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Parental and health care professional views on psychosocial and educational outcomes in patients with cleft lip and/or cleft palate
Lund University.
Skåne University Hospital.
Lund University.
Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Faculty of Health Science, Research Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education.
2019 (English)In: European journal of plastic surgery, ISSN 0930-343X, E-ISSN 1435-0130, Vol. 42, no 4, p. 325-336Article in journal (Refereed) Published
Abstract [en]

Background

Earlier research has investigated psychosocial and educational issues in populations of patients with cleft identifying several areas of concern. The objective of this study was to investigate current beliefs and knowledge about psychosocial and educational issues in parents and health care professionals (HCP) of children with cleft lip and/or palate (CL/P).

Method

Parents were interviewed concerning the view of society on people with visible differences, their child’s social life, educational progress, and information regarding psychosocial care. Interviews with HCPs concerned characteristics related with educational achievement, behavior, and social relationships. Fifteen parents of children 9 to 13 years of age with CL/P and 10 HCPs and were interviewed. Data from interviews was analyzed with thematic analysis.

Results

Eight children were reported to have emotional issues related to their cleft. Eleven parents, however, did not perceive that their child was treated differently in society. HCPs expressed concerns regarding for example coping with being different, low self-esteem, shyness, disadvantage on first impression, and acceptance of themselves. A majority of the HCPs did not think patient cognition and behavioral or physical development were specifically affected.

Conclusions

The results revealed that parent experience and views were diverse—from no specific problems related to the cleft, to both emotional and educational issues. The beliefs and level of knowledge in HCPs also varied. All HCPs, however, wished for more information and training regarding psychosocial issues.

Place, publisher, year, edition, pages
2019. Vol. 42, no 4, p. 325-336
Keywords [en]
Cleft lip and/or cleft palate Educational outcomes; Psychosocial outcomes; Interview; Qualitative results
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hkr:diva-19243DOI: 10.1007/s00238-019-01530-0ISI: 000475976500002OAI: oai:DiVA.org:hkr-19243DiVA, id: diva2:1307049
Available from: 2019-04-25 Created: 2019-04-25 Last updated: 2019-08-16Bibliographically approved

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Persson, Martin
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Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskapResearch Environment PRO-CARE, Patient Reported Outcomes - Clinical Assessment Research and Education
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European journal of plastic surgery
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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
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  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
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  • text
  • asciidoc
  • rtf