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Contrasts in older persons' experiences and significant others' perceptions of existential loneliness
Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap. Kristianstad University, Research Platform for Collaboration for Health. Malmö University.
Kristianstad University, Research Platform for Collaboration for Health. Kristianstad University, Faculty of Health Science, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.ORCID iD: 0000-0003-0161-4795
Malmö University.
Malmö University.
2019 (English)In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 26, no 6, p. 1623-1637Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: As frail older people might have difficulties in expressing themselves, their needs are often interpreted by others, for example, by significant others, whose information health care staff often have to rely on. This, in turn, can put health care staff in ethically difficult situations, where they have to choose between alternative courses of action. One aspect that might be especially difficult to express is that of existential loneliness. We have only sparse knowledge about whether, and in what way, the views of frail older persons and their significant others concerning existential loneliness are in concordance.

OBJECTIVE: To contrast frail older (>75) persons' experiences with their significant others' perceptions of existential loneliness.

METHODS: A case study design was chosen for this study. Individual interviews with frail older persons (n = 15) and interviews with their significant others (n = 19), as well as field notes, served as a basis for the study. A thematic analysis was used to interpret data. Ethical considerations: This study was conducted in accordance with the principles of research ethics.

FINDINGS: The findings showed three themes: (1) Meaningless waiting in contrast to lack of activities, (2) Longing for a deeper connectedness in contrast to not participating in a social environment and (3) Restricted freedom in contrast to given up on life.

DISCUSSION: Knowledge about the tensions between older persons' and their significant others' views of existential loneliness could be of use as a basis for ethical reflections on the care of older people and in the encounter with their significant others.

CONCLUSION: It is of importance that health care professionals listen to both the frail older person and their significant other(s) and be aware of whose voice that the care given is based on, in order to provide care that is beneficial and not to the detriment of the older person.

Place, publisher, year, edition, pages
2019. Vol. 26, no 6, p. 1623-1637
Keywords [en]
Case study, existential loneliness, frail older person, significant other, thematic analysis
National Category
Nursing
Identifiers
URN: urn:nbn:se:hkr:diva-19080DOI: 10.1177/0969733018774828ISI: 000484692700005PubMedID: 29772961OAI: oai:DiVA.org:hkr-19080DiVA, id: diva2:1289962
Available from: 2019-02-19 Created: 2019-02-19 Last updated: 2019-10-15Bibliographically approved

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Larsson, Helena

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Larsson, HelenaEdberg, Anna-Karin
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Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskapResearch Platform for Collaboration for Health
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