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  • 1. Andersson, Edith M.
    et al.
    Hallberg, Ingalill R
    Edberg, Anna-Karin
    Department of Nursing, University of Lund.
    Nurses' experiences of the encounter with elderly patients in acute confusional state in orthopaedic care2003In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 40, no 4, p. 437-48Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to illuminate nurses' experiences of the encounter with elderly patients who developed acute confusional state (ACS) in orthopaedic care. Forty-eight nurses with professional background as registered (n=26) or licensed practical nurses (n=22) who took part in the nursing care of acute confused patients were involved. Open-ended unstructured interviews were conducted with regard to the course of events, experiences and interpretation of what had happened during the ACS as well as the nurses' actions and encounter with the confused patient. The texts were analysed using manifest and latent content analysis, revealing that the nurses had difficulties in reaching the patients and their reality, and thus in understanding their experiences. Interpretation of the nurses' experiences showed that the nurses found it difficult to reach the patients' reality because the patients were in a divided and/or different world. They interpreted the patients as seeking solitude or company, keeping a distance or being suspicious of the nurses. The findings indicated that the interaction in the encounter between the acutely confused patients and the nurses indicated insufficient and/or broken reciprocity. The nurses used various strategies to meet the patients, being a companion and/or being a surrogate. They acted in the encounter based on their view of the patient and their ability to enter into and understand the patients' situation. The strategies were more or less successful, sometimes resulting in contact and calming the patients and in other cases increasing the patients' irritation and anger. The results were more successful when the strategies were derived from the nurses' interpretation of the patients' situation and the nurses paid attention to the patients and confirmed them.

  • 2.
    Andersson, Edith M
    et al.
    Department of Nursing, University of Lund.
    Hallberg, Ingalill R
    Department of Nursing, University of Lund.
    Norberg, Astrid
    Department of Nursing, Umeå University.
    Edberg, Anna-Karin
    Department of Nursing, University of Lund.
    The meaning of acute confusional state from the perspective of elderly patients2002In: International Journal of Geriatric Psychiatry, ISSN 0885-6230, E-ISSN 1099-1166, Vol. 17, no 7, p. 652-63Article in journal (Refereed)
    Abstract [en]

    OBJECTIVES: The aim of this study was to illuminate lived experience of having been in an acute confusional state (ACS) as narrated by elderly patients in orthopaedic care.

    METHOD: Qualitative study with phenomenological hermeneutic method for analysing the data based on narrative interviews. Fifty patients (67-96 years of age) who developed ACS during hospitalisation and in all cases the ACS ceased during their stay on the ward were interviewed once lucid again regarding the course of the event, their experiences, memories and interpretation of what had happened during the ACS.

    RESULTS: The meaning of the patients' lived experiences of being and having been confused was interpreted as 'Being trapped in incomprehensible experiences and a turmoil of past and present and here and there', comprising the themes trying to get a grip on the experience of the confusion, encountering past, present and the realm of the imagination as reality during the period of confusion and confronting the idea of having been confused. Contradictory to earlier research the patients remembered and could tell in great detail about their ACS. While confused, the confusional state means that impressions of all kinds invade the mind of the person and are experienced as reality, making him/her a victim of these impressions rather than the one who controls what comes into his/her mind. While in the middle of these experiences the person simultaneously senses that the impressions are unreal, thus indicating that he/she is in some sort of borderland between understanding and not understanding. The things that come into the mind of the person can either be frightening or neutral or enjoyable scenarios that seem to be mainly familiar but can also be unknown. These scenarios seem to be a mixture of past and present, of events and people while they seem to float from location to location.

    CONCLUSIONS: The findings indicates that what takes place during the ACS is not nonsense but probably a mix of the patient's life history, their present situation and above all a form of communication concerning their emotional state and inner experiences in this new situation. The findings also indicated that one possible approach to the patients is to confirm and support the patients in narrating their experiences both during the confusion and also after the ACS had ceased.

  • 3. Andersson, Magdalena
    et al.
    Ekwall, Anna K
    Department of Health Sciences and the Vårdal Institute, Lund.
    Hallberg, Ingalill R
    Department of Health Sciences and the Vårdal Institute, Lund.
    Edberg, Anna-Karin
    Department of Health Sciences and the Vårdal Institute, Lund.
    The experience of being next of kin to an older person in the last phase of life2010In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 8, no 1, p. 17-26Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: The aim of the study was to investigate the experience of being next of kin to an older person in the last phase of life as narrated after the older person's death.

    METHOD: Qualitative interviews were performed with the next of kin (n = 17) to people aged 75 years and older who had recently died and had received help and/or care from the municipality in the last phase of life. Eleven women and six men participated, of whom seven were spouses, nine were children, and one was a grandchild. The interviews were analysed using qualitative content analysis.

    RESULTS: The experience of the next of kin could be understood as being a devoted companion during the transition toward the inevitable end, embracing the categories of living in the shadow of death; focusing on the needs of the dying person, making adjustments to everyday life; feeling the major responsibility; struggling with the health and social care system; and gaining strength from support.

    SIGNIFICANCE OF RESULTS: Being next of kin to an old person at the end of life means being a devoted companion during the transition toward the inevitable end, including the feeling of bearing the major responsibility and the need to be acknowledged by professionals. This study points to the importance of having access to professional care when it is needed, to complement and support the next of kin when his or her own resources and strength falter. This also includes support to enable the next of kin to remain involved in the care of his or her loved ones, thereby fulfilling their own wishes.

  • 4.
    Andersson, Magdalena
    et al.
    Department of Health Sciences and The Vårdal Institute, The Swedish Institute For Health Sciences, Lund University.
    Hallberg, Ingalill R
    Department of Health Sciences and The Vårdal Institute, The Swedish Institute For Health Sciences, Lund University.
    Edberg, Anna-Karin
    Department of Health Sciences and The Vårdal Institute, The Swedish Institute For Health Sciences, Lund University.
    Health care consumption and place of death among old people with public home care or in special accommodation in their last year of life2007In: Aging Clinical and Experimental Research, ISSN 1594-0667, E-ISSN 1720-8319, Vol. 19, no 3, p. 228-239Article in journal (Refereed)
    Abstract [en]

    BACKGROUND AND AIMS:Developing care for older people in the last phase of life requires knowledge about the type and extent of care and factors associated with the place of death. The aim of this study was to examine age, living conditions, dependency, care and service among old people during their last year of life, but also their place of death and factors predicting it.

    METHODS:The sample (n=1198) was drawn from the care and services part of the Swedish National Study on Ageing and Care (SNAC). Criteria for inclusion were being 75+ years, dying in 2001-2004, and having public care and services at home or in special accommodation.

    RESULTS:In the last year of life, 82% of persons living at home and 51% living in special accommodation were hospitalized; median stays were 10 and 6.7 days respectively. Those living at home were younger and less dependent in ADL than those living in special accommodation. Those living at home and those having several hospital stays more often died in hospital. In the total sample, more visits to physicians in outpatient care predicted dying in hospital, whereas living in special accommodation and PADL dependency predicted dying outside hospital.

    CONCLUSIONS: Old people in their last year of life consumed a considerable amount of both municipal care and outpatient and in-hospital medical care, especially those living at home, which in several cases ended with death in hospital.

  • 5.
    Andersson, Magdalena
    et al.
    Department of Health Sciences, Division of Gerontology and Caring Sciences, Lund.
    Hallberg, Ingalill R.
    Department of Health Sciences, Division of Gerontology and Caring Sciences, Lund.
    Edberg, Anna-Karin
    Department of Health Sciences, Division of Gerontology and Caring Sciences, Lund.
    Old people receiving municipal care, their experiences of what constitutes a good life in the last phase of life: a qualitative study2008In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 45, no 6, p. 818-828Article in journal (Refereed)
    Abstract [en]

    Background

    Old people's life situation when receiving municipal help and care in their last period of life is sparsely investigated from their own perspective.

    Objective

    The aim of this study was to investigate the experiences of aspects that bring about a good life in the last phase of life among people (75+ years) receiving municipal care.

    Participants

    Older people living in a municipality in Southern Sweden being 75 years or older, receiving help and/or care from the municipality, and having a life-threatening disease and/or receiving palliative care were asked to participate. In all 17 people, 10 women and 7 men, aged 78–100 years were included.

    Methods

    Qualitative interviews, with the emphasis on their present life situation especially what brought about a good life, were performed. The interviews were analysed using qualitative content analysis.

    Results

    The experience was interpreted to be Turning inwards to come to peace with the past, the present and approaching death while being trapped by health complaints. Six categories embraced the experience of aspects that constitute a good life in the last phase of life: Maintaining dignity, Enjoying small things, Feelings of “being at home”, Being in the hands of others, trying to adjust, Still being important for other people and Completing life while facing death.

    Conclusion

    This study confirm theories suggesting that the last phase of life in old age meant focusing inwards, reflecting on the entire life as a way of completing it as well as enjoying small things and also viewing oneself in the perspective of contributing to the future. It also indicated that this phase of life meant being trapped by health complaints and functional limitations. The struggle to maintaining dignity as opposed to being in the hands of others implies that the concept of palliative care may be useful as a framework for providing nursing care to very old people, especially at the end of life.

  • 6.
    Andersson, Magdalena
    et al.
    Vårdalinstitutet.
    Hallberg, Ingalill R
    Vårdalinstitutet.
    Edberg, Anna-Karin
    Vårdalinstitutet.
    The final period of life in elderly people in Sweden: factors associated with QOL2006In: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 12, no 6, p. 286-293Article in journal (Refereed)
    Abstract [en]

    Whether elderly people in the final period of life have a high quality of life (QOL) and what factors relate QOL in this context, is not well known. The aim of this study was to examine the final period in life in elderly people (75 years or older) in need of help with instrumental activities of daily living (ADL), with the focus on quality of life, sense of coherence (SOC), health complaints and self-reported diseases. Also to investigate factors associated with QOL and factors predicting mortality. The sample consisted of 411 people, fifty of the respondents (the study group) had died within 1 year of data collection. The results showed that the study group had lower QOL than the comparison group. More admissions to hospital as well as the number of health complaints present negatively affected QOL for all respondents. Factors that predicted mortality included older age and higher number of health complaints.

  • 7.
    Beck, Ingela
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Platform for Collaboration for Health. Vårdalinstiutet.
    Jakobsson, Ulf
    Lunds universitet.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health. Vårdalinstitutet.
    An intervention applying a palliative care approach in residential care-effects on care provision and caring climate2013Conference paper (Refereed)
    Abstract [en]

    Introduction: The palliative care approach aims to integrate psychosocial and existential aspects as well as relationship aspects in the care and can be used in all care contexts. In residential care, nurse assistants (NAs) are the ones who are closest to the residents, but have limited prerequisites to work in accordance with the palliative care approach. We aimed to investigate the effects of an intervention applying a palliative care approach in residential care, on NAs experience of care provision and caring climate.

    Method: In this quasi-experimental study we evaluated the intervention involving NAs (n=75) and their leaders (n=9), focusing on emotional, existential and relationship aspects within the palliative care approach, in comparison with controls (n=110). Data consisted of a questionnaire that the NAs answered at three time points.

    Results: In the intervention group, effects were seen concerning the NAs reports of the care provision in that they focused more on to ease for residents to narrate about their lives, and on communication with residents in what gives them meaning in life. In the intervention group effects were also seen in that the NAs rated the residents medical and nursing care needs being less met at the facility after the intervention. No effects were seen concerning the caring climate or the possibilities to provide a more person-centered care.

    Conclusion: The intervention seemingly facilitated for the NAs to focus on relationship aspects with the residents. But the intervention was not sufficient to change the organizational prerequisites for the staff to provide a more person-centered care.

  • 8.
    Beck, Ingela
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Platform for Collaboration for Health.
    Jakobsson, Ulf
    Lund University.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Applying a palliative care approach in residential care: effects on nurse assistants' experiences of care provision and caring climate2014In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, no 4, p. 830-841Article in journal (Refereed)
    Abstract [en]

    Background

    A palliative care approach aims to integrate psychosocial and existential as well as relationship aspects in the care and is an approach that can be used in residential care. Nurse assistants are the ones who are closest to the residents but have limited prerequisites for working in accordance with the palliative care approach. We aimed to investigate the effects on nurse assistants' experiences of care provision and the caring climate of an intervention applying a palliative care approach in residential care.

    Methods

    An intervention involving nurse assistants (n = 75) and their leaders (n = 9), in comparison with controls (n = 110), was evaluated using a questionnaire at three points in time.

    Results

    In the intervention group, positive effects were seen concerning the nurse assistants' reports of the care provision in that they focused more on the residents' stories about their lives and on communicating with the residents about what gave meaning to their lives. Also, negative effects were seen when the nurse assistants rated that the residents' needs for medical and nursing care had not been met at the facility directly after the intervention. No effects were seen concerning the caring climate or the prerequisites of providing more person-centred care.

    Conclusion

    The intervention seemed to have encouraged the nurse assistants to focus on relationship aspects with the residents. So as not to jeopardise the NAs' well-being and to support NAs in keeping themselves involved in existential issues, their support most certainly needs to be continuous and ongoing. However, in spite of the leaders' involvement, the intervention was not sufficient for changing the organisational prerequisites for more person-centred care.

  • 9.
    Beck, Ingela
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap I. Kristianstad University, Research Platform for Collaboration for Health.
    Jakobsson, Ulf
    Lund University.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Applying a palliative care approach in residential care: effects on nurse assistants' work situation2015In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 13, no 3, p. 543-553Article in journal (Refereed)
    Abstract [en]

    Objectives: The aim was to investigate the effects of an intervention that applies a palliative care approach in residential care upon nurse assistants' level of strain, job satisfaction, and view of leadership.

    Method: A quasi-experimental, pretest and posttest design was used. Study circles with workshops involving nurse assistants (n = 75) and their superiors (n = 9) focusing on emotional and existential issues in palliative care were evaluated using a questionnaire answered by the nurse assistants at baseline (November 2009), post-intervention (May 2010), and six-month follow-up (November 2010) in comparison with controls (n = 110).

    Results: Directly after the intervention, the job satisfaction of the nurse assistants decreased and they perceived the leadership more negatively than before the intervention. Six months later, strain as a result of criticism from residents and their superiors and having difficulty in balancing emotional involvement had decreased.

    Significance of results: The intervention initially seemed to decrease the well-being of the nurse assistants, which could be the result of their increased awareness of the residents' and relatives' needs, in combination with limited support. More emphasis should be placed on the role of leadership when implementing changes in practice.

  • 10.
    Beck, Ingela
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Lunds universitet & Vårdalinstitutet .
    Törnquist, A
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society.
    Nurse assistants’ experience of an intervention focused on a palliative care approach to frail older people in residential care2011Conference paper (Other academic)
  • 11.
    Beck, Ingela
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Lunds universitet & Vårdalinstitutet .
    Törnquist, A
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society.
    Nurses’ experience of palliative care in nursing homes2010Conference paper (Other academic)
  • 12.
    Beck, Ingela
    et al.
    Lund University.
    Törnquist, Agneta
    Lund University.
    Broström, Linus
    Lund University.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health.
    Having to focus on doing rather than being: nurse assistants' experience of palliative care in municipal residential care settings2012In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 49, no 4, p. 455-464Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Palliative care should be provided, irrespective of setting to all patients facing a life-threatening illness and to their families. The situation and needs of older people differ from those of younger people since they often have several co-existing diseases and health complaints. This implies an extensive need for care and for longer periods of palliative care. The main providers of palliative care for older people are nurse assistants, who are also those with the shortest education. AIM: The aim of this study was to illuminate nurse assistants' experience of palliative care for older people in residential care. DESIGN: The study had an explorative, descriptive design. SETTINGS: Thirteen residential care units in three different districts in a large city in southern Sweden. PARTICIPANTS: Twenty-five nurse assistants selected to represent variations in age, gender workplace and work experience. METHODS: Data were collected from six focus-group interviews and subjected to content analysis to gain an understanding of the phenomenon. RESULTS: The nurse assistants described palliative care as a contrast to the everyday care they performed in that they had a legitimate possibility to provide the care needed and a clear assignment in relation to relatives. Palliative care also meant having to face death and dying while feeling simultaneous that it was unnatural to talk about death and having to deal with their own emotions. They emphasised that they were in need of support and experienced leadership as invisible and opaque, but gained strength from being recognized. CONCLUSION: In order to support nurse assistants in providing high quality end-of-life care, more focus is needed on the trajectory of older peoples' dying, on the importance of involving relatives throughout the period of care provision, and on support when encountering death and dying. There is also a need for engaged care leaders, both registered nurses and managers, to recognize the work of nurse assistants and to support care provision for older people within the framework of palliative care philosophy.

  • 13.
    Beck, Ingela
    et al.
    Lund University.
    Törnquist, Agneta
    Lund University.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Nurse assistants’ experience of an intervention focused on a palliative care approach for older people in residential care2012In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 9, no 2, p. 140-150Article in journal (Refereed)
    Abstract [en]

    Background.  Nurse assistants working in residential care facilities need support to ensure that they provide high-quality care for the residents and support for relatives, from admission to bereavement.

    Aim.  The aim was to describe the nurse assistants’ experience of how an intervention with a palliative care approach, had influenced them in their work in residential care for older people.

    Participants.  Fourteen nurse assistants working in three different municipal residential care facilities.

    Methods.  Data were collected by means of semi-structured individual interviews following an intervention consisting of study circles combined with workshops. The data were analysed using content analysis.

    Result.  The nurse assistants felt that, through the intervention, they had gained insight into their understanding of the importance of quality of care. This included an increased awareness of, and respect for, residents’ and relatives’ needs, and an increased understanding of the importance of the outcome of encounters with residents and their relatives. After the intervention, they also felt there was increased openness and understanding between colleagues. However, the nurse assistants also expressed frustration over obstacles to implementing a palliative care approach, such as lack of resources and supportive leadership.

    Conclusion.  The nurse assistants felt that the intervention was positive and encouraged them to provide more person-centred care within the framework of a palliative care approach. Although the intervention was intended to involve and support the management, it was not sufficient. Nurse assistants described lack of resources and supportive leadership. There is, therefore, a need to place greater emphasis on leadership and their support of nurse assistants so that they can provide high-quality care.

    Implications for practice.  To support nurse assistants in the provision of care, clear leadership and opportunities to discuss and reflect on issues associated with care, including systematic improvement work in practice, appear to be essential to ensure high-quality care.

  • 14.
    Berggren, Vanja
    et al.
    Kristianstad University, Department of Health Sciences.
    Abdel Salam, Gerais
    Faculty of Medicine, Khartoum University, Khartoum.
    Bergström, Staffan
    Division of International Health (IHCAR), Department of Public Health Sciences, Karolinska Institutet.
    Johansson, Eva
    Division of International Health (IHCAR), Department of Public Health Sciences, Karolinska Institutet.
    Edberg, Anna-Karin
    Kristianstad University, Department of Health Sciences.
    An explorative study of Sudanese midwives' motives, perceptions and experiences of re-infibulation after birth2004In: Midwifery, ISSN 0266-6138, E-ISSN 1532-3099, Vol. 20, no 4, p. 299-311Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: to explore Sudanese midwives' motives for and perceptions and experiences of re-infibulation after birth and to elucidate its context and determinants.

    DESIGN: triangulation of methods, using observational techniques and open-ended interviews.

    SETTING AND PARTICIPANTS: two government hospitals in Khartoum/Omdurman, Sudan, for the observations and in-depth interviews with 17 midwives.

    FINDINGS: midwives are among the major stakeholders in the performance of primary female genital cutting (FGC) as well as re-infibulation. Focusing on re-infibulation after birth, midwives were trying to satisfy differing, and sometimes contradictory, perspectives. The practice of re-infibulation (El Adel) represented a considerable source of income for the midwives. The midwives integrated the practice of re-infibulation into a greater whole of doing well for the woman, through an endeavour to increase her value by helping her to maintain her marriage as well as striving for beautification and completion. They were also trying to meet socio-cultural requests, dealing with pressure from the family while balancing on the edge of the law.

    KEY CONCLUSIONS AND IMPLICATIONS FOR PRACTICE: the findings confirm that midwives are important stakeholders in perpetuating re-infibulation, and indicate that the motives are more complex than being only economic. The constant balancing between demands from others puts the midwives in a difficult position. Midwives' potential role to influence views in the preventative work against FGC and re-infibulation should be acknowledged in further abolition efforts.

  • 15.
    Berggren, Vanja
    et al.
    Karolinska Institute.
    Bergström, Staffan
    Karolinska Institute.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Being different and vulnerable: experiences of immigrant African women who have been circumcised and sought maternity care in Sweden2006In: Journal of Transcultural Nursing, ISSN 1043-6596, E-ISSN 1552-7832, Vol. 17, no 1, p. 50-57Article in journal (Refereed)
    Abstract [en]

    The purpose of the study was to explore the encounters with the health care system in Sweden of women from Somalia, Eritrea, and Sudan who have been genitally cut. A qualitative study was performed through interviews with 22 women originally from Somalia, Sudan, and Eritrea who were living in Sweden. The women experienced being different and vulnerable, suffering from being abandoned and mutilated, and they felt exposed in the encounter with the Swedish health care personnel and tried to adapt to a new cultural context. The results of this study indicate a need for more individualized, culturally adjusted care and support and a need for systematic education about female genital cutting for Swedish health care workers.

  • 16.
    Berggren, Vanja
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Research Environment PRO-CARE. Kristianstad University, Forskningsmiljön Mat, måltid, hälsa i 24-timmarsperspektivet.
    Musa Ahmed, Souad
    Ahfad University for Women, Khartoum.
    Hernlund, Y.
    Department of Anthropology, University of Washington, Seattle.
    Johansson, Eva
    Division of International Health Care Research (IHCAR), Department of Public Health, Karolinska Institutet.
    Habbani, B.
    Ahfad University for Women, Khartoum.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Being victims or beneficiaries?: perspectives on female genital cutting and reinfibulation in Sudan2006In: African Journal of Reproductive Health, ISSN 1118-4841, Vol. 10, no 2, p. 24-36Article in journal (Refereed)
    Abstract [en]

    Female Genital Mutilation (FGM) or the more value neutral term, Female Genital Cutting (FGC) is widely practised in northern Sudan, where around 90% of women undergo the most extensive form of FGC, infibulation. One new approach to combating FGC in Sudan is to acknowledge the previously hidden form of FGC, reinfibulation (RI) after delivery, when the woman is sewn back so much as to mimic virginity. Based on a qualitative study in Khartoum State, this article explores Sudanese women's and men's perceptions and experiences of FGC with emphasis on RI after delivery. The results showed that both genders blame each other for the continuation of the practices, and the comprehensive understanding of the perceptions and experiences was that both the women and the men in this study were victims of th e consequences of FGC and RI. The female narratives could be understood in the three categories: viewing oneself as being "normal" in having undergone FGC and RI; being caught between different perspectives; and having limited influence on the practices of FGC and RI. The male narratives could be understood in the three categories: suffering from the consequences of FGC and RI, trying to counterbalance the negative sexual effects of FGC and striving in vain to change female traditions. The results indicate that the complexity of the persistence of FGC and RI goes far beyond being explained by subconscious patriarchal and maternalistic actions, related to socially constructed concepts of normality, female identity,tradition and religion a"silent" culture betweenmen and women.

  • 17.
    Bergqvist, Inger
    et al.
    Centralsjukhuset Kristianstad.
    Davidsson, Lisa
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap.
    Utveckling av ett instrument för vårdtyngdsmätning inom anestesi2003In: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 23, no 3, p. 10-15Article in journal (Refereed)
    Abstract [en]

    Patient classification in anaesthetic care is an undeveloped field and it is therefore urgent to construct an instrument for this purpose. The aim of the study was to develop an instrument to measure anaesthetic nursing care with focus on the unique care needed by every single patient. The Delphi technique was used. The method involved five series of inquiries to a panel of experts, consisting of ten nurses. The instrument developed, included 13 nursing care areas, with predefined alternatives graded from1 to 4, where 4 indicated high workload, and 1 indicated low workload. The instrument was tested in a pilot study and showed agreement with the clinical picture of the patients needs. An initial inter-rater reliability test showed very good agreement for all the nursing care areas. The instrument, however, needs to be tested for validity and reliability in a larger sample.

  • 18.
    Bergqvist, Inger
    et al.
    Centralsjukhuset Kristianstad.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap.
    Vårdtyngdsmätning inomanestesiologisk omvårdnad: testning av ett instrument2005In: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 25, no 2, p. 9-14Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to investigate validity and reliability of an instrument for patient classification in anaesthetic nursing care. The study included two parts. The first part involved two panels of experts, one internal consisting of nurse anaesthetists from the local hospital, and one external represented by nurse anaesthetists from nine different hospitals in Sweden and one in Iceland. The internal experts gave suggestions for improvements of the existing instrument. Thereafter the external experts gave their opinion about both the internal panels elucidation as well as the existing instrument. The instrument was thereafter adjusted in concordance to their suggestions. The second part involved an investigation of the inter-rater reliability, with one hundred double ratings before the changes in the instrument and one hundred ratings after the changes in the instrument. Statistical analyses for inter-rater reliability were performed with Spearmans correlation coefficient. The first assessment showed good inter-rater reliability in four of thirteen items, while the inter-rater reliability on the second version showed good agreement in eleven of thirteen items. Results indicated that the changes in the instrument were positive in terms of reliability. The instrument thus improved in terms of validity and reliability and may be of use in anaesthetic wards with similar context.

  • 19.
    Bird, Mike
    et al.
    Australien.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II.
    Anderson, Katrina
    Australien.
    Orrung Wallin, Anneli
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II.
    The strains in dementia care scale2012Conference paper (Refereed)
  • 20.
    Birgersson, Ann-Marie B.
    et al.
    Kristianstad University, Department of Health Sciences.
    Edberg, Anna-Karin
    Kristianstad University, Department of Health Sciences.
    Being in the light or in the shade: persons with Parkinson's disease and their partners' experience of support2004In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 41, no 6, p. 621-630Article in journal (Refereed)
    Abstract [en]

    Interviews with six couples, persons with Parkinson's disease and their partners, were tape-recorded, transcribed and analysed using manifest and latent content analysis. The couples' experiences could be interpreted as Being in the light and Being in the shade of support, with internal variations for the patients and their partners. The narratives also revealed that the disease meant a transition of roles in their relation seen in different patterns: From unity towards unity, From unity towards distance and From distance towards unity. The results indicate that there is a need for more specialised and individually adjusted support.

  • 21.
    Blomqvist, Kerstin
    et al.
    Department of Nursing, Lund University.
    Edberg, Anna-Karin
    Department of Nursing, Lund University.
    Living with persistent pain: experiences of older people receiving home care2002In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 40, no 3, p. 297-306Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Although the topic of pain among older people has received increasing interest, little is still known about how pain is experienced or handled by those who no longer manage independently but depend on professionals for help with daily living. Developing pain management for older people requires such knowledge. AIM: To explore sense of self, sense of pain, daily living with pain, sense of others and ways of handling pain in older people with persistent pain. METHODS: Interviews with 90 older people receiving home care from nursing auxiliaries in their own homes or in sheltered accommodation were collected from January to June 2000. A typology of older people in persistent pain was developed. Activities for handling pain were examined using content analysis. FINDINGS: Respondents' experiences of themselves and their pain varied. Two groups of older people, considered as 'competent and proud' and 'confident and serene', expressed satisfaction in spite of pain, while the groups 'misunderstood and disappointed' and 'resigned and sad' expressed dissatisfaction. The most common strategies used were medication, rest, mobility, distracting activities and talking about pain. Respondents chose strategies by balancing the advantages of the activities against the disadvantages these brought for their daily living. CONCLUSION: This study indicates that characteristics of the older people, such as their way of experiencing themselves, how pain affects their daily life and how they perceive effects and side-effects of pain management are areas that need to be identified when staff assess pain and plan pain management. Caring for older people in pain could be improved by listening to and believing their complaints, evaluating effects and side-effects from medications and nonpharmacological pain management and by emphasising the importance of common everyday activities such as mobility and distraction to relieve pain.

  • 22.
    Blomqvist, Kerstin
    et al.
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Edberg, Anna-KarinKristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.Ernsth Bravell, MarieJönköping University.Wijk, HelleGöteborgs universitet.
    Omvårdnad & äldre2017Collection (editor) (Other academic)
    Abstract [sv]

    Boken belyser äldre personers hälsa och ohälsa och bygger på sammanlagt 27 svenska forskares beskrivningar av det aktuella kunskapsläget. De flesta författare har sin utgångspunkt i omvårdnad, men bland författarna återfinns även företrädare för medicin, oral hälsa, kulturgeografi, filosofi, socialt arbete, gerontologi, medicinsk etik, arbetsterapi och fysioterapi.

    Omvårdnad & äldre vänder sig till sjuksköterskestudenter på såväl grund- som specialistutbildning, men även till kliniskt verksamma sjuksköterskor och andra yrkesgrupper inom fältet. År 2017 tilldelades boken Kurslitteraturprisets hederspris med följande motivering: ”För ett hhögaktuellt såväl i dag som under många år framöver. Andelen äldre ökar och många lever allt längre med långvariga sjukdomar. Detta ställer nya krav på sjuksköterskan och omvårdnaden. Boken är helt anpassad till dessa nya förutsättningar där de senaste forskningsresultaten kombineras med konkreta omvårdnadsåtgärder. Verket är mycket välskrivet, med den äldre personen ständigt i centrum.”eltäckande grundverk, som med gedigen vetenskaplig tyngd, avhandlar ett område som är högaktuellt såväl i dag som under många år framöver. Andelen äldre ökar och många lever allt längre med långvariga sjukdomar. Detta ställer nya krav på sjuksköterskan och omvårdnaden. Boken är helt anpassad till dessa nya förutsättningar där de senaste forskningsresultaten kombineras med konkreta omvårdnadsåtgärder. Verket är mycket välskrivet, med den äldre personen ständigt i centrum.”

  • 23.
    Bolmsjö, Ingrid
    et al.
    Department of Care Science, Faculty of Health and Society, Malmö University.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Andersson, Petra Lilja
    The Swedish Institute for Health Sciences, Lund University.
    The use of drama to support reflection and understanding of the residents' situation in dementia care: a pilot study2014In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 9, no 3, p. 183-191Article in journal (Refereed)
    Abstract [en]

    Background.  One key aspect of person-centredness is striving to understand both the patients' experiences and behaviours from their perspective. These aspects are precisely those that staff in dementia care highlight as causing them most difficulty because the people in their care have major problems expressing themselves. There is thus a need to develop a method to help the staff to achieve interpretation through reflection.

    Aim.  The aim of this study was to explore the use of drama as a tool to support reflection among staff working in the residential care of people with dementia.

    Design.  A qualitative evaluation of a programme consisting of three drama sessions with staff working in residential care (n = 10 nurse assistants).

    Methods.  Data comprised observations and tape recordings of the sessions, the researchers' reflections after each session and a focus-group interview with the participants. The texts were analysed using qualitative content analysis.

    Results.  The analysis showed that: (i) the exercises stimulate reflection about daily caring practice; (ii) the participants must receive extensive information about the purpose of the sessions; (iii) the research team must secure the defined frames and conditions and have practical knowledge about caring for people with dementia and (iv) the management needs to be stable, committed and supportive.

    Conclusion.  Drama seems to be a valid tool to aid reflection, but several adjustments are needed concerning both the content of the sessions and the methodology. When designing a larger intervention study, it would be preferable to the sessions to be combined with staff support to effect changes in care provision resulting from their increased awareness of the residents' situation and experience.

    Implications for practice.  Our results showed that drama can be a means to enhance reflection among staff in residential care for people with dementia. Further research is however needed concerning the effects for the staff's situation and nursing care quality.

  • 24.
    Borglin, Gunilla
    et al.
    Department of Nursing, Unit of Caring Sciences, Faculty of Medicine, Lund University.
    Edberg, Anna-Karin
    Department of Nursing, Unit of Caring Sciences, Faculty of Medicine, Lund University.
    Rahm Hallberg, Ingalill
    The Vårdal Institute, The Swedish Institute for Health Sciences, Lund University.
    The experience of quality of life among older people2005In: Journal of Aging Studies, ISSN 0890-4065, E-ISSN 1879-193X, Vol. 19, no 2, p. 201-220Article in journal (Refereed)
    Abstract [en]

    Although quality of life has been in the focus of attention for over a decade there are few studies available investigating, how the old and the oldest old experience their quality of life or what quality of life actually means for them? To illuminate this, eleven in-depth interviews were conducted with six women and five men (80+) living in their home. An interpretative hermeneutic phenomenological analysis revealed that quality of life in old age meant a preserved self and meaning in existence. Maintained self-image meant that the older people experienced a coherent life with an intact meaning. How quality of life was valued depended on the meaning the old people attached to the areas of importance as well as how they were evaluated. Additionally, areas not generally included when measuring quality of life became discernible. The meaning of home, how life was viewed, thoughts about death and dying, and telling ones story proved to be areas of importance for their perception of quality of life. Thus, indicating that older people's view of quality of life is more complex than some of today's most commonly used quality of life instruments capture and that quality of life assessment tools needs to measure beyond pure health indices. For nursing care the use of life review in everyday care, and an open way towards existential topics as well as a family oriented care along with preventive work helping people to remain in their own homes may enhance their experience of quality of life.

  • 25.
    Borglin, Gunilla
    et al.
    Lunds universitet.
    Hellström, Ylva
    Blekinge tekniska högskola.
    Hagberg, Bo
    Lunds universitet.
    Edberg, Anna-Karin
    Lunds universitet.
    Westergren, Albert
    Lunds universitet.
    Hallberg, Ingalill Rahm
    Lunds universitet.
    Psychometric testing of a quality of life scale among Swedish people 75 years and above in need of help with Activities of Daily Living or not2006In: Clinical Effectiveness in Nursing, ISSN 1361-9004, E-ISSN 1532-9275, Vol. 9, no Supplement 1, p. e25-e43Article in journal (Refereed)
    Abstract [en]

    Few Quality of Life (QoL) instruments in use today were originally developed for older populations (75+). Information on their validity and reliability in this age group is sparse. The current study investigated the psychometric properties of the Life Quality Gerontological Centre Scale (LGC), a general QoL instrument designed for use among older people. A further aim was to describe and compare QoL with gender and in people needing help with Activities of Daily Living and those not needing such help. A postal questionnaire surveyed 1093 people (mean age 82.7, SD 5.3). Principal component analysis revealed that LGC was reasonably stable as the construct-and cross validation more or less replicated the suggested QoL factors. The instrument differentiated between needing help and not and between men and women. LGC needs further development with respect to reliability, face and content validity but is potentially useful as a diagnostic or an outcome assessment after interventions among older people. Individuals in need of help and women had lower scores in several QoL areas and in total QoL scores compared to those not needing help and men. Older people’s QoL may be improved by interventions directed to areas beyond health and physical functioning. Men and women might also benefit from different interventions directed towards QoL.

  • 26.
    Borglin, Gunilla
    et al.
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Jakobsson, Ulf
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Edberg, Anna-Karin
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Hallberg, Ingalill Rahm
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Older people in Sweden with various degrees of present quality of life: their health, social support, everyday activities and sense of coherence.2006In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 14, no 2, p. 136-146Article in journal (Refereed)
    Abstract [en]

    Public health policies in most European countries are concerned with how to keep older people living independently with a qualitatively good life in the community as long as possible. However, knowledge about what may characterise those seemingly 'healthy' older people is sparse. The aim of the study was to investigate the characteristics of a sample of people (75+) reporting various degrees of Quality of Life (QoL) with respect to QoL in different areas, as well as self-rated health, health problems, social support, everyday activities and sense of coherence. A postal questionnaire was sent out in spring 2001 to a randomly selected population-based sample (n= 600) in the southern parts of Sweden. A two-step cluster analysis was performed (n= 385, mean age 84.6, SD = 5.7) with 'present QoL' as clustering attribute. Three groups were disclosed, classified as high, intermediate and low present QoL, of which 33.8% could be regarded being at risk of low QoL. Those with low present QoL (18.4%) were the oldest and most vulnerable, a majority were women with 'poor or bad' self-rated health, high frequencies of health problems, low total QoL, low social support and sense of coherence and less physically active. Those with high present QoL (47.8%) reported more 'excellent or good' self-rated health, physical activity, satisfactory social support and higher sense of coherence and total QoL than the other two groups. Those with intermediate present QoL (33.8%) had more of 'poor or bad' self-rated health, more health problems were less physically active, had lower total QoL and sense of coherence, and less social support than those with high present QoL. The sample seemed to reflect the ageing process in that the respondents were at different stages of ageing. However, the fact that the level of social support, sense of coherence and self-rated health followed the same curve as QoL may indicate that some are more vulnerable to low present QoL given the same health and these should be targeted in preventive programmes since they report low QoL.

  • 27. Borglin, Gunilla
    et al.
    Jakobsson, Ulf
    Edberg, Anna-Karin
    Department of Nursing, Faculty of Medicine, Lund University.
    Hallberg, Ingalill Rahm
    Self-reported health complaints and their prediction of overall and health-related quality of life among elderly people2005In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 42, no 2, p. 147-158Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: To describe and compare self-reported health complaints, overall and health-related quality of life and to investigate how health complaints, age, gender, marital status, living and dwelling conditions and socio-economy predicted overall and health-related quality of life.

    DATA AND METHOD: A sample of 469 persons (aged 75-99) responded to a postal questionnaire. Multiple linear regression analysis was used to examine possible predictors.

    RESULT: Self-reported health complaints such as pain, fatigue and mobility impairment significantly predicted low overall and health-related quality life. Women had significantly lower overall and health-related quality of life than men, and a significantly higher degree of self-reported health complaints. The regression models had more similarities than differences, implying that the overall quality of life instrument were sensitive to physical influences only supposed to be detected by health-related quality of life instruments. Several of the health complaints predicting low quality of life are amenable for being relieved by nursing care. In the care of older people nurses need to assess for several health complaints simultaneously and be aware of their possible interaction when outlining interventions. Nurses are able to facilitate early detection of health complaints negatively affecting quality of life by implementing more pro-active preventive work as well as a higher degree of thorough and systematic assessments. It also seems important to consider that older woman's and men's needs for high quality of life may differ.

  • 28.
    Carlsson, Ingela K.
    et al.
    Department of Hand Surgery, Malmö University Hospital, Lund University.
    Edberg, Anna-Karin
    Department of Health Sciences, Lund University.
    Wann-Hansson, Christine
    Faculty of Health and Society, Malmö University, Malmö.
    Hand-injured patients' experiences of cold sensitivity and the consequences and adaptation for daily life: a qualitative study2008In: Journal of Hand Therapy, ISSN 0894-1130, E-ISSN 1545-004X, Vol. 23, no 1, p. 53-61; quiz 62Article in journal (Refereed)
    Abstract [en]

    Study Design

    Qualitative descriptive.

    Introduction

    Cold sensitivity is a common and persistent complaint after hand injuries.

    Purpose of the Study

    To explore the experiences of severe cold sensitivity, its consequences for daily life, and the strategies for enduring and enabling occupation.

    Methods

    Fifteen hand-injured patients with abnormal cold sensitivity were interviewed. The transcribed text was analyzed using manifest and latent content analysis. Experiences of triggering factors, symptoms, and relieving strategies were described.

    Results

    The consequences and adaptation in daily life entailed a change in life roles, a struggle to maintain self-image and changed occupational performance and/or occupational patterns.

    Conclusions

    Our findings highlight the importance of a holistic approach, including a screening of patients' occupational roles and patterns as well as psychosocial needs, to obtain the information needed to support patients with severe cold sensitivity to achieve a sense of control and self-mastery.

  • 29.
    Cato Jurlander, Ingegerd
    et al.
    Kristianstad University, Research Platform for Collaboration for Health.
    Edfors, Ellinor
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    Betydelsen av en förändrad utemiljö vid ett särskilt boende för personer med demenssjukdom2016Report (Other academic)
    Abstract [sv]

    Demens är ett syndrom med kognitiv svikt som leder till svårigheter att klara det dagliga livet, vilket medför att omgivningen och miljön måste vara anpassad efter personens behov. Tidigare forskning har visat att utevistelse i en anpassad trädgård som skapar trygghet, är orienterbar, stimulerar till aktiviteter och gemenskap samt erbjuder avskildhet och skyddar mot intryck som kan skapa oro kan leda till ett ökat välbefinnande för personer med demenssjukdom. Syftet med studien var att beskriva betydelsen av en förändrad utemiljö vid ett särskilt boende för personer med demenssjukdom. Studien har en case study design med mixed metod approach med tyngpunkt på kvalitativansats. Studiens resultat visar att den förändrade utemiljön stödjer de boendes välbefinnande, inbjuder till aktivitet, gemenskap och avskildhet samt väcker minnen.Trädgården väcker förväntningar hos de boende men ställer krav på personalen och användningen styrs av personalens tid och kunskap. En förändrad utemiljö med större möjligheter till en stimulerande utevistelse visar sig skapa ett ökat välbefinnande förboende, närstående och personal

  • 30.
    Condelius, Anna
    et al.
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Edberg, Anna-Karin
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Hallberg, Ingalill Rahm
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Jakobsson, Ulf
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Utilization of medical healthcare among people receiving long-term care at home or in special accommodation2010In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 24, no 2, p. 404-413Article in journal (Refereed)
    Abstract [en]

    AIM: To investigate the utilization of medical healthcare, hospital care and outpatient care, during a 1-year period in relation to informal care, multimorbidity, functional status and health complaints and to long-term care at home or in special accommodation among people aged 65+, with one or more hospital admissions and receiving long-term care.

    METHOD: A total of 694 people receiving long-term care during the year 2001 were studied. Data were collected by means of the administrative registers Patient Administrative Support in Skåne and PrivaStat and through the study Good Ageing in Skåne. Those at home and those in special accommodation were compared regarding utilization of medical healthcare, informal care, multimorbidity, functional status and health complaints. Multiple logistic regression analysis was performed using at home vs. in special accommodation as the dependent variable and also two multiple linear regression analyses using the number of hospital stays and the number of contacts with the physician in outpatient care separately as dependent variables.

    FINDINGS: Those at home were significantly younger (mean age: 81 vs. 84 years) and less dependent in personal and instrumental activities of daily living (PADL/IADL) than those in special accommodation. A larger proportion of those at home was admitted to hospital three times or more (21 vs. 14%) and they had significantly more contacts with physicians in outpatient care (md: 10 vs. md: 7). Informal care was associated with care at home (OR = 0.074) and with utilization of outpatient care (B = 2.045). Dependency in PADL was associated with care in special accommodation (OR = 1.375) and with utilization of hospital care (B = -0.060) and outpatient care (B = -0.581).

    CONCLUSION: Medical healthcare seems more accessible to those who live at home are younger, less dependent and who have access to informal caregivers.

  • 31.
    Condelius, Anna
    et al.
    Lunds universitet.
    Edberg, Anna-Karin
    Department of Health Sciences, Faculty of Medicine, Lund University.
    Jakobsson, Ulf
    Lunds universitet.
    Hallberg, Ingalill R.
    Lunds universitet.
    Hospital admissions among people 65+ related to multimorbidity, municipal and outpatient care2008In: Archives of gerontology and geriatrics (Print), ISSN 0167-4943, E-ISSN 1872-6976, Vol. 46, no 1, p. 41-55Article in journal (Refereed)
    Abstract [en]

    This study aimed at examine the number of planned and acute hospital admissions during 1 year among people 65+ and its relation to municipal care, outpatient care, multimorbidity, age and sex. Four thousand nine hundred and seven individuals having one or more admissions during 2001 were studied. Data were collected from two registers and comparisons were made between those having one, two and three or more hospital stays and between those with and without municipal care and services. Linear regression was used to examine factors predicting number of acute and planned admissions. Fifteen percent of the sample had three or more hospital stays (range 3-15) accounting for 35% of all admissions. This group had significantly more contacts in outpatient care with physician (median number of contacts (md)=15), compared to those with one (md: 8), or two admissions (md: 11). Main predictors for number of admissions were number of diagnosis groups and number of contacts with physician in outpatient care. Those who are frequently admitted to hospital constitute a small group that consume a great deal of inpatient care and also tend to have frequent contacts in outpatient care. Thus interventions focusing on frequent admissions are needed, and this requires collaboration between outpatient and hospital care.

  • 32.
    Dahlin Ivanoff, Synneve
    et al.
    Göteborgs universitet.
    Wilhelmsson, Tarina
    Göteborgs universitet.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II.
    Challenges in performing complex intervention studies in health care organizations2012Conference paper (Refereed)
  • 33.
    Dahlin-Ivanoff, Synneve
    et al.
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund, Sweden .
    Gosman-Hedström, Gunilla
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund, Sweden .
    Edberg, Anna-Karin
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund.
    Wilhelmson, Katarina
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund, Sweden .
    Eklund, Kajsa
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund, Sweden .
    Duner, Anna
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund, Sweden .
    Ziden, Lena
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund, Sweden .
    Welmer, Anna-Karin
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund, Sweden .
    Landahl, Sten
    Vårdalinstitutet, The Swedish Institute for Health Sciences, Universities of Gothenburg and Lund, Sweden .
    Elderly persons in the risk zone: design of a multidimensional, health-promoting, randomised three-armed controlled trial for "prefrail" people of 80+ years living at home2010In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 10, article id 27Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: The very old (80+) are often described as a "frail" group that is particularly exposed to diseases and functional disability. They are at great risk of losing the ability to manage their activities of daily living independently. A health-promoting intervention programme might prevent or delay dependence in activities of daily life and the development of functional decline. Studies have shown that those who benefit most from a health-promoting and disease-preventive programme are persons with no, or discrete, activity restrictions. The three-armed study "Elderly in the risk zone" is designed to evaluate if multi-dimensional and multi-professional educational senior meetings are more effective than preventive home visits, and if it is possible to prevent or delay deterioration if an intervention is made when the persons are not so frail. In this paper the study design, the intervention and the outcome measures as well as the baseline characteristics of the study participants are presented.

    METHODS/DESIGN: The study is a randomised three-armed single-blind controlled trial with follow-ups 3 months, 1 and 2 years. The study group should comprise a representative sample of pre-frail 80-year old persons still living at home in two municipalities of Gothenburg. To allow for drop-outs, it was estimated that a total of about 450 persons would need to be included in the study. The participants should live in their ordinary housing and not be dependent on the municipal home help service or care. Further, they should be independent of help from another person in activities of daily living and be cognitively intact, having a score of 25 or higher as assessed with the Mini Mental State Examination (MMSE).

    DISCUSSION: We believe that the design of the study, the randomisation procedure, outcome measurements and the study protocol meetings should ensure the quality of the study. Furthermore, the multi-dimensionality of the intervention, the involvement of both the professionals and the senior citizens in the planning of the intervention should have the potential to effectively target the heterogeneous needs of the elderly.

  • 34.
    Edberg, Anna-Karin
    Centre for Caring Sciences, Lund University.
    Assessment by nurses of mood, general behaviour and functional ability in patients with dementia receiving nursing home care2000In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 14, no 1, p. 52-61Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to investigate the reliability of the Patient Mood Assessment Scale (PMAS), the General Behaviour Assessment Scale (GBAS) and the Gottfries Bråne Steen scale and to investigate mood, general behaviour, degree of dementia and symptoms for patients with dementia living permanently in nursing home care (n = 75). Interviews were conducted with the contact nurses, focussing on their view of the patients during the preceding week, based on the above-mentioned assessment scales. In 29 cases a second interview was conducted with another nurse in order to investigate the inter-rater reliability. The inter-rater reliability was high for items associated with ADL and intellectual functions, but low for items associated with emotional aspects. The nurses' difficulties in assessing the patients' emotional state could arise because these matters are not regularly discussed among the staff or could reflect the nurse's inner state rather than that of the patient. The varying understanding that the nurses had of the patients raises the question of whether the care provided is based on the nurses' opinions rather than on the patients' needs. There is a need for continuous and reflective discussions in the staff group, focusing on the patients' physical as well as emotional needs.

  • 35.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Research Platform for Collaboration for Health.
    Att arbeta inom vård och omsorg av äldre2004In: Att vara äldre: Man har ju sina krämpor / [ed] Blomqvist, K. & Edberg, A-K., Lund: Studentlitteratur AB, 2004, p. 15-25Chapter in book (Other (popular science, discussion, etc.))
  • 36.
    Edberg, Anna-Karin
    Kristianstad University, Department of Health Sciences.
    Att möta personer med demens2002Collection (editor) (Other academic)
  • 37.
    Edberg, Anna-Karin
    Kristianstad University, Department of Health Sciences.
    Att möta personer med demens2002In: Att möta personer med demens / [ed] Anna-Karin Edberg, Lund: Studentlitteratur, 2002, p. 13-27Chapter in book (Other academic)
  • 38.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Att möta personer med demens2011Collection (editor) (Other academic)
  • 39.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Research Platform for Collaboration for Health.
    Att möta personer med demens2011In: Att möta personer med demens / [ed] Anna-Karin Edberg, Lund: Studentlitteratur AB, 2011, 2, p. 19-33Chapter in book (Other academic)
  • 40.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Beteendemässiga och psykologiska symptom vid demens (BPSD)2013Other (Other academic)
  • 41.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II.
    Care for the caregivers2012In: Bridging the gap: god demensomsorg – et spørsmål om ledelse, 2012Conference paper (Other academic)
  • 42.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society.
    Du kan själv ta hand om besvär med hälsan2009In: Livslots för äldre, Vårdalsinstitutet , 2009, p. 46-63Chapter in book (Other (popular science, discussion, etc.))
  • 43.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Forskarens utmaningar2013In: Aktionsforskning i vård och omsorg: tillämpning och teori / [ed] Liselotte Jakobsson, Malmö: Gleerups Utbildning AB , 2013, p. 141-148Chapter in book (Other academic)
  • 44.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society.
    Individuellt anpassad omvårdnad2002In: Att möta personer med demens / [ed] Edberg, A-K, Lund: Studentlitteratur AB, 2002, 1Chapter in book (Other (popular science, discussion, etc.))
  • 45.
    Edberg, Anna-Karin
    Vårdalsinstitutet.
    ”Jag önskar att jag kunde göra så mycket mer”2008In: Tidningen Äldreomsorg, ISSN 1403-7025, no 5, p. 56-59Article in journal (Other academic)
  • 46.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Kognitiv svikt2014In: Omvårdnadens grunder: hälsa och ohälsa / [ed] Edberg, Anna-Karin, Wijk, Helle, Lund: Studentlitteratur AB, 2014, 2, p. 645-685Chapter in book (Other academic)
  • 47.
    Edberg, Anna-Karin
    Lunds universitet.
    Minnessvårigheter och förvirringstillstånd2009In: Omvårdnadens grunder: hälsa och ohälsa / [ed] Anna-Karin Edberg & Helle Wijk, Lund: Studentlitteratur , 2009, p. 749-791Chapter in book (Other (popular science, discussion, etc.))
  • 48.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society.
    Nurses difficulties in dementia care2005In: Focus on quality of life/ dementia care, Stuttgart: Demenz support , 2005Chapter in book (Other academic)
  • 49.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society. Kristianstad University, Research Platform for Collaboration for Health.
    Nurses wellbeing: an important factor for high quality care in residential care facilities2014Conference paper (Refereed)
  • 50.
    Edberg, Anna-Karin
    Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.
    När sinnena sviktar2017In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 239-248Chapter in book (Other academic)
123 1 - 50 of 145
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