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Hedin, G., Hagell, P., Norell-Clarke, A., Westergren, A. & Garmy, P. (2019). Adolescent´s experiences of sleep and electronic media use.. In: : . Paper presented at International Conference Health Conference, Oxford, 26-28 June..
Open this publication in new window or tab >>Adolescent´s experiences of sleep and electronic media use.
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2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-19305 (URN)
Conference
International Conference Health Conference, Oxford, 26-28 June.
Available from: 2019-05-15 Created: 2019-05-15 Last updated: 2019-05-15
Hedin, G., Hagell, P., Norell-Clarke, A., Westergren, A. & Garmy, P. (2019). Adolescent´s experiences of sleep and electronic media use.. In: : . Paper presented at Adolescens Health Initiative, Michigan, Detroit, 11-12 april..
Open this publication in new window or tab >>Adolescent´s experiences of sleep and electronic media use.
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2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-19301 (URN)
Conference
Adolescens Health Initiative, Michigan, Detroit, 11-12 april.
Available from: 2019-05-15 Created: 2019-05-15 Last updated: 2019-05-15
Winzell, C., Pendrill, L., Felin, A., Melin, J., Nilsson, E., Westergren, A., . . . Hagqvist, C. (2019). Jämförelser kräver kvalitetssäkrad mätteknik.. Dagens Medicin, debatt
Open this publication in new window or tab >>Jämförelser kräver kvalitetssäkrad mätteknik.
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2019 (Swedish)In: Dagens Medicin, debattArticle in journal, News item (Other (popular science, discussion, etc.)) Published
National Category
Medical and Health Sciences Probability Theory and Statistics
Identifiers
urn:nbn:se:hkr:diva-19314 (URN)
Available from: 2019-05-15 Created: 2019-05-15 Last updated: 2019-05-15
Hagell, P., Alvariza, A., Westergren, A. & Kristofer, Å. (2017). Assessment of burden among family caregivers of people with Parkinson’s disease using the Zarit Burden Interview. Journal of Pain and Symptom Management, 53(2), 272-278
Open this publication in new window or tab >>Assessment of burden among family caregivers of people with Parkinson’s disease using the Zarit Burden Interview
2017 (English)In: Journal of Pain and Symptom Management, ISSN 0885-3924, E-ISSN 1873-6513, Vol. 53, no 2, p. 272-278Article in journal (Refereed) Published
Abstract [en]

Context: Previous studies have supported the psychometric properties of the 22-item Zarit Burden Interview (ZBI-22) scale among family caregivers of people with various disorders, including Parkinson´s disease (PD). However, its short-forms have not been psychometrically tested among PD family caregivers, and available psychometric analyses have not accounted for the ordinal nature of item-level data.

Objectives: To assess the psychometric properties of the ZBI-22 and its short forms among family caregivers of people with PD, while taking account for the ordinal nature of data.

Methods: Cross-sectional postal survey ZBI-22 data from 66 family caregiver members (59% women; mean age, 69.6 years) of a local Swedish PD society branch were analysed according to classical test theory methods based on polychoric/polyserial correlations.

Results: Missing item responses were ≤5%. Corrected item-total correlations were ≥0.42 and floor-/ceiling effects were <20%, besides for the briefest (4- and 1-item) short-forms (20% and 40% floor effects, respectively). Reliability was good for all scales (ordinal alpha, 0.89-0.95).  External construct validity was in general accordance with a priori expectations. Short-forms demonstrated good criterion-related validity (rs 0.87-0.99) and discriminative ability (AUC, 0.91-0.98) relative to the full ZBI-22.

Conclusion: This study provides support for the reliability and validity of the ZBI-22 and its various short forms for use among PD family caregivers. In studies where caregiver burden is a central outcome, either ZBI-22 or -12 is suggested for use; other short-forms can be used when caregiver burden is of less central focus or for clinical screening.

Keywords
Burden, family caregivers, Parkinson disease, psychometrics, validation
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-15972 (URN)10.1016/j.jpainsymman.2016.09.007 (DOI)000397118300018 ()27810571 (PubMedID)
Funder
Swedish Research Council
Available from: 2016-09-14 Created: 2016-09-14 Last updated: 2017-08-11Bibliographically approved
Rosqvist, K., Hagell, P., Odin, P., Ekström, H., Iwarsson, S. & Nilsson, M. H. (2017). Factors associated with life satisfaction in Parkinson's disease. Acta Neurologica Scandinavica, 136(1), 64-71
Open this publication in new window or tab >>Factors associated with life satisfaction in Parkinson's disease
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2017 (English)In: Acta Neurologica Scandinavica, ISSN 0001-6314, E-ISSN 1600-0404, Vol. 136, no 1, p. 64-71Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: To identify factors associated with life satisfaction (LS) in people with Parkinson's disease (PD), including a specific focus on those with late-stage PD.

MATERIAL AND METHODS: The study included 251 persons with PD (median age 70 years; PD duration 8 years). Analyses involved the total sample and a subsample with late-stage PD, that is Hoehn and Yahr stages IV and V (n=62). LS was assessed with item 1 of the Life Satisfaction Questionnaire (LiSat-11). Simple logistic regression analyses were performed for both the total sample and for the subsample with late-stage PD. For the total sample, a multivariable logistic regression analysis was also performed.

RESULTS: In the total sample, 12 of the 20 independent variables were significantly associated with LS: need of help with ADL; walking difficulties; number of non-motor symptoms (NMS); fatigue; depressive symptoms; general self-efficacy; motor symptoms; pain; PD severity; freezing episodes; gender (woman); and fluctuations. When controlling for age and gender in the multivariable logistic regression model, depressive symptoms were negatively associated with high LS and general self-efficacy was positively associated with high LS. In late-stage PD, simple logistic regression analyses (controlling for age and gender) identified the following factors as associated with LS: number of NMS, general self-efficacy, walking difficulties and fatigue.

CONCLUSIONS: This study provides new knowledge on factors associated with LS in a PD sample, including those with late-stage PD. As the ultimate goal for PD care should be improvement in LS, the results have direct clinical implication.

Keywords
LiSat-11, Parkinson's disease, associated factors, depressive symptoms, general self-efficacy, late-stage, life satisfaction
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-16218 (URN)10.1111/ane.12695 (DOI)000402646200010 ()27726132 (PubMedID)
Funder
Swedish Research Council, CLaSP/JPND HC-559-002Swedish Research Council, 2012-2809Swedish Research Council, 521-2012-2809Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2016-10-27 Created: 2016-10-27 Last updated: 2017-08-01Bibliographically approved
Persson, C. U., Linder, A. & Hagell, P. (2017). Measurement properties of the Swedish modified version of the Postural Assessment Scale for Stroke Patients (SwePASS) using Rasch analysis. European Journal of Physical and Rehabilitation Medicine, 53(6), 848-855
Open this publication in new window or tab >>Measurement properties of the Swedish modified version of the Postural Assessment Scale for Stroke Patients (SwePASS) using Rasch analysis
2017 (English)In: European Journal of Physical and Rehabilitation Medicine, ISSN 1973-9087, E-ISSN 1973-9095, Vol. 53, no 6, p. 848-855Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: A previous small-sample (n=150) Rasch analysis of the Swedish modified version of the Postural Assessment Scale for Stroke Patients (SwePASS) suggested problems regarding response categories and redundant items that need confirmation in larger samples with more severe strokes.

AIM: To evaluate the measurement properties of the SwePASS in patients with acute stroke.

DESIGN: A multicentre, cross-sectional study.

SETTING: Two stroke units in Western Sweden.

POPULATION: The study cohort included 250 consecutive inpatients undergoing rehabilitation after acute stroke.

METHODS: The SwePASS assessments were performed once within the first four days after admission to the stroke units. The data were analysed according to the Rasch measurement model regarding targeting, model fit, reliability, response category function, local dependence and differential item functioning.

RESULTS: Postural control of 250 patients (median age, 76.5 years) was assessed with the SwePASS within median of two days after admission to the stroke units. The SwePASS covered a continuum of different levels of postural control, but had suboptimal targeting with insufficient representation of lower and higher levels of postural control. The reliability was high, the item fit statistics were generally acceptable and there was no differential item functioning by sex, age and stroke localization. However, response categories did not function as expected for four of the 12 SwePASS items and five items exhibited local dependency.

CONCLUSIONS: The SwePASS exhibited several promising measurement properties. To improve the scale, poor targeting, illogical response categories and local dependency should be addressed.

CLINICAL REHABILITATION IMPACT: The SwePASS provides valuable clinical information regarding postural control in the acute phase after stroke.

National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-16788 (URN)10.23736/S1973-9087.17.04607-X (DOI)000419258700004 ()28497929 (PubMedID)
Available from: 2017-05-24 Created: 2017-05-24 Last updated: 2018-01-18Bibliographically approved
Garmy, P., Berg, A., Clausson, E., Hagell, P. & Jakobsson, U. (2017). Psychometric analysis of the Salutogenic Health Indicator Scale (SHIS) in adolescents. Scandinavian Journal of Public Health, 45(3), 253-259
Open this publication in new window or tab >>Psychometric analysis of the Salutogenic Health Indicator Scale (SHIS) in adolescents
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2017 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 45, no 3, p. 253-259Article in journal (Refereed) Published
Abstract [en]

Aim: The aim of this study was to test the psychometric properties of the Salutogenic Health Indicator Scale (SHIS) in an adolescent population. Methods: The investigation was performed among Swedish students aged 13–15 years (n = 817; 58% girls). The SHIS was assessed for respondent acceptability, and its psychometric properties were evaluated according to classical test theory (regarding unidimensionality, targeting, reliability, and external construct validity). Results: The adolescents found it easy to complete the questionnaire, which was completed in an average of 4 minutes. Exploratory factor analysis, which is based on polychoric correlations, identified one factor, supporting the instrument’s unidimensionality. Floor/ceiling effects were ⩽ 3.3%. Reliability estimates yielded a Cronbach’s alpha value of 0.93; the test–retest reliability (n = 50; 2-week interval) coefficients were 0.89 for the total SHIS score and 0.52–0.79 for item scores. Spearman correlations with other variables were based on a priori expectations (self-rated general health, 0.595; depressive symptoms, −0.773; anxiety, −0.577; and sleep problems, 0.519). Conclusions: Our observations support both the acceptability and the psychometric properties of the SHIS as a brief, unidimensional assessment tool for salutogenic health in adolescents. Further studies using modern test theory are needed to better understand the measurement properties of the SHIS, including the functioning of its response categories and its comparability between adolescents and adults.

Keywords
Psychometric evaluation, adolescents, salutogenic health indicator scale
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-16640 (URN)10.1177/1403494816680801 (DOI)000400160200007 ()27940537 (PubMedID)
Funder
Sven Jerring FoundationMarcus and Amalia Wallenberg FoundationThe Crafoord Foundation
Available from: 2017-04-26 Created: 2017-04-26 Last updated: 2017-11-06Bibliographically approved
Garmy, P., Berg, A., Clausson, E., Hagell, P. & Jakobsson, U. (2017). Salutogent frågeformulär för ungdomar. In: : . Paper presented at Skolsköterskornas kongress, Göteborg.
Open this publication in new window or tab >>Salutogent frågeformulär för ungdomar
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2017 (Swedish)Conference paper, Poster (with or without abstract) (Other academic)
Abstract [sv]

Våra observationer stöder både acceptansen och de psykometriska egenskaperna för SHIS som ett kort, en-dimensionellt frågeformulär för att mäta salutogen hälsa hos ungdomar.

National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-17440 (URN)
Conference
Skolsköterskornas kongress, Göteborg
Available from: 2017-10-12 Created: 2017-10-12 Last updated: 2017-10-17Bibliographically approved
Timpka, J., Svensson, J., Nilsson, M. H., Pålhagen, S., Hagell, P. & Odin, P. (2017). Workforce unavailability in Parkinson's disease. Acta Neurologica Scandinavica, 135(3), 332-338
Open this publication in new window or tab >>Workforce unavailability in Parkinson's disease
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2017 (English)In: Acta Neurologica Scandinavica, ISSN 0001-6314, E-ISSN 1600-0404, Vol. 135, no 3, p. 332-338Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: Individuals with Parkinson's disease (PD) become unavailable in the workforce earlier than comparable members of the general population. This may result in significant social insurance expenses, but as workforce participation can be a source for social interaction and a vital part of the personal identity, there are likely to be personal implications extending far beyond the economic aspects. This study aimed to identify aspects that may contribute to workforce unavailability in people with PD.

MATERIALS & METHODS: This was a cross-sectional registry study using data from the Swedish national quality registry for PD and included persons with PD in Skåne County, Sweden who were younger than 65 years. Variables were selected from the registry based on earlier studies and clinical experience and were tested for association with unavailability in the workforce: first in a series of simple regression analyses and then in a multiple logistic regression analysis.

RESULTS: A total of 99 persons with PD-of whom 59 were available and 40 were unavailable in the workforce-were included in the study. Age (OR per year: 1.47, 95% CI: 1.18-1.85; P < 0.01) and anxiety (OR: 6.81, 95% CI: 1.20-38.67; P = 0.03) were significant contributing factors for unavailability in the workforce.

CONCLUSIONS: Based on the findings in this exploratory study, anxiety-a potentially modifiable factor-and age may be contributing factors for workforce unavailability in PD. However, prospective studies are warranted to confirm the findings and the causation of the association between anxiety and workforce unavailability needs to be clarified.

Keywords
Anxiety, employment, Parkinson’s disease, registries, retirement, sick leave
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-15399 (URN)10.1111/ane.12602 (DOI)000397285600009 ()27072284 (PubMedID)
Available from: 2016-04-15 Created: 2016-04-15 Last updated: 2017-11-13Bibliographically approved
Westergren, A., Hagell, P., Wendin, K. & Sjödahl Hammarlund, C. (2016). Conceptual relationships between the ICF and experiences of mealtimes and related tasks among persons with Parkinson’s disease. Nordic journal of nursing research, 36(4), 201-208
Open this publication in new window or tab >>Conceptual relationships between the ICF and experiences of mealtimes and related tasks among persons with Parkinson’s disease
2016 (English)In: Nordic journal of nursing research, ISSN 2057-1585, E-ISSN 2057-1593, Vol. 36, no 4, p. 201-208Article in journal (Refereed) Published
Abstract [en]

The aim was to investigate experiences of mealtimes and related tasks among people with Parkinson’s disease (PD) and to link these conceptually to the International Classification of Functioning, Disability and Health (ICF). Data were collected by use of semi-structured interviews of 19 people with PD. Inductive content analysis resulted in five categories: 1) Managing mealtime preparations and related tasks, 2) Compromised physical control, 3) Difficulties enjoying meals, 4) Difficulties eating together with others, and 5) Strategies to maintain conventional norms and independence. Deductive content analysis linked the categories to the ICF categories: body functions (mental, sensory, neuromusculoskeletal and movement-related functions); activities (self-determination and chores); participation (interpersonal interactions and relationships); and environmental factors (conventional norms, attitudes of friends and strangers). Emotional and involuntary movement functions were represented in all five inductively derived categories. Eating difficulties may have negative consequences on participation and the emotional wellbeing of people with Parkinson’s disease.

Keywords
content analysis, cooking, eating difficulties, ICF, mealtime, Parkinson’s disease
National Category
Nursing
Identifiers
urn:nbn:se:hkr:diva-15373 (URN)10.1177/2057158516642386 (DOI)
Funder
Swedish Research CouncilVårdal Foundation
Available from: 2016-04-05 Created: 2016-04-05 Last updated: 2017-11-30Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-2174-372X

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