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Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff
Kristianstad University, School of Health and Society, Avdelningen för Sjuksköterskeutbildningarna. Kristianstad University, Research Platform for Collaboration for Health.ORCID iD: 0000-0002-7790-6906
Lund University.
Lund University.
Ersta Sköndal Bräcke University College.
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2017 (English)In: BMC Palliative Care, ISSN 1472-684X, E-ISSN 1472-684X, Vol. 16, no 1, 49Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context.

METHODS: Swedish versions of IPOS Patient and IPOS Staff were developed and culturally adapted using recommended guidelines including cognitive interviews with patients (n = 13) and staff (n = 15) from different care contexts including general and specialised palliative care.

RESULTS: The comprehension and judgement difficulties identified in the pre-final patient and staff versions were successfully solved during the cognitive interviewing process. IPOS was well accepted by both patients and staff, none of the questions were experienced as inappropriate, and all questions were judged important.

CONCLUSIONS: In this study, we translated and culturally adapted the patient and staff versions of IPOS, and demonstrated face and content validity and acceptability of the scale through cognitive interviewing with patients and staff within residential care facility, surgical and specialised palliative home care units. Cognitive interviewing in parallel with patients and staff in rounds, with tentative analysis in between, was a suitable method for identifying and solving challenges with comprehension and evaluation in the pre-final version of IPOS. The Swedish IPOS is now available for use in a variety of clinical care settings.

Place, publisher, year, edition, pages
2017. Vol. 16, no 1, 49
Keyword [en]
Cognitive interviewing, IPOS, Outcome measurement, Palliative care, Patient-reported outcome measures, Validity
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:hkr:diva-17263DOI: 10.1186/s12904-017-0232-xISI: 000410356000001PubMedID: 28893215OAI: oai:DiVA.org:hkr-17263DiVA: diva2:1141310
Available from: 2017-09-14 Created: 2017-09-14 Last updated: 2017-09-28Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
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  • vancouver
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Language
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Output format
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