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Palliativ vård i hemmet vid hjärtsvikt: närståendes upplevelser
Kristianstad University College, School of Health and Society.
2010 (Swedish)Independent thesis Advanced level (professional degree), 10 credits / 15 HE creditsStudent thesisAlternative title
Heart failure in palliative home care : next of kin's experiences (English)
Abstract [sv]

För många närstående förändras livet radikalt när  en anhörig diagnostiseras med hjärtsvikt. Att leva med hjärtsvikt är som att "knacka på dödens dörr och aldrig veta vad som är att vänta av morgondagen". Att stanna hemma och vårda en en anhörig under palliativ fas innebär stora påfrestningar i närståendes liv. Syfte: Att belysa närståendes upplevelser när anhörig med hjärtsvikt vårdas palliativt i hemmet. Metod: Studien utfördes som en allmän litteraturstudie. Tolv kvalitativa och tre kvantitatva vetenskapliga artiklar ingick. Resultat:  Närstående som vårdade en anhörig palliativt i hemmet upplevde social isolering, stress och ångest och krav på att vara en "stöttepelare". Närstående upplevde också att informationen om tillstånd och prognos var bristfällig. Upplevelsen av att känna stöd från vårdpersonal varierade och närstående ville vara delaktiga i vården. Slutsats: Det är klarlagt att hjärtsvikt har en betydande påverkan på närståendes liv. Närståendes situation behöver studeras vidare och då speciellt när det gäller palliativ hemsjukvård.

Abstract [en]

For many next of kin important changes took place when heart failure was diagnosed. Meanings of living with heart failure emerged as "knocking on death's door" yet surviving and never knowing what to expect of tomorrow. Staying at home in the palliative phase of life brings multiple complex issues for next of kin who is subject to stress during a along period of time. The aim of the study was: To illuminate next of kin's experiences when a partner with heart failure is taken care of in palliative home care setting. Method: A general litterature review based on twelve qualitative and three quantitative scientific articles. Findings: Next of kin in palliative home care setting described situations of being restricted, they experienced stress and anxiety, and took on the role of being "a pillar of strength". Next of kin also described how they lacked adequate medical information. Som next of kin experienced  that they received support from healthcare personnel but some lacked concrete support. Next of kin also felt it important to have influence on decisions. Conclusion: It is clear that heart failure seriously affects the lives of next of kin. This group need to be further investigated, especially when it comes to palliative care at home.

Place, publisher, year, edition, pages
2010. , p. 35
Keywords [en]
caregiver, heart failure, palliative care, home care
Keywords [sv]
närstående, hjärtsvikt, palliativ vård, hemsjukvård
National Category
Nursing
Identifiers
URN: urn:nbn:se:hkr:diva-6553OAI: oai:DiVA.org:hkr-6553DiVA, id: diva2:311052
Presentation
(English)
Uppsok
Medicine
Supervisors
Available from: 2010-04-26 Created: 2010-04-19 Last updated: 2010-04-26Bibliographically approved

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CiteExportLink to record
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