hkr.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
A cross-sectional survey of 5-year-old children with non-syndromic unilateral cleft lip and palate: the Cleft Care UK study. Part 1
England.ORCID iD: 0000-0002-2218-6446
England.
England.
England.
Show others and affiliations
2015 (English)In: Orthod Craniofac Res, Vol. 18 Suppl 2, p. 1-13Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: We describe the methodology for a major study investigating the impact of reconfigured cleft care in the United Kingdom (UK) 15 years after an initial survey, detailed in the Clinical Standards Advisory Group (CSAG) report in 1998, had informed government recommendations on centralization. SETTING AND SAMPLE POPULATION: This is a UK multicentre cross-sectional study of 5-year-olds born with non-syndromic unilateral cleft lip and palate. Children born between 1 April 2005 and 31 March 2007 were seen in cleft centre audit clinics. MATERIALS AND METHODS: Consent was obtained for the collection of routine clinical measures (speech recordings, hearing, photographs, models, oral health, psychosocial factors) and anthropometric measures (height, weight, head circumference). The methodology for each clinical measure followed those of the earlier survey as closely as possible. RESULTS: We identified 359 eligible children and recruited 268 (74.7%) to the study. Eleven separate records for each child were collected at the audit clinics. In total, 2666 (90.4%) were collected from a potential 2948 records. The response rates for the self-reported questionnaires, completed at home, were 52.6% for the Health and Lifestyle Questionnaire and 52.2% for the Satisfaction with Service Questionnaire. CONCLUSIONS: Response rates and measures were similar to those achieved in the previous survey. There are practical, administrative and methodological challenges in repeating cross-sectional surveys 15 years apart and producing comparable data.

Place, publisher, year, edition, pages
2015. Vol. 18 Suppl 2, p. 1-13
Keywords [en]
Child, Preschool, *Cleft Lip/pathology/surgery, *Cleft Palate/pathology/surgery, Cross-Sectional Studies, Female, Humans, Male, Surveys and Questionnaires, Treatment Outcome, United Kingdom, cleft lip, cleft palate
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hkr:diva-19524ISBN: 1601-6343 (Electronic) 1601-6335 (Linking) OAI: oai:DiVA.org:hkr-19524DiVA, id: diva2:1329856
Note

Persson, M Sandy, J R Waylen, A Wills, A K Al-Ghatam, R Ireland, A J Hall, A J Hollingworth, W Jones, T Peters, T J Preston, R Sell, D Smallridge, J Worthington, H Ness, A R eng RP-PG-0707-10034/Department of Health/United Kingdom Research Support, Non-U.S. Gov't England Orthod Craniofac Res. 2015 Nov;18 Suppl 2:1-13. doi: 10.1111/ocr.12104.

Available from: 2019-06-25 Created: 2019-06-25 Last updated: 2019-09-05Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

https://www.ncbi.nlm.nih.gov/pubmed/26567851

Search in DiVA

By author/editor
Persson, Martin
Medical and Health Sciences

Search outside of DiVA

GoogleGoogle Scholar

isbn
urn-nbn

Altmetric score

isbn
urn-nbn
Total: 2 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf