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Adult narratives of the psychosocial impact of cleft in a Western Australian cohort
Australien.
England.ORCID iD: 0000-0002-2218-6446
Australien.
Australien.
2019 (English)In: Cleft Palate Craniofac J, Vol. 56, no 3, p. 373-382Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Living with a cleft condition involves many years of multidisciplinary therapy, treatment, and surgical intervention. This complex process may have both physical and psychosocial long-term impacts. There is limited evidence of the psychosocial impact of cleft on individuals in Australia. AIM: To obtain an understanding of the adult patient perception of having a cleft and explore the impact of the condition on their lives. DESIGN: Qualitative methodologies at one case study site in Western Australia. Population of Interest: Adults with a cleft lip and/or palate (CL/P) who had received treatment at Princess Margaret Hospital, the only treatment center for cleft in Western Australia. METHODOLOGY: Individual in-depth semi-structured qualitative interviews were conducted and recorded and transcribed for analysis. RESULTS: Fifteen adults with a CL/P. Two main themes were identified: lived experience (with 3 subthemes: normality, support networks, and impacts in later life) and advice to others. The majority of participants reported social rejection and isolation, which occurred mostly at school and in some instances at home, but did not often last into adulthood. The greatest protective factor was the support of family and friends, which if missing during their childhood, was desired and appreciated in adulthood. CONCLUSION: Adults with CL/P may require psychosocial support from their cleft team including referral to clinicians in adult services. There is also the need for earlier psychological interventions and social programs to support those with appearance-related social difficulties.

Place, publisher, year, edition, pages
2019. Vol. 56, no 3, p. 373-382
Keywords [en]
cleft lip and palate, psychosocial, qualitative review
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hkr:diva-19516DOI: 10.1177/1055665618770184ISBN: 1545-1569 (Electronic) 1055-6656 (Linking) OAI: oai:DiVA.org:hkr-19516DiVA, id: diva2:1329862
Note

Nicholls, Wendy Persson, Martin Robinson, Suzanne Selvey, Linda eng Cleft Palate Craniofac J. 2018 Jan 1:1055665618770184. doi: 10.1177/1055665618770184.

Available from: 2019-06-25 Created: 2019-06-25 Last updated: 2019-09-19Bibliographically approved

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Publisher's full texthttps://www.ncbi.nlm.nih.gov/pubmed/29652531

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
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  • nn-NB
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More languages
Output format
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