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Bolejko, A. & Hagell, P. (2021). Effects of an information booklet on patient anxiety and satisfaction with information in magnetic resonance imaging: a randomized, single-blind, placebo-controlled trial. Radiography, 27(1), 162-167
Open this publication in new window or tab >>Effects of an information booklet on patient anxiety and satisfaction with information in magnetic resonance imaging: a randomized, single-blind, placebo-controlled trial
2021 (English)In: Radiography, ISSN 1078-8174, E-ISSN 1532-2831, Vol. 27, no 1, p. 162-167Article in journal (Refereed) Published
Abstract [en]

Introduction: Magnetic resonance imaging (MRI) is an important modality in diagnostics and treatment follow-up. However, MRI can be perceived as unpleasant even though the examination is non-invasive. Patients' knowledge of the MRI procedure is usually scarce, which may enhance patient anxiety at ex- amination. We investigated the effects on anxiety and satisfaction with an information booklet on MRI compared to a placebo booklet delivered to adult patients prior to their first MRI examination. Methods: This randomized, single-blind, placebo-controlled trial included 197 patients. The intervention group (n 1⁄4 95) received a booklet about MRI prior to the examination, whereas the control group (n 1⁄4 102) received a placebo booklet of the same size and layout but containing general information. The State Trait Anxiety Inventory with supplementary questions from the Quality from the Patient's Perspective questionnaire were used as patient-reported outcome measures.Results: Anxiety did not differ between the groups, either prior to MRI or during the examination, but those who received the placebo booklet were at higher risk of experiencing high anxiety prior to the MRI examination (odds ratio 2.64; P 1⁄4 0.029). The intervention group was more satisfied with the infor- mation received (P 1⁄4 0.044), and a majority of participants in both groups (!87%) considered it important to obtain information on the MRI procedure.Conclusion: Written MRI information decreases the risk of high anxiety levels before MRI and improves patient satisfaction with the information. Further research is needed to investigate whether written information prior to MRI is beneficial not only from the perspective of the patient but may also be cost- effective.Implications for practice: Written MRI information prior to the examination is recommended in radiog- raphy care.

National Category
Health Sciences Radiology, Nuclear Medicine and Medical Imaging
Identifiers
urn:nbn:se:hkr:diva-21261 (URN)10.1016/j.radi.2020.07.011 (DOI)000608396600026 ()32753258 (PubMedID)
Available from: 2020-10-07 Created: 2020-10-07 Last updated: 2021-02-11Bibliographically approved
Lindholm, B., Brogårdh, C., Odin, P. & Hagell, P. (2021). Longitudinal prediction of falls and near falls frequencies in Parkinson's disease: a prospective cohort study. Journal of Neurology, 268(3), 997-1005
Open this publication in new window or tab >>Longitudinal prediction of falls and near falls frequencies in Parkinson's disease: a prospective cohort study
2021 (English)In: Journal of Neurology, ISSN 0340-5354, E-ISSN 1432-1459, Vol. 268, no 3, p. 997-1005Article in journal (Refereed) Published
Abstract [en]

INTRODUCTION AND OBJECTIVE: Several prediction models for falls/near falls in Parkinson's disease (PD) have been proposed. However, longitudinal predictors of frequency of falls/near falls are poorly investigated. Therefore, we aimed to identify short- and long-term predictors of the number of falls/near falls in PD.

METHODS: A prospective cohort of 58 persons with PD was assessed at baseline (mean age and PD duration, 65 and 3.2 years, respectively) and 3.5 years later. Potential predictors were history of falls and near falls, comfortable gait speed, freezing of gate, dyskinesia, retropulsion, tandem gait (TG), pain, and cognition (Mini-Mental State Exam, MMSE). After each assessment, the participants registered a number of falls/near falls during the following 6 months. Multivariate Poisson regression was used to identify short- and long-term predictors of a number of falls/near falls.

RESULTS: Baseline median (q1-q3) motor (UPDRS) and MMSE scores were 10 (6.75-14) and 28.5 (27-29), respectively. History of falls was the only significant short-time predictor [incidence rate ratio (IRR), 15.17] for the number of falls/near falls during 6 months following baseline. Abnormal TG (IRR, 3.77) and lower MMSE scores (IRR, 1.17) were short-term predictors 3.5 years later. Abnormal TG (IRR, 7.79) and lower MMSE scores (IRR, 1.49) at baseline were long-term predictors of the number of falls/near falls 3.5 years later.

CONCLUSION: Abnormal TG and MMSE scores predict the number of falls/near falls in short and long term, and may be indicative of disease progression. Our observations provide important additions to the evidence base for clinical fall prediction in PD.

Keywords
Cognition, Falls/near falls, Parkinson’s disease, Prediction, Tandem gait
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-21233 (URN)10.1007/s00415-020-10234-6 (DOI)000572620700001 ()32970193 (PubMedID)
Funder
Parkinsonfonden
Available from: 2020-10-01 Created: 2020-10-01 Last updated: 2021-03-12Bibliographically approved
Timpka, J., Odin, P. & Hagell, P. (2020). Apomorphine in Parkinson’s disease: 4th edition (4ed.). Bremen: UNI-MED Verlag AG
Open this publication in new window or tab >>Apomorphine in Parkinson’s disease: 4th edition
2020 (English)Book (Other academic)
Abstract [en]

Apomorphine is one of the oldest and, at the same time, most potent drugs for the treatment of Parkinson s disease. Its use was for decades inhibited by the occurrence of dopaminergic side effects and the lack of practical equipment for its delivery. But we learned how to reduce the side effects of apomorphine. And the subsequent development of suitable injection pens and portable pumps has made apomorphine a practically useful therapeutic option.With the fourth edition of this book, the authors give a compact and comprehensible overview of apomorphine in Parkinson s disease and practical guidelines for its use associated with the hope that this fascinating drug and excellent therapy can be made available to more Parkinson patients.

Place, publisher, year, edition, pages
Bremen: UNI-MED Verlag AG, 2020. p. 96 Edition: 4
National Category
Neurology Health Sciences
Identifiers
urn:nbn:se:hkr:diva-21262 (URN)978-3-8374-1580-3 (ISBN)
Available from: 2020-10-08 Created: 2020-10-08 Last updated: 2020-10-08Bibliographically approved
Sharratt, N. D., Agius, J. C., Davies, G., Mehendale, F. V., Hagell, P. & Persson, M. (2020). Equality in cleft and craniofacial care. Plastic and Aesthetic Research, 7, Article ID 35.
Open this publication in new window or tab >>Equality in cleft and craniofacial care
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2020 (English)In: Plastic and Aesthetic Research, ISSN 2347-9264, Vol. 7, article id 35Article in journal (Refereed) Published
Abstract [en]

This review examines the issue of equality of care amongst those with cleft lip and/or palate in the European Union (EU) and beyond. Issues of equality both between and within national populations are considered, and it is argued that those from countries with smaller healthcare expenditure and who are from marginalised groups are at the greatest risk of, and affected most severely by, healthcare inequalities. The socioeconomic impact of inequality is also discussed. Having reviewed these topics, the goals and activities of the European Cleft and Craniofacial Initiative for Equality in Care Action, formed pursuant to an award from the EU’s European Cooperation in Science and Technology, are introduced. Constituted of an open network of clinicians and researchers committed to exploring and reducing such inequalities, the ongoing Action is formed of multiple working groups examining these issues within the EU and has organised training schools, conferences and short-term scientific missions concerned with these issues. These activities are discussed along with the future directions of the Action, the impact it has had to date and the benefits of the European Cooperation in Science and Technology award.

Keywords
Cleft; craniofacial; equality; care; healthcare; Europe
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-20926 (URN)10.20517/2347-9264.2020.99 (DOI)
Available from: 2020-07-20 Created: 2020-07-20 Last updated: 2020-10-28Bibliographically approved
Hedin, G., Hagell, P., Tönnesen, H., Norell-Clarke, A., Westergren, A. & Garmy, P. (2020). Teenagers' views of a good night's sleep. In: : . Paper presented at Sömn - i hälsans frontlinje, 12-14 feb 2020, Malmö.
Open this publication in new window or tab >>Teenagers' views of a good night's sleep
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2020 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-20509 (URN)
Conference
Sömn - i hälsans frontlinje, 12-14 feb 2020, Malmö
Available from: 2020-03-26 Created: 2020-03-26 Last updated: 2020-03-27Bibliographically approved
Hedin, G., Hagell, P., Norell-Clarke, A., Westergren, A. & Garmy, P. (2019). Adolescent´s experiences of sleep and electronic media use. In: : . Paper presented at Adolescens Health Initiative, Michigan, Detroit, 11-12 april.
Open this publication in new window or tab >>Adolescent´s experiences of sleep and electronic media use
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2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-19301 (URN)
Conference
Adolescens Health Initiative, Michigan, Detroit, 11-12 april
Available from: 2019-05-15 Created: 2019-05-15 Last updated: 2019-08-27Bibliographically approved
Hedin, G., Hagell, P., Norell-Clarke, A., Westergren, A. & Garmy, P. (2019). Adolescent´s experiences of sleep and electronic media use. In: : . Paper presented at International Conference Health Conference, Oxford, 26-28 June..
Open this publication in new window or tab >>Adolescent´s experiences of sleep and electronic media use
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2019 (English)Conference paper, Poster (with or without abstract) (Refereed)
Abstract
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-19305 (URN)
Conference
International Conference Health Conference, Oxford, 26-28 June.
Available from: 2019-05-15 Created: 2019-05-15 Last updated: 2020-08-30Bibliographically approved
Winzell, C., Pendrill, L., Felin, A., Melin, J., Nilsson, E., Westergren, A., . . . Hagqvist, C. (2019). Jämförelser kräver kvalitetssäkrad mätteknik. Dagens Medicin, debatt
Open this publication in new window or tab >>Jämförelser kräver kvalitetssäkrad mätteknik
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2019 (Swedish)In: Dagens Medicin, debattArticle in journal, News item (Other (popular science, discussion, etc.)) Published
National Category
Medical and Health Sciences Probability Theory and Statistics
Identifiers
urn:nbn:se:hkr:diva-19314 (URN)
Available from: 2019-05-15 Created: 2019-05-15 Last updated: 2019-09-04Bibliographically approved
Hagell, P., Alvariza, A., Westergren, A. & Kristofer, Å. (2017). Assessment of burden among family caregivers of people with Parkinson’s disease using the Zarit Burden Interview. Journal of Pain and Symptom Management, 53(2), 272-278
Open this publication in new window or tab >>Assessment of burden among family caregivers of people with Parkinson’s disease using the Zarit Burden Interview
2017 (English)In: Journal of Pain and Symptom Management, ISSN 0885-3924, E-ISSN 1873-6513, Vol. 53, no 2, p. 272-278Article in journal (Refereed) Published
Abstract [en]

Context: Previous studies have supported the psychometric properties of the 22-item Zarit Burden Interview (ZBI-22) scale among family caregivers of people with various disorders, including Parkinson´s disease (PD). However, its short-forms have not been psychometrically tested among PD family caregivers, and available psychometric analyses have not accounted for the ordinal nature of item-level data.

Objectives: To assess the psychometric properties of the ZBI-22 and its short forms among family caregivers of people with PD, while taking account for the ordinal nature of data.

Methods: Cross-sectional postal survey ZBI-22 data from 66 family caregiver members (59% women; mean age, 69.6 years) of a local Swedish PD society branch were analysed according to classical test theory methods based on polychoric/polyserial correlations.

Results: Missing item responses were ≤5%. Corrected item-total correlations were ≥0.42 and floor-/ceiling effects were <20%, besides for the briefest (4- and 1-item) short-forms (20% and 40% floor effects, respectively). Reliability was good for all scales (ordinal alpha, 0.89-0.95).  External construct validity was in general accordance with a priori expectations. Short-forms demonstrated good criterion-related validity (rs 0.87-0.99) and discriminative ability (AUC, 0.91-0.98) relative to the full ZBI-22.

Conclusion: This study provides support for the reliability and validity of the ZBI-22 and its various short forms for use among PD family caregivers. In studies where caregiver burden is a central outcome, either ZBI-22 or -12 is suggested for use; other short-forms can be used when caregiver burden is of less central focus or for clinical screening.

Keywords
Burden, family caregivers, Parkinson disease, psychometrics, validation
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-15972 (URN)10.1016/j.jpainsymman.2016.09.007 (DOI)000397118300018 ()27810571 (PubMedID)
Funder
Swedish Research Council
Available from: 2016-09-14 Created: 2016-09-14 Last updated: 2017-08-11Bibliographically approved
Rosqvist, K., Hagell, P., Odin, P., Ekström, H., Iwarsson, S. & Nilsson, M. H. (2017). Factors associated with life satisfaction in Parkinson's disease. Acta Neurologica Scandinavica, 136(1), 64-71
Open this publication in new window or tab >>Factors associated with life satisfaction in Parkinson's disease
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2017 (English)In: Acta Neurologica Scandinavica, ISSN 0001-6314, E-ISSN 1600-0404, Vol. 136, no 1, p. 64-71Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: To identify factors associated with life satisfaction (LS) in people with Parkinson's disease (PD), including a specific focus on those with late-stage PD.

MATERIAL AND METHODS: The study included 251 persons with PD (median age 70 years; PD duration 8 years). Analyses involved the total sample and a subsample with late-stage PD, that is Hoehn and Yahr stages IV and V (n=62). LS was assessed with item 1 of the Life Satisfaction Questionnaire (LiSat-11). Simple logistic regression analyses were performed for both the total sample and for the subsample with late-stage PD. For the total sample, a multivariable logistic regression analysis was also performed.

RESULTS: In the total sample, 12 of the 20 independent variables were significantly associated with LS: need of help with ADL; walking difficulties; number of non-motor symptoms (NMS); fatigue; depressive symptoms; general self-efficacy; motor symptoms; pain; PD severity; freezing episodes; gender (woman); and fluctuations. When controlling for age and gender in the multivariable logistic regression model, depressive symptoms were negatively associated with high LS and general self-efficacy was positively associated with high LS. In late-stage PD, simple logistic regression analyses (controlling for age and gender) identified the following factors as associated with LS: number of NMS, general self-efficacy, walking difficulties and fatigue.

CONCLUSIONS: This study provides new knowledge on factors associated with LS in a PD sample, including those with late-stage PD. As the ultimate goal for PD care should be improvement in LS, the results have direct clinical implication.

Keywords
LiSat-11, Parkinson's disease, associated factors, depressive symptoms, general self-efficacy, late-stage, life satisfaction
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-16218 (URN)10.1111/ane.12695 (DOI)000402646200010 ()27726132 (PubMedID)
Funder
Swedish Research Council, CLaSP/JPND HC-559-002Swedish Research Council, 2012-2809Swedish Research Council, 521-2012-2809Forte, Swedish Research Council for Health, Working Life and Welfare
Available from: 2016-10-27 Created: 2016-10-27 Last updated: 2017-08-01Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0003-2174-372X

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