symtom hos ungdomar2016Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Background: DISA (Depressive Symptoms In Swedish Adolescents) is a cognitive behavioral intervention aimed at preventing stress and depressive symptoms in adolescents. It is frequently used in Swedish schools for students aged 13-15 years. DISA is commonly offered to females, but at some schools, the intervention is also offered to males. In this study, the application of the intervention for both females and males is evaluated.

    Aim: The overarching aim of this thesis was to explore the experience, significance, and effectiveness of the school-based intervention DISA. The specific aims were to investigate the effectiveness of depressive symptoms and self-reporting health, and costs and cost-effectiveness as well as to elucidate the experiences of adolescents and tutors.

    Methods: The effectiveness of DISA was investigated using method triangulation. The thesis is based on two quantitative and two qualitative studies. The quantitative studies were quasi-experimental trials with an intervention group (I, IV), and a control group (IV), with follow-up measurements obtained at 3 and 12 months after baseline. The qualitative studies were based on focus group interviews with adolescents (II) and tutors (III). The school-based cognitive behavioral prevention program DISA was presented by school health staff and teachers once per week for ten weeks. Students in grade 8 (median age: 14) participated in the intervention in study I (n=62, 52% females) and study IV (n=462, 79% females), and 486 students (46% females) were allocated to the control group (IV). Focus group interviews were conducted with 89 adolescents (II) and 22 tutors (III). The interviews were analyzed with qualitative content analysis.

    Findings: The intervention group decreased their self-reported depressive symptoms and improved their self-rated health more than the control group (p<0.05) at the 12-month follow-up. The majority of the adolescents rated the cognitive behavioral program as a positive experience, and the attendance rate was high. The incremental cost-effectiveness ratio was approximately USD 6,300 per quality-adjusted life year (QALY). The focus group interviews with the adolescents revealed that the students found that they developed intrapersonal strategies through DISA, such as directed thinking, improved self-confidence, stress management, and positive activities. They also gained an increased interpersonal awareness regarding trusting the group and considering others. However, structural constraints of the DISA program, such as negative framing and an emphasis on performance, were also noted. The focus group interviews with the tutors identified an overall theme of striking a balance between strictly following the manual and meeting student needs.

    Conclusions: The DISA program appears to be a feasible, cost-effective school-based cognitive behavioral program with high levels of student adherence and satisfaction, as well as positive mental health benefits. However, a desire for a more health-promoting approach was expressed. 

  • 46.
    Garmy, Pernilla
    Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO). Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Lund University.
    Sleep and media habits in school children and adolescents2015In: Journal of Sleep Disorders & Therapy, ISSN 2167-0277Article in journal (Other academic)
    Abstract [en]

    The aim was to investigate the effects of sleep, television use and texting and computer habits on overweight, enjoyment of school and feelings of tiredness at school in school-age children and adolescents. This cross-sectional study was conducted in Sweden on school children aged 6-16. A questionnaire was distributed to the children (n=3011 in survey I; n=204 in survey II). Children who slept less than the median length of time reported enjoying school to a lesser degree. Fewer hours of sleep were found to be associated with having a bedroom television using the television or computer more than 2 hours a day, being tired at school and having difficulties in sleeping and waking up. Overweight and obesity were found in 15.8% of the study population; obesity alone was found in 3.1%. Relationships between lifestyle factors and overweight were studied using multivariate logistic regression analysis. Having a bedroom television and using the television more than 2 hours per day were found to be associated with overweight but using the computer more than 2 hours a day was not. About 61% of the students aged 16 reported checking Facebook or social media at least once a day and 27% reported doing so for more than 10 times a day. One fourth of the students aged 16 had a habit of sending or receiving text messages at night at least once a week. Texting at night and frequent checking of Facebook and social media sites were related to sleep problems.

  • 47.
    Garmy, Pernilla
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO).
    Sömnstörningar hos barn2015In: Skolhälsan, ISSN 0284-284X, no 1, 28-29 p.Article in journal (Other (popular science, discussion, etc.))
  • 48.
    Garmy, Pernilla
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO).
    Utvärdering av DISA2016In: Skolhälsan, 11-12 p.Article in journal (Other (popular science, discussion, etc.))
  • 49.
    Garmy, Pernilla
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO).
    Utvärdering av DISA: ett skolbaserat program för att förebygga depressiva symtom hos ungdomar2016In: Barnbladet, no 4, 32-33 p.Article in journal (Other (popular science, discussion, etc.))
  • 50.
    Garmy, Pernilla
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Environment Children's and Young People's Health in Social Context (CYPHiSCO).
    Andre, Bengt
    Läkemedelsverket.
    Anrsvik Malmberg, Kerstin
    Barn och ungdomspsykiatri Stockholm.
    Gullberg, Ninna
    Läkemedelsverket.
    Hägglöf, Bruno
    Umeå universitet.
    Sömnstörningar hos barn: kunskapsdokument2015Report (Other academic)
    Abstract [sv]

    Ett möte med experter på barns sömnproblem genomfördes i februari 2014 varvid detta kunskapsdokument togs fram. Kunskapssammanställningen och rekommendationerna har tagits fram gemensamt av experterna och bygger på konsensus bland deltagarna. Läkemedelsverkets ansvar var att facilitera mötet samt att tillsammans med experterna sammanställa kunskapsdokumentet. Som stöd för kunskapsdokumentet finns bakgrundsdokument som respektive författare ansvarar för. I bakgrundsdokumenten finns, förutom detaljerad information om varje ämnesområde, även referenser. Socialstyrelsen medverkade vid expertmötet, liksom i framtagandet av kunskapsdokumentet. Inför mötet har SBU (2013) identifierat kunskapsluckor inom området, vilka publicerats i SBU:s databas över vetenskapliga kunskapsluckor, se www.sbu.se. En vetenskaplig kunskapslucka innebär att systematiska litteraturöversikter saknas eller att de visar på osäker effekt. Man fann att detta gäller "Melatonin till barn som har flera funktionsnedsättningar och sömnproblem", "Melatonin som behandling av sömnproblem hos barn med adhd" och " Melatonin för i övrigt friska barn med sömnproblem". SBU konstaterade tidigare (2010) att "Effekten av alimemazin vid behandling av sömnbesvär" också är envetenskaplig  kunskapslucka.

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