hkr.sePublikationer
Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
To promote health in children with experience of cancer treatment
Högskolan Kristianstad, Fakulteten för hälsovetenskap, Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO). Högskolan Kristianstad, Fakulteten för hälsovetenskap, Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap.ORCID-id: 0000-0002-5586-3810
2016 (Engelska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Ort, förlag, år, upplaga, sidor
School of Health and Welfare , 2016.
Nationell ämneskategori
Hälsovetenskaper Omvårdnad
Identifikatorer
URN: urn:nbn:se:hkr:diva-18549ISBN: 978-91-85835-65-2 (tryckt)OAI: oai:DiVA.org:hkr-18549DiVA, id: diva2:1239779
Tillgänglig från: 2018-08-29 Skapad: 2018-08-17 Senast uppdaterad: 2018-08-29Bibliografiskt granskad
Delarbeten
1. Support from healthcare services during transition to adulthood: experiences of young adult survivors of pediatric cancer
Öppna denna publikation i ny flik eller fönster >>Support from healthcare services during transition to adulthood: experiences of young adult survivors of pediatric cancer
Visa övriga...
2016 (Engelska)Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 21, s. 105-112Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

PURPOSE:

Improved survival rates of pediatric cancer have drawn attention on how to best facilitate long-term follow up and transition from pediatric to adult care. The transition process is multifactorial and necessitates the joint involvement of the patient, the family and the healthcare providers. The purpose of this study was to explore the experiences of support from healthcare services during the transition from adolescence to adulthood described by young adult survivors of pediatric cancer.

METHODS:

A mixed method with a convergent parallel design was used to evaluate the experiences of receiving support from healthcare services (eg pediatric oncology and pediatric clinic) during transition from adolescence to adulthood described by young adult survivors of pediatric cancer (n = 213) in a nation wide cross-sectional survey.

RESULTS:

A quantitative assessment of the experienced extent and satisfaction of support from healthcare services to handle physical, mental and social changes to continue life after the disease showed that a majority of the participants had received insufficient support. The qualitative analysis indicated a need for equal roles in healthcare to promote participation, a need to manage and process consequences of the disease, and a need for continuous support.

CONCLUSIONS:

During transition to adulthood, there's a need for a personalized care plan that takes a holistic approach towards supporting the young cancer survivor in managing life in the best way. Identifying and handling the individual needs of pediatric cancer survivors is important for providing the resources and support required to increase the likelihood of successful transition to adulthood.

Nyckelord
Pediatric; Cancer; Survivor; Experience; Transition
Nationell ämneskategori
Hälsovetenskaper Omvårdnad
Identifikatorer
urn:nbn:se:hkr:diva-16167 (URN)10.1016/j.ejon.2016.02.008 (DOI)000373412200014 ()26952685 (PubMedID)
Tillgänglig från: 2016-10-14 Skapad: 2016-10-14 Senast uppdaterad: 2018-08-17Bibliografiskt granskad
2. 'Through my eyes': health-promoting factors described by photographs taken by children with experience of cancer treatment
Öppna denna publikation i ny flik eller fönster >>'Through my eyes': health-promoting factors described by photographs taken by children with experience of cancer treatment
2016 (Engelska)Ingår i: Child: care, health and development, ISSN 0305-1862, Vol. 42, nr 1, s. 76-86Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

BACKGROUND:

Health promotion for children with cancer should be based on the children's own needs and desires. Because there is a lack of knowledge in this area, the aim of this study was to explore what promotes health from the perspective of children with experience of cancer treatment.

METHODS:

Fifteen children between 8 and 12 years of age participated in focus groups with three children in each group. The children were given a camera and instructions to photograph subjects that promote their health. Focus group discussions were based on the photographs and the children's own description of those photographs. The analysis of focus group discussions and photographs was conducted using inductive content analysis.

RESULTS:

According to the children, health-promoting factors are defined as meaningful relationships, recreational activities and a trustful environment. Meaningful relationships include togetherness within the family, affection for pets and friendship with peers. Recreational activities include engagement in play and leisure, withdrawal for relaxation and feeling enjoyment. Trustful environment includes confidence in significant others and feeling safe.

CONCLUSIONS:

Knowledge from this study can contribute to health promotion interventions and quality improvements in the health care of children with experience of cancer treatment. Children's experiences with what promotes health in their everyday lives provide a better understanding of the type of support children prefer when promoting their own health.

Nyckelord
cancer, children's perspective, focus group, health promotion, photography
Nationell ämneskategori
Hälsovetenskaper Omvårdnad
Identifikatorer
urn:nbn:se:hkr:diva-16164 (URN)10.1111/cch.12285 (DOI)000367930300010 ()26303054 (PubMedID)
Tillgänglig från: 2016-10-14 Skapad: 2016-10-14 Senast uppdaterad: 2018-08-17Bibliografiskt granskad
3. Friendship relations from the perspective of children with experience of cancer treatment: a focus group study with a salutogenic approach
Öppna denna publikation i ny flik eller fönster >>Friendship relations from the perspective of children with experience of cancer treatment: a focus group study with a salutogenic approach
2015 (Engelska)Ingår i: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 32, nr 3, s. 153-164Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Friendships are significant to child development and health but diseases such as cancer can interrupt the contact with friends. The purpose of this study was to describe perceptions of friendship from the perspective of children undergoing cancer treatment, in order to build knowledge that can be used in a health promotion intervention for these children. Fifteen children between 8 and 12 years of age participated in focus groups, where a mixture of informative and creative techniques were used. The focus group discussions were analyzed using qualitative content analysis. The analysis resulted in three generic categories, Common interests and experiences, Mutual empathic actions. and Mutual trust and understanding, incorporating seven subcategories. Based on children's descriptions from a salutogenic perspective, friendship emerged as An equal and mutual commitment that evolves over time and with interactions face-to-face and digitally, a child perspective on friendship should be central to the development of health promotion interventions designed to support friendship relations of children treated for cancer.

Nyckelord
Cancer, child's perspective, focus group, friendship relations, health promotion
Nationell ämneskategori
Hälsovetenskaper Omvårdnad
Identifikatorer
urn:nbn:se:hkr:diva-16166 (URN)10.1177/1043454214554009 (DOI)000354845500004 ()25366576 (PubMedID)
Tillgänglig från: 2016-10-14 Skapad: 2016-10-14 Senast uppdaterad: 2018-08-17Bibliografiskt granskad
4. Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form
Öppna denna publikation i ny flik eller fönster >>Psychometric evaluation of a Swedish version of Minneapolis-Manchester quality of life-youth form and adolescent form
Visa övriga...
2013 (Engelska)Ingår i: Health and Quality of Life Outcomes, ISSN 1477-7525, E-ISSN 1477-7525, Vol. 11, nr 79Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background

It has become important to measure long-term effects and quality of life in survivors of childhood cancer. The Minneapolis- Manchester Quality of Life (MMQL) instrument has been proven to better capture the quality of life (QoL) perspective of health than other instruments. The instrument has age appropriate versions and is therefore favourable for longitudinal studies of QoL of children surviving from cancer. The aim of this study was to evaluate the psychometric properties of the Swedish version of MMQL-Youth Form and the Adolescent Form focusing on: 1) face and content validity 2) the internal consistency and 3) the test-retest reliability.

Methods

The sample consisted of 950 pupils (11–16 years old) from 7 schools in the western Sweden who completed the questionnaire. For the test-retest evaluation 230 respondents completed the questionnaire two weeks later.

Results

Face and content validity was supported and internal consistency was found to be acceptable for the total scale for both the MMQL-Youth Form (8–12 years of age) and the Adolescent Form (13–20 years of age). Test-retest reliability for the MMQL-Youth Form was moderate for 50% of the items and good for the remaining. For the MMQL-Adolescent Form the test-retest showed moderate or good agreement for 80% of the items and fair for 20%.

Conclusions

The result indicated that the Swedish version of the MMQLYouth Form and Adolescent Form was valid and reliable in a sample of healthy children in a Swedish context. It is recommended to test the instrument among diverse samples of children such as survivors of childhood cancer in order to validate its usefulness in research and clinical settings.

Nyckelord
Children, cancer, questionnaire, reliability, validity
Nationell ämneskategori
Hälsovetenskaper Omvårdnad
Identifikatorer
urn:nbn:se:hkr:diva-16165 (URN)10.1186/1477-7525-11-79 (DOI)000318731100001 ()23656858 (PubMedID)
Tillgänglig från: 2016-10-14 Skapad: 2016-10-14 Senast uppdaterad: 2018-08-17Bibliografiskt granskad

Open Access i DiVA

Fulltext saknas i DiVA

Sök vidare i DiVA

Av författaren/redaktören
Einberg, Eva-Lena
Av organisationen
Forskningsmiljön Children's and Young People's Health in Social Context (CYPHiSCO)Avdelningen för sjuksköterskeutbildningarna och integrerad hälsovetenskap
HälsovetenskaperOmvårdnad

Sök vidare utanför DiVA

GoogleGoogle Scholar

isbn
urn-nbn

Altmetricpoäng

isbn
urn-nbn
Totalt: 30 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf