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Publications (10 of 27) Show all publications
Olsson Möller, U., Pranter, C., Hagelin, C. L., Beck, I., Malmström, M., Fürst, C. J. & Rasmussen, B. H. (2019). Using cards to facilitate conversations about wishes and priorities of patients in palliative care. Journal of Hospice and Palliative Nursing
Open this publication in new window or tab >>Using cards to facilitate conversations about wishes and priorities of patients in palliative care
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2019 (English)In: Journal of Hospice and Palliative Nursing, ISSN 1522-2179, E-ISSN 1539-0705Article in journal (Refereed) Epub ahead of print
Abstract [en]

To avoid discomfort, health care professionals may hesitate to pursue conversations about end of life with patients. Certain tools have the potential to facilitate smoother conversations in this matter. The objective was to explore the experiences of patients in palliative care in using statement cards to talk about their wishes and priorities. Forty-six cards with statements of wishes and priorities were developed and tested for feasibility with 40 participants, who chose the 10 most important cards and shared their thoughts about the statements and conversation. Data from individual interviews and field notes were analyzed using content analysis. One category describes practical aspects of using the cards including the relevance of the content and the process of sorting the cards. The second category describes the significance of using the cards including becoming aware of what is important, sharing wishes and priorities, and reflecting on whether wishes and priorities change closer to death. The cards helped raise awareness and verbalize wishes and priorities. All statements were considered relevant. The conversations focused not only on death and dying, but also on challenges in the participants' current life situation. For the most ill and frail participants, the number of cards needs to be reduced.

National Category
Nursing
Identifiers
urn:nbn:se:hkr:diva-20153 (URN)10.1097/NJH.0000000000000607 (DOI)31770159 (PubMedID)
Note

Forskningsfinansiär: Kamprad Family Foundation and Mats Paulsson Foundation, Sweden.

Available from: 2019-12-10 Created: 2019-12-10 Last updated: 2019-12-10Bibliographically approved
Sjöberg, M., Beck, I., Rasmussen, B. H. & Edberg, A.-K. (2018). Being disconnected from life: meanings of existential loneliness as narrated by frail older people. Aging & Mental Health, 22(10), 1357-1364
Open this publication in new window or tab >>Being disconnected from life: meanings of existential loneliness as narrated by frail older people
2018 (English)In: Aging & Mental Health, ISSN 1360-7863, E-ISSN 1364-6915, Vol. 22, no 10, p. 1357-1364Article in journal (Refereed) Published
Abstract [en]

OBJECTIVES: This study illuminated the meanings of existential loneliness (EL) as narrated by frail older people.

METHOD: Data were collected through individual narrative interviews with 23 people 76-101 years old receiving long-term care and services. A phenomenological hermeneutical analysis was performed, including a naïve reading and two structural analyses as a basis for a comprehensive understanding of EL.

RESULT: Four themes were identified related to meanings of EL: (1) being trapped in a frail and deteriorating body; (2) being met with indifference; (3) having nobody to share life with; and (4) lacking purpose and meaning. These intertwined themes were synthesized into a comprehensive understanding of EL as 'being disconnected from life'.

CONCLUSION: Illness and physical limitation affects access to the world. When being met with indifference and being unable to share one's thoughts and experiences of life with others, a sense of worthlessness is reinforced, triggering an experience of meaninglessness and EL, i.e. disconnection from life. It is urgent to develop support strategies that can be used by health care professionals to address older people in vulnerable situations, thereby facilitating connectedness.

Keywords
Existential loneliness, frail, interviews, older people, phenomenological hermeneutical method
National Category
Health Sciences
Identifiers
urn:nbn:se:hkr:diva-17090 (URN)10.1080/13607863.2017.1348481 (DOI)000455491500016 ()28714734 (PubMedID)
Available from: 2017-08-15 Created: 2017-08-15 Last updated: 2019-01-31Bibliographically approved
Sjöberg, M., Beck, I., Rasmussen, B. H. & Edberg, A.-K. (2017). Being disconnected from life - meanings of existential loneliness as narrated by frail older people. In: : . Paper presented at The 21ST IAGG World Congress of Gerontology & Geriatrics Global Aging and Health: Bridging Science, Policy, and Practice.
Open this publication in new window or tab >>Being disconnected from life - meanings of existential loneliness as narrated by frail older people
2017 (English)Conference paper, Poster (with or without abstract) (Other academic)
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-17135 (URN)
Conference
The 21ST IAGG World Congress of Gerontology & Geriatrics Global Aging and Health: Bridging Science, Policy, and Practice
Available from: 2017-08-28 Created: 2017-08-28 Last updated: 2017-09-05Bibliographically approved
Blomqvist, K. & Beck, I. (2017). Personcentrerade processer. In: Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk (Ed.), Omvårdnad & äldre: (pp. 73-87). Lund: Studentlitteratur
Open this publication in new window or tab >>Personcentrerade processer
2017 (Swedish)In: Omvårdnad & äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 73-87Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur, 2017
National Category
Nursing
Identifiers
urn:nbn:se:hkr:diva-17271 (URN)978-91-44-10279-5 (ISBN)
Available from: 2017-09-18 Created: 2017-09-18 Last updated: 2017-09-18Bibliographically approved
Beck, I. & Blomqvist, K. (2017). Teori och modeller som stöd för personcentrerade möten. In: Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk (Ed.), Omvårdnad & Äldre: (pp. 49-60). Lund: Studentlitteratur
Open this publication in new window or tab >>Teori och modeller som stöd för personcentrerade möten
2017 (Swedish)In: Omvårdnad & Äldre / [ed] Kerstin Blomqvist, Anna-Karin Edberg, Marie Ernsth Bravell, Helle Wijk, Lund: Studentlitteratur, 2017, p. 49-60Chapter in book (Other academic)
Place, publisher, year, edition, pages
Lund: Studentlitteratur, 2017
National Category
Nursing
Identifiers
urn:nbn:se:hkr:diva-17264 (URN)978-91-44-10279-5 (ISBN)
Available from: 2017-09-14 Created: 2017-09-14 Last updated: 2017-09-14Bibliographically approved
Beck, I., Olsson Möller, U., Malmström, M., Klarare, A., Samuelsson, H., Lundh Hagelin, C., . . . Fürst, C. J. (2017). Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff. BMC Palliative Care, 16(1), Article ID 49.
Open this publication in new window or tab >>Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff
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2017 (English)In: BMC Palliative Care, ISSN 1472-684X, E-ISSN 1472-684X, Vol. 16, no 1, article id 49Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context.

METHODS: Swedish versions of IPOS Patient and IPOS Staff were developed and culturally adapted using recommended guidelines including cognitive interviews with patients (n = 13) and staff (n = 15) from different care contexts including general and specialised palliative care.

RESULTS: The comprehension and judgement difficulties identified in the pre-final patient and staff versions were successfully solved during the cognitive interviewing process. IPOS was well accepted by both patients and staff, none of the questions were experienced as inappropriate, and all questions were judged important.

CONCLUSIONS: In this study, we translated and culturally adapted the patient and staff versions of IPOS, and demonstrated face and content validity and acceptability of the scale through cognitive interviewing with patients and staff within residential care facility, surgical and specialised palliative home care units. Cognitive interviewing in parallel with patients and staff in rounds, with tentative analysis in between, was a suitable method for identifying and solving challenges with comprehension and evaluation in the pre-final version of IPOS. The Swedish IPOS is now available for use in a variety of clinical care settings.

Keywords
Cognitive interviewing, IPOS, Outcome measurement, Palliative care, Patient-reported outcome measures, Validity
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-17263 (URN)10.1186/s12904-017-0232-x (DOI)000410356000001 ()28893215 (PubMedID)
Available from: 2017-09-14 Created: 2017-09-14 Last updated: 2017-11-29Bibliographically approved
Beck, I. (2016). IPOS - meningsfull skattning av palliativa vårdbehov. In: : . Paper presented at Fjärde Nationella konferensen i Palliativvård.
Open this publication in new window or tab >>IPOS - meningsfull skattning av palliativa vårdbehov
2016 (Swedish)Conference paper, Oral presentation only (Other academic)
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-17457 (URN)
Conference
Fjärde Nationella konferensen i Palliativvård
Available from: 2017-10-13 Created: 2017-10-13 Last updated: 2017-10-16Bibliographically approved
Beck, I. (2016). Palliativ vård efter kurativt syftande kirurgi på grund av matstrupscancer. In: : . Paper presented at Fjärde Nationella konferensen i Palliativ vård.
Open this publication in new window or tab >>Palliativ vård efter kurativt syftande kirurgi på grund av matstrupscancer
2016 (Swedish)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-17458 (URN)
Conference
Fjärde Nationella konferensen i Palliativ vård
Available from: 2017-10-13 Created: 2017-10-13 Last updated: 2017-10-16Bibliographically approved
Björck, M., Nilsson, I. & Beck, I. (2016). Sjuksköterskans stöd till hemtjänstpersonal i samband med vård i livets slutskede: ur ett sjuksköterskeperspektiv. Kristianstad: Kristianstad University Press
Open this publication in new window or tab >>Sjuksköterskans stöd till hemtjänstpersonal i samband med vård i livets slutskede: ur ett sjuksköterskeperspektiv
2016 (Swedish)Report (Other academic)
Abstract [sv]

Äldre personer i ordinärt boende som befinner sig i livets slut har behov av palliativvård för att ges förutsättningar att leva med värdighet och välbefinnande. Hemtjänstpersonal är undersköterskor och vårdbiträde som till stora delar utförden praktiska omvårdanden vid vård i livets slut till äldre personer i ordinärt boende. Sjuksköterskan är ytterst ansvarig för att den äldre får den vård som behövs och har därmed också ett ansvar att ge personalen det stöd som behövs för god palliativvård. Syftet var att beskriva sjuksköterskors erfarenheter av att vara ett stöd till hemtjänstpersonal i samband med allmän palliativ vård till äldre personer i livets slutskede. Datainsamlingen bestod av 19 individuella intervjuer som analyserades med kvalitativ innehållsanalys. I resultatet framkom kategorierna; Indirekt stöd och Direkt stöd. Det indirekta stödet handlade om att vara tillgänglig, att samverka med andra professioner och organisationer samt att kommunicera och bekräfta hemtjänstpersonalen. Det direkta stödet handlade om att vara delaktig i det direkta patientarbetet och att ”ta” svåra samtal med närstående. Det framkom att sjuksköterskan alltid upplever sig tillgänglig via telefon för hemtjänstpersonalen i samband med vård i livets slutskede. Något regelbundet strukturerat direkt eller indirekt stöd verkar inte till att förekomma i någon större utsträckning.

Place, publisher, year, edition, pages
Kristianstad: Kristianstad University Press, 2016. p. 32
Series
Forskningsplattformen för Hälsa i samverkan, ISSN 1652-9979 ; 2016:1
Keywords
stöd, äldre, palliativ vård, livets slutskede, hemtjänstpersonal, sjuksköterska, erfarenheter
National Category
Nursing
Identifiers
urn:nbn:se:hkr:diva-16149 (URN)
Available from: 2016-10-11 Created: 2016-10-06 Last updated: 2016-10-20Bibliographically approved
Beck, I., Olsson Möller, U., Malmström, M., Klarare, A., Samuelsson, H., Lundh Hagelin, C., . . . Fürst, C. J. (2016). Translation and cultural adaptation of the integrated palliative care outcome scale for use in Sweden. In: Palliative Medicine: . Paper presented at The 9th World Research Congress of the European Association for Palliative Care, Dublin.
Open this publication in new window or tab >>Translation and cultural adaptation of the integrated palliative care outcome scale for use in Sweden
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2016 (English)In: Palliative Medicine, 2016Conference paper, Poster (with or without abstract) (Other academic)
Abstract [en]

Background: Patient-reported outcome measurements are important for measuring changes in patients’ health over time, evaluating the quality of care given, and improving the quality of care service. The Integrated Palliative care Outcome Scale (IPOS) is one such measure, capturing clinically important physical, psychological, social, and existential aspects of patients’ palliative care needs. When patients are unable to complete the IPOS questionnaire themselves with or without assistance, a staff version is also available.

Aim: To translate and culturally adapt the IPOS Patient and Staff versions for use in the Swedish context.

Method: The process comprised forward and backward translations, cultural adaptation, and expert group reviews. To validate the resulting Swedish version of IPOS, cognitive interviews were conducted with 13 patients and 15 staff from various care contexts.

Preliminary results: The Swedish expert group changed some words and grammar due to minor discrepancies in the back translation process. The participants in the cognitive interviews responded positively overall to the questionnaire. Deteriorating health and not having Swedish as the native language did not cause problems in completing the questionnaire. After the first round of cognitive interviews, problematic questions and answer options were rephrased, and redundant text was deleted.

Conclusion: The Swedish IPOS (Patient and Staff versions) has been validated linguistically and culturally, and is now available for clinical use. The next final step in the validation process will be to test the psychometric performance of the Swedish questionnaires.

National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:hkr:diva-15859 (URN)10.1177/0269216316646056 (DOI)
External cooperation:
Conference
The 9th World Research Congress of the European Association for Palliative Care, Dublin
Available from: 2016-08-31 Created: 2016-08-31 Last updated: 2016-08-31Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-7790-6906

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