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Respondent burden and patient-perceived validity of the PDQ-39
Department of Health Sciences, Lund University.
Department of Health Sciences, Lund University.
Department of Health Sciences, Lund University.ORCID iD: 0000-0003-2174-372X
2006 (English)In: Acta Neurologica Scandinavica, ISSN 0001-6314, E-ISSN 1600-0404, Vol. 113, no 2, 132-137 p.Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: To evaluate the respondent burden and patient-perceived content validity of the Parkinson's disease (PD)-specific health status questionnaire PDQ-39, and the linguistic validity of its revised Swedish version.

MATERIALS AND METHODS: Eighteen PD patients completed the revised Swedish version of the PDQ-39. Respondent burden was assessed by recording the time taken to complete the questionnaire. Content and linguistic validity was evaluated qualitatively.

RESULTS: Patients with mild, moderate and advanced PD needed a mean time of 9.5, 11.3 and 20.1 min, respectively, to complete the PDQ-39. One-third of the patients identified irrelevant items and 50% identified important health-related areas that were missing. Revisions had eliminated previous linguistic problems with the Swedish PDQ-39.

CONCLUSIONS: Undue respondent burden challenged the appropriateness of the PDQ-39 among patients with more advanced disease. Overall content validity was acceptable but compromised by lack of important content areas. Observations supported the linguistic validity of the revised Swedish PDQ-39.

Place, publisher, year, edition, pages
2006. Vol. 113, no 2, 132-137 p.
Keyword [en]
health status, parkinson's disease, respondent burden, validity
National Category
Neurology
Identifiers
URN: urn:nbn:se:hkr:diva-12319DOI: 10.1111/j.1600-0404.2005.00549.xISI: 000234575200011PubMedID: 16411975OAI: oai:DiVA.org:hkr-12319DiVA: diva2:732148
Available from: 2014-07-03 Created: 2014-07-03 Last updated: 2014-09-15Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
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  • vancouver
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More styles
Language
  • de-DE
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  • nn-NB
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  • Other locale
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  • asciidoc
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