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  • 1.
    Björklund, Margereth
    et al.
    Halmstad University.
    Fridlund, B.
    Halmstad University.
    Cancer patients' experiences of nurses' behaviour and health promotion activities: a critical incident analysis1999In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 8, no 4, p. 204-212Article in journal (Refereed)
    Abstract [en]

    Patients with head and neck cancer report several disease- and health-related problems before, during and a long time after completed treatment. Nurses have an important role in educating/supporting these patients about/through the disease and treatment so that they can attain well-being. This study describes the cancer patients' experiences of nurses' behaviour in terms of critical incidents after nurses had given them care to promote health. The study had a qualitative, descriptive design and the method used was the critical incident technique. Twenty-one informants from the Nordic countries diagnosed with head and neck cancer were strategically selected. It was explained to the informants what a critical incident implies before the interviews took place; this was defined as a major event of great importance, an incident, which the informants still remember, due to its great importance for the outcome of their health and well-being. The nurses' behaviour was examined, and critical incidents were involved in 208 cases-150 positive and 58 negative ones-the number of incidents varying between three and 20 per informant. The nurses' health promotion activities or lack of such activities based on the patients' disease, treatment and symptoms, consisted of informing and instructing the patients as well as enabling their participation. Personal consideration and the nurses' cognisance, knowledge, competence, solicitude, demeanour and statements of understanding were found to be important. Continuous health promotion nursing interventions were of considerable value for the majority of this group of cancer patients. Oncology nurses could reconfirm and update the care of head and neck cancer patients by including health promotion activities in individual care plans. By more frequent use of health promotion models, such as the empowerment model, the nurses could identify and focus on those individuals who needed to alter their life-style as well as tailor their approach towards these patient by setting goals for well-being and a healthy life-style.

  • 2.
    Jakobsson, Liselotte
    et al.
    Kristianstad University, Department of Health Sciences.
    Rahm Hallberg, Ingalill
    Kristianstad University, Department of Health Sciences.
    Lovén, Lars
    Department of Surgery, North Eastern Skane County Hospital, Kristianstad.
    Experiences of daily life and life quality in men with prostate cancer: an explorative study. Part I1997In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 6, no 2, p. 108-116Article in journal (Refereed)
    Abstract [en]

    Eleven men with prostate cancer were randomly chosen and interviewed during an in-patient period at a southern Swedish hospital. The interview focused on functional health status in relation to daily life and life quality. In addition the sense of coherence scale was used, as well as the European Organization or Research and Treatment of Cancer (EORTC) QLQ C-30 questionnaire. The interview findings were analysed from a phenomenological-hermeneutic perspective and interpreted within the concept of transition. The entry to transition was marked by the men when experiencing an altered life continuum in terms of physical and existential fatigue, pain, micturition problems and an altered sex life. The passage phase was marked by descriptions of a new lifestyle where hope was a central internal resource, creating a positive illusion of life in order to endure. Their external resources were wives and family who supported physically (household matters, gardening) and psychologically (comfort, encouragement). The exit phase meant continuously adapting to a new life style, living with a slowly deteriorating functional health status, a new sense of dependency on others, daily life routine broken by in-patient hospital periods and contacts with primary health care. Thus the findings pointed more at continously facing new passages than a stable exit, i.e. an ongoing transition. The areas of life imbalance described may serve as a basis for care assessment and intervention as well as supplying support of the transitional process.

  • 3.
    Jakobsson, Liselotte
    et al.
    Kristianstad University, School of Health and Society.
    Rahm Hallberg, Ingalill
    Kristianstad University, Department of Health Sciences.
    Lovén, Lars
    Department of Surgery, North Eastern Skåne County Hospital, Kristianstad.
    Met and unmet nursing care needs in men with prostate cancer: an explorative study. Part II1997In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 6, no 2, p. 117-123Article in journal (Refereed)
    Abstract [en]

    Men with prostate cancer (n = 11) were interviewed during an in-patient period at a urological clinic, about their experiences of met and unmet needs from health professionals. Their perception of quality of life and sense of coherence were also assessed. The findings were analysed from a phenemenological-hermeneutic perspective and interpreted within the concept of transition. It was interpreted that objective functional health needs were mostly met by health professionals and subjective existential needs were mostly not met. The analysis revealed patients as passive or active receivers of care. Passive receivers were explicitly and implicitly stating unmet needs, or explicitly stating satisfaction with nursing care at the same time as implicitly contradicting, referring to their needs as bagatelles, unimportant, whereas active receivers talked about their needs explicitly with the staff and did not state implicit unmet needs. This suggests that nurses need to be aware of and have sensitive ears to undertones in statements and actively seek for patients' needs. The most important nursing care areas seemed to be to provide solutions to physical problems together with staff support including information, and acting to increase confidence in staff and staff availability. This encourages patient, wives and families, in cooperation, towards a healthy exit of transition.

  • 4.
    Paulsson, Gun
    et al.
    School of Social and Health Sciences, Halmstad University.
    Wårdh, I.
    Karolinska Institutet.
    Andersson, Pia
    Kristianstad University, Department of Health Sciences.
    Öhrn, K.
    Department of Health and Social Sciences, Dalarna University.
    Comparison of oral health assessments between nursing staff and patients on medical wards2008In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 17, no 1, p. 49-55Article in journal (Refereed)
    Abstract [en]

    The maintenance of good oral health is essential for nutrition, recovery and well-being. This requires the involvement of the nursing staff, especially in cases where oral care and any necessary dental treatment are vital to ensure medical treatment. The aim of this study was to evaluate the validity of oral assessments performed by nursing staff using the revised oral assessment guide (ROAG), using comparisons with patients' self-assessment of oral problems. When a comparison was made of how the staff and patients assessed their oral status, a high level of agreement was found. In these assessments, with the exception of oral mucosa and teeth, the percentage agreement was >80. The kappa coefficient revealed slight to moderate agreement. When there was a disagreement, the staff assessed the oral health as being significantly poorer than the patients did. In the present study, it was shown that few oral assessments performed by the nursing staff and patient disagreed. The ROAG may therefore be useful for the nursing staff to make the patients' oral health problems visible.

  • 5.
    Persson, Lena
    et al.
    Kristianstad University, Department of Health Sciences.
    Larsson, Gun
    Department of Medicine, Central Hospital, Kristianstad.
    Ohlsson, Ola
    Department of Medicine, Central Hospital, Kristianstad.
    Rahm Hallberg, Ingalill
    Department of Nursing, Lund University.
    Acute leukaemia or highly malignant lymphoma patients' quality of life over two years: a pilote study2001In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 10, no 1, p. 36-47Article in journal (Refereed)
    Abstract [en]

    The purpose of this study was to investigate quality of life and sense of coherence for acute leukaemia and malignant lymphoma patients at the start of treatment and throughout two years. A further purpose  was to compare questionnaire responses with patients’ statements in open-ended interviews. A consecutive sample of 16 patients responded to the Quality of Life Questionnaire (QLQ C-30), Lund Gerontological Centre questionnaire and the Sense of Coherence Scale at the start of treatment and after 12 and 24 months. The QLQ C-30 questionnaire was administered after 4, 8, 16 and 20 months. Tape-recorded open-ended interviews were conducted every four months before the patients responded to the questionnaires. Quality of life and sense of coherence were higher scored at the start of treatment for patients without relapse, than for those with relapse. The recovery pattern, however, throughout the two years was similar for both relapsers and non-relapsers, thus the former had not recovered to the same extent as the latter. Relapsers may have had different prerequisites or a worse position at the debut of the disease and reasonably they need more compensatory nursing care. The long lasting nature of the disease makes it important not to withdraw the nursing care too soon after remission, and to develop strategies to empower the patients in handling the consequences of the disease and treatment.  

  • 6.
    Persson, Lena
    et al.
    Kristianstad University, Department of Health Sciences.
    Rahm Hallberg, Ingalill
    Ohlsson, Ola
    Acute leukaemia and malignant lymphoma patients' experiences of disease, treatment and nursing care during the active treatment phase: an explorative study1995In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 4, no 3, p. 133-142Article in journal (Refereed)
    Abstract [en]

    Five acute leukaemia or high malignant lymphoma patients at a hospital in southern Sweden were interviewed about their daily living problems, their coping strategies and their opinions about the nursing care they received during the active phase of their treatment. In addition the EORTC QLQ-C30, the Global Life Quality and the Sense of Coherence scales were administered. The data were analysed from a hermeneutic phenomenological perspective and interpreted to indicate that the patients sensed a threat to their lives, loss of control and having to live in uncertainty stemming from the disease and the treatment. They had problems with such things as fatigue, diarrhoea, nausea and vomiting, loss of appetite, sore mouth, and high temperature. However they seemed to minimise the importance of these problems and instead focused on gaining control of the situation, developing their knowledge of the disease and relying on the  support of their family. Contradictions appeared in their statements about the quality of care; the information given was said to be good but difficult to understand, though the quality of the nursing care was judged to be high it had to be asked for i.e. help was received on request. In conclusion the entire situation of the patients perspective of both from the family and the nurses, needs to be studied in further research in order to fully understand the patients´ coping strategies and how nursing care can support them.

  • 7.
    Rask, Marie
    et al.
    Linnaeus University.
    Oscarsson, Marie
    Linnaeus University.
    Lindell, Gunell
    Karolinska Institute.
    Swahnberg, Katarina
    Linnaeus University.
    Women with abnormal Pap smear result:: a qualitative study of Swedish healthcare professionals' experiences2016In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 25, no 6, p. 980-991Article in journal (Refereed)
    Abstract [en]

    A Papanicolaou (Pap) smear can be used to detect pre-cancerous cellular changes, so that they can be treated before they develop into cervical cancer. When the results of a Pap smear test are abnormal, women need further investigation, treatment and follow-up. Healthcare professionals (HCPs) are in a position to care for these women with abnormalities. The aim of this study was to explore the experiences of HCPs in caring for women with abnormal Pap smear results. In total, 20 HCPs from two counties in south-eastern Sweden participated in individual interviews, based on two open-ended questions. Interviews were recorded, transcribed verbatim and analysed using content analysis. The results showed that HCPs experienced that abnormal Pap smear results created anxiety in women, who often sought information from the Internet as a way to cope. Furthermore, the HCPs thought that it was a problem that women chose not to attend investigation, treatment and follow-ups. However, information about the seriousness of abnormal Pap smear results causes women to participate. It is a challenge for HCPs to inform in a reassuring manner. Finally, HCPs should collaborate with women to meet their information needs and to also provide support regarding finding and filtering reliable information on the Internet.

  • 8.
    Rask, Marie
    et al.
    Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Linnaeus University.
    Swahnberg, Katarina
    Linnaeus University.
    Oscarsson, Marie
    Linnaeus University.
    Notification of an abnormal Pap smear result: an intervention study2018In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 28, no 2Article in journal (Refereed)
    Abstract [en]

    This study aims to assess whether notification of an abnormal Pap smear result via a phone call, delivered by a trained healthcare provider, has an effect on women's HRQoL, coping and awareness of HPV. For this intervention study, women were consecutively recruited from a women's health clinic in Sweden. Women in the intervention group (n = 113) were notified of their Pap smear result via a phone call by a trained healthcare provider, while those in the comparison group (n = 122) were notified via a standard letter. A questionnaire was used to collect data. The results found no significant differences between the groups for HRQoL. However, 42.5% of women in the intervention group versus 48.3% in the comparison group reported anxiety. Women in the intervention group were more satisfied with the manner in which they were notified of their abnormal result than those in the comparison group (92.0% vs. 67.2%; p < 0.001), more aware of HPV (71% vs. 50%; p = 0.001), and called healthcare services less often (10.6% vs. 18.0%; p = 0.113), no significance. In conclusion, notification of an abnormal Pap smear result via a phone call does not increase women's HRQoL or reduce their anxiety.

  • 9.
    Suhonen, R.
    et al.
    Finland.
    Charalambous, A.
    Cypern.
    Berg, Agneta
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.
    Katajisto, J.
    Finland.
    Lemonidou, C.
    Grekland.
    Patiraki, E.
    Grekland.
    Sjövall, K.
    Lund University.
    Stolt, M.
    Finland.
    Radwin, L. E.
    USA.
    Hospitalised cancer patients' perceptions of individualised nursing care in four European countries2018In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 27, no 1Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to describe hospitalised cancer patients' perceptions of individualised care in four European countries and compare these perceptions using the patients' socio-demographic characteristics and the Individualized Care Scale. The patients' socio-demographic characteristics used were: education, age, gender, type of hospital admission, previous hospitalisation and hospital length of stay. The Individualized Care Scale has two parts (1) nurses' support of individuality and (2) patients' receipt of individuality. Data (n = 599) were collected in Cyprus (n = 150), Finland (n = 158), Greece (n = 150) and Sweden (n = 141). Multivariate analysis of variance models were constructed and differences in perceptions of individualised care were analysed using the patients' socio-demographic characteristics as covariates. The level of support for individuality and receipt of individualised care was reported as moderate and good respectively. Generally, the highest assessments were made by the Swedish respondents and the lowest by those in Greece. This study revealed some between-country differences in patients' perceptions of care individualisation. These differences, for example, conceptual, educational, based in clinical practice or in the health organisation, require further research. Enquiry into the individualised care perceptions of health care providers and the families of cancer patients would also be useful.

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