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Spouses' view during their partners' illness and treatment
Center for Caring Sciences, Lund University. (Forskningsplattformen Hälsovetenskap i samverkan)
Kristianstad University, Department of Health Sciences.
Center for Caring Sciences, Lund University.
1998 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 21, no 2, p. 97-105Article in journal (Refereed) Published
Abstract [en]

Nine spouses of people who had suffered from acute leukaemia or highly malignant lymphoma were interviewed about their experiences of everyday life throughout their partner’s illness and treatment, and their view of the professional care provided. The transcribed texts were subjected to phenomenological-hermeneutic analysis. The spouses felt they were in a situation of overall severe crisis i.e. experiencing feelings of distress, restrictions and limited or lack of support. The analysis revealed three family types: the couple acting as a unit, the couple acting independently on equal terms, and the couple acting separately with the spouse in a subordinate position. The spouses´ evaluation of the entire experience varied according to the family type and the spouses´ personal resources, which influenced the availability and utilization of their social network and the support of health care staff. Contentment was related to the couple acting as a unit or the couple acting independently on equal terms and taking control over the situation, actively asking for support and requiring the staff to meet their needs. Discontentment was related to subordination of the spouse to the partner or to health care staff, and failure to obtain support within the couple or from others. Empowering the spouses may mean helping them develop their skills, providing opportunities and authority and gaining access to resources based on knowledge of the family type, the consent of the partner and the spouses´ freedom to make choices. This may well lead to increased efficiency and have positive effects for the patients, the spouses and for them both as a couple. 

Place, publisher, year, edition, pages
1998. Vol. 21, no 2, p. 97-105
Keywords [en]
Spouses, Acute Leukaemia, Highly Malignant Lymphoma, Family, Crisis, Empowerment, Nursing care.
National Category
Nursing
Identifiers
URN: urn:nbn:se:hkr:diva-7914ISI: 000072831300003PubMedID: 9556936OAI: oai:DiVA.org:hkr-7914DiVA, id: diva2:406101
Available from: 2011-03-24 Created: 2011-03-24 Last updated: 2017-12-11Bibliographically approved
In thesis
1. Daily life problems from a nursing perspective in patients with acute leukaemia or highly malignant lymphoma
Open this publication in new window or tab >>Daily life problems from a nursing perspective in patients with acute leukaemia or highly malignant lymphoma
1998 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

This thesis aimed at from the patients’ and the spouses’ perspective, investigate impact on daily living of acute leukaemia (AL) or highly malignant lymphoma (HML) when under, and free of treatment and their view of the nursing care received. Open-ended interviews, generic life quality (LGC), and cancer specific life quality (EORTC QLQ-C30) questionnaires, Sense of Coherence Scale (SOC), a study-specific questionnaire and an oral assessment guide (OAG) was used. In all 88 respondents with AL or HML and nine spouses participated in the studies. Results showed respondents to be placed in a state of traumatic crisis. Basic aspects were types of diagnosis, level of SOC and LGC and age, which influenced the way things developed. Severe fatigue, nutritional problems, oral complications and proneness to infections reduced their capacity to handle daily living. Psychosocial and existential strain together with economic strain and having to live in isolation became further limitations. Tangible and emotional support was obtained from the family. Care was evaluated as good but said to “be on request”. Different family types “Couple acting as a unit”, “Couple acting independently and on equal terms” and “Couple acting separately with the spouses subordinate” meant different possibilities for the spouses to be involved, support their sick partner and obtain support for themselves. The long-term consequences could constitute a danger to patients’ continued living, or an adaptation in which a balance was obtained or could mean a “new lease of life”.  The outcome of the entire situation seems to depend on the basic aspects, the patient’s life goals when the disease was contracted the family situation and ability to obtain social support from family, friends and nurses.

Place, publisher, year, edition, pages
Lund: Centre of caring sciences, The medical faculty, Lund Univ., 1998. p. 79
Series
Bulletin from the Centre of Caring Sciences, Lund University, Sweden, ISSN 1403-4034 ; 1
Keywords
Nursing Care, acute leukaemia, quality of life, sense of coherence, family, spouses
National Category
Nursing
Identifiers
urn:nbn:se:hkr:diva-7915 (URN)91-628-3019-8 (ISBN)
Public defence
1998-06-13, Lund, 09:00 (English)
Opponent
Supervisors
Available from: 2011-04-27 Created: 2011-03-24 Last updated: 2021-09-28Bibliographically approved

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Persson, LenaRasmusson, Margareta

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