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Assessment of burden among family caregivers of people with Parkinson’s disease using the Zarit Burden Interview
Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.ORCID iD: 0000-0003-2174-372X
Ersta Sköndal University College.
Kristianstad University, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education. Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna.ORCID iD: 0000-0003-4820-6203
Linnaeus University.
2017 (English)In: Journal of Pain and Symptom Management, ISSN 0885-3924, E-ISSN 1873-6513, Vol. 53, no 2, 272-278 p.Article in journal (Refereed) Published
Abstract [en]

Context: Previous studies have supported the psychometric properties of the 22-item Zarit Burden Interview (ZBI-22) scale among family caregivers of people with various disorders, including Parkinson´s disease (PD). However, its short-forms have not been psychometrically tested among PD family caregivers, and available psychometric analyses have not accounted for the ordinal nature of item-level data.

Objectives: To assess the psychometric properties of the ZBI-22 and its short forms among family caregivers of people with PD, while taking account for the ordinal nature of data.

Methods: Cross-sectional postal survey ZBI-22 data from 66 family caregiver members (59% women; mean age, 69.6 years) of a local Swedish PD society branch were analysed according to classical test theory methods based on polychoric/polyserial correlations.

Results: Missing item responses were ≤5%. Corrected item-total correlations were ≥0.42 and floor-/ceiling effects were <20%, besides for the briefest (4- and 1-item) short-forms (20% and 40% floor effects, respectively). Reliability was good for all scales (ordinal alpha, 0.89-0.95).  External construct validity was in general accordance with a priori expectations. Short-forms demonstrated good criterion-related validity (rs 0.87-0.99) and discriminative ability (AUC, 0.91-0.98) relative to the full ZBI-22.

Conclusion: This study provides support for the reliability and validity of the ZBI-22 and its various short forms for use among PD family caregivers. In studies where caregiver burden is a central outcome, either ZBI-22 or -12 is suggested for use; other short-forms can be used when caregiver burden is of less central focus or for clinical screening.

Place, publisher, year, edition, pages
2017. Vol. 53, no 2, 272-278 p.
Keyword [en]
Burden, family caregivers, Parkinson disease, psychometrics, validation
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hkr:diva-15972DOI: 10.1016/j.jpainsymman.2016.09.007ISI: 000397118300018PubMedID: 27810571OAI: oai:DiVA.org:hkr-15972DiVA: diva2:970596
Funder
Swedish Research Council
Available from: 2016-09-14 Created: 2016-09-14 Last updated: 2017-08-11Bibliographically approved

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Hagell, PeterWestergren, Albert
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Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and EducationAvdelningen för Sjuksköterskeutbildningarna
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