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Structured care and self-management education for persons with Parkinson's disease: why the first does Not go without the second-systematic review, experiences and implementation concepts from Sweden and Germany.
Tyskland.
Tyskland.
Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health. Lunds universitet.ORCID iD: 0000-0002-0054-2542
Universitetssjukhuset Linköping.
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2020 (English)In: Journal of Clinical Medicine, E-ISSN 2077-0383, Vol. 9, no 9Article in journal (Refereed) Published
Abstract [en]

Integrated care is regarded as a key for care delivery to persons with chronic long-term conditions such as Parkinson's disease. For persons with Parkinson's disease, obtaining self-management support is a top priority in the context of integrated care. Self-management is regarded as a crucial competence in chronic diseases since the affected persons and their caregivers inevitably take up the main responsibility when it comes to day-to-day management. Formal self-management education programs with the focus on behavioral skills relevant to the induction and maintenance of behavioral change have been implemented as a standard in many chronic long-term conditions. However, besides the example of the Swedish National Parkinson School, the offers for persons with Parkinson's disease remain fragmented and limited in availability. Today, no such program is implemented as a nationwide standard in Germany. This paper provides (1) a systematic review on structured self-management education programs specifically designed or adopted for persons with Parkinson's disease, (2) presents the Swedish National Parkinson School as an example for a successfully implemented nationwide program and (3) presents a concept for the design, evaluation and long-term implementation of a future-orientated self-management education program for persons with Parkinson's disease in Germany.

Place, publisher, year, edition, pages
2020. Vol. 9, no 9
Keywords [en]
Parkinson disease, education, integrated care, networks, self-management
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hkr:diva-21170DOI: 10.3390/jcm9092787ISI: 000580393400001PubMedID: 32872258OAI: oai:DiVA.org:hkr-21170DiVA, id: diva2:1463908
Available from: 2020-09-03 Created: 2020-09-03 Last updated: 2021-06-11Bibliographically approved

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Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskapResearch Platform for Collaboration for Health
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