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Using cards to facilitate conversations about wishes and priorities of patients in palliative care
Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Forskningsmiljön Människa - Hälsa - Samhälle (MHS). Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.ORCID iD: 0000-0002-6879-9563
Lunds universitet & Region Skåne.
Ersta Sköndal & Karolinska institutet.
Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Lunds universitet & Region Skåne.ORCID iD: 0000-0002-7790-6906
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2019 (English)In: Journal of Hospice and Palliative Nursing, ISSN 1522-2179, E-ISSN 1539-0705Article in journal (Refereed) Epub ahead of print
Abstract [en]

To avoid discomfort, health care professionals may hesitate to pursue conversations about end of life with patients. Certain tools have the potential to facilitate smoother conversations in this matter. The objective was to explore the experiences of patients in palliative care in using statement cards to talk about their wishes and priorities. Forty-six cards with statements of wishes and priorities were developed and tested for feasibility with 40 participants, who chose the 10 most important cards and shared their thoughts about the statements and conversation. Data from individual interviews and field notes were analyzed using content analysis. One category describes practical aspects of using the cards including the relevance of the content and the process of sorting the cards. The second category describes the significance of using the cards including becoming aware of what is important, sharing wishes and priorities, and reflecting on whether wishes and priorities change closer to death. The cards helped raise awareness and verbalize wishes and priorities. All statements were considered relevant. The conversations focused not only on death and dying, but also on challenges in the participants' current life situation. For the most ill and frail participants, the number of cards needs to be reduced.

Place, publisher, year, edition, pages
2019.
National Category
Nursing
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URN: urn:nbn:se:hkr:diva-20153DOI: 10.1097/NJH.0000000000000607PubMedID: 31770159OAI: oai:DiVA.org:hkr-20153DiVA, id: diva2:1376738
Note

Forskningsfinansiär: Kamprad Family Foundation and Mats Paulsson Foundation, Sweden.

Available from: 2019-12-10 Created: 2019-12-10 Last updated: 2019-12-10Bibliographically approved

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Olsson Möller, UlrikaBeck, Ingela

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Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskapForskningsmiljön Människa - Hälsa - Samhälle (MHS)Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and EducationResearch Platform for Collaboration for Health
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Journal of Hospice and Palliative Nursing
Nursing

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