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  • 1.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II. Kristianstad University, Research Platform for Collaboration for Health.
    Anderson, Katrina
    Australien.
    Orrung Wallin, Anneli
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap II.
    Bird, Mike
    Storbritannien.
    The development of the strain in dementia care scale (SDCS)2015In: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 27, no 12, p. 2017-2030Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Though many staff gain satisfaction from working with people with dementia in residential facilities, they also experience significant stress. This is a serious issue because this in turn can affect the quality of care. There is, however, a lack of instruments to measure staff strain in the dementia-specific residential care environment, and the aim of this study, accordingly, was to develop the "Strain in Dementia Care Scale."

    METHODS: The instrument was developed in three steps. In the first step, items were derived from six focus group discussions with 35 nurses in the United Kingdom, Australia, and Sweden concerning their experience of strain. In the second step, a preliminary 64-item scale was distributed to 927 dementia care staff in Australia and Sweden, which, based on exploratory factor analysis, resulted in a 29-item scale. In the final step, the 29-item scale was distributed to a new sample of 346 staff in Sweden, and the results were subjected to confirmatory factor analysis.

    RESULTS: The final scale comprised the following 27 items producing a five-factor solution: Frustrated empathy; difficulties understanding and interpreting; balancing competing needs; balancing emotional involvement; and lack of recognition.

    CONCLUSIONS: The scale can be used (a) as an outcome measurement in residential care intervention studies; (b) to help residential facilities identify interventions needed to improve staff well-being, and, by extension, those they care for; and ((c) to generally make more salient the critical issue of staff strain and the importance of ameliorating it.)

  • 2.
    Edberg, Anna-Karin
    et al.
    Kristianstad University, Department of Health Sciences.
    Edfors, Ellinor
    Kristianstad University, Department of Health Sciences.
    Nursing care for people with frontal-lobe dementia: difficulties and possibilities2008In: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 20, no 2, p. 361-374Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Nursing care for people with dementia diseases affecting the frontal lobes places special demands on staff, but there is little information available about how best to tailor nursing care. The aim of this study was to describe nurses' experience of difficulties and possibilities in caring for people with dementia diseases with frontal-lobe dysfunction.METHOD: The study was carried out as a descriptive qualitative study. Data collected during interviews with nursing staff (n = 10) were analyzed using qualitative content analysis.RESULTS: The difficulties experienced were related to the patients' lack of inhibition and judgment, anxiety, agitation, reduced ability to deal with physical needs, egocentricity, imbalance between rest and activity and depressed mood. The possibilities were seen in relation to the nursing staff's professional encounters, characterized as being clear and consistent, a step ahead, flexible, calm and creating a positive atmosphere, close and trusting and being and doing things together. Continuous feedback and support were prerequisites for the engagement of the staff.CONCLUSION: Nursing care in this context involves ethical issues whereby the residents' integrity must be balanced against a safe and secure environment. Nursing care is a sensitive but also demanding task, where nurses' actions can reduce the negative effects of the disease. It is therefore important to support staff in nursing care so they are able to manage their work and reduce the risk of emotional exhaustion.

  • 3. Gibson, Maggie C
    et al.
    Carter, Mary W
    Helmes, Edward
    Edberg, Anna-Karin
    Department of Health Sciences, Lund University, Lund.
    Principles of good care for long-term care facilities.2010In: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 22, no 7, p. 1072-83Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: The International Psychogeriatric Association Task Force on Mental Health Services in Long-Term Care Facilities aims to support and strengthen mental health services in the long-term care sector. The purpose of this paper is to identify broad principles that may underpin the drive towards meeting the mental health needs of residents of long-term care facilities and their families, as well as to enhance the overall delivery of residential care services.

    METHODS: Principles of good care are extrapolated from an analysis of international consensus documents and existing guidelines and discussed in relation to the research and practice literature.

    RESULTS: Although the attention to principles is limited, this review reveals an emerging consensus that: (1) residential care should be situated within a continuum of services which are accessible on the basis of need; (2) there should be an explicit focus on quality of care in long-term care facilities; and (3) quality of life for the residents of these facilities should be a primary objective. We take a broad perspective on the challenges associated with actualizing each of these principles, taking into consideration key issues for families, facilities, systems and societies.

    CONCLUSIONS: Recommendations for practice, policy and advocacy to establish an internationally endorsed principles-based framework for the evolution and development of good mental health care within long-term care facilities are provided.

  • 4.
    Kurz, Alexander
    et al.
    Tyskland.
    Bakker, Christian
    Nederländerna.
    Boehm, Markus
    Tyskland.
    Diehl-Schmid, Janine
    Tyskland.
    Dubois, Bruno
    frankrike.
    Ferreira, Catarina
    Portugal.
    Gage, Heather
    Storbritannien.
    Graff, Caroline
    Karolinska Institutet.
    Hergueta, Thierry
    Frankrike.
    Jansen, Sabine
    Tyskland.
    Jones, Bridget
    Storbritannien.
    Komar, Alexander
    Tyskland.
    de Mendonca, Alexandre
    Portugal.
    Metcalfe, Anna
    Frankrike.
    Milecka, Katrina
    Tyskland.
    Millenaar, Joany
    Nederländerna.
    Wallin, Anneli Orrung
    Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Karolinska Institutet.
    Oyebode, Jan
    Storbritannien.
    Schneider-Schelte, Helga
    Tyskland.
    Saxl, Susanna
    Tyskland.
    de Vugt, Marjolein
    Nederlänerna.
    RHAPSODY - Internet-based support for caregivers of people with young onset dementia: program design and methods of a pilot study2016In: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 28, no 12, p. 2091-2099Article in journal (Refereed)
    Abstract [en]

    Background: Young Onset Dementia (YOD), defined by first symptoms of cognitive or behavioral decline occurring before the age of 65 years, is relatively rare compared to dementia of later onset, but it is associated with diagnostic difficulty and heavy burden on affected individuals and their informal carers. Existing health and social care structures rarely meet the needs of YOD patients. Internet-based interventions are a novel format of delivering health-related education, counseling, and support to this vulnerable yet underserved group. Methods: The RHAPSODY (Research to Assess Policies and Strategies for Dementia in the Young) project is a European initiative to improve care for people with YOD by providing an internet-based information and skill-building program for family carers. The e-learning program focuses on managing problem behaviors, dealing with role change, obtaining support, and looking after oneself. It will be evaluated in a pilot study in three countries using a randomized unblinded design with a wait-list control group. Participants will be informal carers of people with dementia in Alzheimer's disease or behavioral-variant Frontotemporal degeneration with an onset before the age of 65 years. The primary outcome will be caregiving self-efficacy after 6 weeks of program use. As secondary outcomes, caregivers' stress and burden, carer health-related quality of life, caring-related knowledge, patient problem behaviors, and user satisfaction will be assessed. Program utilization will be monitored and a health-economic evaluation will also be performed. Conclusions: The RHAPSODY project will add to the evidence on the potential and limitations of a conveniently accessible, user-friendly, and comprehensive internet-based intervention as an alternative for traditional forms of counseling and support in healthcare, aiming to optimize care and support for people with YOD and their informal caregivers.

  • 5.
    Orrung Wallin, Anneli
    et al.
    Department of Health Sciences, Lund University.
    Jakobsson, Ulf
    Department of Clinical Sciences in Malmö, Lund University.
    Edberg, Anna-Karin
    Kristianstad University, School of Health and Society, Avdelningen för Hälsovetenskap. Kristianstad University, Forskningsplattformen Hälsa i samverkan.
    Job satisfaction and associated variables among nurse assistants working in residential care2012In: International psychogeriatrics, ISSN 1041-6102, E-ISSN 1741-203X, Vol. 24, no 12, p. 1904-1918Article in journal (Refereed)
    Abstract [en]

    Background:While the work situation for nurse assistants in residential care is strenuous, they themselves often state that they are satisfied with their job. More knowledge is clearly needed of the interrelationship of variables associated with job satisfaction. This study aims to investigate job satisfaction and explore associated variables among nurse assistants working in residential care.

    Methods: A total of 225 respondents completed a questionnaire measuring general job satisfaction, satisfaction with nursing-care provision and measures concerning person-centered care, work climate, leadership, and health complaints. Job satisfaction was the outcome measure and comparisons were made among those reporting low, moderate, and high levels of job satisfaction; multiple regression analyses were used to explore associated variables.

    Results: The caring climate and personalized care provision were associated with general job satisfaction. High levels of satisfaction with nursing-care provision were also associated with the general work climate, organizational and environmental support, and leadership. Low job satisfaction was mainly associated with health complaints.

    Conclusions: Nurse assistants working in a positive work climate, caring climate, with a positive attitude to their leaders, who receive organizational and environmental support, provide person-centered care and experience a higher degree of job satisfaction. It seems essential, however, to include both general and context-specific measures when investigating job satisfaction in this field as they reveal different aspects of the nurse assistant's work situation.

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