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  • 201.
    Jakobsson, Liselotte
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Fransson, Per
    Patient reported outcome measure (PROM) of quality of life after prostatectomy: results from a 5-year study2013Inngår i: Open Nursing Journal, ISSN 1874-4346, E-ISSN 1874-4346, Vol. 7, s. 165-173Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Prostate cancer is the most common cancer among men in Sweden, and treatment is negatively affecting the patients' quality of life. Even so, long term experiences are sparse and implications for nursing practice are little known. The aim of this study was to determine areas of functioning and factors impacting quality of life, QOL, during and five years after radical prostatectomy (RP) using a quality of life questionnaire and a specific module for prostate cancer. A longitudinal study was performed with consecutively included Swedish men from baseline and after RP treatment (n=222) from 2003 to 2011 to obtain their opinions on quality of life. Data was gathered through a mail out - mail in procedure at baseline, 3 months, 1-3 and 5 years after treatment with a response rate of 94.14% - 75.2%. One reminder was sent on each occasion. Identified areas with increased functioning after five years were emotional and social functioning. QOL ratings did not change over the years. Sexual activity and functioning decreased and hormonal treatment-related symptoms increased. Impact on QOL was found regarding emotional and social functioning, nausea/vomiting, pain and hormone-related symptoms. Increasing age, living with a partner and educational level had no significant impact on QOL. Implications for nursing are to initially focus on physical problems and at times for follow-up visits pay attention also to emotional and social aspects of life. To be able to make a difference in the patient's life, nurses need to bridge the gap between in-hospital treatment and everyday life outside hospital.

  • 202.
    Jakobsson, Liselotte
    et al.
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Nilsson, Petra
    Högskolan Kristianstad, Forskningsmiljön Människa - Hälsa - Samhälle (MHS). Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Oral hälsa och folkhälsovetenskap.
    Fransson, Per
    Umeå University.
    The influence from sense of coherence on perceived health after prostatectomy: a 5 year follow up2017Inngår i: Medical and Clinical Research, ISSN 0976-5530, Vol. 2, nr 2Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The purpose of the study was to to describe which factors of health related quality of life were associated with a high sense of coherence in a 5 year perspective. The sense of coherence, SOC-scale, EORTC QLQ C-30 and PR 25 questionnaires were applied to a sample of 222 men at baseline and over 5 years following radical prostatectomy. Result showed significant association to SOC in psychological aspects (emotional and cognitive functioning, p=<0.00-0.04 respectively 0.04) and for hormone treatment related symptoms (i.e. manhood p=<0.05). High SOC was associated with quality of life (index) in the early post treatment period and to aspects of general functioning (role-, emotional- respectively cognitive) in year 3 and 5. High sense of coherence was interpreted to be a health resource for experiencing life quality connected to different aspects at different time points of the data collection. The result showed stability in SOC and QoL scoring over 5 years.

  • 203.
    Jakobsson, Liselotte
    et al.
    Högskolan Kristianstad, Sektionen för lärande och miljö, Avdelningen för Humanvetenskap.
    Persson, Lena
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap.
    Lundqvist, Pia
    Lund University.
    Life after prostatectomy2011Konferansepaper (Fagfellevurdert)
  • 204.
    Jakobsson, Liselotte
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Petersson, Pia
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Implementering2013Inngår i: Aktionsforskning i vård och omsorg: tillämpning och teori / [ed] Liselotte Jakobsson, Malmö: Gleerups Utbildning AB , 2013, s. 111-124Kapittel i bok, del av antologi (Annet vitenskapelig)
  • 205.
    Jakobsson, Ulf
    et al.
    Department of Health Sciences, Lund University.
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Lindskov, Susanne
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Department of Geriatrics and Neurology, Central Hospital, Kristianstad.
    Hagell, Peter
    Department of Health Sciences, Lund University.
    Construct validity of the SF-12 in three different samples2012Inngår i: Journal of Evaluation In Clinical Practice, ISSN 1356-1294, E-ISSN 1365-2753, Vol. 18, nr 3, s. 560-566Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Rationale, aims and objectives  Studies have challenged the validity and underlying measurement model of the physical and mental component summary scores of the 36-item Short-Form Health Survey in, for example the elderly and people with neurological disorders. However, it is unclear to what extent these observations translate to physical and mental component summary scores derived from the 12-item short form (SF-12) of the 36-item Short-Form Health Survey. This study evaluated the construct validity of the SF-12 in elderly people and people with Parkinson's disease (PD) and stroke.

    Methods  SF-12 data from a general elderly (aged 75+) population (n = 4278), people with PD (n = 159) and stroke survivors (n = 89) were analysed regarding data quality, reliability (coefficient alpha) and internal construct validity. The latter was assessed through item-total correlations, exploratory and confirmatory factor analyses.

    Results  Completeness of data was high (93–98.8%) and reliability was acceptable (0.78–0.85). Item-total correlations argued against the suggested items-to-summary scores structure in all three samples. Exploratory factor analyses failed to support a two-dimensional item structure among elderly and stroke survivors, and cross-loadings of items were seen in all three samples. Confirmatory factor analyses showed lack of fit between empirical data and the proposed items-to-summary measures structure in all samples.

    Conclusions  These observations challenge the validity and interpretability of SF-12 scores among the elderly, people with PD and stroke survivors. The standard orthogonally weighted SF-12 scoring algorithm is cautioned against. Instead, when the assumed two-dimensional structure is supported in the data, oblique scoring algorithms appear preferable. Failure to consider basic scoring assumptions may yield misleading results.

  • 206.
    Janlöv, Ann-Christin
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Ainalem, Ingrid
    Region Skåne.
    Andersson, Ann-Christine
    Jönköping University.
    Berg, Agneta
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    An improvement program as a way to intensify inter-professional collaboration in the community for people with mental disabilities: a follow-up2016Inngår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 37, nr 12, s. 885-893Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of the study was to follow up inter-professional experiences of improvement work one year after a completed CII improvement program aiming at improve health care and social services for people with mental disabilities living in ordinary housing. This study was performed with a qualitative descriptive approach which employed six focus group interviews followed by a thematic analysis. The results revealed four themes; Self-awareness and insights; Behavior and actions in daily practice; Organizational cultures and subcultures; and Organizational practices, using Ken Wilbers' integral theory of four quadrants of realities as a holistic frame in the discussion.

  • 207.
    Janlöv, Ann-Christin
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Berg, Agneta
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    The nurses’ voice of working in a newly established community based 24-hour support center for people with psychiatric disabilities2013Inngår i: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, Vol. 3, nr 2, s. 195-201Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This study explores the perceptions of a small group of nurses working at a newly established 24-hour community-based service enter (SC) for users with psychiatric disability using a qualitative approach. Since the mental health reform in Sweden in 1995 where the communities (in Sweden called municipalities) were given the responsibility to establish service and support to people with severe psychiatric disabilities, they have struggled in finding suitable forms of these kinds of areas. In 2010, this led to the creation and development of a new center aiming to provide services and support based on the expressed needs of people with physchiatric disability in a community located in southern Sweden. During 2011, a total of three group interviews were performed to capture the employed nurses’ perceptions of this newly established SC. The interview texts were analyzed by way of qualitative content analysis. A first reading of the interview texts revealed that the nurses’ perceptions of the service center were unwaveringly positive but that their beliefs about who the specific target group were differed. The main finding was summarized by the theme: Making a difference—on an individual, professional, and organizational level. The sub themes were: 24-hour availability, unclear assignment, and preventing mental illness. The findings indicate a need for a community round-the-clock service center in this Swedish community and a more clear definition of the target group.

  • 208.
    Janlöv, Ann-Christin
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Johansson, Linda
    Högskolan Kristianstad, Sektionen för hälsa och samhälle.
    Clausson, Eva
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Mental ill-health among adult patients at healthcare centres in Sweden: district nurses experiences2017Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 32, nr 2, s. 987-996Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Mental ill-health among the general population is increasing in Sweden. Primary Health Care (PHC) and Healthcare Centres (HCC), where district nurses (DNs) work, bear the basic responsibility for treatment of mental ill-health, while severe mental ill-health fall under the responsibility of psychiatric specialist care. The increased prevalence of mental ill-health in the community means that DNs increasingly encounter people with mental health problems - not least as a comorbidity. How well DNs are equipped to deal with mental ill-health is currently unclear.

    AIM: The purpose of this study was to explore district nurses' experience of encountering and dealing with mental ill-health among adult patients at healthcare centres.

    DESIGN: A qualitative explorative approach was used to capture the experiences of the phenomena under study.

    METHODS: Individual interviews were conducted with 10 DNs working at six HCCs. The interviews were transcribed and analysed by qualitative content analysis.

    RESULTS: The result emerged as several subcategories captured by three categories: (i) having competence - a prerequisite for feeling confident; (ii) nursing mental ill-health requires time and commitment; and (iii) working in an organisation without preparedness, encompassed by the synthesising theme; nursing mental ill-health requires specific competence and organisational support.

    CONCLUSION: Working as a DN requires formal and informal competence when encountering patients with complex health needs. The findings revealed that the DNs could feel insecure regarding how to deal with patients with mental ill-health due to lack of knowledge. Assessment of patients with mental ill-health is time- and energy-consuming and calls for improved teamwork at HCCs as well as effective collaboration with psychiatric specialist care and other care givers. The DNs responsibility to fulfil their work considering the increasing number of mental ill-health among people that seeks help at HCCs needs to be acknowledged and met by the PHC organisation.

  • 209.
    Janlöv, Ann-Christin
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap II. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Persson, Irene
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I.
    Berg, Agneta
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap II. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    The lived experience of a 24-hour support center for persons with psychiatric disabilities: making me feel almost like an ordinary person2014Inngår i: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, Vol. 4, nr 1, s. 42-50Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    This study illuminates nine psychiatric disabled persons’ lived experience of a newly established community-based service center open around the clock. This new 24-hour support center (SC) was established in 2011 in a Swedish community to better match and facilitate the disabled persons’ needs. In order to illuminate the disabled person’s experiences individual interview was performed. A phenomenological-hermeneutical method inspired by Paul Ricoeur was used to interpret the texts. After a naive reading, a structural analysis revealed two themes: 1), becoming aware of myself as a person, and 2) having a lifeline and belongingness. The comprehensive understanding was interpreted as meaning “Making me feel almost like an ordinary person”, which incorporated the person’s past with their present together with a direction for the future and hope for a more fulfilling life.

  • 210.
    Janlöv, Ann-Christin
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Rahm Hallberg, Ingalill
    Department of Health Sciences, Faculty of Medicine, Unit of Caring Sciences, Lund University.
    Petersson, Kerstin
    Department of Health Sciences, Faculty of Medicine, Unit of Caring Sciences, Lund University.
    Care managers' view of family influence on needs assessment of older people2011Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, nr 2, s. 243-252Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Research has shown that families experience poor involvement in needs assessment of older people while little is known about municipal care managers' views of family participation. The aim was to explore how municipal care managers view families' participation in and influence on needs assessment of older people receiving public home help. Individual interviews (n = 26) were conducted with care managers (n = 5) about their previously conducted needs assessments (n = 5-6). As a complement, a focus group interview with care managers (n = 9) from nine different municipalities was conducted. All interviews were analysed using a qualitative content analysis. The results revealed the overarching category, 'Having to establish boundaries towards family influence and at the same time use them as a resource', which encompassed five principal categories. How family participation was viewed and handled during the needs assessment process seemed determined by the way care managers set boundaries for their professional responsibility. Their views revealed both distancing and strengthening attitudes. The distancing attitude dominated, in particular towards family members who were not perceived as having any legal rights to be considered, even though their participation was an important resource. To follow legislation and municipal guidelines of allocation of public home help to avoid reprimands caused a need for self-protection. The care managers seemed pressed by demands from organizations and families, and in this competition, the family lost out. Adherence to organizational developed patterns of handling legislation and guidelines were prioritized. Because family members often are older and assist in providing care, family participation in the needs assessment of older help recipients needs further societal support.

  • 211.
    Johansson, Maria
    et al.
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Janlöv, Ann-Christin
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle.
    Maria Skåne Nordost: ett samverkansprojekt med syfte att förebygga missbruk och drogberoende bland ungdomar2013Rapport (Annet vitenskapelig)
    Abstract [sv]

    Bakgrund Samverkan mellan socialtjänst och hälso-och sjukvård har betydelse för tidig upptäckt av riskbruk, missbruk och beroende av droger hos ungdomar och unga vuxna. I avsaknad av samverkan för stöd och behandling av denna målgrupp startade de båda huvudmännen en gemensam öppenvårdsmottagning i Nordöstra Skåne. Syfte Syftet var att beskriva erfarenheter av samverkansprojektet Maria Skåne Nordost som vänder sig till ungdomar och unga vuxna med drogrelaterade problem. Metod Studien genomfördes med en kvalitativ ansats. Datainsamlingen genomfördes med tio individuella intervjuer som sedan analyserades med kvalitativ innehållsanalys. Resultat Vid analysen identifierades fyra teman: Förväntningar inom teamet, Svårigheter i samverkan- och samarbetsprocessen, Möjligheter i samverkan- och samarbetsprocessen och Framtida planer för samverkan- och samarbete. Åtta subteman identifierades: att ha förväntningar på varandra i teamet, att ha förväntningar om att göra skillnad, att ha svårigheter med huvudmännens samverkan, att ha svårigheter med samarbetet, att se samarbete och personlig utveckling, att samverkan medförde åtskilliga sökanden till mottagningen, att samverka och samarbeta med andra organisationer, att samarbeta med nätverk med familjen i fokus. Slutsats: Samverkan är svårt när två stora organisationer ska samverka. En gemensam policy hade varit önskvärd för att samverkan mellan organisationerna ska fungera smidigare. Det finns behov av vidare vetenskapliga studier för att utvärdera redan befintliga samverkansprojekt.

  • 212.
    Johansson, Maria
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle.
    Martinsson, Lena
    Högskolan Kristianstad, Sektionen för hälsa och samhälle.
    Larsson, Lena
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle.
    Lära sig leva med demenssjukdom2009Rapport (Annet vitenskapelig)
    Abstract [sv]

    Bakgrund: Upplevelse av att inte känna sig ensam i situationen och att få dela med sig av sina erfarenheter till andra. Kursen som helhet ökade de närståendes känsla av trygghet och minskade deras upplevelse av stress och oro. Syfte: Syftet var att utvärdera hur närstående uppfattade kursen "Lära sig leva med demenssjukdom". Kursen avsåg att ge stöd i relationen mellan personen med demenssjukdom och den närstående. Metod: Utvärderingen genomfördes som deltagarbaserad aktionsforskning med fokusgruppssamtal. Deltagarna var närstående till personer med demenssjukdom. Resultat: Närstående upplevde en känsla av trygghet genom att få utbildning och information om demenssjukdomen. Att prata med andra i liknande situation och att känna igen sig gav dem en känsla av samhörighet.Diskussion: Upplevelse av att inte känna sig ensam i situationen och att få dela med sig av sina erfarenheter till andra. Kursen som helhet ökade de närståendes känsla av trygghet och minskade deras upplevelse av stress och oro.

  • 213.
    Johansson, Maurits
    et al.
    Lund University.
    Johansson, Per
    Lund University & Gothenburg University.
    Stomrud, Erik
    Lund University.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Hansson, Oskar
    Lund University.
    Psychometric testing of a Swedish version of the Apathy Evaluation Scale2017Inngår i: Nordic Journal of Psychiatry, ISSN 0803-9488, E-ISSN 1502-4725, Vol. 71, nr 6, s. 477-484Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Apathy, a prevalent and clinically relevant symptom in neurodegenerative disease, is often evaluated by the instrument Apathy Evaluation Scale (AES). However, this instrument has not been translated into Swedish, halting clinical and research efforts. Furthermore, previous studies lack analyses of some basic properties, such as the legitimacy of a total score, or have analysed dimensionality by questionable methods.

    AIM: To translate and psychometrically evaluate a Swedish version of the AES.

    METHOD: The AES was translated, and its psychometric properties were tested in the Swedish BioFINDER study, including cognitively well elderly, and subjects with mild cognitive or parkinsonian symptoms. Psychometric analyses were conducted according to classical test theory (CTT) and aimed to resemble those performed in the English original study by Marin et al. in 1991. Dimensionality was additionally analysed on a matrix of polychoric correlations and parallel analyses.

    RESULTS: Data indicate that the Swedish AES performs satisfactorily regarding data completeness, scaling assumptions, targeting, and reliability. Principal component analyses (with parallel analysis) of polychoric correlation matrices identified a single component. Convergent and discriminative validity correlations accorded with a priori expectations.

    CONCLUSIONS: The study provides initial support that this Swedish AES performs similarly to the English original, and exhibits acceptable psychometric properties according to CTT, including supported unidimensionality, and may be adopted for use in clinical and research settings.

  • 214.
    Johansson, Yvonne
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Tensions in the field of health care: knowledge networks and evidence-based practice: an action research approach2011Doktoravhandling, monografi (Annet vitenskapelig)
    Abstract [en]

    Empirically, this thesis has focused on nine research and development (R&D) networks set up to promote a professional approach to care and strengthen the collaboration between health care sectors in a Swedish health care setting. The research project was embedded in an action research approach intended to encourage network development by means of a dialogical process. The specific research question was: What are the actors‟ perceptions of knowledge networks and how might we account for the networks‟ evolution, role and ways of working? Bourdieu‟s concepts reproduction and symbolic violence were used as analytical tools and were chosen as a way of answering and explaining the empirical story line. Data was collected by use of a multi-method approach consisting of 39 interviews, observations, document review and reflexive notes. The intention was to elicit data that supported both network development and the theoretical explanation to come. It appeared that the networks concerned had several advantages, such as being a forum for internal dialogue and exchange of experiences. In addition, two main patterns emerged: Firstly, most of the participants within the networks were advocates of a linear top-down model of implementation of evidence-based knowledge into practice. Secondly, they experienced inertia in the transfer process. From the collaborative process undertaken it emerged that their linear top-down model of knowledge transfer seemed to be firmly rooted. Theoretically, the thesis contributes to an understanding of why the process of knowledge transfer was considered by the participants within the networks to be a sluggish process. The thesis also contributes to an explanation of why they adhered to the macro-discourse of evidence-based medicine at the expense of involving practitioners outside the networks in horizontal patterns of exchange. It is argued that the networks had a symbolic value and were also a product of and reproduced the evidence-based discourse and the prevailing structures within their field. This contrasted with the role of networks as arenas for generation of local knowledge in the network literature. A major challenge facing health care sectors is that of how to support practitioners in the incorporation of new practices resulting in actual changes.

  • 215.
    Jonasson, Stina B
    et al.
    Lund University & Skåne University Hospital.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Hariz, Gun-Marie
    Umeå University.
    Ivarsson, Susanne
    Lund University.
    Nilsson, Maria H
    Skåne University Hospital & Lund University.
    Psychometric evaluation of the Parkinson’s disease Activities of Daily Living Scale2017Inngår i: Parkinson's Disease, ISSN 2090-8083, E-ISSN 2042-0080Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objective: To evaluate a set of psychometric properties (i.e., data completeness, targeting andexternal construct validity) of the Parkinson’s disease Activities of Daily Living Scale (PADLS) in people with Parkinson’s disease (PD). Specific attention was paid to the association between PADLS and PD severity, according to the Hoehn & Yahr (H&Y) staging.

    Methods: The sample included 251 persons with PD (mean age 70 [SD 9] years). The data collection comprised a self-administered postal survey, structured interviews and clinical assessments at home visits.

    Results: Data completeness was 99.6% and the mean PADLS score was 2.1. Floor and ceiling effects were 22% and 2%, respectively. PADLS scores were more strongly associated (rs>0.5) with perceived functional independence, dependence in ADL, walking difficulties and self- rated PD severity than with variables such as PD duration and cognitive function (rs<0.5).PADLS scores differed across H&Y stages (Kruskal-Wallis test, p<0.001). Those in H&Y stages IV-V had more ADL disability than those in stage III (Mann-Whitney U-test, p<0.001), whereas there were no significant differences between the other stages.

    Conclusion: The PADLS revealed excellent data completeness, acceptable targeting and external construct validity. It seems to be well suited as a rough estimate of ADL disability inpeople with PD.

  • 216.
    Jönsson, Julia
    et al.
    Lund University.
    Maltestam, Malin
    Lund University.
    Bengtsson-Tops, Anita
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Garmy, Pernilla
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO).
    School nurses’ experiences working with students with mental health problems: A qualitative study2017Inngår i: The Journal of School Nursing, ISSN 1546-8364Artikkel i tidsskrift (Fagfellevurdert)
  • 217.
    Jönsson, Malin
    et al.
    Högskolan Kristianstad, Fakulteten för hälsovetenskap.
    Lindvall, Lina
    Högskolan Kristianstad, Fakulteten för hälsovetenskap.
    Clausson, Eva
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Skolsköterskors dokumentation i skolhälsovårdsjournalen: en tioårsuppföljning2016Konferansepaper (Annet vitenskapelig)
  • 218.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap II. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Berggren, Vanja
    Lund University.
    Ekblom, Örjan
    The Swedish School of Sport and Health Sciences, Stockholm.
    Al-Hazzaa, Hazzaa M.
    King Saud University, Riyadh.
    Prevalence and association of female weight status and dietary habits with sociodemographic factors: a cross-sectional study in Saudi Arabia2015Inngår i: Public Health Nutrition, ISSN 1368-9800, E-ISSN 1475-2727, Vol. 18, nr 5, s. 784-796Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    OBJECTIVE: Research about the prevalence of underweight and overweight/obesity in the Saudi Arabian female population is limited. The aim of the present study was to examine the dietary habits and the prevalence of underweight and overweight/obesity and associated factors among female university students.

    DESIGN: A cross-sectional study.

    SETTING: A university centre for female students in south-western Saudi Arabia.

    SUBJECTS: The study involved 663 randomly selected female university students who self-reported their physical activities, nutritional habits and socio-economic factors. Multiple linear and logistic regression analyses were used to identify factors associated with the students' BMI, dietary variables, underweight and overweight/obesity.

    RESULTS: The majority of the university females were normal weight (56·9 %), but a high prevalence of underweight (19·2 %) and overweight/obesity (23·8 %) occurred. Social factors significantly associated with BMI were the presence of obese parents and siblings as well as physical activity levels, marital status, number of sisters, father's level of education and more frequent intake of French fries/potato chips (>3 times/week). Several variables were found to correlate with dietary habits, underweight and overweight/obesity. Of special interest is the association between the number of siblings and the participants' BMI and dietary intake in both negative and positive ways.

    CONCLUSIONS: The findings of this research have implications for health promotion and prevention of malnutrition among college-aged females. Health-care providers and policy makers need to involve the whole family when promoting females' physical activity. The study serves as an evidence-based background for planning and implementation of interventions targeting improvement of highly educated populations' nutritional habits.

  • 219.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Karolinska Institute.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Berggren, Vanja
    Lund University.
    Ekblom, Örjan
    The Swedish School of Sport and Health Sciences.
    Hazzaa, A-H
    Saudi Arabia.
    Perceived and ideal body image in young women in South Western Saudi Arabia2015Inngår i: Journal of Obesity, Vol. 2015, s. 1-7-, artikkel-id 697163Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objectives. The aim of this study was to investigate perceived and ideal body image (BI) and associated factors among female university students in Saudi Arabia. Methods. This cross-sectional study included 663 university female students. Anthropometric measurements including weight, height, BMI, and BI perception (the 9-figure silhouette) were obtained. Descriptive and logistic regression analysis were conducted. Results. An agreement between actual, perceived, and ideal BI was found in 23% of the participants. Behavioral (activity levels), social (presence of obese parents and fathers’ level of education), and economic factors (households’ monthly income, number of cars in the household, and kind of residence) were positively and significantly associated with the desire to be thinner. Similarly, socioeconomic associations (number of sisters and number of cars in the household) correlated positively and significantly with the desire to be heavier. Conclusions. The whole family should rather be considered in interventions related to appearance concerns and BI discrepancies. Furthermore, campaigns targeting improvement of adolescents’ physical self-image should be a major priority of the public health sector.

  • 220.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Berggren, Vanja
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsmiljön Mat, måltid, hälsa i 24-timmarsperspektivet. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Hazzaa, A-H
    Association of weight status and dietary habits with socio-demographic factors among university female students in Saudi Arabia2014Konferansepaper (Annet vitenskapelig)
  • 221.
    Khalaf, Atika
    et al.
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Karolinska Institute.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Berggren, Vanja
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsmiljön Food and Meals in Everyday Life (MEAL). Karolinska Institute.
    Hazzaa, A-H
    Saudi Arabia.
    Discrepancies between actual, perceived and ideal body image among young female university students in southwestern Saudi Arabia2014Konferansepaper (Annet vitenskapelig)
    Abstract [en]

    Rationale: Body-shape preference is an important determinant of obesity and underweight, but studies on body image among females in the Arab region are, at most, scanty. The aim of this study was to describe the prevalence of underweight and overweight/obesity among Saudi Arabian female university students, and to investigate discrepancies between their actual, perceived and ideal body shape.

    Methods: This cross sectional study included 663  female students in a university centre in Saudi Arabia. Anthropometric measurements including weight, height, BMI and body image scale (9-figures silhouette) were used. A cross-tabulation was made between “warped self-image” against “subjective goal image”. Regression analysis was used to predict variables related to body image perception.

    Results: The participants had a mean age of 20.4 years (SD 1.5), 16% were underweight and 25% were over- weight/obese.Discrepancy in subjective goal image: 44% wished they were slimmer and 20% that they were heavier than what they perceived themselves. Thus, 36% were happy with their current body shape.Warped self-image: It was 16% that thought they were slimmer and 18% that they were heavier than what they actually were. Thus, in 61% of cases the perceived body image was in agreement with their actual body shape. Cross-tabulation showed that only 23% had an agreemen tbetween their actual, perceived and ideal body shape. Of all variables entered into the regression analysis, only BMI was able to predict how the subject perceives herself in the body image scale (R square = 0.676; p < 0.000). None of the variables entered was significant enough to predict how the subject wishes to look like.

    Conclusion: Discrepancies between actual, perceived and ideal body image is common among the Saudi Arabian female students and can possibly lead to eating disorders and increased  prevalence of underweight oroverweight/obesity.

  • 222.
    Kläfverud, Maria
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för samhällsvetenskap och integrerad hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO).
    Barn i barnahus: före, under och efter besök på barnahus -trygghetspersoner2015Konferansepaper (Annet vitenskapelig)
  • 223.
    Kläfverud, Maria
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för samhällsvetenskap och integrerad hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO).
    Children in Barnahus - an interdisciplinary research study from childen's perspective: children in Barnahus-before, during and after being in CH2014Konferansepaper (Annet vitenskapelig)
    Abstract [en]

    When a parent is suspected for child abuse, the court in Sweden appoints a lawyer who can decide about the child’s participation in CH without parent’s knowledge or consent. The lawyer brings the child to CH. A familiar person, for example a teacher, accompanies the child. In the study children and their parents are interviewed about their experience and understanding of CH.

  • 224.
    Kumlien, Christine
    et al.
    Malmö University.
    Miller, Michael
    Lund University.
    Fagerström, Cecilia
    Blekinge County Council.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Evaluation of self-management program outcomes: Adaptation and testing of a Swedish version of the Health Education Impact Questionnaire (heiQ)2018Inngår i: Journal of Applied Measurement, ISSN 1529-7713, Vol. 19, nr 3, s. 303-319Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Self-management programs require a range of indicators to evaluate their outcomes. The Health Education Impact Questionnaire (heiQ) was developed to meet this need. The heiQ contains 40 items with 4 response categories, representing eight scales. We developed a Swedish version of the heiQ that was tested by cognitive interviews (n=15) and psychometrically (n=177) using classical test theory (CTT) and Rasch measurement theory (RMT). The Swedish heiQ was easily understood by interviewees and met CTT criteria, with supported scaling assumptions (corrected item-total correlations, ≥0.37) and reliability (ordinal alpha ≥0.78). General support was demonstrated for the measurement properties of the eight heiQ scales by acceptable RMT fit. However, there were signs of malfunctioning response categories for four items in two scales, and of suboptimal item coverage of the measurement continua. The Swedish heiQ appears comparable to other available language versions. Further efforts may be needed to optimize response categories and measurement precision. 

  • 225.
    Lamminsaari, Tero
    et al.
    Osby kommun.
    Peterson, Pia
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna.
    Uppsökande verksamhet i Osby kommun: Äldre personers perspektiv2016Rapport (Annet vitenskapelig)
    Abstract [sv]

    Syftet med denna studie var att beskriva äldres upplevelser och erfarenheter av uppsökandeverksamhet i Osby kommun. Förebyggande hälsoinsatser för äldre bedrivs iSverige med olika benämningar. I Osby kommun bedrivs de med benämning uppsökandeverksamhet. Uppsökande verksamhet med förebyggande insatser och råd kanstärka äldres egenvård och skjuta upp funktionsnedsättning samt förbättra den äldrepersonens välbefinnande och livskvalitet. Ur samhällsekonomiskt perspektiv kan uppsökandeverksamhet också minska kostnader för vård och omsorg på sikt.Metoden är en kvalitativ intervjuundersökning med öppna frågor. Studien genomfördesunder juni- november år 2015 och tio äldre personer intervjuades. Av dessa var detfem kvinnor och fem män. Intervjuerna analyserades enligt Graneheim och Lundmanskvalitativa innehållsanalys.I resultatet framkom två kategorier och sju subkategorier. Essenserna som hittadesfrån intervjuerna var: förväntningar, tillit i mötet, attityder till förändring, information,utförarens kompetens och personlighet, vikten av relation och kreativitet. Resultatetvisar tydligt att äldre upplever arbetet med uppsökande verksamhet värdefullt och villse detta arbete fortsätta.Denna studie ger utan tvekan stöd att utföra uppsökande verksamhet och uppsökandeverksamhet kan ses som en redskap för de äldre att skapa bra förutsättningar att bevarahälsan och ger möjlighet till ett aktivt och självständigt liv.

  • 226.
    Larsen, Anne
    et al.
    Karolinska Institutet.
    Broberger, Eva
    Karolinska Institutet.
    Petersson, Pia
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Complex caring needs without simple solutions: the experience of interprofessional collaboration among staff caring for older persons with multimorbidity at home care settings2017Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 31, nr 2, s. 342-350Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Older persons with multimorbidity being cared for at home often have complex needs which can´t be met by one player. Interprofessional collaboration is therefore considered necessary if care is to be organised according to the needs of the elderly. To achieve coherent healthcare, municipalities and regions need to develop this area.

    Aim: The aim of the study was to illustrate how various professionals belonging to homemaker services, home care services in municipality and Hospital-Based Home Care Services experience their collaboration in caring for older persons with multimorbidity.

    Method: Eleven informants took part in the study and individual interviewed. The material was analysed using a hermeneutic data analysis.

    Result: The result shows that collaboration between players contains various types of experiences which influence not only the staff who are involved in collaboration but also the result of the collaboration itself. The informants´ experience of collaboration was defined by trust and distrust and by security and insecurity. These influenced both the staff who were involved in collaboration and the result of collaboration itself.

    Conlusion: Complex situations could not be solved with simple models. Instead a flexible approach appears necessary with focus shifted from structures to interpersonal relations and interactions. Therefor the different professions have to work as a transprofessional team where close interactions, flexibility and improvisation is a key to success.   

    Relevance to clinical practice: A transprofessional approach to teamwork collaboration can blur professional boundaries and take the competence of all staff into account when home health care to older people with multimorbidity is to be provided by multiple caregivers. This is suggested as an approach with potential to provide high quality and safe care to a vulnerable population.

  • 227.
    Larsson, Helena
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I.
    Blomqvist, Kerstin
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    From a diagnostic and particular approach to a person-centred approach: a development project2015Inngår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 24, nr 3-4, s. 465-474Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Aims and objectives

    To investigate changes over time in an interdisciplinary group that was engaged in development work regarding pain and pain assessment.

    Background

    The outcomes of nursing research do not always find their way to the daily care of patients. This is evident within, for instance, physical rehabilitation, where relieving patients' pain is a major challenge. To gain new understanding, develop and change, registered nurses have a great part in engaging their staff.

    Design

    A qualitative study using a participatory action research approach was used, and a hermeneutic analysis was conducted.

    Methods

    A group of three registered nurses, two assistant nurses and a physiotherapist took part in focus group sessions. This group was followed with seven repeated sessions during a period of five months from January 2010 until June 2010. A hermeneutic analysis was used.

    Results

    The participants changed their attitudes towards the patient in pain, their own caring role and the team's role towards a more person-centred care.

    Conclusions

    Participation and reflection were key aspects as means to transfer knowledge into action and establish change. The participants came to the sessions, shared actively their experiences and expressed pride in the work they accomplished. This can be seen as an expression of a need to share and a joy to be working together in a person-oriented development area. In addition, the approach seemed to contribute to increased job satisfaction.

    Relevance to clinical practice

    The participants expressed that their work resulted in a changed approach to pain and pain assessment in their daily practice at the ward. The participants were actively engaged in enhancing their work with pain and pain assessment in their own daily practice and in implementing research-based knowledge.

  • 228.
    Larsson, Helena
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Malmö University.
    Rämgard, Margareta
    Malmö University.
    Bolmsjö, Ingrid
    Malmo University.
    Older persons' existential loneliness, as interpreted by their significant others: an interview study2017Inngår i: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 17, nr 1Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: In order to better understand people in demanding medical situations, an awareness of existential concerns is important. Studies performed over the last twenty years conclude that when dying and death come closer, as in the case with older people who are stricken by infirmity and diseases, existential concerns will come to the fore. However, studies concerning experiences of existential loneliness (EL) are sparse and, in addition, there is no clear definition of EL. EL is described as a complex phenomenon and referred to as a condition of life, an experience, and a process of inner growth. Listening to someone who knows the older person well, as significant others often do, may be one way of learning more about EL. Methods: This study is part of a larger research project on EL, the LONE study, where EL is explored through interviews with frail older people, their significant others and health care professionals. The aim of this study was to explore frail older (> 75) persons' EL, as interpreted by their significant others. The study is qualitative and based on eighteen narrative interviews with nineteen significant others of older persons. The data was analysed using Hsieh and Shannon's conventional content analysis. Results: According to the interpretation of significant others, the older persons experience EL (1) when they are increasingly limited in body and space, (2) when they are in a process of disconnecting, and (3) when they are disconnected from the outside world. Conclusion: The result can be understood as if the frail older person is in a process of letting go of life. This process involves the body, in that the older person is increasingly limited in his/her physical abilities. The older person's long-term relationships are gradually lost, and finally the process entails the older person's increasingly withdrawing into him- or herself and turning off the outside world. The result of this study is consistent with previous research that has shown that EL is a complex phenomenon, but the implications of this research include a deepened understanding of EL. In addition, the study highlights the interpretations of significant others.

  • 229.
    Larsson, Helena
    et al.
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Malmö University.
    Rämgård, Margareta
    Malmö University.
    Bolmsjö, Ingrid
    Malmö University.
    Older persons' existential loneliness- as interpreted by their significant others: an interview study2017Konferansepaper (Annet vitenskapelig)
  • 230.
    Larsson, Jane
    et al.
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Wernram, Emma
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Andra vägar för att tillgodose barnets behov: en kvalitativ studie om kommuner som använder andra arbetsvertyg eller modeller än BBIC2013Rapport (Annet vitenskapelig)
    Abstract [sv]

    BBIC (Barns Behov I Centrum) är ett arbetsverktyg för utredning, dokumentation och uppföljning inom barnavårdsutredningar. Vi ville göra en studie angående BBIC och när vi fick reda på att endast fem utav Sveriges 290 kommuner inte hade implementerat verktyget ville vi undersöka varför. Vi ville studera orsakerna till varför det inte är implementerat och vad de använder sig av för verktyg istället. Vi genomförde två telefonintervjuer och upptäckte att de flesta av våra intervjupersoner är tveksamma till verktyget och hur man använder det i utredningar. Eftersom tre utav de fem kommunerna ligger i Dalarna valde vi att göra telefonintervjuer, även med de som ligger i Skåne. Vi valde detta eftersom vi ville att informanterna skulle kunna svara på frågorna under samma förutsättningar. I vårt resultat fann vi att bristen på pengar och resurser är en av anledningarna till att kommunerna ännu inte implementerat BBIC.

  • 231.
    Larsson, Lena
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle.
    Blomqvist, Kerstin
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Har han det bra så har jag det bra: ett aktionsforskningsprojekt där ett närståendestöd planerades i samarbete med närstående till yngre personer med demenssjukdom2010Rapport (Annet vitenskapelig)
    Abstract [sv]

    Introduktion och rapportens uppläggning

    Det finns ett fåtal studier som har undersökt situationen för närstående till yngre personer med demenssjukdom. Dessa studier talar för att närstående som lever tillsammans med en person med demenssjukdom kommer att belastas allt tyngre och de kommer att behöva individuellt anpassat stöd för att orka med sin situation eftersom varje närståendevårdares situation är unik (Luscombe, Brodaty & Freeth, 1998, Jubb, Pollard & Chaston, 2003, Armstrong, 2003). Om närstående ska orka leva tillsammans med en partner som är demenssjuk behöver de erbjudas ett stöd som är utformat utifrån deras situation och behov. I Hälso- och sjukvårdprogrammet för Region Skåne betonas vikten av att lyfta fram yngre personer med demenssjukdom och deras närståendes situation ur ett regionperspektiv (Hälso- och sjukvårdsprogram, region Skåne, 2005). En studie där närstående själva får delta i att utforska hur ett närståendestöd bör utformas kan ge värdefull kunskap som kan bilda en bas för regionens planering av olika stödjande insatser. Syftet med denna studie var att i samarbete med närstående till personer vars demenssjukdom debuterat före 65 års ålder planera ett närståendestöd.

    Bakgrund till projektet

    Att få en demenssjukdom och att vara närstående till en person som utvecklar en demenssjukdom är en ny situation för alla inblandade. Vi vet ganska lite om hur närstående till yngre personer med en demenssjukdom upplever sin situation. För att undvika att bördan blir för stor för de närstående behövs olika samhälleliga insatser. För att öka kunskapen kring närståendes situation genomfördes fokusgruppsintervjuer med närstående till yngre personer som drabbats av demenssjukdom.

    Studiens genomförande och etiska överväganden

    Studien pågick mellan januari-april 2008 och genomfördes som ett deltagarbaserat aktionsforskningsprojekt där närstående till yngre personer med demens tillsammans med forskare samtalade om vilka problem närstående har att tackla samt gav förslag på hur ett närståendestöd skulle kunna utformas. Samtliga närstående var maka eller make till en person med demenssjukdom.

    Vad fokusgrupperna kom fram till

    Diskussionerna i fokusgrupperna omfattade tre faser; Tiden före diagnos – när man anar att allt inte står rätt till, Tiden i samband med och efter diagnos – bekräftelse på att det man anat var sant, Den sena fasen – när det blev ohållbart. Dessutom framkom att det fanns behov av en funktion som benämndes Lotsen. Namnet tillkom då fokusgrupperna signalerade ett behov av en lotsfunktion, en person som skulle kunna leda och lotsa närstående i vård- och omsorgsdjungeln.

    Vad hände sedan?

    Studien har lett till att en dagsjukvårdsenhet har startat ett projekt med avsikt att stödja relationen mellan yngre personer med demenssjukdom och deras närstående.

    Utvärderingsplaneringen och utvärderingen har utförts av studenter i sjuksköterskeprogrammet vid högskolan Kristianstad under handledning av forskare vid forskningsplattformen för Närsjukvård.

    Slutord

    Inom professionen tror man att man vet vilket stöd närstående behöver och min bestämda uppfattning var att närstående till yngre personer med demens framförallt behöver emotionellt stöd. Under studiens gång blev det dock tydligt för mig att det är omöjligt att ge stöd till närstående utan att samtidigt ta hänsyn till den sjukes behov och situation. Redan tidigt i sjukdomsförloppet behövs individuellt anpassat stöd som bör förändras i takt med sjukdomens fortskridande. Dessutom behövs en sammanhållande länk som kan lotsa vidare i processen och vara ett stöd både för den sjuke och närstående. Demenssjuksköterskan i kommunens hälso- och sjukvård skulle kunna fungera som den lots som efterfrågas. 

  • 232.
    Lethin, Connie
    et al.
    Lund University.
    Hallberg, Ingalill Rahm
    The Pufendorf Institute of Advanced Studies, Lund.
    Karlsson, Staffan
    Lund University.
    Janlöv, Ann-Christin
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Family caregivers experiences of formal care when caring for persons with dementia through the process of the disease2016Inngår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 30, nr 3, s. 526-534Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: Family caregivers' experiences of formal care when caring for persons with dementia through the process of the disease is sparsely investigated.

    AIMS: To investigate family caregivers' experiences of formal care when caring for a person with dementia, through the stages of the disease.

    DESIGN: A qualitative approach with focus group interviews.

    METHODS: Four focus group interviews were conducted in October 2011 with 23 spouses and adult children of persons with dementia and analysed with content analysis.

    RESULTS: The participants' experiences of formal care when caring for a person with dementia were captured in the theme 'Family caregiving requires collaboration with formal care to get support adjusted to needs specific to the stages of dementia'. This can be broken down into the categories 'The dementia diagnosis - entry into formal care as a novice family caregiver', 'Needing expanded collaboration with formal care to continue care at home' and 'Being dependent on a nursing home and trying to maintain involvement'.

    CONCLUSION: Family caregiving requires collaboration with formal care to get support adjusted to the individual's needs, specific to the stages of dementia. Caregivers experience a transition process with three main turning points: the dementia diagnosis; when they realise increased need for formal care to continue caring at home; and when the person with dementia is moved into a nursing home. The interviewed caregivers experience formal care reactive to their needs and this often promoted unhealthy transitions. Formal care needs to be proactive and deliver available care and support early on in the dementia trajectory. Interventions should focus on facilitating a healthy transition for family caregivers through the trajectory of the dementia disease to ensure their well-being.

  • 233.
    Lilja Andersson, Petra
    et al.
    Lunds universitet.
    Edberg, Anna-Karin
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Ethical aspects of undergoing a predictive testing for Huntington's disease2014Konferansepaper (Fagfellevurdert)
  • 234.
    Lilja Andersson, Petra
    et al.
    Department of Health Sciences, Lund University.
    Edberg, Anna-Karin
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Swedish nursing students' experience of aspects important for their learning process and their ability to handle the complexity of the nursing degree program2012Inngår i: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 32, nr 4, s. 453-457Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of the study was to explore nursing students' experiences of aspects important for their learning process and their ability to handle the complexity of the nursing degree program. The study was longitudinal and qualitative based on interviews with nursing students, six women and two men aged 20-36, during their three years of education. In all, seven patterns were found embracing aspects of importance for the students' learning: Having a clear goal, being able to re-evaluate one's ideas, being acknowledged, when the abstract becomes tangible, using one's own experiences as a tool for learning, hovering between closeness and distance regarding one's future profession and handling theory and practice in relation to one another. The results show the importance of providing clinical courses, strongly connected to the theoretical parts of the program and to use reflection and experience-based learning in the nursing program.

  • 235.
    Lilja Andersson, Petra
    et al.
    Lund University.
    Juth, Niklas
    Karolinska Institute.
    Petersén, Åsa
    Lund University.
    Graff, Caroline
    Karolinska Institute.
    Edberg, Anna-Karin
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Ethical aspects of undergoing a predictive genetic testing for Huntington’s disease2013Inngår i: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 20, nr 2, s. 189-199Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    The aim of this study was to describe the experiences of undergoing a presymptomatic genetic test for the hereditary and fatal Huntington’s disease, using a case study approach. The study was based on 18 interviews with a young woman and her husband from the decision to undergo the test, to receiving the results and trying to adapt to them, which were analysed using a life history approach. The findings show that the process of undergoing a presymptomatic test involves several closely connected ethical and medical questions, such as the reason for the test, the consequences of the test results and how health-care services can be developed to support people in this situation.

  • 236.
    Lilja Andersson, Petra
    et al.
    Lund University.
    Petersén, Åsa
    Lund University.
    Graff, Caroline
    Karolinska Institutet, Stockholm.
    Edberg, Anna-Karin
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap II. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Ethical aspects of a predictive test for Huntington’s Disease: a long term perspective2016Inngår i: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 23, nr 5, s. 565-575Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: A predictive genetic test for Huntington’s disease can be used before any symptoms are apparent, but there is only sparse knowledge about the long-term consequences of a positive test result. Such knowledge is important in order to gain a deeper understanding of families’ experiences.

    Objectives: The aim of the study was to describe a young couple’s long-term experiences and the consequences of a predictive test for Huntington’s disease.

    Research design: A descriptive case study design was used with a longitudinal narrative life history approach.

    Participants and research context: The study was based on 18 interviews with a young couple, covering a period of 2.5 years; starting 6 months after the disclosure of the test results showing the woman to be a carrier of the gene causing Huntington’s disease.

    Ethical considerations: Even though the study was extremely sensitive, where potential harm constantly had to be balanced against the benefits, the couple had a strong wish to contribute to increased knowledge about people in their situation. The study was approved by the ethics committee.

    Findings: The results show that the long-term consequences were devastating for the family. This 3-year period was characterized by anxiety, repeated suicide attempts, financial difficulties and eventually divorce.

    Discussion: By offering a predictive test, the healthcare system has an ethical and moral responsibility. Once the test result is disclosed, the individual and the family cannot live without the knowledge it brings. Support is needed in a long-term perspective and should involve counselling concerning the families’ everyday life involving important decision-making, reorientation towards a new outlook of the future and the meaning of life.

    Conclusion: As health professionals, our ethical and moral responsibility thus embraces not only the phase in direct connection to the actual genetic test but also a commitment to provide support to help the family deal with the long-term consequences of the test.

  • 237.
    Lindh, Inga-Britt
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan.
    Etik- och omvårdnadshandledning: en röd tråd genom sjuksköterskeprogrammet2017Inngår i: Högskolepedagogisk debatt, ISSN 2000-9216, nr 1, s. 47-55Artikkel i tidsskrift (Annet vitenskapelig)
  • 238.
    Lindh, Inga-Britt
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Blomqvist, Kerstin
    Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Challenges faced in daily life by persons with type 2 diabetes: a meta-synthesis2018Inngår i: Chronic Illness, ISSN 1742-3953, E-ISSN 1745-9206Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objectives

    To derive improved understanding of the implicit meanings of challenges in daily life from the perspective of persons with type 2 diabetes.

    Methods

    A meta-synthesis was conducted with an interpretive and constructivist approach. Four databases were searched for articles published between 2007 and 2011, producing 37 articles for analysis. Van Deurzen's life world theory was applied as an analytic grid.

    Results

    Challenges in daily life with type 2 diabetes could be understood as living in a tension between opposing forces, implying a struggle with inevitable paradoxes: living in the present and for the future, trusting oneself while relying on others, and being normal while feeling changed and different.

    Discussion

    This synthesis adds knowledge to previous understanding of living with type 2 diabetes, revealing the complexity of daily life when struggling with a lifelong illness. Person-centred care could be used to understand what challenges diabetes may cause in family and working life and the ambivalent feelings the illness can lead to. Future research is needed to implement and evaluate a person-centred care in practice. Since new qualitative research is continuously added to this topic, metasyntheses should be undertaken regularly.

  • 239.
    Lindholm, Beata
    et al.
    Skåne University Hospital, Malmö.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Hansson, Oskar
    Lund University.
    Nilsson, Maria H.
    Lund University.
    Factors associated with fear of falling in people with Parkinson’s disease2014Inngår i: BMC Neurology, ISSN 1471-2377, E-ISSN 1471-2377, Vol. 14, s. 19-Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND:

    This study aimed to comprehensibly investigate potential contributing factors to fear of falling (FOF) among people with idiopathic Parkinson's disease (PD).

    METHODS:

    The study included 104 people with PD. Mean (SD) age and PD-duration were 68 (9.4) and 5 (4.2) years, respectively, and the participants' PD-symptoms were relatively mild. FOF (the dependent variable) was investigated with the Swedish version of the Falls Efficacy Scale, i.e. FES(S). The first multiple linear regression model replicated a previous study and independent variables targeted: walking difficulties in daily life; freezing of gait; dyskinesia; fatigue; need of help in daily activities; age; PD-duration; history of falls/near falls and pain. Model II included also the following clinically assessed variables: motor symptoms, cognitive functions, gait speed, dual-task difficulties and functional balance performance as well as reactive postural responses.

    RESULTS:

    Both regression models showed that the strongest contributing factor to FOF was walking difficulties, i.e. explaining 60% and 64% of the variance in FOF-scores, respectively. Other significant independent variables in both models were needing help from others in daily activities and fatigue. Functional balance was the only clinical variable contributing additional significant information to model I, increasing the explained variance from 66% to 73%.

    CONCLUSIONS:

    The results imply that one should primarily target walking difficulties in daily life in order to reduce FOF in people mildly affected by PD. This finding applies even when considering a broad variety of aspects not previously considered in PD-studies targeting FOF. Functional balance performance, dependence in daily activities, and fatigue were also independently associated with FOF, but to a lesser extent. Longitudinal studies are warranted to gain an increased understanding of predictors of FOF in PD and who is at risk of developing a FOF.

  • 240.
    Lindholm, Beata
    et al.
    Lund University.
    Hansson, Oskar
    Lund University.
    Hagell, Peter
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Nilsson, Maria
    Lund University.
    Prediction of falls and/or near falls by using tandem gait performance in people with mild Parkinson’s disease2015Konferansepaper (Fagfellevurdert)
    Abstract [en]

    Objective: To investigate whether tandem gait test (TG) can predict future falls and/or near falls in people with Parkinson’s disease (PD).

    Background: People with PD have balance problems and an increased risk for falls. Although TG has been considered a predictor of falls, no PD-study has controlled results for demographic and disease-specific characteristics or included near falls when investigating falls prospectively.

    Methods: The study included 141 participants with PD (mean age and PD-duration, 68 and 4 years, respectively). Those >80 years of age, requiring support in standing or did not understand the instructions were excluded. TG includes taking 10 consecutive tandem steps along a straight line without walking aids and support, with eyes open. Performance was scored as follows: no side steps=0; one or more side steps=1; unable to take 4 consecutive steps=2. If TG was abnormal ("1 side steps) during the first attempt, a second trial was allowed and the best performance was registered. Anti-Parkinsonian medications were recorded from medical records. All assessments were conducted in the “on” condition. Participants thereafter registered all falls and near falls by using a diary for six months.

    Results: Mean score for UPDRS III was 14 (SD 8.0). The median (q1-q3) daily total levodopa equivalent (LDE) dose (mg) was 400 (286-600). Sixty-three participants (45%) experienced ≥1 fall and/or near fall. The median (q1-q3) TG score was 2 (1-2) for those that experienced falls and/or near falls and 0 (0-1) for those without any incidents. Logistic regression (controlling for age, gender, UPDRS III and daily LDE dose) showed that TG score 2 (OR, 5.40; 95% CI, 1.75-16.70; P=0.003) predicted falls and/or near falls. TG score 1 was not significant (OR, 2.24; 95% CI, 0.84-5.98; P=0.109). This model correctly classified 39/63 (62%) of individuals with falls and/or near falls and 64/78 (82%) of individuals without any incidence, and accounted for 32% of the variability between groups.

    Conclusions: The results suggest that TG may be able to predict a future fall and/or near fall in people with mild PD. Further studies using larger samples are needed for firmer conclusions and establishment of additional properties in relation to other assessments.

  • 241.
    Lindholm, Beata
    et al.
    Lund University.
    Nilsson, Maria H
    Lund University.
    Hansson, Oskar
    Lund University.
    Hagell, Peter
    Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen för Hälsa i samverkan. Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    The clinical significance of 10-m walk test standardizations in Parkinson's disease2018Inngår i: Journal of Neurology, ISSN 0340-5354, E-ISSN 1432-1459, Vol. 265, nr 8, s. 1829-1835Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    BACKGROUND: The 10-m walk test (10MWT) is a widely used measure of gait speed in Parkinson's disease (PD). However, it is unclear if different standardizations of its conduct impact test results.

    AIM OF THE STUDY: We examined the clinical significance of two aspects of the standardization of the 10MWT in mild PD: static vs. dynamic start, and a single vs. repeated trials. Implications for fall prediction were also explored.

    METHODS: 151 people with PD (mean age and PD duration, 68 and 4 years, respectively) completed the 10MWT in comfortable gait speed with static and dynamic start (two trials each), and gait speed (m/s) was recorded. Participants then registered all prospective falls for 6 months.

    RESULTS: Absolute mean differences between outcomes from the various test conditions ranged between 0.016 and 0.040 m/s (effect sizes, 0.06-0.14) with high levels of agreement (intra-class correlation coefficients, 0.932-0.987) and small standard errors of measurement (0.032-0.076 m/s). Receiver operating characteristic curves showed similar discriminate abilities for prediction of future falls across conditions (areas under curves, 0.70-0.73). Cut-off points were estimated at 1.1-1.2 m/s.

    CONCLUSIONS: Different 10MWT standardizations yield very similar results, suggesting that there is no practical need for an acceleration distance or repeated trials when conducting this test in mild PD.

  • 242.
    Lindskov, Cecilia
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Family centre practice and modernity: a qualitative study from Sweden2010Doktoravhandling, monografi (Annet vitenskapelig)
    Abstract [en]

    Family centres have become a common institution to promote health and wellbeingamong young children (0-6 years of age) and their parents in Sweden. Thecore of the work is usually based on both maternal and child health care, a preschooland social services, all located under the same roof in the local community.The family centre in this study, known as the "Family House", was the firstof its type to be built in the city of Kristianstad, Sweden.The overall aim of the thesis was to understand family centre practice throughprofessionals' and parents' perceptions of the Family House and its relationship to modernity.The study employed a qualitative design using phenomenography as method tocapture people's perceptions of the practice. The research also drew on the approachof action research, where participants and researchers co-generateknowledge through collaborative communicative processes. Data was generatedfrom semi-structured interviews conducted with nineteen professionals andsixteen individual parents. Dialogue sessions with the professionals of the studyhave been held in order that they and the researcher could enter into a dialoguebased on the findings of the interviews. Data was consequently also generatedfrom these meetings.The way the professionals perceived the practice of the Family House fell intothree categories, namely, as a professional service, the provision of an informalmeeting place for professionals and families with young children or as a broadcommunity-based centre. Parents' perceptions fell into four categories; as aprofessional reception to obtain expert guidance and support, a study circle andliving room to informally share experiences and socialising, and a playgroundfor children where children could interact and learn social skills.One core finding of this thesis is that family centre practice for those involvedcontained a balancing act between simple modern expertise to control the futureand late modern opportunities for self-realisation and reflexivity.Parents and professionals shared the responsibility for children's well-being andthe distinction between private and public was blurred since parents used theHouse as a social arena for developing personal relations. It was also an arenafor integration between Swedes and immigrants based on engagement for bothcultural diversity and similarity.

  • 243.
    Lindskov, Susanne
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Lunds universitet.
    Nutritionsstatus och viktförändring vid Parkinsons sjukdom2015Licentiatavhandling, med artikler (Annet vitenskapelig)
  • 244.
    Lindskov, Susanne
    et al.
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Censtralsjukhuset, Kristianstad.
    Hagell, Peter
    Lunds universitet.
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Viktförändring - ett problem vid Parkinsons sjukdom2010Inngår i: I vården, ISSN 2000-4141, Vol. 1, nr 4, s. 24-26Artikkel i tidsskrift (Annet vitenskapelig)
  • 245.
    Lindskov, Susanne
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle. Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Sjoberg, Klas
    Lund University.
    Hagell, Peter
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Westergren, Albert
    Högskolan Kristianstad, Forskningsmiljön PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Sjuksköterskeutbildningarna. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Weight stability in Parkinson's disease2016Inngår i: Nutritional neuroscience, ISSN 1028-415X, E-ISSN 1476-8305, Vol. 19, nr 1, s. 11-20Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Objectives: Parkinson's disease (PD) has traditionally been associated with weight loss. However, recent studies have not found any evidence of underweight in PD. Nevertheless, few studies have addressed nutritional status changes over time in relation to other clinical PD features. Here, we explore changes in nutritional status and motor and non-motor PD features (including dopaminergic drug therapy) in PD patients after 1 year. Methods: Motor and non-motor PD features, dopaminergic drug therapy, under-nutrition and malnutrition risk, and anthropometric measures (BMI, handgrip strength, triceps skin-fold, mid-arm circumference, and mid-upper arm muscle circumference) were assessed at baseline and 1 year later among 65 people with PD. Results: Disability, PD motor symptoms, dysautonomia, and dopaminergic drug therapy increased. Underweight was uncommon both at baseline (n= 3) and follow-up (n = 2); malnutrition risk was common but stable (88 and 92%), whereas triceps skin-fold increased (P = 0.030); mid-upper arm muscle circumference decreased (P = 0.002); and the proportion of people with low handgrip strength (P = 0.012) increased. Correlations between nutritional variables and motor and non-motor PD features were absent to modest. Multiple linear regression analysis showed that baseline pupillomotor functioning was associated with decreased weight and BMI, and sleep with increased weight and BMI. In addition, increases in anxiety were associated with decreased weight, BMI, and triceps skin-fold. Discussion: During the PD course, there seems to be redistribution in body composition from muscle to fat. Studies are needed to identify possible explanations for the findings. This implies that malnutrition should be regularly screened to identify those at risk of developing reduced muscle mass and increased morbidity.

  • 246.
    Lindskov, Susanne
    et al.
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap II. Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Sjöberg, K.
    Lunds universitet.
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap I. Högskolan Kristianstad, Forskningsmiljön PRO-CARE. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Malnutrition risk in Parkinson's disease2014Inngår i: Journal of Aging Research & Clinical Practice, ISSN 2258-8094, Vol. 3, nr 2, s. 93-99Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    Background: Unintentional weight loss and undernutrition have been found common in  Parkinson’s disease but its relation to other disease aspects is unclear.

    Objectives: To explore nutritional status in relation to disease duration in Parkinson’s disease, as well as associations between nutritional status and motor and autonomic features.

    Design: Cross-sectional.

    Setting: South-Swedish outpatient Parkinson-clinic.

    Participants: Home-dwelling people with Parkinson’s disease (n=71), without significant cognitive impairment (mean age, 67.3 years; 56% men; mean disease duration, 6.3 years).

    Measurements: Parkinsonian motor symptoms, mobility, activity level, disability, dyskinesias, dysautonomia, under- and malnutrition risk screening (using MEONF II and MUST for undernutrition and SCREEN II for malnutrition) and anthropometric measures (BMI, handgrip strength, triceps skin-fold, mid-arm circumference and mid-upper arm muscle circumference) were recorded. The sample was divided into those with longer (n=34) and shorter disease duration (n=37) according to the median (5 years).

    Results: Longer disease duration was associated with more, disability, dyskinesias and dysautonomia than shorter duration (P ≤0.04). Mean (SD) body weight and BMI were 80.3 (16.3) kg and 28.1 (4.8) kg/m 2, respectively, and did not differ between duration groups (body weight, 80.9 vs. 79.6 kg; BMI, 28.0 vs. 28.3 kg/m 2; P≥0.738). There were no differences in other anthropometric measures between duration groups (P ≥0.300). BMI identified 4% and 62% as under- and overweight, respectively, and 4% exhibited  undernutrition risk, whereas 87% were at risk for malnutrition. Nutritional and motor/dysautonomic variables showed relatively weak correlations (r s, ≤ 0.33), but people with orthostatic hypotension had lower BMI (26.7 vs 29.2 kg/m 2; P=0.026) and lower handgrip strength (33.2 vs 41.6 kg; P=0.025) than those without orthostatic hypotension.

    Conclusion: Motor and autonomic features showed expected relationships with disease duration. In contrast to these observations, and to most previous reports on nutrition in PD, frequencies of underweight and undernutrition were low. However, malnutrition risk was high, emphasizing the need for regular clinical monitoring of nutritional status. The reasons for the preserved nutritional status have to be explored prospectively.

  • 247.
    Lindskov, Susanne
    et al.
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Sjöberg, Klas
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Weight loss in Parkinson´s disease?2013Konferansepaper (Fagfellevurdert)
  • 248.
    Lindskov, Susanne
    et al.
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Sjöberg, Klas
    Westergren, Albert
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Hagell, Peter
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap. Högskolan Kristianstad, Forskningsmiljön PRO-CARE.
    Weight loss in Parkinson´s disease?2013Konferansepaper (Fagfellevurdert)
  • 249.
    Lu, Jun
    et al.
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Zhang, Song
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Chen, Eric
    Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan. Högskolan Kristianstad, Sektionen för hälsa och samhälle.
    E-health web application framework and platform based on the cloud technology2013Rapport (Annet vitenskapelig)
  • 250.
    Lundqvist, Pia
    et al.
    Lund University.
    Kleberg, Agneta
    Karolinska University Hospital.
    Edberg, Anna-Karin
    Högskolan Kristianstad, Sektionen för hälsa och samhälle, Avdelningen för Hälsovetenskap II. Högskolan Kristianstad, Forskningsplattformen Hälsa i samverkan.
    Larsson, Björn A.
    Karolinska University Hospital.
    Hellström-Westas, Lena
    Uppsala University.
    Norman, Elisabeth
    Skåne University Hospital, Lund.
    Development and psychometric properties of the Swedish ALPS-Neo pain and stress assessment scale for newborn infants2014Inngår i: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 103, nr 8, s. 833-839Artikkel i tidsskrift (Fagfellevurdert)
    Abstract [en]

    AIM: To validate and evaluate the psychometric properties of the ALPS-Neo, a new pain assessment scale created for the continuous evaluation of pain and stress in preterm and sick term infants.

    METHODS: A unidimensional scale for continuous pain, Astrid Lindgren Children's Hospital Pain Scale (ALPS 1), was developed further to assess continuous pain and stress in infants treated in the neonatal intensive care unit (NICU). The pain scale includes observations of five behaviours. A manual was created, clarifying the scoring criteria. An internal and an external panel assessed face validity. Psychometric properties were evaluated in three different steps. Inter-rater reliability was estimated from video-based assessments (n = 625) using weighted kappa statistics (test I). Inter-rater reliability was further evaluated in test II (n = 125) and test III (n = 96) by real-time assessments using the intraclass correlation coefficient (ICC) and Cronbach's alpha.

    RESULTS: The final inter-rater reliability (test III) was assessed as good with ICC 0.91 for the total score and 0.62-0.81 for the five items. Cronbach's alpha showed 0.95 for the total score.

    CONCLUSION: ALPS-Neo is a new assessment tool for optimising the management of pain and stress in newborn infants in the NICU. It has proved easy to implement and user-friendly, permitting fast, reliable observations with high inter-rater reliability.

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