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Att kunna förbereda sig för framtiden: En litteraturstudie om närståendes upplevelser av stöd när en familjemedlem vårdas i sen palliativ fas i hemmet
Kristianstad University College, Department of Health Sciences.
Kristianstad University College, Department of Health Sciences.
2009 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesisAlternative title
Preparing for the future : A study of literature on the support experienced by next of kin when a family member is nursed at home during the late palliative phase (English)
Abstract [sv]

Bakgrund: På senare tid har närståendes roll i vården fått en ökad betydelse. I Sverige insjuknar varje år 50 000 individer i cancer. När sjukdomen övergått i sen palliativ fas väljer allt fler patienter att vårdas den sista tiden av livet i hemmet. Mer ansvar läggs därigenom på närstående vilket lett till ett ökat behov av stöd åt närstående. Syfte: Syftet med litteraturstudien var att belysa närståendes upplevelse av stöd när en familjemedlem med cancer vårdas i sen palliativ fas i hemmet. Metod: Studien är en litteraturöversikt baserad på vetenskapliga artiklar från tidigare forskning. Resultat: Resultatet visade att närståendes upplevelse av stöd fanns i att klara av vardagen och att kunna förbereda sig för framtiden. Däremot framkom även att närstående upplevde avsaknad av stöd, som fanns i att känna sig otillräcklig och att känna sig övergiven. Närstående upplevde information kring familjemedlemmens sjukdom, vårdandet av den döende samt vad närstående kunde förvänta sig av framtiden framkom som ett stöd av betydelse. Närstående upplevde sig inte bli sedda av professionella vårdgivare vilket bidrog till att närstående kände sig ensamma i den svåra situation dem befann sig i. Slutsats: Då närstående befinner sig i en situation där deras behov av stöd inte alltid tillgodoses, är det av vikt att professionella vårdgivare i alla avseenden inkluderar och uppmärksammar närståendes individuella behov av stöd.

 

Abstract [en]

Background: The role played by next of kins in the public health care system has, of late, become increasingly important. Every year 50,000 people contract cancer in Sweden. During the final stages of life, when the illness has reached the late palliative phase, an increasing amount of patients choose to be nursed at home. Subsequently, more responsibility is placed upon relatives and their need of support increases. Purpose: The purpose with this study was to illustrate next of kin’s experiences of support when a member of the family suffering from cancer was nursed at home during the late palliative phase. Method: The study is an overview of literature based on scientific articles from previous research. Findings: The study’s findings show that next of kins experienced most support in situations associated with coping with the daily chores or when having to prepare themselves for the future. However, next of kins also experienced a lack of support and reported feeling insufficient and abandoned. Information about the family member’s illness and nursing of the same as well as a comprehension of what they, as next of kins, might expect of the future constituted a significant support. Nevertheless, they felt ignored in contacts with professional health care providers which contributed to a feeling of loneliness. Conclusion: When next of kins find themselves in a situation where their needs of support is not always fully satisfied, it is of great importance that professional health care providers notice and include the next of kins individual needs of support in all respects.

 

Place, publisher, year, edition, pages
2009. , 33 p.
Keyword [en]
Next of kin, support, experience, cancer, palliative home care
Keyword [sv]
Närstående, stöd, upplevelse, cancer, palliativ hemsjukvård
National Category
Nursing
Identifiers
URN: urn:nbn:se:hkr:diva-5225OAI: oai:DiVA.org:hkr-5225DiVA: diva2:273816
Presentation
(Swedish)
Uppsok
Medicine
Supervisors
Available from: 2009-12-22 Created: 2009-10-24 Last updated: 2009-12-22Bibliographically approved

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