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  • 1.
    Berge, Isak
    et al.
    Göteborgs universitet.
    Barenfeld, Emmelie
    Göteborgs universitet.
    Dahlin-Ivanoff, Synneve
    Göteborgs universitet.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health. Lunds universitet.
    Lood, Qarin
    Göteborgs universitet & Australien.
    Challenging oneself on the threshold to the world of research: frail older people's experiences of involvement in research.2020In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 20, no 1Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: User involvement of people outside academia in research is argued to increase relevance of research for society and to empower the involved lay persons. Frail older people can be a hard to reach group for research and thus an underrepresented group in research. There is a lack of knowledge how collaboration with frail older people should be best performed. Therefore, the aim of this study was to explore frail older people's experiences of involvement in research.

    METHODS: In this study we have invited people, 75 years of age or older screened as physically frail and who have previously participated in a study as data sources, to share their experiences by intensive interviewing. Data was collected and analysed in parallel inspired by a constructivist grounded theory approach.

    RESULTS: The results demonstrate how frail older people have different incentives, how their context of ageing and the unusual position of being involved in research altogether influenced how, where and in what way they wished to be involved in research. This is described in three categories: Contributing to making a difference for oneself and others, Living a frail existence and Being on somebody else's turf. The categories compose the core category, Challenging oneself on the threshold to the world of research, which symbolises the perceived distance between the frail older people themselves and the research world, but also the challenges the frail older people could go through when choosing to be involved in research.

    CONCLUSIONS: Frail older people have a varied capacity to participate in research, but in what way and how is difficult to know before they have been involved in the process of research. Our results advocate that it is problematic to exclude frail older people a priori and that there is a potential for new perspectives and knowledge to be shaped in the encounter and in the relationship between the researcher and the frail older person. For research to be able to cater for frail older people's needs of health services, their voices need to be heard and taken into consideration.

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  • 2.
    Etzerodt Laustsen, Christine
    et al.
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health.
    Peterson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health.
    Experiences of giving professionals a voice in research: challenges and lessons learned from using the participatory method group concept mapping.2019Conference paper (Other academic)
  • 3.
    Etzerodt Laustsen, Christine
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Health professionals‘ experiences of being involved in a research project – a case study2019Conference paper (Refereed)
  • 4.
    Jonsson, Oskar
    et al.
    Lunds universitet.
    Frögren, Joakim
    Lunds universitet.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Slaug, Björn
    Lunds universitet.
    Iwarsson, Susanne
    Lunds universitet.
    Understanding the wicked problem of providing accessible housing for the ageing population in Sweden2021In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 18, no 3, p. 1-21Article in journal (Refereed)
    Abstract [en]

    While accessible housing is known as important to promote healthy ageing, the societal issue of providing accessible housing for the ageing population bears the characteristics of a “wicked problem”. The aim of this study was to gain a better understanding of crucial variables for decision-making about the provision of accessible housing for the ageing population in Sweden. Materials used for a deductive content analysis were elicited through a research circle involving three researchers and twelve non-academic representatives. Brown and colleagues’ conceptual five-dimension framework to address wicked problems was used for the understanding of crucial variables in decision-making about housing provision. The findings show that such reasoning is dominated by the socioeconomic dimension. Findings in the biophysical dimension reveal well-known challenges pertaining to the definition and interpretation of the concept of accessibility and its operationalization. The dimensions are intertwined in a complex manner, which is essential for effective and efficient decision-making. The findings could make decision-makers aware of the diversity of individual thinking involved when addressing this wicked problem. Acting upon the crucial variables identified in this study could contribute to progressive decision-making and more efficient ways to develop and provide accessible housing to promote health ageing.

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  • 5.
    Laustsen, Christine E.
    et al.
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health.
    Peterson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health.
    Exploring health professionals´ experiences of being involved in a research project2020In: Knowledge Management Research & Practice, ISSN 1477-8238, E-ISSN 1477-8246Article in journal (Refereed)
    Abstract [en]

    The involvement of health professionals in research may ensure the acquisition of relevant and sustainable knowledge that is applicable in practice. However, knowledge is lacking about how professionals experience being involved. Therefore, the aim of this study was to explore how health professionals experienced the process of being involved in a project related to research on ageing and health. Data was collected through seventeen interviews and analysed using a grounded theory approach. The findings illustrate the health professionals’ experiences of an adaptation process that occurred, e.g., adapting practice and research to facilitate collaboration and the ability to co-create. Influenced by circumstances and through ongoing negotiations and breakthroughs, co-creation was experienced, based on the health professionals’ and researchers’ trustful relationships. In conclusion, this new knowledge may be useful in designing and implementing future studies that involve health professionals in research projects on ageing and health.

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  • 6.
    Laustsen, Christine E.
    et al.
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health.
    Peterson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health.
    Professionals’ experiences of being involved in a research and development project: a case study2019Conference paper (Other academic)
  • 7.
    Laustsen, Christine E.
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Lunds universitet.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Westergren, Albert
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Lunds universitet.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Involvement of professionals in research: knowledge integration, development of practice, and challenges: a group concept mapping study2021In: Health Research Policy and Systems, ISSN 1478-4505, E-ISSN 1478-4505, Vol. 19, no 1, p. 1-17, article id 115Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Research and practice are often considered as two different worlds with different values, which causes a gap between them. Involving professionals such as practitioners, managers, decision-makers, and policy-makers in research on ageing and health might address the gap between research and practice, strengthen the healthcare system, and increase older people's possibilities for healthy ageing. The aim of this study was to conceptualize professionals' involvement in research on ageing and health from the perspective of the professionals themselves.

    METHODS: A mixed method called group concept mapping was used. Professionals with experience being involved in research on ageing and health participated in qualitative data collection through brainstorming sessions (n = 29) and by sorting statements (n = 29). Afterwards, they participated in a quantitative data collection by rating statements according to how much each statement strengthened practice (n = 30) and strengthened research (n = 28). Multidimensional scaling analysis and hierarchical cluster analysis were used to conduct quantitative analysis. Latent qualitative analysis was also conducted.

    RESULTS: Analysis resulted in eight clusters which illustrated conceptual areas of professionals' involvement in research projects. The qualitative latent construct of the cluster map resulted in the themes: challenges for professionals; prerequisites and professionals' learning can contribute to development of practice; and integrated knowledge benefits older people. There was a strong correlation between what strengthens practice and research (r = 0.92).

    CONCLUSIONS: This study illustrates conceptual areas of professionals' own perspectives on what their involvement in research can lead to. Their involvement may lead to knowledge being integrated, and the professionals may learn through their involvement, which can contribute to the development of practice. However, there can also be challenges that need to be handled when professionals are involved in research. The study can be useful for improving the understanding of and actual involvement of professionals in research, and for optimizing the involvement of professionals.

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  • 8.
    Laustsen, Christine E
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Lunds universitet.
    Westergren, Albert
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Lunds universitet.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Conceptualizing researchers' perspectives on involving professionals in research: a group concept mapping study2021In: Health Research Policy and Systems, ISSN 1478-4505, E-ISSN 1478-4505, Vol. 19, no 1, p. 1-17, article id 39Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Researchers have shown an increased interest in involving professionals from outside academia in research projects. Professionals are often involved in research on ageing and health when the purpose is to address the gap between research and practice. However, there is a need to acquire more knowledge about what the involvement might lead to by exploring researchers' experiences of involving professionals in research on ageing and health and developing conceptual areas. Therefore, the aim of this study was to identify conceptual areas of professionals' involvement in research on ageing and health, from the perspective of researchers themselves.

    METHODS: Group concept mapping, a participatory and mixed method, was used to conceptualize areas. Researchers with experience of involving professionals in research projects on ageing and health participated in qualitative data collection through brainstorming sessions (n = 26), and by sorting statements (n = 27). They then took part in quantitative data collection, where they rated statements according to how much a statement strengthened research (n = 26) and strengthened practice (n = 24). Data were analysed using multidimensional scaling analysis and hierarchical cluster analysis. In addition, a qualitative analysis of the latent meaning of the cluster map was conducted.

    RESULTS: Analysis of the sorting stage generated five clusters illustrating conceptual areas of professionals' involvement in research projects on ageing and health. The five clusters are as follows: complex collaboration throughout the research process; adaptation of research to different stakeholders, mutual learning through partnership; applicable and sustainable knowledge; legitimate research on ageing and health. The qualitative latent meaning of the cluster map showed two themes: the process of involvement and the outcome of involvement. A positive strong correlation (0.87) was found between the rating of strengthened research and practice.

    CONCLUSIONS: This study reveals conceptual areas on a comprehensive and illustrative map which contributes to the understanding of professionals' involvement in research on ageing and health. A conceptual basis for further studies is offered, where the aim is to investigate the processes and outcomes entailed in involving professionals in research on ageing and health. The study also contributes to the development of instruments and theories for optimizing the involvement of professionals in research.

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  • 9.
    Lood, Qarin
    et al.
    Göteborgs universitet & Australien.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Dahlin-Ivanoff, Synneve
    Göteborgs universitet.
    Everyday life in a Swedish nursing home during the COVID-19 pandemic: a qualitative interview study with persons 85 to 100 years2021In: BMJ Open, E-ISSN 2044-6055, Vol. 11, no 6, p. 1-7, article id e048503Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: To understand and report on the impact of the COVID-19 pandemic on the everyday lives of frail older persons living in nursing homes by exploring their experiences of how the pandemic-related restrictions had influenced them and in what way.

    DESIGN: Empirical qualitative interview study.

    SETTING: A publicly run nursing home in an urban area in Sweden in June 2020. The nursing home had visitor restrictions, cancelled activities and physical distancing requirements since March 2020.

    PARTICIPANTS: A total of 10 persons, 85-100 years, living in a Swedish nursing home during the COVID-19 pandemic, were recruited through nursing home management and interviewed in June 2020 using medically approved visors and physical distancing.

    ANALYSIS: Interviews were analysed using thematic analysis, which involves familiarisation, coding and definition of themes. Transcripts were coded into data-driven categories before being organised into categories that described and explained the data.

    RESULTS: The analysis resulted in the main theme 'It is like living in a bubble', that describes everyday life in the nursing home during the pandemic as a world of its own in which the older persons felt both protected and isolated. This is described in four subthemes: living 1 day at a time, without fear of the virus; feeling taken care of; having limited freedom and missing out on the little extras.

    CONCLUSIONS: Contributing to the growing area of COVID-19-related research, our findings provide novel insights into how pandemic-related restrictions in nursing homes represent a risk of isolating older people from the outside world and diminishing their freedom. Put in relation to the previous research, these findings could be applied beyond the pandemic, to develop research and practice that puts focus on how to support older people to decide for themselves how to spend the rest of their lives.

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  • 10.
    Löfqvist, Charlotte
    et al.
    Lunds universitet.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Melander, Catharina
    Luleå universitet.
    Edgren, Gudrun
    Lunds universitet.
    Bengtsen, Søren S.B.
    Aarhus University, Aarhus, Denmark.
    Iwarsson, Susanne
    Lunds universitet.
    Doctoral students’ experiences of being affiliated with an interdisciplinary graduate school in aging and health2021In: Teaching in Higher Education, ISSN 1356-2517, E-ISSN 1470-1294, p. 1-16Article in journal (Refereed)
    Abstract [en]

    The aim is to describe the development of a novel interdisciplinary graduate school, using the Swedish National Graduate School for Competitive Science on Ageing and Health (SWEAH) as a case example. We explore doctoral students’ perceptions of being part of SWEAH and provide implications for practice. Written self-reports reflecting 78 students’ experiences and perceptions were analyzed using thematic analysis. The findings reveal that affiliation with SWEAH is highly valued. The students emphasized the tailored courses and learning activities and reported that it was instrumental in deepening their knowledge and broadening their research perspectives. The findings demonstrate how students navigate between disciplinary and interdisciplinary contexts and become enculturated with intellectual mindset and understanding of the importance of network building. The graduate school adds an interdisciplinary layer of learning, influenced by peers and researchers, and demonstrates the importance of community building within interdisciplinary environments and how it can be achieved.

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  • 11.
    Nivestam, Anna
    et al.
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Lund University.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Westergren, Albert
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Lunds universitet.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Give older persons a voice in the society: By using information compiled during preventive home visits on a societal level2021In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 18, no 14, p. 1-17, article id 7433Article in journal (Refereed)
    Abstract [en]

    Preventive home visits (PHVs) are offered to older persons with the purpose of promoting health and preventing risks on an individual level. However, aspects of health need to be considered on a societal level as well. This study aims to get a deeper understanding of perceptions of the usability of the information compiled during the PHVs to promote health, among older persons, on a societal level. Three online focus groups were conducted with heads of unit of PHVs, heads of department, and politicians responsible for health and welfare in seven municipalities in Sweden (n = 12). The findings were visualised in the core category Enable an inclusive society and the interrelated categories Monitoring determinants of health and Enabling exchange of information. The information from the PHVs could be used to monitor determinants of health by identifying assets, challenges, shifts, trends, and future needs in the society. Moreover, exchange of information from the PHVs could occur within and outside the health and welfare organisation. However, the potential use was affected by hindrances illustrated in the category Obstacles to interpreting and communicating the information. To conclude, using the information from the PHVs could possibly contribute to an inclusive society, where persons not usually represented in decision making are given a voice. 

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  • 12.
    Nivestam, Anna
    et al.
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Westergren, Albert
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Lunds universitet.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Information from preventive home visits can give older persons a voice in the society2021Conference paper (Other academic)
  • 13.
    Nivestam, Anna
    et al.
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Lunds universitet.
    Peterson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Lunds universitet.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Lunds universitet.
    Older person's experiences of benefits gained from the support and advice given during preventive home visits2021In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 35, no 4, p. 1096-1103Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Life expectancy is increasing all over the world. To be able to support this positive development, health interventions focusing on promotion and prevention are crucial. Preventive home visits represent one example of a health intervention which addresses both promotion through a supportive dialogue and prevention by giving advice. However, to give support and advice that older persons experience as beneficial, there is a need for more research.

    AIM: The aim of this study was to explore older person's experiences of the benefits gained from the support and advice given during the preventive home visit.

    METHOD: Individual semi-structured interviews were conducted with 13 older persons, median age 77 years old, living at home, who had received a preventive home visit. The interviews were analysed with content analysis.

    FINDINGS: The overarching theme Becoming empowered and recognised as a person was experienced as the major benefit of the support and advice given during the preventive home visit. The support and advice generated conditions for the person to become empowered, by contributing to a feeling of control and preparedness for the future. Furthermore, the support and advice given contributed to a feeling of becoming recognised as a person, as an outcome of the supportive dialogue and the assessment of their health, behaviour and their surrounding environment.

    CONCLUSION: The support and advice given during the preventive home visit were experienced as person-centred, and conditions for becoming empowered were created. In order to create a positive outcome from the support and advice given during the preventive home visit, it seems important to focus on providing both a supportive dialogue and a structured assessment.

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  • 14.
    Nivestam, Anna
    et al.
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Westergren, Albert
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Older person's experience of the gains from the support and advice given during the preventive home visit2021Conference paper (Other academic)
    Abstract [en]

    Background: In order to maintain good health in old age, a comprehensive perspective including both health promotion and risk prevention is crucial. Preventive home visit is one intervention with the purpose to prevent risks and promote health among older persons. Support and advice given during the preventive home visit needs to be tailored towards the older person’s needs. In order to give advice and support that is targeting older persons prerequisites there is a need for more research about how older persons experience support and advice given during a preventive home visit. Therefore, the aim of this study was to explore older person’s experiences of the gains from the support and advice given in a preventive home visit program developed in collaboration between several municipalities, a county council and researchers.

    Method: Individual semi-structured interviews were conducted with 13 older persons, mean age 79 years old, living at home who had received a preventive home visit. The interviews were analysed with content analysis.

    Findings: The overarching preliminary theme Being empowered and recognised as a person reviled the participants feeling of that the support and advice given encountered all aspects of health and the whole person. The support and advice generated conditions for the person to be empowered by contributing to a feeling of control and preparedness for the future. Further the support and advice given contributed to a feeling of being recognised when health, behaviour and the surrounding environment were assessed.

    Conclusion: Being empowered and recognised as a person might be central gains from the support and advice given during the preventive home visits, which enables good health among older persons.

  • 15.
    Nivestam, Anna
    et al.
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Lund University.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Lund University.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lund University.
    Promote social participation among older persons by identifying physical challenges: an important aspect of preventive home visits2021In: Archives of gerontology and geriatrics (Print), ISSN 0167-4943, E-ISSN 1872-6976, Vol. 93, p. 1-6, article id 104316Article in journal (Refereed)
    Abstract [en]

    Introduction: Social participation  can have a positive  impact  on  health; however, physical challenges  can be hindrances. During a preventive  home  visit a health  professional (visitor) assesses different aspects of  physical,  mental and social health. However,  there might  be a challenge  for the  visitor  to discover  the interrelationship  between physical  factors that hinder social  participation. Therefore,  the aim  of this  study was, in  the context  of preventive  home visits, to identify  physical  factors which  can hinder  older  persons from taking  part in  social contexts.  Methods: Cross-sectional  register  data from  preventive  home  visits  to older  persons (n=1,245, ≥77 years old,  without  home care) was used. Data was collected during a period of 17 months, in  seven Swedish  municipalities. Logistic  regression  was used to analyse  the association between physical factors and the item physical problems hindering social participation. Results: The mean age was 78.8  (standard  deviation 1.8 years), and 55% were women. The physical  factors significantly  associated with  physical  problems  hindering  taking  part in  social contexts were: having urinary  incontinence (women  only),  having  pain,  impaired  endurance and using  a mobility  device.  Conclusions: This study  provides  insights  into  how to  make the best use of  the questions asked during preventive  home  visits, in  order to enable  older  persons to  take part in  social contexts. The  results recognise  the importance  of taking  into  account physical  challenges  to be able  to support  social  participation. Furthermore, considering physical challenges for social participation on both  an individual  and  a societal  level  might  reduce inequalities  among  older persons.

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  • 16.
    Norin, Lizette
    et al.
    Lunds universitet.
    Slaug, Bjäorn
    Lunds universitet.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Iwarsson, Susanne
    Lunds universitet.
    Housing adaptations and housing accessibility problems among older adults with long-standing spinal cord injury2020In: British Journal of Occupational Therapy, ISSN 0308-0226, E-ISSN 1477-6006, p. 1-10, article id 0308022620979516Article in journal (Refereed)
    Abstract [en]

    Introduction: Adults with spinal cord injuries are living longer than previously, and a majority are living in ordinary housing in the community. Housing accessibility is important for maintaining independent occupational performance for this population, but knowledge in this area is insufficient. We investigated housing adaptations and current accessibility problems among older adults with long-standing (>10 years) spinal cord injuries. Method: Data from home visits among 122 older adults with spinal cord injuries in Sweden were used. Housing adaptations and environmental barriers were descriptively analysed. Findings: Kitchens, entrances, and hygiene areas were common locations for housing adaptations and environmental barriers that generated accessibility problems. The most common adaptations were ramps, wheelchair-accessible stovetops, and ceiling-lifts. Wall-mounted cupboards and high shelves (kitchen), inaccessible storage areas (outside the dwelling), and a lack of grabbars (hygiene area) generated the most accessibility problems. Conclusion: Despite housing adaptations, there are considerable accessibility problems in the dwellings of older adults with long-standing spinal cord injuries in Sweden, indicating that long-term follow-up of the housing situation of this population is necessary. Focusing on accessible housing as a prerequisite for occupational performance is at the core of occupational therapy, deserving attention on the individual as well as the societal level.

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  • 17.
    Petersson, Pia
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Westergren, Albert
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health.
    Developing a model that support preventive home visit for seniors – a collaborative development and research project2019Conference paper (Refereed)
  • 18.
    Pettersson, Cecilia
    et al.
    Örebro universitet.
    Zingmark, Magnus
    Östersunds kommun & Umeå universitet.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Enabling social participation for older people: The content of reablement by age, gender, and level of functioning in occupational therapists' interventions2021In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014, p. 1-8Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Social participation and the ability to build and maintain social relationships is emphasized as important for older people's health and well-being.

    AIM: To explore if social participation is addressed and whether age, gender and level of functioning are associated with the composition of occupational therapy interventions within the context of reablement.

    METHOD: In this cross-sectional study, invitations to participate were sent to 60 municipalities in Sweden. 318 occupational therapists participated and described the character of initiated interventions made during 3 weeks through web-based surveys.

    RESULT: 1392 cases were reported in the age span of 19-103 years, 61.7% were women. A higher proportion of persons having no home care and minor functional dependency got interventions with a focus on social participation to a higher extent than persons with major functional dependency. Occupational therapists' interventions vary as related to functional limitation, age, and gender.

    CONCLUSION: The results indicate that the severity of functional limitation impacts the focus of the intervention whereas age and gender do not. There is a need for social participation to be more clearly addressed within the context of reablement.

    SIGNIFICANCE: To develop a person-centred intervention, one needs to consider aspects of age, gender, and functions.

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  • 19.
    Tennigkeit, Jenny
    et al.
    Tyskland.
    Feige, Tim
    Tyskland.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health. Lunds universitet.
    Hellqvist, Carina
    Universitetssjukhuset Linköping.
    Seven, Ümran S
    Tyskland.
    Kalbe, Elke
    Tyskland.
    Schwarz, Jaqueline
    Tyskland.
    Warnecke, Tobias
    Tyskland.
    Tönges, Lars
    Tyskland.
    Eggers, Carsten
    Tyskland.
    Loewenbrück, Kai F
    Tyskland.
    Structured care and self-management education for persons with Parkinson's disease: why the first does Not go without the second-systematic review, experiences and implementation concepts from Sweden and Germany.2020In: Journal of Clinical Medicine, E-ISSN 2077-0383, Vol. 9, no 9Article in journal (Refereed)
    Abstract [en]

    Integrated care is regarded as a key for care delivery to persons with chronic long-term conditions such as Parkinson's disease. For persons with Parkinson's disease, obtaining self-management support is a top priority in the context of integrated care. Self-management is regarded as a crucial competence in chronic diseases since the affected persons and their caregivers inevitably take up the main responsibility when it comes to day-to-day management. Formal self-management education programs with the focus on behavioral skills relevant to the induction and maintenance of behavioral change have been implemented as a standard in many chronic long-term conditions. However, besides the example of the Swedish National Parkinson School, the offers for persons with Parkinson's disease remain fragmented and limited in availability. Today, no such program is implemented as a nationwide standard in Germany. This paper provides (1) a systematic review on structured self-management education programs specifically designed or adopted for persons with Parkinson's disease, (2) presents the Swedish National Parkinson School as an example for a successfully implemented nationwide program and (3) presents a concept for the design, evaluation and long-term implementation of a future-orientated self-management education program for persons with Parkinson's disease in Germany.

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  • 20.
    Tennigkeit, Jenny
    et al.
    Tyskland.
    Feige, Tim
    Tyskland.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS). Lunds universitet.
    Hellqvist, Carina
    Universitetssjukhuset i Linköping.
    Seven, Ümran S.
    Tyskland.
    Kalbe, Elke
    Tyskland.
    Schwarz, Jaqueline
    Tyskland.
    Warnecke, Tobias
    Tyskland.
    Tönges, Lars
    Tyskland.
    Eggers, Carsten
    Tyskland.
    Loewenbrück, Kai F.
    Tyskland.
    Supplementary materials. Structured care and self-management education for persons with Parkinson's disease: why the first does not go without the second: Systematic review, experiences and implementation concepts from Sweden and Germany2020Other (Refereed)
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  • 21.
    Westergren, Albert
    et al.
    Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences.
    Petersson, Pia
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Nivestam, Anna
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health.
    Haak, Maria
    Kristianstad University, Faculty of Health Science, Department of Nursing and Integrated Health Sciences. Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Forskningsmiljön Man - Health - Society (MHS).
    Mat och måltider för äldre personers hälsa: reflektioner under Covid-19-pandemin2020In: Ä, ISSN 2001-1164, Vol. 4, p. 22-23Article in journal (Other (popular science, discussion, etc.))
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