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Striking a Balance: a qualitative study of next of kin participation in the care of older persons in nursing homes in Sweden
Linnaeus University.
Lund University.
Malmö University.
Linnaeus University.
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2018 (English)In: Healthcare (Basel, Switzerland), ISSN 2227-9032, Vol. 6, no 2, article id E46Article in journal (Refereed) Published
Abstract [en]

Most of the care in nursing homes is palliative in nature, as it is the oldest and the frailest people who live in nursing homes. The aim of this study was to explore next of kin's experiences of participating in the care of older persons at nursing homes. A qualitative design was used, based on semi-structured interviews with 40 next of kin, and analyzed using qualitative content analysis. An overarching theme emerged, a balancing act consisting of three categories: (1) visiting the nursing home; (2) building and maintaining relationships; and (3) gathering and conveying information. The next of kin have to balance their own responsibility for the older person's wellbeing by taking part in their care and their need to leave the responsibility to the staff due to critical health conditions. The next of kin wanted to participate in care meetings and conversations, not only in practical issues. The findings indicate the need to improve the next of kin's participation in the care as an equal partner. Increased knowledge about palliative care and decision-making of limiting life-prolonging treatment may lead to a higher quality of care.

Place, publisher, year, edition, pages
2018. Vol. 6, no 2, article id E46
Keywords [en]
end-of-life care, family member, involvement, life-limiting disease, next of kin, palliative care, participation, relatives, sheltered housing, significant others
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:hkr:diva-19070DOI: 10.3390/healthcare6020046PubMedID: 29751660OAI: oai:DiVA.org:hkr-19070DiVA, id: diva2:1288858
Available from: 2019-02-14 Created: 2019-02-14 Last updated: 2019-03-05Bibliographically approved

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf